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How I Decided to Have Back Surgery

This is my story about having back surgery that went very well.  I think the key for me is that the surgery was done for the right reasons, I had researched my surgeon by talking to other patient’s of his who had the same spinal fusion done, and I had read up on the Internet on some good sites, including www.spine-health.com, to help with my decision to have surgery and help with my expectations.

2 1/2 years ago I was diagnosed with Spondylolisthesis Grade 2.  After many years of pain in my legs now I finally knew why.  I tried just about everything to avoid the surgery. I used a natural anti-inflammatory (Wobenzyme) to keep the inflammation down, I used a rolling pin and rolled my legs everyday to help lessen my leg pain through-out the day.  I also tried numerous therapies.  I read some of the bad stories on message boards on the internet and didn't want anything to do with the surgery.  I really felt that the message boards were discouraging, there wasn’t anything positive regarding the surgery, and everything I read was so disheartening.

I was out to dinner one night and ran into a woman who also had spondylolisthesis. She had surgery to correct the spondylolisthesis 5 years earlier and has had no complications.  She had the same surgeon that I had.

In September of 2007 I finally decided to go ahead with the surgery.  At this point my leg pain was so bad I could not sleep through the night; I would wake up in pain and toss 5 or 6 times per night.  I could not stand for more than a minute, sometimes two. I would have to sit down, and sometimes it didn't matter where I was – my leg pain was nearly unbearable.  I could not stand in a grocery line or at the movies.

The anxiety of spinal fusion surgery was another obstacle.  With surgery, the “What if’s” are horrible.

  • What if I end up in a wheel chair?
  • What if the surgeon slips?
  • What if they fix the wrong thing?
  • And then there is the ultimate" what if I die"? I don't want my children left without a Mother.

Like I said "What if's are terrible!"  I even talked to yet another patient (with the same surgeon) who had the same surgery for spondylolisthesis a few months earlier.  She gave me the extra strength I needed to go ahead with it.

Admission into the hospital on Oct 1, 2007 at 5:30am, now the stressful “sit and wait game” started 5:30AM; the next 2 hours were the longest 2 hours of my life.  Finally they took me into the operating room it was about 7:30am.  I asked how many people get up, change their minds and leave.  And I felt myself float off.

I was out of surgery at 9:30AM and awake at 11:00AM.  By 1:00 I was drinking broth and visiting.  At 1:30 I took my first walk down the hall and stood at the end of the hall.  As I stood there tears filled my eyes, I turned and looked at Tom (who’s arm I held) and remarked “I'm standing and I have no pain”! I was standing there in the middle of the isle, I let go of him and stood there for a few minutes.  This was the first time I stood in one place for more than a minute, possibly 2, without being in horrible pain, and sitting down.  While walking or standing I was always looking for a place to sit because I knew it would not be long before I was forced into sitting down. And I was still standing!  It was like a taste of freedom, being trapped in a body that can't do the things you would like to do is horrible.  I HAD NO PAIN!  I STILL HAVE NO PAIN!

I checked out of the hospital the following morning, once home I began walking a 1/2 mile the first day, 1 mile the second day.  I'm walking 1-3 miles per day.  I have no pain in my legs!! I sleep without pain!! I have truly gotten a part of my life back that I thought was gone.  I hiked a mountain in Utah last week; I'm looking forward to so much now. Thanks to my surgeon.

I am not writing this to encourage surgery.  It’s just that when I was thinking about spinal fusion for my spondylolisthesis I read so much negative stuff on the Internet, I wanted to write to let people know about a positive experience.

Sincerely,

Dawn





Spondy

Fri, 05/16/2008 - 17:08
Darla (not verified)

I wonder if Dawn realizes how much this blog has grown and if she is still doing well. I am still contemplating surgery for my grade I spondylolesthisis. I now know my pars defects are unstable which is why I have cruching in my back everytime I move. My neurosurgeon recommends posterior fusion. I have been taking some time to think about it and will see him again next week. I have had some slight improvement with my water PT but seem to have hit a wall in my recovery. I can function in pain if I take 800mg ibuprofen 3 times a day. I wonder what it is doing to my kidneys and how long I can take it before it tears up my stomach, so I am feeling the need for a more permanent fix. ( I cannot take narcotics while I work at my job as a nurse.) Also I limp when I walk, and I am concerned what other joints I am damaging with my screwed up gait. This is very stressful and scary. Hoping to make a decision before next week. Wish me luck!

Do Not Smoke if you need back surgery!

Thu, 05/01/2008 - 21:37
Cathi (not verified)

This is just an FYI to anyone out there who is contemplating any back surgery - quit smoking! Lots of evidence is now showing that smoking defeats all the patient's and surgeon's best efforts for fusion and laminectomy by decreasing blood flow to the area - so don't have the surgery if you aren't going to quit - it will fail!
I wish someone had told me this years ago with my first back surgery. Now many surgeons will not operate on smokers - but some will, and won't tell you the increased fail rate. Look it up - it is a terrible risk. We all need our crutch, be it pain meds, cigs, or whatever, when we are desperate and in pain; but at least quit before surgury and vow to stop for a minimum of a year or whatever your surgeaon suggests the bone growth with require. Maybe by then you will be a nonsmoker! Good luck :-)

Sacroiliac Belt is Highly Recommended

Thu, 05/01/2008 - 16:01
Bilguun (not verified)

Great story Dawn. To be honest I am not a big fan of "surgery." Surgery is expensive and the results are within 99% range.

A recent research shows that most chiropractic patients started wearing sacroiliac belts (aka SI belt) around their pelvis as it is recommended by most chiropractors across America. By providing the correct balance of resistance and resilience, the sacroiliac belt re-establishes the joint’s normal motion, relieving stress and instability at these weight bearing structures.

There are many good SI Belts out there, but as far as quality, comfort, and prices are considered - Serola Sacroiliac Belt seems to be the best in the market. I'd say it was well worth my $38 investment when I was in severe back pain, which was caused by a sports injury.

Visit their website for more info: http://www.serola.net/product_new_sac_belt.php.

Hope this info is helpful to others. Good Luck!

Surgery

Wed, 04/16/2008 - 07:33
Anonymous (not verified)

I am thinking about surgery and as I said before I was at the Dr.'s office today and mine started in Dec of last year and I have had Sciatia off and on for a few years and the last episode was 5 yrs ago - - did the Chiro thing for 6 weeks and NO RELIEF at all and on Feb 7 th went to my primary dr and he gave me the Neuroton sp and the Hydxro stuff and said to come back in 2 weeks well 2 weeks later we had a ice storm so went the following week - - still HORRIBLE leg pain nothing in the back - - did the MRI that showed a buldging disk at L4, L5 and S1 - - went to the pain dr for the shots aprox 10% relief - - did the myelogram last week and went to the Dr today and he wants to do the spinal fusion - - Ok that looks like 3 month or more to recoup - - I sell jewelry at office buildings and shows and I have 3 days of shows booked till May 8 - - I also work as a Server/ Manager at a restaurant 2 days a week - - just started that - - after listening to my hubby's heart dr I think that I will get another opinion since there is no back pain a little in the butt and the leg from the knee to the ankle and it feels like I am walking on pins from time to time - - the pain had been managable with pain pills muscle relaxors etc but today has really been BAD - - Ok off the computer and back to the heating pad and hope that tomorrow is better - - since I have to work on Thursday - - there have been times that I just said cut the leg off - - I know that is horrible but how much longer - - If anyone has had the micro thing LMK.
COnfused In Illinois - -
Deb
debbi80@charter.net

Surgery

Fri, 05/16/2008 - 20:58
Anonymous (not verified)

I had horrible pain that started 4 years ago out of no where. At first I thought it would just go away. No such luck. I went to two different chiropractors. I couldn't even lay on the table for an adjustment.I kept going for three months in hopes to gain relief from the electodes and moist heat packs. Nothing finally went to an orthopedic. I had a mylogram which showed over grown bone and a bulging disc pinching on the nerve. The surgeon wanted to do fusion surgery right away, which scared me. I wanted to do some research and get onther opinion. After 3 years of getting different opinions, 6 spinal injections, (2 of which worked for several months) the other four were a waste of time and money. The pain became so intense and constant,however,I still
tired to work, visit friends, and go on trips.I made friends and family feel uncomfortable because of my intense pain. Most of the time I would end up having to be carried because I couln't walk. I finnally sceduled surgury they ran more test and found my disc had totally disinigrated. Even the night before surgery I was getting another opinion from a neurosurgeon. I went throught the fusion surgery, in the hospital for 6 days and recovery for three months. It was very hard to go through, however, I would do it again. My low back which never hurt before the surgery now aches which is nothing compared to the debilitating nerve pain in my buttocks and down my leg. I'm still just 5 months out since the surgery so I think in time the ache will go away. I recommend doing something now because it only gets worse!

Responce to Debi

Thu, 05/08/2008 - 23:24
Dr. Sean Feeney M.S.,D.C.,C.M.U.A.,D.A.A.P.M. (not verified)

Debi,

Back pain can be horribly debilitating. The type of pain that one can not fathom without having experienced it.

Obviously, your life becomes a literal "mess". You face a seemingly endless cycle of pain, stress,poor sleep, irritability, depression, strain on relationships, etc.

Accordingly, it is logical to pursue a "solution".

Please understand however that as hard as it may be, your "solution" must be governed by rationale thinking. Speaking with others whom have experienced this and gaining the support of your loved ones is imperative.

I state this because in my opinion, you should attempt to hold off on surgery at this moment. A microdiscectomy/laminectomy would not really be indicated for you, so a fusion would be the most logical surgical entity of choice.

However, there is a big difference between tese types of surgery.

Accordingly, I would really look into an integrative approach to treating you pain.

This would include narcotic pain mangement, rehabilitative therapy, appropriate manipulative therapy, daily hom exercises, a good mattress, proper sleep, proper footwear, avoidance of aggravating activities, being treated for depression if necessary, injections, etc. Try this for 3 months. You will have your ups and downs, but with the loving support of your family and compasionate complimentary physicians, you may be pleasantly surprised with your outcome.

slightly crushed disk

Tue, 04/15/2008 - 03:42
Anonymous (not verified)

hey, i was in a car accident roughly a year ago and unfortunatly slighty crushed one of my upper back disks.(4th one i believe the DR. said it was) All in all it hadent bothered me too much until i started work(Electrician) again and doin some activities like sports, hikes e.t.c. Iam an outdoors and very outgoing person so with my back bothering me I find it hard sometimes to do work and after work activities. Ive been taking some over the counter back pain pills that seem to work quite well. Any other suggestions on my condition?

back surgery

Mon, 04/14/2008 - 07:18
Anonymous (not verified)

i am having back surgey may 6th and i only hope it helps if it does not i have so much pain i think i would be better off dead;

so much pain

Wed, 04/30/2008 - 18:00
Cathi (not verified)

Hey, I know what you mean... I seriously think I would not have lasted much longer before surgery. I had so much pain I pretty much never went below a 4-5 on a 1-10 pain scale even with Fentanyl and other narcotics plus all the shots and treatments under the sun. There are options people should consider before fusion, though - finding a pain specialist that can do some testing to see exactly where the pain is coming from - like discography & facet joint injections [usually this is an anesthesiologist] - check with your surgeon. Sometimes they find it is something that needs a more minor procedure, like burning out the pain nerve; and if surgery is needed, at least you know exactly what disk is causing the pain.Another thig to consider is some of the newer antidepressents are specific to pain and help relieve it as well as replenish the neurotransmitters you are using up to fight the pain. Pain uses up all the 'feelgood' chemicals in your brain, one reason it is so depressing![really].You don't say what surgery you are having, but if it is fusion, prepare for a long recovery - but much less pain! Don't give up, please. I hung on for 20+ years and am finally getting relief. I know it seems hopeless, but you are NOT alone.
Post agin and let us know how you are after the 6th - and GOOD LUCK!
Cathi

Me Maybe

Wed, 04/16/2008 - 07:11
Anonymous (not verified)

I went to the neuro Dr today and then hubby went to his heart Dr and I told him about my surgery and he said that fusion was really drastic for leg pain now he want's me to get a second opinion - -
More confused than ever

Spondy

Mon, 03/24/2008 - 06:15
Darla (not verified)

It is good to hear some positive outcomes of back surgery. It seems I always hear once you have one you'll end up with many. I have a grade I anterolisthesis L4 over L5 with bilateral pars defects and an annular disc tear. I always had back pain off and on over the past 20+ years, but was diagnosed about 18 months ago after I started having hip and leg pain. I have had 3 epidural steroid injections with about 2 months of relief each, having my 4th this week. My symptoms switched legs and become unbearable the past 6 weeks. I have taken time off of my job as a nurse without improvement. I am doing water PT, which seems to relax the spasms a little. My back creeks and cracks with any little movement I make. I have tried 2 chiropractors (multiple visits each) without any success. In fact they both gave up before I did. I will see a surgeon in 2 weeks for the second time. The first time he of course wanted me to loose 60 pounds and then consider anterior fusion. Dawn I am curious what type of fusion you had? anterior, posterior, minimally invasion, or? Anterior seems like an over invasive old technique to me. I can't stand the thought of having my great vessels moved out of the way to get to my spine. I can be fairly comfortable sitting or lying, but never standing. I limp with every step and feel like my left leg is suddenly shorter than my right. This problem is impairing my ability to do my job as a nurse and thus support my kids, I am a single mom as well. Any suggestions?

Whoa

Wed, 03/19/2008 - 02:47
Hurting 2 (not verified)

I've resisted surgery, I have a herniated disk but I could see on the MRI (and surgeon confirmed) that there are other "weaknesses", and pain occurs in other spots. I imagine that even if surgery might help on that one, it's just a matter of time until something else gives. So my reasoning is that since I can live on MSContin and Tiger Balm patches, and my doctor thinks MS is OK, I'll leave it at that. The occasional epidural steroid seemed to help no more than the patches, so I'm avoiding these injections too now. Highly recommend those big Tiger Balm patches, have no idea why but they help. Would be interested to hear actual outcomes of the people talking about "tomorrow they cut". Best wishes and hugs to everyone here.

Whoa

Fri, 03/21/2008 - 18:12
Cathi (not verified)

Hey, I totally agree - as long as you can manage your pain and live a decent life, avoid the knife! It's when you can no longer work or play, even with pain meds and PT, injections and whatever else you try, that it is time to go for surgery. Stick with the MS - and whatever else works.
I haven't used Tiger Balm patches, but love, love, love lidocaine patches - and I don't know why they would help either.Thanks for the support and good luck !

need some pain pills for severe back and neck pain

Mon, 04/14/2008 - 06:49
Anonymouslavernecantwell (not verified)

please give me some relieve from this painf

pain pills

Mon, 04/14/2008 - 07:35
Anonymouslavernecantwell (not verified)

need pain medication badC

Need empathy

Tue, 03/18/2008 - 16:10
Cathi (not verified)

I am searching for others out there in the blogoshere who have struggled with chronic pain and are having or contemplatings fusion. I have had moderate pain for over 20 years and severe pain for almost a year despite fentanyl and other meds, p.t., epidurals, etc, etc. I don't know anyone else who has this issue and my husband "can't imagine and doesn't care to try". :-(
My 2-level lumbar fusion surgery is sceduled for 3/31/08 and I am excited at the prospect of getting a life! Meanwhile, I can't work, can't sit or stand for long, can't walk far, and so I am going CRAZY! I could use some moral support and some ideas, too.
Thanks, Cathi

i need some pain pills

Mon, 04/14/2008 - 06:55
Anonymouslavernecantwell (not verified)

i have so much pain i think sometime i dont want to liveH

pain pills

Mon, 04/14/2008 - 07:24
Anonymous (not verified)

i need some pain medication

back pain

Mon, 04/14/2008 - 07:28
Anonymous (not verified)

i have so much pain i wonder if i want to live like this

i too have this problem

Wed, 04/09/2008 - 18:30
angie (not verified)

hi i was wondering how you are doing since your surgery 3-31-08? i hope you are better. or at least getting better with each passing day. i have had back surgery 2 times and are contemplating a fusion. it sounds like your husband is not as much of a support system as you would like. i pray that you have help after your surgery. i know i did too much after both of mine. please let me know how you are doing. good luck and god bless.
angie

years of pain

Thu, 04/03/2008 - 01:04
Debbie (not verified)

Cathi
I had a spinal fusion on 3-24, and discharged from the hospital on 3-27 (happy birthday to me). I really felt like I was going home too soon. The pain was unimaginable post op. Luckily, with a little help from my friends, they did their best to keep me snowed for a few hours. Working in surgery pays off sometimes. My surgeon was heard saying, "I don't know how she was able to wait so long." It was easy to wait, I'm a single parent. The worst part for me has been the pain that shoots from my butt to my feet. Medications were started for this and then readjusted because of other issues. My family doctor told me to be sure I told EVERYONE who was helping me get up that I am a "fainter." Which is part of why meds. were changed. Low Potassium and Hgb were a big issue.
Overall, I feel a lot better than I did a week ago. I hope to NEVER have to go through it again. I didn't want to do it this time. But, I didn't want to be in a wheelchair either.
It's hard for anyone who doesn't have pain to imagine the amount of pain we are in. My ex-husband didn't care-plain & simple! He was all about him.
Be sure to walk when they tell you to. It helps to stretch the tendons & muscles, as well as the nerves. Unfortunately, the weather here has been crap. But, I did get a massage from the butt down this morning. Getting another one on Sunday. My surgeon called me yesterday to have me increase the Neurontin. When I asked, he saw no reason I couldn't get a massage.
Hope all goes well for you.
Deb

your surgery

Wed, 04/30/2008 - 12:47
Debbie B. (not verified)

Cathi--just wondering how you were doing since your surgery now that we over a month post op. I'm thinking you were a week behind me. I'm having pain in my right lower leg & foot that I didn't have before surgery. I'm hoping it's temporary. Isn't it great being a patient where you work?!
Let me know how you are doing.
Deb

reply to Debbie

Wed, 04/30/2008 - 18:12
Cathi (not verified)

Debbie, thanks for your concern. At one month post laminectomy and two - level fusion I am walking 1 - 2 miles a day and trying to figure out how to do chores. I have some bad hip /leg pain at night especially that I did not hove before and my left foot and leg are numb/tingly after walking [very irritating]. The pain is much reduced compared to pre-op, but I am still out of the flow of things and getting very frustrated. No PT yet; haven't even seen my Doc for post-op yet! [May 5th]. I worry constantly about whether some activity is hurting the new bone, especially when it hurts in that area.
I was surprised at how little it mattered being a patient where I work [different department, though]. I didn't get particuraly good treatment and worry about the safety of patient on that floor! With a temp of 104 and B/P of 60/40, the staff could not think of anything to do except reduce my pain meds..... I was glad to be home on day 3. Progressing, but slowly. Thank you for the lifeline - this is very therapeutic!

post op care

Fri, 05/02/2008 - 17:17
Debbie B. (not verified)

I'm with you on worrying about patients post op. My care was only good in surgery & recovery. Once I was up on the floor, things changed drastically! One eve. I got flipped onto my back because the nurse I had a that time didn't like my BP of 79/46. I went to Ball State in the 80's. We were taught to check your patient first. I think that's also be part of ACLS. If she had looked at me, she would have noticed I was awake looking at her. It hurt like hell, and she did then get a SBP of 110. She was happy,I was in pain, again. It was the first time I had been comfortable since I had checked in for surgery. My SBP only runs at 100 on a good day. My surgeon said he's one of the few who sees patients at 2 weeks post op. I see him again on May 8.

post-op update

Wed, 04/09/2008 - 19:37
Cathi (not verified)

Debbie and all, thanks so much for your support! I am now 1 week post op and feel much better than I did a week before surgery!I had some problems with pain in hospital, although the doctor had written for plenty of pain meds there were still so,e old-fashioned nurses and aides who would say "just relax and breathe through it". Right! I had one nurse tell me straight up that unless I had someone with me all night she would not take out my urinary catheter [even tho it was causing a 104 fever] because she "didin't have time" to attend to my toileting needs. The saddest thing is, I am a nurse in that hosptal and I was still treated like a burden. When I developed a fever and persisitent low B/P of 60/40, couldn't get the systolic up to 90, they cut the MS in half without considering any other options. That was a bad night! If my daughter hadn't been there to advocate for my I don't know when they would have thought that maybe I needed blood ... which I did and after 2 units I was fine. I was ready to go home as soon as they would let me, though - and my hubby has been great! He stayed home the first 4 days and still calls to check on me and does the cooking, etc.
At this point I have mostly incisional pain but I get tired easily. I am determined to follow all the rules for a strong fusion - the original pain is already gone and only some leg pain from the areas they manipulated is occasionally a problem. I hope everyone's journey works out as well as mine has so far ...
Cathi

Hi Cathi: I'm glad to hear

Sun, 03/23/2008 - 22:45
Tamara (not verified)

Hi Cathi:

I'm glad to hear that your long journey of pain may be coming to an end. While I have no answers, I can emphathize. I have had severe sciatica for 9 weeks. I had it off and on for a few years prior. It had never been debilitating--just annoying. But now it is debilitation. I also cannot work, sit, or stand. My chiro says I do not need surgery. She's very optimistic. But I don't think she gets how life limiting this can be. I try to be positive, pray, read my Bible, talk to my friends, but I'm often very down. I'm awaiting an MRI on Tuesday.

I pray that you get wonderful results with your surgery.

to tamara - my opinion

Sun, 04/13/2008 - 00:32
Cathi (not verified)

Tamara, I really can empathize with your pain - I also had so much pain for so many years it became a routine. I feel bad now that my kids had to grow up hearing "Mommy's not feeling good" so much of their lives - but on the other hand, they saw me still go to school and work, etc, and can sympathize with people in pain. I am so glad to find that I am NOT having nrearly as much pain post -op as I was pre - op! There really is hope in some cases; especially with collapsed discs and DDD. It sounds to me like you may have a bad herniation, which now can be repaired with a very minimally invasive method and almost no recovery time ... I would see a neurosurgeon for an opinion, because a chiropracter will almost never reccommend surgery they can't do, and tend to be anti - surgery. I hope your MRI is clear and shows the problem - don't wait until you get numbness in your legs or feet - that doesn't always go away!Good luck - feel free to email me at cathicollingsrncmsn@gmail.com
anytime.

Spine fusion

Sat, 03/22/2008 - 23:44
Tara (not verified)

I had my spine fused in 2000. All the way down and pretty far to the top, I never got numbers from anyone. Ask away, I am willing to talk. But, I think they do things a little different now, but still...ask away.

I do have some advice, silky gowns, so you can slide around and in & out of bed. I had to wear the turtle shell afterwards and so buy some mens T-shorts the kind they call "wife beaters" you know what I mean? I wore them underneath the shell and my tops fit over the shell.
How big of a surgery are you having?

I saw you post about your hubby not understanding. I suffered in silence for years, I was over wieght and if I complained about my back or leg, I had lots of leg pain, then I would get, well you need to diet and exercise. Well I was at the point of coming home from work and going straight to bed, hubby said later, I thought you were just getting lazy. I never was before but you know...I would not talk to the doc about it cause I figured he would say loose wieght. I suffered years...
It was discovered accidently during a routine exam. I had scoliosis with a 46` bend in NOv 1999, By surgery time Feb 2002 it was a 52, so it was moving quickly. So what else can I tell you?
Tara

Fusion

Sat, 03/22/2008 - 23:47
Tara (not verified)

Feel free to email me at
taralynn7@madisontelco.com

Contemplating surgery

Thu, 03/13/2008 - 16:07
Anonymous (not verified)

I have no disk at L5 S1. L4 L5 has bulging and a tear on the outer annulus plus some slippage. I've done ALL PT, meds, chiro, epidurals, ice, heat, now going to try accupunture, you name it. I've had 2 other surgeries on L5 S1 to remove herniations. That helped wonderful but now that disk is gone due to DDD. I saw an orthopedic surgeon and his suggestion was, fusion at L5 S1, and use the Dynamic Stabilization Device at L4 L5. I'm soooo scared of post pain and if I'm ready or not for all this. My pain management doc is going to take me off hydrocodone which is the only thing that will keep me moving. I cant shop anymore and barely do my own housework. Any adivice is appreciated!

contemplating surgery

Sun, 03/16/2008 - 17:20
Cathi (not verified)

To anonymous - I have almost the same problems - no disc left at L5-S1 and a tear with intermittent herniation at L4/5. Lots of pain! I had a previous laminaectomy 20 years ago at L5/S1, bu have had chronic pain since.My spine is now so unstable and the pain so debilitating that I do not lead a normal life - reduced hours at work, less social life,etc. This is despite Fentanyl patches and other pain pills as well as PT, exercise, and all the rest. This is the appropriate time, IMHO, to seek surgery - so I am having a fusion on 3/31 [yay]. If your quality of life is as bad as you say, go for it! The post -op pain will probably not be that much worse than what you have now - and, most important - it will go away! Do your research and have someone as an advocate for you in hospital so you get enough pain meds [you probly have high tolerance]. Life can get better - I am betting on it!!
Please reply....

Upcoming back surgery

Mon, 04/07/2008 - 17:02
Mari (not verified)

Hey there, I just read your post. I'm having a difficult time navigating with this forum. I'm not very savvy when it comes time to these things. So excuse me.
Anyway, I decided to go for the surgery. Its scheduled April 23rd. I've had the pre op and what the surgeon is going to do is a full fusion at L5 S1. With that a solid rod. Then he has to re-align L4 L5 and he will insert a new device called the Dynamic Stabilization Rod. It will allow some movement at that level. My disk at that level is fairly good. I found out this surgeon was the inventor of this new device. It has been used now for about 5 years with good results. So I'm happy, I'm scared about the recovery. I do have a question for you. I will be returning to work in 6 weeks, still wearing the solid back brace. What does a person wear over this thing to try conceal it?
Mari

Mari - how are you?

Wed, 04/30/2008 - 18:19
Cathi (not verified)

Hi, Mari - I wondered how you are doing post - op, if you can tell how your pain is? Also, I wondered about the back brace; everyone else seems to be using them, and while I don't want to, I wonder if I should... how uncomfortable is it and what is the exact purpose - to prevent you from accidently bending? Also, how are you going to work at 6 weeks? You still shouldn't sit for more than 30 minutes, so be careful....
keep us updated.
Cathi

i am having back surgery may 5th i hope it does some good

Mon, 04/14/2008 - 07:06
Anonymouslaverne cantwell (not verified)

if this sugery doesn't help i don't what else to do i am in so much pain i don't know if i want to live with this much pain

Laverne C

Wed, 04/30/2008 - 18:23
Cathi (not verified)

Good luck with your surgery. I hope it helps with the pain - you don't say what location of pain or type of surgery, so it is hard to know. At least it is not likely to be worse! Please tell your surgeon how desperate you feel and get some pain counseling, too. You are too close to the edge and this is a long recovery period that can be very isolating and depressing; especially when it strats hurting again [even if it is temporary it feels like the end of the world]. Please keep writing - we are all in the same boat here....

Back surgery

Wed, 03/12/2008 - 04:00
Nancy (not verified)

Hi. It is so good to read all you have written, all of you. I am a nurse, and herniated L5S1 lifting a pt. Been off work 8 months, going crazy at home. Back and leg pain is unreal. I have a new respect for my patients with back pain!!!! Tried PT, and injections. Injections for me made my pain much worse, I only had 2, refused the 3rd. I am having surgery tomorrow morning.......nervous wreck tonight. But all of you encourage me. Dawn, you have a wonderful story.....I can only hope to have such a great outcome.

How was the surgery?

Sat, 03/22/2008 - 12:14
Greg S (not verified)

Nancy,

Your symptoms and treatments sound EXACTLY what I am going through now. I am really considering the surgery. How was it? I mainly want to know if it worked, and how long after the surgery were you on your feet, walking? Did the pain go away completely? Can you exercise and move around now?

I hope to hear from you. As you know, this is ruling my life!

Thanks
Greg

Surgery

Mon, 03/10/2008 - 19:52
Latisha Taylor (not verified)

well you can call me Nicky my surgery is scheduled for tomorrow and i am so scared ive heard like you Dawn mostly bad things my parents pastors wife has had several back surgeries and nothing so far has seemed to help her ive head some good and some bad but mostly bad and i am scared out of my mind i am young im 26 and a single mother my daughter jus turned 5 last month and i currently live with my parents i was told that i would be in the hospital 3-4 days i am so scared i dont know what to do and what makes it so bad the time for my surgery isnt scheduled i have to call the hospital tonight to see what time i have to be in tomorrow im glad to hear that someone has had surgery that went well i just hope mine will be also

Dawn's back surgery.

Fri, 03/07/2008 - 02:51
Debbie (not verified)

Dawn, much like you, I have had pain for years. I've known for numerous years I would eventually be having back surgery. However, I don't want it. But, I did schedule it today for 3-24-08 @ 11:30am. I'm dreading it. I have always heard people talk about what a mistake they made having the surgery. I'm not really sure what my biggest fear is. I'll be 42 on the 27th & I'm now a single parent to 2 wonderful little girls age 7 & 10. I have no family in town & I don't have short term disability (due to a major to do with HR) Here's the best part, I am a surgical nurse. I've been getting epidurals for over 6 years now. My last one was 2-4-08. I had to have help getting on the OR table. I've had many a doctor throw a major fit & me stand my ground. Never have I had one put me in tears, by being sweet. He told me I was out of time, that I had to have surgery soon. I've tried to mentally prepare for the post op pain, I know all about the recovery room & what back patients go through in there. The majority of patients don't remember the initial pain when they wake up. Which is wonderful for them. I have never had a surgery go without problems. My last surgery went ok, but my husband was filing for divorce while I was in the operating room. If something goes wrong & I end up paralyzed, my ex will go after the kids, even though he didn't want them in the first place. I don't know what I would do without them. I realize accidents happen. And my back is worse than it was a few years ago. L5 is now displaced 12 mm. The disc is now history. My newest diagnosis, as of last week-scoliosis, but only a 6 degree "turn". What happened to life begins at 40? I have hand picked my surgery team & my Anesthesiologist. Why am I so afraid? Does everybody turn in to a "nervous Nellie"? I've had 3 different spine surgeon consultations. They have all said the same thing, for the most part over the last 6-7 years. I know I have to do this. I guess maybe I just feel like I'm doing it alone.
Deb

Dawn's back surgery

Sun, 03/16/2008 - 17:28
Cathi (not verified)

Dawn, I am also an RN - so I know how much we resist advice and what bad patients we can be! It is important, as I am sure you know, to go into surgery with a positive attitude. It's very unlikely something will go wrong - you know the stats. I'm just glad there are others out there who understand how this pain eats away at you. I feel like no one understands, because I don't know anyone else who has had this problem personally.I would say, don't wait too long on L5S1 - you could get permanent foot drop. I still have no DTR after 20 years from a total foot drop before I had surgery. It has taken a long time for me to need it again ... hoefully this [fusion] will do the trick! Meanwhile, I would suggest trying some fairly high-dose diazepam with a pilates stretcher machine to release your back. It has worked for me in the past just to get the spasm to stop dislocating all the vertabrae. Good luck!

spinal fusion

Tue, 02/26/2008 - 16:59
Lori (not verified)

Thank you for your story Dawn. I am 49 years old and have had back problems since I was 19. I have DDD and Scoliosis. Dr. Davis from BGHC said I am a candidate for a flexable fusion. I think about this everyday I have more bad days then good but I am still getting but throughout the years it will act up and I am in pain for a long time. I did physical therapy,pain management which turned out to be a nightmare I lost a year of my life. I fear the surgery but I also fear fear waking up not being able to feel my leg and having to go to emergency. any advice wiill help.

Lori's DDD & Scoliosis

Fri, 03/07/2008 - 03:15
Debbie (not verified)

Lori, Is the scoliosis & DDD in the same area? If not, you could be looking @ 2 surgeries. I also have done about everything for the pain. The best thing I ever did for disc problems was the VAX-D. I had 3 bulging disc several years ago. Physical therapy didn't help because different discs hit different nerves & cause different pains & symptoms. I am currently numb between my 1st 2 toes on the right. The neuroforaminal opening is way smaller on the left than the right. The nerves are about to be completely mashed. I don't have pain very often on the left, which doesn't make sense. The numbness is something to be concerned about. The nerve needs to be free from compression, before the numbness becomes permanent. I've lost more than a year of my life with this. I fell in my mid 20's & have known I have a broken bone in my back. Now it is broken in more than one place. I think my 2nd pregnancy finished L5 off. She was about 10 months old when my leg went completely numb. I thought I was going to fall. She was 7 in November. I've made the decision for me, it's time to stop suffering & start living. Waiting doesn't fix anything. I've only suffered since the first Gulf War, you've suffered longer.
Deb

Dawn I am so happy your

Mon, 02/25/2008 - 18:10
Michael Davis (not verified)

Dawn
I am so happy your surgery whent well,it gives me hope that mine will someday get better.

Hi Dawn! Thank you for your

Thu, 01/03/2008 - 05:27
Valerie (not verified)
Hi Dawn! Thank you for your story. I would like to know if you are in or near Los Angeles. I have been told by 3 surgeons that nothing but surgery will correct my severe pain - L5 spondylisthesis unstable, with 2 herniated discs. I am at valsview@gmail.com Thanks!

I've recently decided to do

Wed, 01/02/2008 - 13:44
joe (not verified)
I've recently decided to do something about my chronic back pain... I lean over a piece of furniture that Could be described as an 18 inch cube (similar to leaning face down over a large excercise ball) and feel as though my spine is being elongated. After I've done this for at least a few minutes the pain is unbearable for a while, making it impossible to get up until I slowly move off the furniture. It seems logical that I am decompresing, but I can't be sure if I'm making things worse. This excercise does make my back feel better the next day, but I was expecting the pain to decrease after each excercise routine over the course of a few days... it has not. Please advise on whether this is an effective stretch that is being performed by a guy that has bigger problems. By the way, I am 39 years old and healthy. In fact, I can still swing the golf clubs but only after a warm up.

Dawn, it's such an

Tue, 01/01/2008 - 00:05
Moore (not verified)
Dawn, it's such an encouraging story. I'm happy for you.

Dawn, thank you for sharing

Mon, 12/31/2007 - 12:10
Laurie (not verified)
Dawn, thank you for sharing your experience. I have severe spinal stenosis and anterolisthesis at L$-L5. All the doctors have recommended surgery, but I am very nervous so it was wonderful to hear such a great story. How do you choose your surgeon?

Dawn, I'm happy for you that

Sat, 12/29/2007 - 04:48
Mike (not verified)
Dawn, I'm happy for you that you have had so much success with back surgery. I' have 2 back surgeries, the first was a lamenctomy (sp?) and back fusion with rods and screws in '93. I have a 10" scar on my spine which leads me to believe todays technique must be vastly improved. No surgeon will touch me know, and if it wasn't for morphine and fentanyl, I probably would not be able to get out of bed. The last neurosurgeon that I saw said, I hurt today, and I'll hurt until the day I die. I think we had radically different procedures, as I was in surgery for 5 hours. I'm happy for you to have had such a successful back surgery. Many are not that fortunate. Best of luck to you.... Mike

This is great. It sounds

Fri, 12/28/2007 - 22:52
Dr. Eben Davis (not verified)
This is great. It sounds like your doctor is good. And, it sounds like you had thae right attitude going in. Good Job

HI DAWN, I AM DUE FOR A

Fri, 12/28/2007 - 21:43
PAUL (not verified)
HI DAWN, I AM DUE FOR A PARTH(SP)? INJECTION ON 12/31 AND THEN POSSIBLY EPIDURAL SHOTS AFTER BUT I DEEP DOWN FEEL THAT I WILL HAVE SURGERY. I HOPE MINE GOES AS WELL. PAUL

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