Back Surgery and Neck Surgery
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HeidiLynnM's picture
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Awful leg pain along with back pain

Hello everyone Wave . My name is Heidi, and I have posted a few times here and there. I am just wondering if those of you that had/have a herniated disk in your back have severe leg pain? I have this problem in BOTH of my legs. I get this pain all the way down from my hips to my feet.

I also have back pain always on the left side. I got hurt at work 2 years ago, and have tried everything there is to try to get better. My last resort was the IDET, and it didn't work Sad. I am in the process of trying to get a new mri to see a neurosergon(my mri is 2 years old, and they need a new one).

I am dealing with workmens comp with this. The pain is just getting worse, I really didn't want surgery, but I just cant stand feeling this way anymore. I have tried everything that there is to try without surgery. What does this leg pain mean? Why on both sides? I am asking because I havent been able to see a surgeon yet.

I am in the process now. There are days that my legs are so weak from the pain that I feel like they are going to give out Crying . So, I am wondering from anyones experience what they think, and is there hope for me? I can't take the narcotics a lot of the time because they knock me for the wind. I do use lidocane patches (they only stay stuck to me for 2-3 hours), tramadol, and percocet mostly when I just can't take it anymore(almost there).

I hope that there is a way to get rid of some of this pain, I swear that my legs have ran a marathon, and they haven't even walked that far! At Wits End .

The back pain is also getting worse as I said, I am also getting a lot of pain now in my butt, a deep pain below where my back pain is.
Okay, I will stop now. Thanks for reading!!!!!!!

Heidi

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Heidi
29 y.o, Married to Brian (has had a fusion, same area where I need one), mom to 3 kiddo's
L5 S1 herniation,tear, and ddd. Severe leg pain down both legs, numbness to feet.
Work injury, waiting on permission for plif to be done.
"Lord keep me strong"

User offline. Last seen 1 year 4 weeks ago. Offline
Joined: 08/28/2008
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Points: 6
I understand!!

Hey Heidi I read your post I understand how you feel!! There is nothing worse than being in pain and trying to someone to listen. If I can ask how did you hurt your back?
I did not have a disk herinated disk I broke 3 vertebae in my back 10 years ago they put in 2 rods but I reinjured my back 6 weeks ago falling down the stairs. My pain is the left hand side of my back, my right hip and down my whole right leg. Luckily its only 1 leg so I can even imagine how you feel. I wanted you to no your not alone if you want to talk or SCREAM. I am at the end of my rope the pain is draining I am waiting to have surgery to the rods out, but my doc says that the leg and hip pain might be something else completely but I have to do something. You dont have a neuro doc yet?? Have you had surgery or you still on the long road of TREATMENTS?? You can email me at Shefairmom@aol.com anything I can do let me no I have learned alot about this stuff, my brother is on Workers comp for hurting his back and I no they can be hell to deal with. I hope you get some relief soon.. Angel Big Hug
Cathy

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Catherine Penn

HeidiLynnM's picture
User offline. Last seen 20 weeks 5 days ago. Offline
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thanks for responding!

I just needed to see if anyone else out there that is getting surgery or had surgery has the same symptoms as I do?! Yes, work comp is horrible, I havent had surgery yet. Thanks so much for writing back to me. I hope that you start to feel better soon also!!!! How did you hurt your back? I hurt mine while lifting a resident as a cna. Crying

_____________

Heidi
29 y.o, Married to Brian (has had a fusion, same area where I need one), mom to 3 kiddo's
L5 S1 herniation,tear, and ddd. Severe leg pain down both legs, numbness to feet.
Work injury, waiting on permission for plif to be done.
"Lord keep me strong"

HaylieCatOwner's picture
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Joined: 09/08/2008
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Points: 248
Heidi

I understand how you must feel with the mystery pain that is so intense. I lived like that for several weeks when my hip and leg pain came out of the blue. My doctor told me it was likely sciatica and gave me a steriod pack to take and put me on pain pills. It wasn't until they saw the MRI that they realized how bad the disk was pushing on the nerve. There was no other option for me besides a microdisectomy.

In your case, it could be several possible things, and I would hate for you to worry about each one of them. How soon can you get the MRI done? Once you have the results, don't hesitate to send them to your NS to see if he can work you in. In other words, you don't always have to put up with the NS appointment the receptionist gives you. Make sure you get the MRI in front of the NS asap and ask to be worked in.

Do you have any pain in your butt, like to one side or the other? I had it in my right hip, my right butt, and shooting down my right leg. Have you ever had a charlie-horse in your neck from sleeping wrong? That is the pain I had in my hip and leg. I also had muscle spasms. The pain I had made it impossible for me to sit or stand. It was that intense.

I hate that you are delayed by workers comp. Would scheduling an MRI without going through workers comp hurt the WC claim? It might be worthwhile to pay for it yourself if it would speed things up. (Just an idea). Also, I am curious if anyone knows if going to the ER would speed things up? If a person is in intense pain, will the ER schedule an MRI immediately? Will they get a NS involved more quickly? I wondered about this in my case where it took so darn long to get the MRI and the surgery scheduled.

If you have it down both legs, it may be more than one disk that is affected, but again, please don't worry until you know for sure. Try everything you can to get in to the MRI and NS, but otherwise focus your thoughts on something else. Easier said than done, I know, but it's better for you in the long run if you don't worry yourself. Save your emotional strength so you'll be prepared if you have to have surgery. If it's a herniated disk or two, the good news is surgery like the microdisectomy will have you walking with 90% less pain as soon as it's done. By far, the hardest part is the pain and waiting before surgery.

Hang in there!

Hugs, Big Hug
Haylie

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I'm a single 40 year old attorney who felt completely fine, no pain at all whatsoever, on Sunday, August 10, 2008. But then everything changed out of the blue the next day. I woke up and realized my rear end was hurting, more on the right side and also had pain in my right hip, and shooting pain in my leg. My doctor had me get an MRI, and when the results came back, he said that I had to have surgery or I would be in the same (painful, unable to move) position for the rest of my life. When I found a NS to see me, he said no options but surgery because of the seriousness of the protrusion of the disc (1 cm) on the sciatic nerve. A week later, on 9-5-2008, I had microdiscectomy surgery on the L5, S1. I'm still trying to wrap my mind on what happened and how I got here.
Update: A year after the surgery, and I still have periods of intense pain. I found out last March (thanks to another MRI) that the NS left in a disk fragment, and it is now pressing on the nerve. He says the surgery to remove it will take a long time to recover from because the location of it will require moving and stretching the nerve. So he wants to wait until it's absolutely necessary. I get to live with this and avoid bending or lifting.

TerriJV's picture
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Heidi

Hi hun,
I read your story last night and it was to late for me to answer. So here I am!! Wave
Of course as you already know we cannot give you medical adivce only personal experiences.

BINGO!!! I have had this for over a year now. It has progressed.
I have had 3 spine surgeries. And one on hold at the T1 area.

I just had my 4wk post op checkup.
He said if my leg pain was my back thoracic area it would be causing weakness/paralisis.
Your pain your describing sounds exactly like mine.
BUT before I get into alot, can you tell me is it sharp/dull/numbing/tingling etc????

When I start of walking no matter if in the house or outside, my ankles start to feel twisted. Then the pain travel up to my hips. Of course low back pain assoicated with it.
Feels like walking on twisted ankles and dislocated hips the pain is so severe it takes my breath away.
So I pretty much stick to inside.
Just even going from the kitchen to the bathroom to upstairs I feel like a 5K run has been done. My legs feel like complete charlie horses and I have to lay or sit wherever is closest before I collapse.
Feels like a rope is being tied around me tighter and tighter.
Then after a few mintues of rest like say 15 it starts to subside. BUT IT HURTS LIKE THE DICKENS. Sometimes it feels like the nerves on the outside of my legs are being stretched to the MAX. but other times it feels like the whole leg (both) its never just one.

Now I will be posting later today. I am going to the heart dr. They are going to run tests for PAD and PVD.
To see if it a circulation problem etc.

If its not that, we are back at square one for another cervical MRI with dye and a brain MRI.

You hang in there. If this is anything like mine I know what your talking about. And not one pain med helps while walking.
So I just keep on stretching and going up and down the stairs all day long. To prevent blood clots.

So if you could tell me a bit more that would be awesome.
I won't see it till this afternoon as I have to leave for the heart dr THANKGOD I just want some answers. I do not want it to be this, but if it is at least we will know and meds can be started. Which I guess take 3 months or more to start working. UGHHH.

Ok enough of me. Tell me a bit more about your pain. Wink

Terri
Angel Angel Angel Angel Angel

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**ALL ADVICE GIVEN IS STRICTLY PERSONAL AND NOT MEDICAL** 41yr old mom 3 kids Married 21 years.Former EMT-D, Firefighter, CNA, LPN nursing student.
2 C-sections 86/89
R kidney removal 02,
Cervical fusion 5/6 04,
Right lumbar hernia repair 05 (rare)
IBS, Osteo Arthritis, Fibro, Chronic kidney stones.
L5/S1 fusion w/ hardware own bone graft 9/2007
Proximal row carpectomy (3 bones removed out of wrist)08
T1-T2 large herniation with severe thecal sac compression. mild cord compression
9/17/08 Revision for non-fusion of lumbar L4-S1. Still sore. Angiogram 11/08,
11/24/08 Aortic Bi-Fem bypass surgery through the belly&thighs due to MIN. circulation in both legs, 90% blockage in left valve in my belly Sad Very sore.(IT WORKED!)Its not easy but ya HAVE to keep going or it will get to you first :)Former meds used: Oxycontin, Morphine, Fentynl patches, Methadone, Lortab, Ultram, Sklexin, Flexril, Norflex, Percocet, Dilaudid, MS. Contin. Kadian
Current meds: Valium, Soma, Chantix, Plavix May 09 scheduled for, 4 nerve blocks for facet joints cervical 7 & lumbar 3.

itsalongwalk's picture
User offline. Last seen 15 weeks 1 day ago. Offline
Joined: 07/20/2008
Posts: 712
Points: 1456
Stenosis

Hi There,

Have a careful read up on symptoms of stenosis.
Read carefully the stuff on walking up and down hills and relieve when sitting / lying down.
The pain, one or both legs depends on where the and if the disc is herniated and where in the spinal canal it may be blocking/ pushing into.

I am sorry you are feeling so awful and have to wait for WC.
I hopeit all goes away soon!!
Good luck.

_____________

Spondy, DDD, Spondylolysis - Dynesys and S1 PLIF 2007, revision PLIF BMP L4/5 Feb 2008 and revision PLIF September 2008....failed fusion. Lots of pain, unsteady and slowly running out of patience!
Itsalongwalk is Itsabloominlongwalk!

HeidiLynnM's picture
User offline. Last seen 20 weeks 5 days ago. Offline
Joined: 09/16/2008
Posts: 194
Points: 392
will try to explaine

Hmm, I am trying to figure out my leg pain. It is like a dull ache 24/7. I have it in both legs like I said and it goes all down to my toes, the pain begins on the right side from my hip down. The left side, it is from my back that is hurting all the way down. I have this front and back. I used to have the tingly feeling all the time before, but it is not like that all the time now.

I have just started getting muscle spasms in my upper front of my left leg also. The pain in my back is becoming more overwelming, it is like a stabbing, nagging pain. When I had my mri the first time, it just said that I had one herniation. I have also been to see a neuro to rule out a muscle disorder. It often times does feel like my muscles are killing me. Right now as I sit, I have the back pain and the tingling from the bottom part of my left leg to my foot.

It is almost like I have ran and ran and my legs are about to give out, that is how I tend to explain it. I cant sleep on or lay on back flat, that kills me. I am also getting the butt pain on the lower left and lower right. It is like in the middle of one side of the butt cheek, lol.

I am trying to explaine and it is hard to do! It is just getting worse Timeout . I feel like I have put up with this long enough. It is starting to get very old, and I am getting a lot of the newer symptoms now.

I know that you guys cant give medical advice, but I am just here to get ideas, and I am happy to have people to talk to! My pain management doctor said there is nothing more he can do for me and I need to get in to see a neurosergon. UGH Crying

_____________

Heidi
29 y.o, Married to Brian (has had a fusion, same area where I need one), mom to 3 kiddo's
L5 S1 herniation,tear, and ddd. Severe leg pain down both legs, numbness to feet.
Work injury, waiting on permission for plif to be done.
"Lord keep me strong"

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