I cancelled my surgery after talking with my neurosurgeon. He told my husband if I was his daughter, he'd be looking for a way to come up with the money to do the ADR. We are looking at a Dr. in France and the doctors in Germany. Any suggestions out there?
Awaiting 3 level Anterior Lumbar Fusion L3-S1.
Car accident at 15yrs old, percutaneous discetomy at 16yrs (L4-L5)
Reinjure in 2000 L3-S1 bulging and torn
Birth of son in 2008, reinjure L3-S1 to point of leg numbness, lots of pain, unable to lift child at times,
Meds- Cymbalta, Baclofen,Celebrex, Vicodin/or Percocet
I could be incorrect, but I think a member here by the user name striker ( sure hope I got that right ) is also looking into a ADR.
* If I am wrong, please someone correct this post for me
I do know that the member who is looking into this posted such and the thread he posted had a lot of information and some links to more information posted in it.
I assume you can find this thread through a search here.
Sorry I am still pretty new here and don't know my way around the boards really well yet...
Ms. Humpty Dumpty Took a great fall and all the Drs and surgeons could not put her back together again.
After my fall I started to fall apart. L1-L2-L3-L4 - S1 & S2 gone. ( full herniation )Spinal stenosis, spinal arthritis, degenerative disk, scoliosis.
The spacers in your back are gone/going, spinal nerve damage.
Spinal spurs. Both knee caps & both hips have degenerative bone disease, arthritis and bone spurs.
No surgeries as Drs. don't think it will help and may make things worse.
Age 47 - Here to find & offer support.
I think that is who Humpty was talking about. You can type in ADR in the search box at the top of this page and find lots of info there. Good luck.
I am in no way associated with the medical field. Anything that I post comes from personal experience only.
DDD, Facet Arthropathy, DJD,Collapsed Disc, Sleep Apnea
PT, Epidurals, Facet Blocks,Medial Branch Block, Rhizotomy,Discogram,Annular Tare L3/L4 Endoscopic MicroD and PLDD,
Methadone, Percocet, Baclofen, Welbutrin
extensive reading about ADR. The lure of being able to move normally after getting your discs fixed is very enticing, but there have been a few folks on here who went through the expense and agony of an ADR to have it fail and have to revert to a fusion anyway. If they work, I suppose they are grand, but I think I've only seen one person on here who was happy with theirs. Could be the others just don't come by to post any more.
Linda
Ruptured discs L3/4, L4/5, L5/S1 May 2007
One ESI in 2007 with lots of PT
Microdiscectomy and foraminotomy L5/S1 December 2007
Worsening of symptoms (back pain, sciatica, right leg weakness) June 2008
New MRI and Discogram show all three discs torn through the annulus, left to right, all three levels
2 ESIs unsuccessful in managing pain
PT, Duragesic pain patch and percocet for break-through
Was told nothing could be done for me because I had three levels and DDD
Given option of three-level fusion after being told nothing could be done
Surgery was November 19, 2008 fusing L3/4 to S1
Attempted PLIF (from both sides) on November 19th.
Rods and pins were placed, but scar tissues prohibited removal of the old discs.
On November 24th, I had ALIF (opened from top of pubic bone to the bottom of my left ribcage) and removed the torn discs, placed dowels with cadaver bone, and some of my own bone marrow mixed with BMP. I left the hospital on the 26th of November.
Currently suffering temporary (hopefully) nerve damage of both legs and total numbness of right foot. Strange tingling in both feet at 4.5 months out of surgery. Numbness still exists in right foot at almost 9 months out.
Weaned off Fentanyl patches and only take occasional percocet for pain.
Hi I am 37 yrs old and just had ALIF single level L4.L5. I also had the option of fusion or disc. After alot of research I found out that many surgeons don't trust the polypropelene in the artifiical disc to last intact after several years whereas the fusion is tried and tested. On a personal note I have a colleague who had the artifcial disc and is in constant pain. I am only 7 days out from fusion and my back pain is so much better ! I am troubled by new sciatica though and hope its just post op root irritation.
Hope my experience helps
Best of luck
Clio
I in hopes of having a child in the future wanted to opt and had my hopes for the Disc Replacement. I saw a well known Dr at UCSF in San Francisco and he said he didn't recommend the replacement pretty much because of what Clio said. If something went wrong or didn't work it is not so simple to remove and chances of being paralyzed increase. Now that was my case for a L5-S1 level, he said that my area of the back was too far gone and didn't want to take any chances. The fusion has had so much more experience and long-term data and higher percent of success rate. I was disappointed however I didn't want to take any chances. Good Luck and do whatever you and your doctor see is best based on your individual condition.
MRI results as of 02/27/2009 L-5/S-1
The alignment of the lumbar spine is normal in appearance. Narrowing of the L5-S1 disc is seen. Decreased signal is present within this disc on the fast spin echo T2 weighted exam compatible with degeneration desiccation. Fatty endplate changes are seen at the L5-S1 level. Hypertrophic spurring along the vertebral endplates noted. Sagittal images demonstrate the conus medullaris at the T12-L1 level.
At the L4-5 level there is a mild disc bulge somewhat left sided in appearance. Mild narrowing of the left neural foramen is seen. No significat narrowing on the right.
At the L5-S1 level there is posterovertebral osteophytosis with desiccated broad based disc bulge somewhat left sided in appearance. A central and slightly left paracentral disc extrusion is seen overlying the disc bulge. Mild facet hypertrophy is present. Moderate to marked narrowing of the left neural foramen at this level is seen. There are also features of a possible tear of the posterior annulus , greater to the left, in this area.
It's good that you're looking into the ADR - it'll help you make a decision that's right for you.
A few years ago, I asked my pain specialist about ADR, and he said it could only be done for one level - how correct that is now, I don't know.
I used to work with a girl who had it done after she'd had an accident, and it didn't work for her.
Hope you can find a good surgeon in either France or Germany who can help you.
Trish
L4/5 spondylolisthesis with severe left foraminal stenosis compressing L4 nerve root.
Advanced right sided L4/5 and L5/S1 facet joint degenerative change
Discectomy/laminectomy L4/5 April 2008 - didn't help
ALIF L4/5 19th October 2009
Oxycontin 10 - 2 twice a day - stopped taking
Endone 5 mg for breakthrough pain as required
Gabapentin 300 mg - 1 twice a day
Paracetamol - 2 four times a day
Phenergan 25 - 1 as required for nausea
Discs L3/4 and L5/S1 worn - further surgery may be required later on - wait and see situation.
Hi
3 weeks ago I had ADR and it has worked brilliantly....no more back pain like before! Obviously, I am still recovering and if I do too much in the day, I get dull aching around the whole back area, which is relieved with painkillers. Before, I was in agony, so I know the op has worked.
Here, in the UK, there are several doctors that specialise in ADR (My doctor is EDITED) and he is absolutely brilliant. You do need to make sure you find someone who has a strong interest in this type of surgery and I know in France and Germany they have been performing this type of operation for about 17 yrs, whereas in the UK, it is only about 8 yrs.
I chose this surgery as I also have a herniated disc at L3 L4 level (it is causing me no pain though - had a discogram to prove it)and with spinal fusion, this would have put more strain on this area. With ADR, it is the same as having a normal disc, so no pressure on the surround discs.
I would recommend it to anyone, especially knowing several people who have had fusion and are now limited on movement and feel stiff!
Good luck in whatever you choose!
Post Edited by Authority Member haglandc
Names of medical professionals not listed with Spine Health is not authorized
Thanks so much, I've been debating for months and months. I have to go outside of the states and pay cash for the 3 level surgery. At this point I do trust my neurosurgeon. I am selling my car, and our toys to make it happen. I am looking into using the doctor that invented the Pro-Disc, I found him by Facebook. Too funny. Thanks for all of the input.
K
Awaiting 3 level Anterior Lumbar Fusion L3-S1.
Car accident at 15yrs old, percutaneous discetomy at 16yrs (L4-L5)
Reinjure in 2000 L3-S1 bulging and torn
Birth of son in 2008, reinjure L3-S1 to point of leg numbness, lots of pain, unable to lift child at times,
Meds- Cymbalta, Baclofen,Celebrex, Vicodin/or Percocet
Hi Kendrak
That's a good positive post from sgm6670 and this will give you confidence to go ahead with the ADR. It'd be great to have no pain and flexibility.
Trish
L4/5 spondylolisthesis with severe left foraminal stenosis compressing L4 nerve root.
Advanced right sided L4/5 and L5/S1 facet joint degenerative change
Discectomy/laminectomy L4/5 April 2008 - didn't help
ALIF L4/5 19th October 2009
Oxycontin 10 - 2 twice a day - stopped taking
Endone 5 mg for breakthrough pain as required
Gabapentin 300 mg - 1 twice a day
Paracetamol - 2 four times a day
Phenergan 25 - 1 as required for nausea
Discs L3/4 and L5/S1 worn - further surgery may be required later on - wait and see situation.
Before you decide, please read also the stories where ADR failed. In principle ADR is great when it work out well, but if it failed (more then 20%) you have a very big problem. The problem is that there very few doctors who are able and are willing to remove the ADR and replace it for a fusion, since it is a dangerous surgery. I had one ADR and had to be removed after one year due to severe pain. Further I know some other people who had the same problem.
I dont want to scare you, just warn you. Please think twice!!
Renos.
Hi Kendra - I also was highly keen on the ADR - particularly since my surgeon helped develop on of the systems. However - I wasn't a candidate because of the damage on more than one level. It's my understanding that this procedure is only being done where one level is involved. Perhaps this is different in Europe. Goood luck!
Jackie
Hi kendra - have you been able to estimate the costs of the surgery going abroad? I'd be interested in comparing the costs of the 3 level ADR, versus the savings of having the insurnace cover the less attractive fusion here in the states.
In parts of Europe the ADR is even not allowed, due to the risks of this treatment.
i am looking at ADR too..in fact i have just had an MRI i get the results on the 26 nov then i see the ADR consultant on the 22 dec i can pm you his name but he is in the uk so i don't know if that would be of any use to you.one thing i have been told is ,the ADR operation is the last resort and it is an unknown quantity ..what i mean by this is should it fail there is no back up and it take a surgeon with nerves of steel to go back in and try to sort replacement //replacement disc out,its not an easy task and is deemed a life threatening operation ..i have done my home work and i will only have it done if there is no other option .they say that the replacement should last a life time ..but as an engineer i know that even the best parts wear out ,the disc is a 2 part alloy shell and a Polly insert of some sort {there are various makes but they all do the same thing} and metal against plastic will wear i don't care what the sales people say about there product it will fail.i think if you are in your 60 and fit then i would go for it but as i am only 43 i will need some convincing that its the right thing for me to do .at the moment i am getting b y on large amounts of Oxycontin .its a massive operation and if i WERE YOU I WOULD NOT RUSH INTO IT
STRAKER
first operation {1996} laminectomy L4/L5 .second operation [2007] bilateral discectomy S1 and redo or L4/L5 laminectomy to relive scar tissue.[2009] facet joint hypertrophy at L3/L4/L5 and S1 ./.i was diagnosed with TOS in 2005 {i have the extra rib and the pain is mainly down my right arm and hand as yet no surgery for the TOS {i hope that i never have to have surgery on it!}i have been in pain for many years now .i take oxycontin and oxynorm for pain control and also use the ACTICARE {TENS} {NEW after a recent trip to the surgeons 2009 i was told that there could be no more surgery on my back due to the extent of degeneration and the only possibly operation maybe ADR i am waiting for a fresh MRI scan SCS and morphine pumps are also out of the equation as they would not be of any use to my medical problems and would cause even more problems contact me on skype under straker1999 ,.i am married to my lovely red head kath [the nurse }for nearly as many years as i have been in pain... !{}
three level lumbar disc replacement l-3 to s-1 i have never been netter and no problems.
As you read previously, my operation went text book perfect. I did masses of research before ungoing this operation and spoke to lots of people here in the UK who had had the operation and they were all pleased with the outcome. With any surgery there are risks involved and this has to be a last resort, but so does any other spinal op.
ADR has been around in the UK for about 8 yrs with a very good success rate and Europe for about 17 yrs. I chose this surgery because I also have problems at L4 L5 level with a bulging disc and fusion would have put immense pressure on this disc and I would be looking at another operation in the very near future to fix it. With ADR you are having a new disc in, so no pressure on the surrounding discs!
Good luck in whatever you choose, but ADR was a huge success for me and I am so happy that I am now pain free (4 weeks post op!!!).
I have checked prices.In Germany; Stenum is about $45,000 for 3 level and Dr. B is about $50,000. Dr. M (who invented Pro-disc) in France is $111,000. I am leaning towards Dr. B in Straubing. He has done 4,000 ADR's and most of them are multi-level.
Thanks for all of your responses. It is obviously weighing heavy on my mind.
Awaiting 3 level Anterior Lumbar Fusion L3-S1.
Car accident at 15yrs old, percutaneous discetomy at 16yrs (L4-L5)
Reinjure in 2000 L3-S1 bulging and torn
Birth of son in 2008, reinjure L3-S1 to point of leg numbness, lots of pain, unable to lift child at times,
Meds- Cymbalta, Baclofen,Celebrex, Vicodin/or Percocet
Wow the prices have gone up substantially in the 2 or 3 years since I have been aware of ADR's! The dollar vs. euro exchange also does not help.
If the ticking time bombs that are my lumbar discs one day finally give out, I too will be looking to go overseas and just paying cash. I would probably choose one of the famous dr.s you mention as well.
Kendra, have you seen any of the other message boards that are specific to ADR's?
What about nucleus material replacement procedures? Are you a candidate for something like that? When I consulted about ADR with Dr. DLM in Santa Monica, CA one of his partners was doing these injectable fillers into the discs.
In post 7, it is mentioned that an ADR doesn't put pressure on the discs above and below, however that statement should be refined/clarified.
An ADR is not a shock absorber like our natural discs. It will transmit weight and shock just like a fusion. It is the movement of a natural disc that it mimics.
Straker, I follow what you're saying about the poly material wearing.
As an engineer, what is your opinion on the ADR's that are 2 piece metal-to-metal contact? (Maverick)