i don't mean depressed .crying. what am i going to do days!! i mean just want to leave the curtains in the closed position an slob out on your bed /chair /recliner.watch tv and drift in and out of sleep all day ?? .....just wondered
tony
2010 just had a discography and now waiting for an ALIF open fusion {360 degree}
we all have days like that
Jim
I am in a steady stream of them right now, and I can't give up because my kids are starting school. But seriously, it hurts too much to go anywhere or do anything right now. So, I throw in the towel and give up. I'll just sit at home and do nothing all day. (except I can't!).
11/2007- equestrian accident. Fractured L2, 90% loss of height, retropulsion, bone fragments. Moderate-severe chronic pain treated with epidurals, facet ablation, medication.
12/15/2010- L2 corpectomy and L1-L3 fusion via thoracotomy. Posterior plates installed next day. Total surgery time 9 hours!
its just best to stop fighting the beast and give in ..for a while ..anyway ..i do have some bad news though..i think that L3 has blown i hope not because that's the disk that Mr 5 want to make sure is ok so he can do the operation ..for the last 4 weeks i have has horrendous pain and at one time i was not able to walk normally i had to shuffle my feet because of the pain ...everytime that's happened a disk has blown ..i just hope that i am wrong
tony
2010 just had a discography and now waiting for an ALIF open fusion {360 degree}
I hope you are wrong too, but then again, you know your body more than anyone, take care of yourself!!
I do have the above mentioned days all the time,. I need to stop having them so frequently and live life and be happy. I need my JOY back!
Mark 11:24
Therefore I tell you, whatever you ask for in prayer, believe that you have received it, and it will be yours.
Straker - sorry to hear your hurting and I too trust that you are ok. I may not post much, but others are here too!
I don't fight the beast - I have a picture that my wife painted of her vision of my beast. When things are bad, I can recall that and know that I am just fine, even in the face of great pain and other circumstances.
I am here - do I really need to explain this more!? LOL
Oh, how I wish that I could tell you I have no idea of what you are talking about re both your topics! But, unfortunately I am all too familiar with both of them.
Today ironically is one of those days that I am just exhausted. The tropical storm Herime is here and it has been raining for 2 straight days and boy do I hurt. I was suppose to work today, but my daughter is sick and it is raining so hard and storming. Hubby and I decided that I didn't need to be out in that.....accidents seem to follow me like Linus and his blanket.
2 months after my fusion I did herniate L3-4. I feel that pain in my thighs and hips~especially my hips! I am hoping that you did not herniate it, please let us know what you find out!
Hoping tomorrow is a better day for you!
7/05 L4-5 Decompression.12/07L3-S1 Decompresssion/lami.2/10 L4-5 360 Fusion w/own bone graph 9/12/11 L3-5 decompression screws removed @ L4-5 fusion, new clamp placed due to instability,L3-4 decompression/fusion with bilateral clamps.
Life isn't about waiting for the storm to pass....
It's about learning to dance in the rain!
Yes I have them almost every day now it seems. I always tell myself that the next day will be better.
The next day I will do some of that cleaning, or maybe start that long overdue project. I seem to have a real problem getting motivated these days. I am not quite sure if it's the meds, some depression, or the constant pain. I have a big idea that it is all of the above. I do occasionally feel like doing something but the window of opportunity is so small. I can usally last about 30 minutes or so then it is back on the couch in my comfy clothes. I feel like a big waste. I was always in to something or on the go before all of this took over my life. I can honestly say that I hate my life. I look forward to night time because I know I will fall asleep eventually and will be pain free for a little while. But then I know that upon awaking I have to do it all over again. I really feel like the movie "Groundhog Day". So yes I feel you. Wish I had the "CURE".
I don't even like to get dressed because I sweat so much I change at least 3x day. Nighties are easier to change than clothes..
Just normal to have down for the count days. Hope you didn't put out any more discs Tony. Let's hope brighter days for tomorrow a brand new day. Charry
Any answers I have is not medical advice only a Doctor can help you with that. Just sharing my personal experience as a fellow Spine Health member only. Mild DDD of complete lumbar area with recent healing of L5-S1 HD and annular tear.Leg &foot weakness nerve compression L4-L5.Mod. disc changes C5-C7 nerve impingement sore elbow and numb hand. Sept. 2011 MRI L4-L5 disc bulge and L5 facet joint and narrowing. Meds-Oxycontin 80mg,Cymbalta,Lyrica, Flexeril,Naproxen,Serax. Platinum Infrared heating pad. ER and Oncology trained and Cardiology RN on Disability. Keep the faith.
Tony,
I think we all have them. Like Charry, I sometimes don't even change out of my comfy bed cloths, stay in and rest. I don't know if that is partly the body doing it's own "command" that we rest or what, but yeah, I have days like that.
I hope your wrong on your disk. I've had similar in my neck and upper lumbar, and MRI showed sadly, I knew what happened. Fingers crossed it was a fluke. Please let us know if you find out. Gentle support *HUGZ* to ya!
Brenda
ACDF C5/6 2/08 - C6/7 8/09 - Neuropathy right arm and both legs - Cervical Myelopathy
10-11-11 PCF C4-T2 - C4-C7 Lamies; Surgery #2 Emergent removal large Hematoma!
L2/3/4 & L5/S1 fusions and Laminectomy on hold till neck fused.
For the full "Cliff Notes" please click my name!
"Life can knock us down, but we can choose whether or not to get up!!"
I wish you weren't going through all of that... sometimes it does seem like it's just one more thing. Can you put on some music maybe, or find a book that you'd enjoy and try reading til you sleep a bit?
I think we've all had some of those want to stay in and "feel the cool sheets til you sleep" days.
Hope you are feeling at lleast a little better soon.
yes its sometimes better to listen to your body and you will find that it knows best .i spent all day resting and i do feel mentally better today there pain is still there but i suppose that's a given ..swimming is my things and when i feel better that's what i do my wish id that i could go to bed and sleep for 8 hours like a normal person !!
tony
2010 just had a discography and now waiting for an ALIF open fusion {360 degree}
I might be having one today. I am just physically and emotionally wiped out. I might go home at lunch and not come back to work today. Depends if the old man is there or not. I would enjoy just laying in the recliner watching t.v. and dozing.
Tony
You are not alone, I have my share of them days, sometimes lasting days, just no energy, pain levels too high, and no motivation.
Sometimes it is good to have those days though, just not when they go on for days and days.
Missed ya my friend, good to see ya again,
Hugs
And I'm doing fairly well, "those days" are fairly common. Unless you are one of those bubbly people that could laugh through a train wreck most people get them.
I have learned that when I am not working I can just do the blaugh thing until about 2:00 in the afternoon, by that time I can usually muster up enough energy to do SOMETHING. It can be next to nothing, just a little something to show me I at least did one thing. I have found doing absolutely nothing leads me to a worse day to follow. That I believe is Mr. Depression coming for a visit.
Days at work can be tough, but thankfully they still leave me pretty much alone to do my office tasks and don't ask for much else.
Oh, the one thing about days at work that are rewarding, Shadow! I call him Mr. Wiggles, he is almost 7 months now and he does not wag his tail, he wags his whole body! 1st thing in the morning and when I walk in the door home from work. He's about as close to a Chewy as I could ever hope for!
"I have been told my statement or statements are not logical. Would Mr. Spock ride a bicycle down a wooded mountainside when there was a perfectly good stationary bike at home?" NOTICE: Please consult a real DOCTOR before doing anything that may hurt yourself or others! Please be careful!Medtronic SCS Placed May 4, 2009. Cervical, for chronic right shoulder, upper arm pain.
Sometimes the weather has an effect as well - it was cold and rainy here yesterday, I had very little ambition to do anything...so I didn't. Sometimes you just gotta go with the flow.
female 40
L5-S1 minimally invasive micro-discectomy January 4,2010
re-herniated May 2010
L5-S1 laminectomy August 19,2010
must remember to be patient even if it kills me.
I hope your feeling better Tony as you must be in agony..I truly feel for you and your pain.
I have days like yours too..Just want to pickup stuff and start throwing it around because Im so frustrated at the things I cant do anymore..Had one yesterday actually..
Anytime you need a shoulder to vent at or just release your thoughts, Im here for you.
Shelly
Oh yeah! I get them too. Some days when I am not feeling good I just veg at the computer/tv, still in my "sleep clothes", when all of a sudden the doorbell rings!! Panic!! I can't see anyone looking like I do, oh wait, its the wonderful UPS guy dropping off a package. I can wait until he's back in his van before I go to the door and wave......
Hope you are doing a bit better Tony (and everyone else too).
Best wishes,
Lisa
well its 4 am over here and once again the devil has woken me up from a good night sleep.iam sat here with my electric massage device on watching king of queens ..again ..i am so happy for 24 hour tv ,,the strange thing is .i feel happy with myself even though i am going through some of the toughest times i have known ..maybe its my bodies way of dealing with the pain ..
tony
2010 just had a discography and now waiting for an ALIF open fusion {360 degree}
24-hour TV - the chronic pain patient's best friend. Hang in there, Tony. I am having a rough time at the moment as well - just been diagnosed with more neurological damage and compression of the spinal cord (cervical, this time). The neurologist referred me to a neurosurgeon and told me if the compression gets any worse I will need emergency surgery to prevent further damage (such as paralysis). Isn't life great?!
Lumbar: DDD, degenerative spondylosis, severe stenosis, severe facet arthropathy, herniated and bulging discs, collapse at L4-5 and L5-S1 with retrolisthesis. Cervical: degenerative spondylosis, severe stenosis, cervical spondylotic myelopathy. Also, peripheral neuropathy. Decompressive laminectomy (L5-S1) in 1995. Currently in pain management.
sorry about your problems .not nice !.24 hour tv ..like it ..made me smile .i am having another one of those days today ..i think i never did it yesterday ..it was warm just how i like it {the kind of warm where i just dont sweat/i have a sweating problem but there are certain conditions where i dont}
i have now idea why that happens .the worst of it is when the sun is out and there is a cold wind ..if i walk outside in a tee shirt i will start to sweat even though its COLD outside ! but i if i wrap up i get hot start to sweat then i am walking around with a cold damp{wet through tee shirt on} very uncomfortable} its something genetic ..so i have been told ...just live with it they tell me ..like i need any more bloody problems ..i have done a separate post on it .anyway today i am not moving its daytime tv ..so that's two and half men /king of queens /and deal or no deal!
tony
2010 just had a discography and now waiting for an ALIF open fusion {360 degree}
Yes, we can all relate to having one (or more) of those days. I had one yesterday...I never got out of my comfies and robe.
Part of the problem for me was that I was turned down for a job that I had three interviews for - and I was the only candidate at the time! It was like getting slapped in the face. So depression kicked in along with the pain so I became one with my recliner.
Take care of yourself and do what you need to do to be comfortable. I feel for ya, my friend...
Cath
~ October 21, 2008 - ACDF, 3-level (C4/5, 5/6 6/7), with hardware and eight screws. All fused and hardware is stable.
~ January 6, 2010 - TLIF at L4/5, two rods and four pedicle screws.
~ July 2010 - New CT and MRI on cervical shows further problems above fusion at C2/3 and worst at C3/4.
I am in no way affiliated with the medical profession. Any recommendations I make are based on my personal experiences only, so do not take my comments as medical rules.
most if the time the mind is willing ..but the bodies shot !! its a shame that so many people suffer with an invisible illness and as soon as you mention backache ..you tend to get the eyes up and {and you can tell what they are thinking} bloody back ache ..lazy b35xxx ! you dont get the same response as if you had another life long illness like diabetes or cancer .and the pain from back can be as painful as cancer pain and diabetic neuropathy is no fun either ..i think that the layperson takes back ache as a none illness and opinions are made ..usually the wrong one ..i know i have had comments made about me and opinions formed from neighbours etc ..things like {he not working because he got back sack } your joking aren't you ..again lazy springs to mind ..you can see it in there eyes ..they should have our pain and have to go through some of the procedures and operations that most of us have had or going to have .
sorry just me going off on one !!
tony
2010 just had a discography and now waiting for an ALIF open fusion {360 degree}
I totally agree with you on the horrible stigma that we spiney's have following us, Noone cares about back pain...it's not "a big deal"...meanwhile, they have no idea how life changing it is. Most people I don't even tell b/c it's just not worth the judgement from them. There is NO way they can possibly know what I go thru every day....and that's why I come to this board...b/c you are all like me.
Mark 11:24
Therefore I tell you, whatever you ask for in prayer, believe that you have received it, and it will be yours.
I think part of it is due to the fact that most people, at some point in their lives, have an episode of back pain, except that in most cases it's just a temporary strain of some sort and it heals up within a few weeks. It's completely different for us long-term Spineys - we have chronic pain due to all sorts of back problems that did not heal of their own accord or could not be fixed. Often there is a change in the nervous system, so that even after a technically successful operation pain still remains due to nerve damage.
You know what? I bet that if, next time someone asks what's wrong with us, instead of just saying 'back pain' or 'I've got a bad back', we get more specific and say: 'I've got severe spondylolisthesis/peripheral neuropathy/spondyosis with myelopathy/facet arthropathy/scoliosis' (or whatever spinal condition any of us happen to suffer from), chances are we wouldn't get an ignorant and dismissive eye-rolling response, simply because it sounds less commonplace and more medically impressive to use all the terminology. It's like when you have awful migraines or cluster headaches and people just think you have a headache, and wonder what all the fuss is about? They can't understand what it's like unless they've experienced it themselves, but perhaps naming the actual conditions instead of just a generic 'I've got a bad back' will make some of them take it more seriously. Just a thought.
Lumbar: DDD, degenerative spondylosis, severe stenosis, severe facet arthropathy, herniated and bulging discs, collapse at L4-5 and L5-S1 with retrolisthesis. Cervical: degenerative spondylosis, severe stenosis, cervical spondylotic myelopathy. Also, peripheral neuropathy. Decompressive laminectomy (L5-S1) in 1995. Currently in pain management.
i have baffled some with all the technical terms .but you can see there eyes glaze over .truth is if its not happening to them they don't give a stuff .like you say just back ache implies a strain of something temporary .they just can't comprehend the total misery and how its there all the time ..i suppose its like a woman telling a man just how painful contractions are ..we may be able to have some idea but as men we will never know ..{and this is where all the women will hate me !} i am sure that having a baby is no picnic but at the end of the day females are designed to have children ..no one is designed to be in pain all the time .!! i am not having a pop at you girls ..i love you all ..i just wanted to get a point across{yet again i have has just 2 hours sleep in my expensive bed and i am up in agony ..meanwhile my wife is still sleeping like a baby and has been since 9.30pm !
tony
2010 just had a discography and now waiting for an ALIF open fusion {360 degree}