I hope someone/ anyone can help me - I have been suffering from chronic back/sciatica pain for over 2 years now - I had a spinal fusion in January but I still have leg pain and numbness in my heel that hurts and drives me crazy. As of March I was taken off of all narcotic pain meds (Oxycontin) and my Dr. has put me on a form of Tramadol - it is a 24 hour time release pill that I take each morning with 2 Tylenol the problem is it never really takes the pain away and I am taking on average 4-6 tylenol a day, it also makes it next to impossible to sleep so now I have started taking Gravol each night to get to sleep - I also have to take medications for heartburn I think because of all the anti-inflmmatories I took for 2 years.
I am sseing my Doctor on Monday and I was going to ask him for medicinal marijuana - the problem is I don't smoke so I would need a pill format. I wanted to know if anyone has tried using this for nerve pain and if it helps.
And if not that does anyone have any advice as to what I should be trying - I am so tired of not feeling well.
Have you tried gabapentin or Lyrica for the nerve pain?
I have no medical training. Comments are based on personal experience and lots of research and reading.
PLIF @ L4-5 with Peek cage, rods and screws Jan 2008
Lami-foraminotomy L5-S1 Jan 2009
Fusion L3-S1 coming up -- 1 June
I have tried Lyrica - I think I wanted it to work more than it actually did - my Doctor said that Lyrica is for Neurological Nerve pain and that mine is a pyshically damaged nerve so the nerve blockers won't work - I don't know, but I do know my Doctor isn't quick to give out any meds especially the strong ones that actually work.
Vaporize...
C2-3: Mild right facet joint degenerative changes and right neuroforaminal stenosis.
C3-4: Minimal diffuse discosteophyte bulge and mild central cananl stenosis.
C4-5: Mild disc height loss with central annular fissure. Small broad-based left paracentral disc protrusion. Moderate central canal stenosis-the disc protrusion abuts and mildly flattens the left ventral surface of the spinal canal.
C5-6: Disc desiccation with mild height loss.
Diffuse discosteophyte bulge and uncovertebral joint hypertrophy, moderate central canal stenosis-the discosteophyte bulge mildly flattens the ventral surface of the spinal cord. Severe neuroforaminal stenosis bilaterally, right greater than left.
4/15/2010 Pro-Disc-C C5-C6
I take cymbalta which seems to help the leg pain and numbness. I've been on it for 6 weeks now and only take 1 lyrica but my Dr thinks the cymbalta alone will help the nerve pain and she doubled the dose today. So far so good but it doesn't really help the back pain and I take other meds for that. I'm not sure if medical marijuana works for nerve pain but I know it helps nausea and helps you relax. Good luck with your treatment. Take care. Charry
Any answers I have is not medical advice only a Doctor can help you with that. Just sharing my personal experience as a fellow Spine Health member only. Mild DDD of complete lumbar area with recent healing of L5-S1 HD and annular tear.Leg &foot weakness nerve compression L4-L5.Mod. disc changes C5-C7 nerve impingement sore elbow and numb hand. Sept. 2011 MRI L4-L5 disc bulge and L5 facet joint and narrowing. Meds-Oxycontin 80mg,Cymbalta,Lyrica, Flexeril,Naproxen,Serax. Platinum Infrared heating pad. ER and Oncology trained and Cardiology RN on Disability. Keep the faith.
I hate to admit I inhaled, but I did(if you are old enough, you will get the reference
). I flew to visit my daughter in Florida last summer. As you can see from my signature, I have lots of problems., and lots of pain. I was miserable the first night. The second night, she gave me an inhaler.after about 4-5 hits, I was feeling better. I slept better that night than before or since, and was in much less pain the rest of the week, by very minimal use. I sure wanted to bring some home on the airplane, but I could just see the headlines......."61 year old arrested on plane for smuggeling pot
" Didn't think that would go over very well with my job.
You should discuss it with your dr, but don't be afraid to ask. After all, all he can say is no! He isn't going to arrest you for asking about it, LOL. I would rather use a natural substance than synthetic medications any day. And I agree, your stomach problems are probably from the meds. Good luck in finding something that works.
Maggie
LMAO....LOL...its better then any synthetic no doubt but unhealthy to smoke..you should vaporize or bake it...
C2-3: Mild right facet joint degenerative changes and right neuroforaminal stenosis.
C3-4: Minimal diffuse discosteophyte bulge and mild central cananl stenosis.
C4-5: Mild disc height loss with central annular fissure. Small broad-based left paracentral disc protrusion. Moderate central canal stenosis-the disc protrusion abuts and mildly flattens the left ventral surface of the spinal canal.
C5-6: Disc desiccation with mild height loss.
Diffuse discosteophyte bulge and uncovertebral joint hypertrophy, moderate central canal stenosis-the discosteophyte bulge mildly flattens the ventral surface of the spinal cord. Severe neuroforaminal stenosis bilaterally, right greater than left.
4/15/2010 Pro-Disc-C C5-C6
http://www.rxlist.com/marinol-drug.htm
Good luck,
D
I need some of this...
http://www.usdoj.gov/dea/ongoing/marinol.html
C2-3: Mild right facet joint degenerative changes and right neuroforaminal stenosis.
C3-4: Minimal diffuse discosteophyte bulge and mild central cananl stenosis.
C4-5: Mild disc height loss with central annular fissure. Small broad-based left paracentral disc protrusion. Moderate central canal stenosis-the disc protrusion abuts and mildly flattens the left ventral surface of the spinal canal.
C5-6: Disc desiccation with mild height loss.
Diffuse discosteophyte bulge and uncovertebral joint hypertrophy, moderate central canal stenosis-the discosteophyte bulge mildly flattens the ventral surface of the spinal cord. Severe neuroforaminal stenosis bilaterally, right greater than left.
4/15/2010 Pro-Disc-C C5-C6
I hate to be overly rational, but if your doctor "isn't quick to give out any meds especially the strong ones that actually work" then why would you expect him to agree to give you medical marijuana, of all things?
RESPONSIBILITY, n. A detachable burden easily shifted to the shoulders of God, Fate, Fortune, Luck or one’s neighbor. In the days of astrology it was customary to unload it upon a star.
If your PM doctor isn't willing to help you with something stronger, would you consider going to another? I too have a feeling that he may not go for the medical maryjane. Have you had a post op MRI to see what else may be going on to explain the pain? If something is up then I'm sure your doctor wouldn't mind adjusting or changing your meds.
PLS,nerve damage,facet arthropathy,severe DDD,DJD,scar tissue; Fibro
Back Surgeries: Microdiscectomy/ laminectomy,2 level TLIF/Laminectomy w/ hardware, Synchromed infusion pump
Meds: Dilaudid,Oxycodone,Lyrica,Robaxin,Cymbalta,Elavil,Plaquenil
Spineys Rule!
Damaged nerves or dysfunctional nerves cause pain. Meds for this range from anti-inflammatories, to anti-convulsants to anti-depressants and even narcotics. Trying only one medication in one classification of drugs and then leaping to medical marijuana is quite a leap.
I would think discussing the type of injury you have and different types of medications available to treat it would go a long way towards educating yourself and possibly finding relief in the form of something a little less dramatic, a little easier to prescribe and far more easier to procure.
"C"
“If it is not right do not do it; if it is not true do not say it.”
Marcus Aurelius
Thanks for all the input - I have tried different forms of medication - they all seem to be variations of Tramadol and don't really work but keep you awake all night - I definitly would use a vaporizor (they cost about $600.00) I will see what he says toady I just know what we are doing right now is not working and I am pretty sure that the pain is due to damaged nerve that is not going to get any better as I have not had any improvement since April - when I had my surgery the Surgeon said that the nerve was badly damaged.
Thanks again - I will keep you posted.
Tracy
It takes about a year for nerves to heal fully and recover to their baseline level of function, so 4 months post-op is barely out of the gate as far as recovery from nerve damage goes. Baby steps and lots of patience required...
RESPONSIBILITY, n. A detachable burden easily shifted to the shoulders of God, Fate, Fortune, Luck or one’s neighbor. In the days of astrology it was customary to unload it upon a star.
I have the same problem with nerve pain. It goes down my left buttock, left leg and my left foot is constantly numb. I also feel like a big fat elephant is sitting on my left great toe. I have been told by both my NS and PM docs that it can take up to FIVE years for the nerve to calm down. My fusion was over a year ago!
I have been on Lyrica (helped alot but I started having serious vision problems so I was taken off of it). Now on Neurontin which causes me the same vision problems but I CANT get off these meds without severe nerve pain.
Narcotics dont usually help me with the nerve pain. The nerve blocks work sometimes.
I would say you still have options. Have you tried the epidural nerve blocks. My first one gave me relief for several months (way back before my surgeries)
Talk with your doctor and have him refer you to a Pain Management specialist. Hang in there...
He is sending me to a Pain Clinic - he would not give me Marijuana because he said it would not help the pain - he put me back on Oxy-Contin for one month and Apo-Nortriptyne for the next month as well - I think he could tell I needed a break from hurting so hopefully I won't have to wait long to get into the pain clinic and I can go from there. I did have 2 epidurals before my first surgery (decompression) but have not had one since - the first one didn't go so great and I am terrified of them now.
Anyways thanks for all the input.
You do not have to get it from him. I have had 3 recommendations and am a licsensed mmj card holder. Cannabis helps me not take too many oxies. I must take oxy, morphine and cannabis to control my "uncontrollable" pain from l5/s1 herniations. Along with neck herniations.
You will need to go to a THC clinic to get your recommendation. Bring all of your medical records.
Unfortunately this site doesn't have a sticky or forum to openly discuss medical cannabis as we can oxycodone, morphine, and fentanyl. cannabis never has and never will kill anybody.
I keep seeing the same questions but people still feel it's too taboo , if there was a forum where all questions have been answered one could find their info while remaining anonymous. Info that is educational and unbiased, and phone numbers and addresses of clinics for cannabis recommendations to "HELP" people control their illnesses. Believe it or not, 14 states have legalized medical cannabis and is now an acceptable form of medicating in those states, because the people voted and could see it really does help. Cannabis has never ever killed anyone, and never will.
I have to strongly disagree with you here. No, there's no Spine-Health sticky or topic that is strictly for medical marijuana, but there isn't one for any other medicine either. To say that it cannot be openly discussed within these forums under pain medication (where we post med questions about kadian, methadone, fentanyl, morphine, vicodin, oxycontin or any other med) is entirely incorrect.
In fact, I believe you have just openly discussed it within this forum. And if you were to look at some past posts, this is NOT the first time that this subject has come up - with plenty of replies, opinions and thoughts from many members without the topic being closed or warned about unapproved content.
I have absolutely nothing against the use or necessity of medical marijuana, but I can't let this go by without defending SH for their open forums on ANY subject, including medical marijuana.
Cath
~ October 21, 2008 - ACDF, 3-level (C4/5, 5/6 6/7), with hardware and eight screws. All fused and hardware is stable.
~ January 6, 2010 - TLIF at L4/5, two rods and four pedicle screws.
~ July 2010 - New CT and MRI on cervical shows further problems above fusion at C2/3 and worst at C3/4.
I am in no way affiliated with the medical profession. Any recommendations I make are based on my personal experiences only, so do not take my comments as medical rules.
I agree that medical marijuana is a topic that many people are uncomfortable discussing, however in this case I think the leap from 0-60 was a bit quick. Of course that's a personal opinion.
A referral to pain management is a good next step and it sounds like Tracy_Lynn's doc is acting in her best interest.
"C"
“If it is not right do not do it; if it is not true do not say it.”
Marcus Aurelius
please explain what you mean by that...
C2-3: Mild right facet joint degenerative changes and right neuroforaminal stenosis.
C3-4: Minimal diffuse discosteophyte bulge and mild central cananl stenosis.
C4-5: Mild disc height loss with central annular fissure. Small broad-based left paracentral disc protrusion. Moderate central canal stenosis-the disc protrusion abuts and mildly flattens the left ventral surface of the spinal canal.
C5-6: Disc desiccation with mild height loss.
Diffuse discosteophyte bulge and uncovertebral joint hypertrophy, moderate central canal stenosis-the discosteophyte bulge mildly flattens the ventral surface of the spinal cord. Severe neuroforaminal stenosis bilaterally, right greater than left.
4/15/2010 Pro-Disc-C C5-C6
I'm not hanglandc, and I don't play her on TV -- but I agree with her opinion wholeheartedly on the 0-60 thing. Going from Tramadol ER to Medical Marijuana is about the same as going from baby aspirin to morphine. There's way too much room in between for either leap to make any sense at all.
RESPONSIBILITY, n. A detachable burden easily shifted to the shoulders of God, Fate, Fortune, Luck or one’s neighbor. In the days of astrology it was customary to unload it upon a star.
I totally agree with Cath. There are no specific or sticky forums to discuss any particular medication. All of that is done by the various posters who bring up topics regarding different medicines.
This particular topic has been brought up in about a dozen different threads over the years. I agree that medical marijuana has it place in managing chronic pain for some individuals. The problem with almost 99% of these threads is that they become personal.
They become wars with those for and those against.
I am not blaming either side, because both sides get involved with that.
And that is the time I step in an shut down a thread.
I've done it many times before with marijuana threads as well as threads about oxycontin, physical therapy, various types of surgeries and more. Whenever a thread steps over the boundaries of being informative for all members, is when it becomes a candidate to being shut down.
Right now, this thread seems to be going without any problems, lets make sure it stays that way
Ron DiLauro
Ron's Story
Suicide Hotline
Alcohol and Drug Abuse
Arthritis
_________________________________________
rdilauro@gmail.com
SH Administrators = dilauro or tamtam
SH Moderator Team =
haglandc , Numbskull , Liz, or Neck of Steel Cindy
"In his eyes we're all the same Someday we'll all have perfect wings, Don't laugh at me."
"That there's none so blind as those who will not see."
The information provided by members of Spine-Health should never be considered as formal medical advice. It is recommendations based on member's personal experiences only.
This can vary from person to person, so do not take comments as medical facts or rules
Hi,
If you need information on medicinal mj just google it with forums after it and you will find many helpful people that will give you some great info. (medicinal marijuana forums)
Sorry, but i'm not allowed to post the site here.
ps: if you google lots of topics with forums you will find forums on almost everything.
No doubt Ron thats why your a good Mod...
We dont need people to come on here and ruin it for everyone who wants to in less pain..
With that being said marijuana gives me better pain relief then my vicodin (hydrocodone)...
The reason is because it gives me pain relief + peace of mind..
Vicodin helps with some pain but leaves me strung out and sad/angry..
C2-3: Mild right facet joint degenerative changes and right neuroforaminal stenosis.
C3-4: Minimal diffuse discosteophyte bulge and mild central cananl stenosis.
C4-5: Mild disc height loss with central annular fissure. Small broad-based left paracentral disc protrusion. Moderate central canal stenosis-the disc protrusion abuts and mildly flattens the left ventral surface of the spinal canal.
C5-6: Disc desiccation with mild height loss.
Diffuse discosteophyte bulge and uncovertebral joint hypertrophy, moderate central canal stenosis-the discosteophyte bulge mildly flattens the ventral surface of the spinal cord. Severe neuroforaminal stenosis bilaterally, right greater than left.
4/15/2010 Pro-Disc-C C5-C6
And therein lies one major difference in approaches to pain medication/management.
The day I'm using my pain medication to achieve "happiness" is the day I will check myself into a facility and request a rapid detox. In my opinion, the purpose of pain medication is to reduce physical pain, not to alter sadness, anger, or any other emotional state.
RESPONSIBILITY, n. A detachable burden easily shifted to the shoulders of God, Fate, Fortune, Luck or one’s neighbor. In the days of astrology it was customary to unload it upon a star.
Your right...what I was trying to say was it doesn't leave me sad and strung out like pills do...
C2-3: Mild right facet joint degenerative changes and right neuroforaminal stenosis.
C3-4: Minimal diffuse discosteophyte bulge and mild central cananl stenosis.
C4-5: Mild disc height loss with central annular fissure. Small broad-based left paracentral disc protrusion. Moderate central canal stenosis-the disc protrusion abuts and mildly flattens the left ventral surface of the spinal canal.
C5-6: Disc desiccation with mild height loss.
Diffuse discosteophyte bulge and uncovertebral joint hypertrophy, moderate central canal stenosis-the discosteophyte bulge mildly flattens the ventral surface of the spinal cord. Severe neuroforaminal stenosis bilaterally, right greater than left.
4/15/2010 Pro-Disc-C C5-C6
JKDE, if you need to clarify a post, you really should do it in a follow-up post, not by editing the prior post after someone has responded to it. It's one thing to edit something minor like a spelling error, but it's entirely different when you remove something as pertinent to the conversation as your statement "Marijuana = happiness" which is now missing amongst quite a bit of rewording of your original post.
Ron, is there no setting on this forum software to place a note identifying edits after a certain amount of time, rather than just changing the little tiny date/time stamp of the post to reflect the most recent edit? I know the moderators always make a note when they edit a post, but moderators generally show a level of integrity that is apparently not found across the board.
RESPONSIBILITY, n. A detachable burden easily shifted to the shoulders of God, Fate, Fortune, Luck or one’s neighbor. In the days of astrology it was customary to unload it upon a star.
Ok here is my follow up...
Less Pain = More Happiness
So no matter how you achieve less pain you gotta do what needs to be done.
Me personally I dont like to drink or use any hardcore drugs due to how it makes me feel.
Drugs like vicodin, percocet, morphine ect..leave me feeling sad and strung out after awhile.
Marijuna on the other hand relives pain without the negative side effects of the synthetic drugs.
But if you know of any other natural drugs that help with pain and enhance mood let us know.
If your such a "Bionicwoman" that you dont need drugs great for you but im just a normal person.
C2-3: Mild right facet joint degenerative changes and right neuroforaminal stenosis.
C3-4: Minimal diffuse discosteophyte bulge and mild central cananl stenosis.
C4-5: Mild disc height loss with central annular fissure. Small broad-based left paracentral disc protrusion. Moderate central canal stenosis-the disc protrusion abuts and mildly flattens the left ventral surface of the spinal canal.
C5-6: Disc desiccation with mild height loss.
Diffuse discosteophyte bulge and uncovertebral joint hypertrophy, moderate central canal stenosis-the discosteophyte bulge mildly flattens the ventral surface of the spinal cord. Severe neuroforaminal stenosis bilaterally, right greater than left.
4/15/2010 Pro-Disc-C C5-C6
I have been in constant pain for nearly three years. Everyone responds and interprets their pain differently. These signals of pain are translated in our emotional centre of the brain. I have tried nearly everything I can think of. To no avail.
Currently, all doctors I have spoken with agree pain meds will not help me with nerve pain. Neurontin sent me over the edge with hostility. That doesn't help.
So, relying on one's self is the nitty gritty.
As for relief, i've noticed my Delta nerves do calm down ( vibrations don't hurt as bad). And, C-nerves don't seem to build up enough to backfire with all the force you could expect ( stung instead of stabbed).
I'm no doc, but, I have studied! The only other thing I can think of is medicinal Belladonna.
Of coarse this could be fatal, and would only work on M2 and M3. Not good enough for the side-effects.
Forgive me, if not for the little relief I find herbally, I would probably click a suicide hyperlink.
Please take care.
Is that dealing with pain is easier to do, if I feel better in general. The good thing is, that there are many different medications that can help alter my perception of pain. Also diet, exercise and activity level go in to the mix.
The key is to work with the doc in order to achieve a good medicine regimen that allows the most daily functionality. I know Ron has posted many times about what drug cocktail works best for one is not necessarily the same for another. It takes patience on the part of the patient and the doc in order to come up with the correct blend.
So basically the jump from 0 to 60 should not be a jump at all, but a concerted effort on the part of the patient and the doc over an unspecified period of time until a therapeutic level is achieved and maintainable.
"C"
“If it is not right do not do it; if it is not true do not say it.”
Marcus Aurelius
The simple fact that MMJ can not work, maybe it does for the poster? No matter how you look at it, it is still a drug.
I personally can not tolerate it at all. It gives me a screaming, hit myself in the head because it hurts soooo bad headache. I may have experimented with it's use a few years ago, it worked fine, then one day it did not go so great. I got the headache from hades and it was repeatable, though I did not try more that a few times afterwards. Used a couple of different sources as I had originally thought it was just a bad "sample", nope...
It need to be remembered that as with any other med it can just stop working or leave some nasty side effects.
I agree with Bionic to a point that posts should not be altered with out a note. However, it is nice to have the ability to remove hurtful or misstatements if needed. I have removed a couple of posts entirely when I have rethought whether they did good or harm. We are entitled to change our minds.
"I have been told my statement or statements are not logical. Would Mr. Spock ride a bicycle down a wooded mountainside when there was a perfectly good stationary bike at home?" NOTICE: Please consult a real DOCTOR before doing anything that may hurt yourself or others! Please be careful!Medtronic SCS Placed May 4, 2009. Cervical, for chronic right shoulder, upper arm pain.
Bionic-Woman,
Yes, as Paul indicated in the previous post, the old software driving PunBB put a timestamp at the bottom of any post that was edited.
The software we use today does not provide the function in the vanilla package.
We had gathered member input regarding functions that were important and should be considered for production.
Many of those extras have been incorporated. It boils down to cost.
I do have to say, this has been the first time anyone has asked for such a feature in posts today.
It is important and all moderators follow this when any post is edited for update, we leave the reason and timestamp. Other than that, its only the originator user that can alter their own. And for the most part, what I have seen is what Paul describes as correcting typos.
Beyond that, I see that people will post later on in a thread if something they said was unclear or was inappropriate.
Ron DiLauro
Ron's Story
Suicide Hotline
Alcohol and Drug Abuse
Arthritis
_________________________________________
rdilauro@gmail.com
SH Administrators = dilauro or tamtam
SH Moderator Team =
haglandc , Numbskull , Liz, or Neck of Steel Cindy
"In his eyes we're all the same Someday we'll all have perfect wings, Don't laugh at me."
"That there's none so blind as those who will not see."
The information provided by members of Spine-Health should never be considered as formal medical advice. It is recommendations based on member's personal experiences only.
This can vary from person to person, so do not take comments as medical facts or rules
Well, personally I don't view the time stamp edit as a "security" thing because it doesn't stop a person from editing their post, nor does it say what was changed.
I guess my own personal solution will have to be to quote everything I respond to in the future, so that when someone decides to edit something they've posted -- that was most likely the absolute truth, but cast a negative light in their direction -- the actual comments will still be contained in my response.
JDKE, in my opinion, you're resorting to personal attacks about my name and what medications I use (or don't use) because I've called you out on some attitudes toward pain medication that are not healthy.
If you want to have a civil discussion about appropriate pain medication usage (even MMJ), then I'm game. Frankly, I doubt that's the case, and since I'm not interested in getting into some juvenile pissing match with you over my Bionic-ness, I'll go ahead and file your responses in the appropriate bin.
RESPONSIBILITY, n. A detachable burden easily shifted to the shoulders of God, Fate, Fortune, Luck or one’s neighbor. In the days of astrology it was customary to unload it upon a star.
Instead of discussing the major topic of this thread, its becoming a battlezone.
I am closing this down before it becomes a war.
Ron DiLauro
Ron's Story
Suicide Hotline
Alcohol and Drug Abuse
Arthritis
_________________________________________
rdilauro@gmail.com
SH Administrators = dilauro or tamtam
SH Moderator Team =
haglandc , Numbskull , Liz, or Neck of Steel Cindy
"In his eyes we're all the same Someday we'll all have perfect wings, Don't laugh at me."
"That there's none so blind as those who will not see."
The information provided by members of Spine-Health should never be considered as formal medical advice. It is recommendations based on member's personal experiences only.
This can vary from person to person, so do not take comments as medical facts or rules