I'm there! I had this pain start in Jan. 09 and so far no one can tell me what it is. I can also feel for him with the morton's neuroma. I had one removed from my left foot Dec. 07 and now the right foot needs it. Just wanted to let him know he's not alone...I know that doesn't help the pain though. I hope he finds a solution soon.

Debbie

went well. It just takes a long time to completely heal. It seems like a roller coaster ride for a while. Now other than the two numb toes I don't have any pain from that surgery. I also had a bunionectomy and osteotomy on the same foot one year before the MN and then had the hardware removed when they removed the neuroma. I will probably have the other foot done this fall. Maybe. It just takes time and I'm very impatient! Best of Luck.
Debbie

Hi...
I had a problem several years ago with MN. Has he tried cortazone(sp?)shots? There is also an insert a foot Doctor can make to go in your shoes that relieve the pressure on that nerve that is causing the pain. As you know it's a very painfull condetion, WOW is it ever!! I had surgery on my foot and that was not a problem. I recovered very quickly and have had no problems since. A friend had inserts made for her shoes that helped her.
When all my spine problems started I had pain when sitting caused by a ruptured disc. But that has been ruled out in your friends case hasn't it? Wish I could be more help. Private message me and I will try to be more help with the MN.I do have more information your friend may benefit from.
Hugsssssssss
Patsy W

Yankeefan: I have a similar problem with pain while sitting. I saw several orthopedic drs and had mri's, bone scans, x-rays, etc and nothing showed up on any of these. I was diagnosed with coccydynia and had all sorts of treatments, injections, physical therapy, etc, to no avail. I had a coccygectomy in Dec, '07 and my pain only continued to get worse. I stand most of the time and this does take a toll on your feet and legs, but it is so painful trying to sit. I use a special cushion with a cut out section in the back to relieve some of the pressure on the sacrum area. I've been seeing a pain specialist and she has recommended a peripheral nerve field stimulator. Just because nothing shows up on the mri's, etc, doesn't mean there isn't something very wrong. I just can't believe that someone can't determine what the problem is when there is so much pain that goes on, nonstop, for years, and continues to get worse. Very frustrating. I can't begin to tell you how this has changed my life...I used to be so active, now I'm limited as to how much I'm able to do. Hope your friend finds some relief from his pain. You just have to treat the pain and not worry so much about why you have all this pain, because the drs sure can't tell you. It drove me out of my mind, practically, trying to get a proper diagnosis...have given up on that.

Your story sounds so much like mine, It's scary, I've been in this nightmare for over 3 years now and no one knows, what is wrong. I've had a spinal fusion to no avail. Had so many tests and scans to no avail. Now seeing pain management, trying lyrica with vicoprofin. I just can't believe no doctor can find what is wrong, when I'm in excruciating pain when sitting. I definitely feel for you as I am so frustrated too. If anyone has any idea, please help!

I recently had a trial for the peripheral nerve stimulator which didn't help my pain at all...then the dr tried radiofrequency, which didn't help. PM Dr has now recommended I have the trial for the Spinal Nerve Stimulator...awaiting approval from Blue Cross on that. It just seems hopeless. I'm about to give up on the doctors ever being able to help me. I also have SI pain, which acts up once in a while, along with my sacrum (lower back) pain. I know there are others in much worse condition than I am, but believe me, it is no fun not to be able to sit down. Our situation is unique and you will notice we won't get many responses. I've been told by ortho drs that this is a unique condition and have been turned away by many who just don't treat conditions such as this. My PM Dr is wonderful and has really tried to help me, but so far nothing is working.

I wanted to give you a little update on the stimulator front. I finally had my appointment with the Doc who will do my perm implant. The Rep wants to put the leads at T12 to L1 for me but the Doc would like me to reconsider that option. He thinks he can get my feet and my SI Joint problem if we put the leads at T11-T12. Thought you might like to know that there is some hope.

Dave

My PM Dr said she would place my leads at the very lowest point possible. Keep us posted on your progress because you will have your permanent implant before I will...that is if the insurance co approves another trial and I continue on to the permanent implant.

I would like to say I'm glad I'm not alone.I woke up in april with a shooting pain down my right leg and my buttock.Went through shots which did'nt work and have been on loratabs for a year with not much help my pm perscribed lyrica for me and that dose not help either! He gave me a video for a scs and after watching it I'm going to try it.But I'm a little scared but don't know what to do.I go back in feb to see him and I'm going to try the trial.

My name is Cheryl ans I'm 33 years old. I started having "shooting" pains down my right leg and in my right butt cheek. My pain management doctor diagnosed me with severe sciatica and spinsl stenosis. Standing sometimes relieves the pain in the buttock area but not for the shooting pains down my leg. I am scheduled for a Peripheral Nerve Stimulator trial on June 17, 2010. If anyone has had this procedure, please let me know how it went. Thanks!

Sounds to me like its an SI joint issue. Do a little reading on it and see if that is what his symptoms are. I have bad SI and it hurts to sit or lay on side lots of burning and stinging pain. There is an SI belt to help with the pain..

Sounds to me like its an SI joint issue. Do a little reading on it and see if that is what his symptoms are. I have bad SI and it hurts to sit or lay on side lots of burning and stinging pain. There is an SI belt to help with the pain..

If you have pain in butt and its goes to legs it sound like nerve damage.
Also about SCS the greatest thing that came a long.Iam 4 week out and doing great I love it.

Jim

I had this recently after my facet rhizotomy (radiofrequency ablation). It was really terrible and I was in tears a few times over it- it spread all the way down through my tailbone, down my leg to my toes. I couldn't even take a bath without a pillow to sit on.

I'm pretty sure it was the facet nerve at L5/S1 being extremely unhappy with us that we'd be so rude as to stick an electrode in there and try to kill it.

Anyway, after a week or two of some hard core meds it got much better, but of course that's because it was already in its death throes. That's just my experience.

I've always found it interesting to look up "dermatomes" and see whether pain matched the nerve roots from a specific vertebral junction. In this case, since I had just had the procedure and knew which ones they'd done, I could pinpoint which nerve was unhappy. Pretty cool. Often my pain doesn't match up and then I figure it's muscle pain.

I had the Peripheral Nerve Stimulator Trial last year. I didn't get any relief from my pain, which is low in my back...sacrum area. I don't have sciatic pain. The leads for the PNS are placed directly over the area of pain, unlike the SCS, where the leads are placed through the epidural space. I also had the trial for the SCS in December...this didn't give me any relief from my pain either. The trial for the PNS was a piece of cake compared to the SCS. I hope this is successful for you.