New here- Osteoarthritis L5- S1

New here- Osteoarthritis L5- S1

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Anonymous (not verified)
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New here- Osteoarthritis L5- S1

Hello,

I am new to the site, Nice to meet you all.

I am in severe constant pain all the time lately..
Recently I found out I have,

Bilateral facet Osteoarthritis L5- S1

I was also diagonsed with degenerative disc desease & bulging disc about a year ago.

I dont have a family doctor, Just a walk in clinic, and I use to go to the pain clinic but stopped getting the epurdurls cause I thought they were making me worse and they didn't work anyway. so I thought, All I have now is Percidan 4 x a day. and I havn't been to the pain clinic since July 29th-2008 to ask for any other help. and because I wasn't taking the percidan 4 x a day because a lady at the decompression center took me on for free I didn't need all the perc's that I had been perscribed.. the doctor at the pain clinic gave out perscriptions to last me for 4 months each time.. and I felt the decompression center was helping me at the time.. now the decompression has ended for more then a month and since then thats when I have been getting pain so severe I dont know what to do anymore. I scream in pain some days to the point .. well I will leave it at that.. it's so bad some days its hard to think about the next hour ahead to be honest. I am 42 years old, and I have had very stiff buttocks with spasms constantly & really severe pain there and in the hips/thighs areas..

I learned also from youtube one thing being excerise's on youtube to help with the glutes area on the thighs/hips area which does help, its pain on pain when doing it though, I can give you some videos from youtube also stating that Potassium, & Magnesium + Calcium, is "suppose" to be Helpfull with muscle spasm ect, due to Deficiency's we could have.. I also cannot sit on my buttocks they hurt so bad too. so right now I have a sponge underneath me while typing. and I just got the Potassium pills last night to try out. and will be trying the Magnesium as well soon hopefully. sorry for all the ranting but I do need someone that understands where I am coming from.

I am also very depressed from all of this due to pain. I cannot even sleep unless I take a pill/s to knock myself out from the pain. I am very desperate right now.

I have a Rheumatholgist appointment in march, will I even live that long. and I also called to book the pain clinic again, and that appointment isn't until another 2 months. I am so lost right now I dont know what to do. I am so afraid that the sever pain will come back in my lower back and mid back. I am honestly terrified now. I pray constantly. I live very close to Toronto,Ontario .."Concord,Ont"

Again thank you for listening to me.

Ps" very depressed

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janiski
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Last seen: 7 months 3 weeks ago
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Joined: 09/05/2008 - 3:09pm
facet arthritis

Evil I also have arthritis in L5/S1. I am fused L1 to L5. I had a rhizotomy, also called a facet ablation, where the nerves causing the pain are burned. It is done thru a pain doctor. Everyone has different degrees of relief but it can help. Good luck.

Jani

14 surgeries including L4/L5 laminectomy, L4/L5 360 degree fusion with instrumentaion, L1-L5 fusion with hardware and bone graft from my hip, accupuncture, numerous cortisone
injections, numerous rhyizotomies, prolotherapy, PT.

L4/L5 laminectomy, L4/L5 360 fusion with instrumentation, L1 to L5 fusion, L5/S1 fusion w/ disc replacement, left and right SI joints fused.

charry
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Joined: 09/06/2008 - 12:39am
Hi Accepted and Welcome

The sponge to sit on sounds like a good idea. I'll give that a try. Are you on an antidepressant? It's helped me feel better. 2 months sound like a long wait for your pain clinic since you've been there before it shouldn't be such a wait. I called the pain clinic and they moved me up to the next day and this is my 2nd pain clinic Dr. Please run those meds OTC by your Dr. first. Even certain excercises on YouTube should be ok'd by your Dr. Are you using heat/ice to help? Never give up! A cure could be around the corner. One day at a time ok? Take care. Charry

DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN

accepted (not verified)
Title: Member
facet arthritis

janiski wrote:
Evil I also have arthritis in L5/S1. I am fused L1 to L5. I had a rhizotomy, also called a facet ablation, where the nerves causing the pain are burned. It is done thru a pain doctor. Everyone has different degrees of relief but it can help. Good luck.

Jani

14 surgeries including L4/L5 laminectomy, L4/L5 360 degree fusion with instrumentaion, L1-L5 fusion with hardware and bone graft from my hip, accupuncture, numerous cortisone
injections, numerous rhyizotomies, prolotherapy, PT.

Thank you Jani for the information.

Although I dont understand when you say you are fused? what does that mean? and if you dont mind what is a rhizotomy? or and facet ablation? Thank you again.

accepted (not verified)
Title: Member
Thank you

charry wrote:
The sponge to sit on sounds like a good idea. I'll give that a try. Are you on an antidepressant? It's helped me feel better. 2 months sound like a long wait for your pain clinic since you've been there before it shouldn't be such a wait. I called the pain clinic and they moved me up to the next day and this is my 2nd pain clinic Dr. Please run those meds OTC by your Dr. first. Even certain excercises on YouTube should be ok'd by your Dr. Are you using heat/ice to help? Never give up! A cure could be around the corner. One day at a time ok? Take care. Charry

Thank you Charry.

and yes I have been on something for depresssion for many years, just I stopped going to doctors for that too. I think the reason why the pain clinic put me off for 2 months is because I didn't go for the last appointment which was july because I was felling much better at that time thanks to the decompression center, its a machine that you lay on to get decompressed - and that was for the DDD. but now thats over and I have the pain back plus a different pain being that I have OA they say now.. and yes I have used the heat wraps and ice. I also have these scar tissue bumps in my butt area( THEY HURT) its so weird they came out of no where, I was seeing a graston guy that is suppose to help with abrasions/bumps/scar tissue, but he even said to me that he cant believe how more bumps/scar tissue appeared the following week..I also have the memory foam on my bed due to my thighs/hips/butt/low back all in burning pain with spasms and stiffness, even with that when I wake in the morning it feels like im on rocks. I dont want to jinx myself here but I took a couple more of the Magnessium pills today and I feel as though the stiffness ect is going away??? wow. I actually got off the couch/s today for abit. yes youtube is being of great use to me lately I'm telling you it's been a blessing for me with alot of seaching & finding things of use to help.

Again thank you,
If you need any links to the videos I have let me know.

accepted (not verified)
Title: Member
what do you take for arthritis

I am wondering what do a person take for arthritis, I take celebrex and I dont find them any good. is there certain meds I can look into?

Thanks

Frustrated101
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Joined: 06/25/2008 - 8:16pm
I don't know how I missed

I don't know how I missed this post, but I do understand the pain your in having a somewhat similar diagnosis.It like a toothache all day, just never seems to truly let up.My pain has been compounded by what I felt was a secondary cause which may be Psoriatic Arthritis hoping my Rheumy will see this at our next visit.Do you have more pain in colder weather?
Any fatigue? It would be a good idea to keep a journal till your next visit to give the doctors a better "picture"

The pain meds barely take the edge off as well, on my bad days its Norco,Aleve, small dose of ativan which does help to a degree.I find hot showers, heated "rice" bags and sleeping in a recliner help me.Just my experience NOT Medical advice.

As far as depression, well be bipolar has made my pain a nightmare and only can suggest you vent like this and maybe see if there are "coping w/ pain clinics" in your area.My hospital do these quite often-free too- it gives you coping skills and you se how others of various DX's cop.It was eye opening/humbling for me.I am only 1 year into chronic pain and still so lost, not even 100% on my DX besides the MRI/X-ray findings.

Feel free to vent anytime!!!

accepted (not verified)
Title: Member
Thank you

Hello.

I havn't noticed if the weather is doing more damage to me lately to be honest, because the burning pain is always on me ..just like it took over my body now. the stiffness & smasms I "think" has eased off a bit today I wonder if the Potassium pills are truly working, I repeat I pray always just for a simple little bit of pain to go away now..I have my kids to look forward too, and then this whatever it is takes me over like I have no one at all now.. my family dont understand any of this( they have seen me go from normal pain that they know me for now, to severe pain that they all pity me so bad I know and I dont honestly know how I come back from that severe pain)( The severe pain has taken me off my feet to the floor this is the kind of pain I am talking about???) I have screamed from the burning severe pain in my low spine, and then mid spine all at once when it comes it comes full blast like it wants to take me completely out of this world. that is the only way I can describe the pain as I am sooo terrified of it..I dont want it to come back and take me though im really scared now..

I can handle pain, i'm notmally a strong person, but this, theres nothing to compare it to anymore.. I can say one thing epurdurls are like a feather touch comparing to my pain.. if that helps describe it any better..and yes I have been told by a walk in doctor that he thinks im bi-polar, I do have a sister that is.
I can barley think, theres no way I could keep a journal..

But I ask you please tell me more about your pain meds???

Norco,Aleve, small dose of ativan????

Thank you for all your help.

janiski
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Joined: 09/05/2008 - 3:09pm
answer to your questions

A rhizotomy or facet ablation is a procedure where they go in with small needle and stun or burn the nerves. You get a numbing injection first but need to be conscious so you can tell the doc if he is in the right place. It's a small amount of pain for potentially several to many months of no pain.

I am fused because of being knocked unconscious by a snowboarder, who ruined my SI joint and back. My spine was deteriorating and collapsing in on itself so it was fused. I am not fused in the joint where I have arthritis. That joint is stable but has plenty of arthritis, thanks to the injury.

Its important to find a good PT and a good spine doc. The spine doc can refer you to a pain clinic where they do rhizotomies. Sometimes a cortisone injection is done first to locate the pain. If the cortisone injection is successful and the pain is relieved then they know they have right location. Cortisone can bring relief for short periods of time.

Let me know if you have more questions.

Jani

L4/L5 laminectomy, L4/L5 360 fusion with instrumentation, L1 to L5 fusion, L5/S1 fusion w/ disc replacement, left and right SI joints fused.

Frustrated101
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Joined: 06/25/2008 - 8:16pm
Here you go!!!

My primary pain med is called Norco its basically vicodin(primary ingredient is Hydrocodone) it is 10 mg with 325 mg of tylenol(apap) hence the 10/325.It requires an RX, it is definitely not something to outright ask for, let the doctor decide that.

Aleve helps with my inflammation, its an OTC buy anywhere med, its classified as an NSAID(Nonsteroidal Anti-inflammatory Drug).Its rough on the stomach and should be taken with food,

Ativan is for my panic attacks, so it came from my psychiatrist, it has the benefit of having some muscle relaxing qualities works great on muscle spasms.It was a bonus, not intent, I was rx'd these years before my back became an issue.

MOST IMPORTANTLY it is best to consult your doctor with any of these drugs even the OTC stuff.

My back on a really bad day burns like a an army of fire ants crawling on me.Its terrible and I hope you get some relief soon and answers that help you feel back in control.Keep positive, it is hard, but medicine is very potent these days and doctors as well.

J.J.Grey
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Last seen: 2 years 4 months ago
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Joined: 06/23/2008 - 8:45pm
I have facet arthropathy

also and have gotten great relief from the rhizotomy. I have been getting them yearly since 2005. I would not be able to walk at all without them.

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