Brittle bone disease, EDS and stenosis

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Last seen: 1 year 4 months ago
Title: Member
Joined: 10/04/2013 - 3:54pm
Brittle bone disease, EDS and stenosis

I have not yet been diagnosed with stenosis, but my symptoms match. I have had minor problems for a few years. I have decreased range of motion in my neck, radiculopathy symptoms and now increasing pain and heavyness in the legs while walking. It is intermittent. My shin muscles can become very tight and hurt while i walk. I can't run due to the pain it sometimes causes. But one thing does not make sense and I can't seem to get answers. My neurologist found that the muscles in my neck and shoulders were very tight. Muscle relaxers had no effect on this. What could be causing this? I have Osteogenesis Imperfecta(brittle bone disease) type 1. But would stenosis with myelopathy cause these muscle problems in the neck, shoulders and legs? If so How does this occur and what can i do about it? I can't get a diagnosis until January due to health insurance problems, is it dangerous to wait? What are the risks?

sandi's picture
Last seen: 3 months 14 hours ago
Title: Member
Joined: 06/20/2008 - 12:53am
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