I suffered from DDD for about 14 years, I had a spinal fusion in sep of 07, So, I am now9 months post-op, I am so glad I did it!!! I feel like a different person.
i have DDD in my back and DJD in my hips, as well as arthritis and several bulging discs. there is no surgical solution so i use medication, exercise, rest and Yoga to help with my pain. I had a double laminectomy many years ago and there is alot of damage around that site now. i have severe sciatica in my left leg! sorry to see so many others suffering so! Jenny
Polly, I have had some experience with DDD over the years. In conversations with the variousdoctors and Chirpractors, pain management etc. I have heard various advice and opinions. If I understand correctlyfrom what doctors and others say, DDD is a natural occurance we all experience from one degree to another as we age. People may go their whole lives and experience little or no pain. Others like people on here are not so lucky. Being young and staying in shape , keeping muscles stretched and strong is a big help. But even prfessional atheletes get injuries. Hard falls, wrecks, and even demands at the work place all have affects on the discs which in essence are our body's shock absorbers. If you can find relief with stretching and moderate weght training,supervised professionally of course, conservative treatment would be great. Unfortunately, many of us have knowingly or unknowingly abused our bodies over the years and once the damage is done to a certain extent, their is really no going back. I have tried with my lumbar and cervical spine to treat conservatively. Once your discs or spurs start contacting or putting pressure on nerves or in cases just narrowing the spinal canal, my experience is the conservative treatment is over. You will have to keep tabs with your Doc on pain levels and what you can withstand. One thing, dont try to tough it out too long, if it gets to where it is severe, Find a good reputable experienced spine specialist and get it taken care of. Remember, the nerves that run through your spine control every muscle , organ etc in your body. So dont think just because you have some back pain or neck pain, it's no big deal, some day you may wake up with no bladder or bowel control or numb hands or the side of your face numb. Stay on top of it.
You wrote this (Others like people on here are not so lucky. Being young and staying in shape , keeping muscles stretched and strong is a big help. But even prfessional atheletes get injuries. Hard falls, wrecks, and even demands at the work place all have affects on the discs which in essence are our body's shock absorbers. If you can find relief with stretching and moderate weght training,supervised professionally of course, conservative treatment would be great. Unfortunately, many of us have knowingly or unknowingly abused our bodies over the years and once the damage is done to a certain extent, their is really no going back. I have tried with my lumbar and cervical spine to treat conservatively. Once your discs or spurs start contacting or putting pressure on nerves or in cases just narrowing the spinal canal, my experience is the conservative treatment is over. You will have to keep tabs with your Doc on pain levels and what you can withstand. One thing, dont try to tough it out too long, if it gets to where it is severe, Find a good reputable experienced spine specialist and get it taken care of. Remember, the nerves that run through your spine control every muscle , organ etc in your body. So dont think just because you have some back pain or neck pain, it's no big deal, some day you may wake up with no bladder or bowel control or numb hands or the side of your face numb. Stay on top of it.)
I just wanted to ask your opinion. I just had an epidural and I wrote the results of my MRI on the topic "can someone help me" towards the middle to bottom of the post. I am having some early warning signs and am very worried about it, however I think my doctors are going through the steps before I have surgery. I am a nervous wreck and am not sure what to do. You seem to know quite a lot. If I have doubts about my doctors treatment, do you know if I can take my MRI results and make an appointment with a surgeon or do I have to wait until I go through all these steps to appease my insurance compamy. I would so greatly appreciate any advice at all.
As long as possible. It does not always end in positive results. Try every option possible before resorting to surgery. What type of surgical procedure are you thinking of having?
_____________
I am in no way associated with the medical field. Anything that I post comes from personal experience only.
DDD, Facet Arthropathy, DJD,Collapsed Disc, Sleep Apnea
PT, Epidurals, Facet Blocks,Medial Branch Block, Rhizotomy,Discogram,Annular Tare L3/L4 Endoscopic MicroD and PLDD,
Methadone, Percocet, Baclofen, Welbutrin
I too had severe DDD and severe spinal stenosis. DDD usually comes with age but it can also be genetic, especially if it is evident in one disc only while the others look good, as was my case. I had a laminectomy and fusion 18 months ago and now live a back pain free life.
If you have exhausted all conservative pain options to no avail and you have got at least 2 informed opinions from spine specialists (either neuro or ortho surgeon is OK, so long as they specialise in spinal conditions) both saying surgery is your only option, then surgery it is. In that case I would suggest having surgery sooner rather than later, if surgery is inevitable. Reason being by delaying surgery you run the risk of causing further, and possibly permanent damage to nerves. Permanent nerve may not be repairable, meaning even after surgery you may still have some pain if there was permanent nerve damage. Not trying to scare anyone, but I do want to point out the realities.
Important: My comments here and comments from other members reflect personal opinions only. You should not act on any advice or opinion posted in these forums without seeking proper medical advice from a qualified doctor. Please, ALWAYS check with your personal physician before taking any action regarding your health!
Bruce,
I recently had fusion (L3-S1) with Lamenectomy (4-30-08) and this may be premature to ask or concern myself with, but since you mention it I would like to know more about removal of the instrumentation.
So far, God Bless, everything seems to be going well. No leg pain and progress each day. Still stiff and not able to lift and bend, but that hopefully, will come with time.
I see you had you instrumentation removed. Is this usual or something used as a last resort? Is it very practical to get done after the fusion is completed? How long was it before lyou really felt good and were able to do "normal" things?
I would appreciate it if you could answer some of these questions.
Thanks
No its not usual to remove hardware as it involves major surgery again. Doctors will only recommend hardware removal if they think that there is a good chance that the hardware is causing ongoing pain. Apparently, the figure is up to 15% of fusion patients may end up having their hardware removed, but it does not always help, as it is not always the 'culprit'.
In my case it could be seen from a plan x-ray that one of my pedicle screws had shifted, due to the vertebrae breaking around the screw, and this was what was causing my ongoing pain. As soon as the hardware was removed I started getting relief.
In the majority of cases, removal surgery involves cutting through the same muscles - so the scar is the same size and the recovery period, in terms of muscle recovery, is similar to that for fusion surgery. However, it is a little easier. I was back at my desk job after a week or so, and trekked up a 13,000 foot mountain after 3 months.
Important: My comments here and comments from other members reflect personal opinions only. You should not act on any advice or opinion posted in these forums without seeking proper medical advice from a qualified doctor. Please, ALWAYS check with your personal physician before taking any action regarding your health!
I was diagnosed in my 20's with it and it is very herditary in my family, I have 2 great aunts in wheel chairs from just letting it go without treatment! I too like Bubblegum waited so long to get treatment that I was bone on bone and in horrific pain and unable to do much but lay down in my recliner. My NS told me I will never be totally healed or feel like a kid again but if I can get from my usual 10+ pain level to half that I will be happy!!!!! But I tried all options first before surgery so do your homework before a decision~
Polly,
I know it has to be hard with all the pain you are in. I know the feeling. I have DDD also but it happens to be in my neck which I also have a bulding disc. I was dignosed with this 1 mth before my birthday with a Thyroid problem. So yeah. I know what you feel. I will be getting PT for my DDD though. Good Luck. Feel free to talk to me through PM or Chat. I am always at chat. Rarely on Message Boards.
Love Ya & God Bless Ye,
Jessica
I've been seen by a NS and an ortho doctor who both told me that I'm not a candidate for surgery, despite having severe painful cervical DDD, spurs, herniated, cord compression, etc. I've had three cervical MRIs in the past 18 months. I don't understand. My left arm goes numb all the time. I get spasms in my upper back that are just horrible. About six months ago, my whole body started hurting, to the point that I can hardly walk. My doctor diagnosed Fibro.
I'm fortunate that my primary doctor prescribes pain meds.
_____________
Severe Fibromyalgia. Severe cervical spinal stenosis (and progressing). Disc protusion in neck. Severe neck spasms. Lordosis. Osteoarthritis, all over. DDD. Chronic pain. No surgery, yet.
Meds: Lyrica, Gabapentin, Oxycontin, Oxycodone, Klonipin.
I understand how you feel,i am not a canidate for surgury either,Have you thought about a third opinion?Or a discogram?My pain is controled by meds too,so i will have to live with it..Did they give you any other options?
I'm seeing a spine physiatrist on Aug 6th. I'm told that's as good as it gets, but I don't want to get my hopes up high. I'm tired of the meds, as they don't work as well as they used to. I could part the seas sooner than get my doctor to increase the dosage. This entire thing, the pain, the pills, doctors, all of it; I'm just so worn out by it all.
_____________
Severe Fibromyalgia. Severe cervical spinal stenosis (and progressing). Disc protusion in neck. Severe neck spasms. Lordosis. Osteoarthritis, all over. DDD. Chronic pain. No surgery, yet.
Meds: Lyrica, Gabapentin, Oxycontin, Oxycodone, Klonipin.
I know what you mean Jem I have been going through the doctors, pain meds ( thank goodness) the pt, injections. It takes up so much time and energy it can be frustrating, but keep at it and you will find the right doctor that will take care of you. I see my second NS next week to get a second opinion, because I do not want to do fusion twice. My L5-S1 disc is gone and L4L5 is almost there. The bone on bone pain is tremendous, and getting worse. I would have had my surgery done by now but I'm still trying to get my work load covered at my place of employment. Keep up the fight and be honest at your appointment, they wont let you suffer!
Important: My comments here and comments from other members reflect personal opinions only. You should not act on any advice or opinion posted in these forums without seeking proper medical advice from a qualified doctor. Please, ALWAYS check with your personal physician before taking any action regarding your health!
I have been taking glucosmine as a suppliment to slow down deterioration. I heard there are two other vitamins you need to go with it in order for it to work but I forgot to write it down and now I forget what they were. Anyway they seem more harmless than the ibuprophin the doc prescribed.
I too used to use the Osteo Biflex and it did seem helpful with the pain in my knees. However, I had to stop with it as it is very high in sodium and I am very sensitive to sodium. Recently they released a study that says that it has been proven beyond a doubt that these two ingredients do not help regenerate cartlage. I think that it works by making you retain fluid thereby adding more fluid and lubrication to the joint area.
_____________
I am in no way associated with the medical field. Anything that I post comes from personal experience only.
DDD, Facet Arthropathy, DJD,Collapsed Disc, Sleep Apnea
PT, Epidurals, Facet Blocks,Medial Branch Block, Rhizotomy,Discogram,Annular Tare L3/L4 Endoscopic MicroD and PLDD,
Methadone, Percocet, Baclofen, Welbutrin
I was injured by a doctor in 2003. Long silly, wierd story. It caused my spine to go all out of alignment. I had horrific awful nerve pain. My MRI only showed bulges, and fusion was the only surgical answer. My EMG was abnormal.
I didn't want to go through the fusion, so I just "thought about it".
By now, you have read many different posts about people who have DDD. And I hope that the message is clearer.
Degenrative Disc Disease is something that is very treatable.
With approved proper exercise and the use of NSAIDS, most DDD situations can be managed and controlled. Its only the rare and severe cases that surgery is considered to correct DDD.
DDD is something that many people can cope with (assuming they do follow the necessary treatments). As you have read by now, Bruce (one of our Mods) is living proof as to what you can accomplish even while dealing with DDD.
Maintaining a positive approach to this and to any spinal condition is one of the major ingredients that will help in overcoming spinal problems.
_____________
Ron DiLauro Ron's Story Suicide Hotline Alcohol and Drug Abuse Arthritis _________________________________________ rdilauro@gmail.com SH Administrators = dilauro or tamtam SH Moderator Team =
haglandc , Numbskull , Liz, or Neck of Steel Cindy "In his eyes we're all the same Someday we'll all have perfect wings, Don't laugh at me." "That there's none so blind as those who will not see."
The information provided by members of Spine-Health should never be considered as formal medical advice. It is recommendations based on member's personal experiences only.
This can vary from person to person, so do not take comments as medical facts or rules
I am a 59 year old RN who tripped at work a few weeks ago and thought I pulled my back An x-ray showed severe DDD
with almost complete loss of L5-S1 disc Doc told me yes your back is screwed up but buck up and go back to work and gave me some pain pills Said the NSAIDS I had been on for years treating my knees masked my back symptoms How do you guys manage to work with this I am either in pain or a haze from drugs
If you have any questions, feel free to contact (PM) any one of the Moderators here Priestess , Bruce , Paulgla, DiLauro
The Spine-Health Web site offers so much more than these Member Forums.
Check the various tabs at the top of the Spine-Health page and you will find so much that is offered here.
Please feel free to contact me at rdilauro@gmail.com or send me a message
________________________________________________________________________________
To the best of my knowledge, X-rays only are not enough to determine the degree of DDD and disc situations. Either way if you are in pain, having the doctor tell you to just put it aside and continue to work is a bit archaic
The DDD can be very treatable, but complete loss of L5/S1, its hard to imagine how you are walking without support.
I would see a specialist, neurosurgeon , neurologist and since you mentioned you are a Registered Nurse, talk to some of your co workers to see what are the better places to go for back related problems.
Just popping NSAIDS and not knowing exactly what is going on and without details from a doctor is not the best route to take.
_____________
Ron DiLauro Ron's Story Suicide Hotline Alcohol and Drug Abuse Arthritis _________________________________________ rdilauro@gmail.com SH Administrators = dilauro or tamtam SH Moderator Team =
haglandc , Numbskull , Liz, or Neck of Steel Cindy "In his eyes we're all the same Someday we'll all have perfect wings, Don't laugh at me." "That there's none so blind as those who will not see."
The information provided by members of Spine-Health should never be considered as formal medical advice. It is recommendations based on member's personal experiences only.
This can vary from person to person, so do not take comments as medical facts or rules
I'm thankful to find a group where there are others who acvtually really understand the severe chronic pain from DDD & how it effects the nerves & makes daily life a battle to function. NOOOOOOBODY ever 'gets it' unless they live with it. which is why I'm soooo greatful to find a group of others living with it, too. My biggest struggle is how the chronic pain keeps me from being the best Mom I can & have to be for my kids. Some days I cant even stand at the stove to cook dinner. I cant dance with my daughter or throw the football with my son. I feel cheated out of live, and far worse I HATE how it effects my kids. I try my hardest to not let them see exactly how horrible the pain is, but theyre not stupid. I HATE that nobody gives a crap enough to ever even offer to come over & help with tasks they take for granted that their bodies let them do every day. I do NOT want pity, but not to be ignored or treated like a mutant either. The gebneral public is sooo uneducated on DDD & it's associated problems & disorders.
Frustrated.
I do understand your frustration, I have chonic spine pain w/ddd. I am 50 years old and have had pain since my early 30's. Also raised a child as a single mom with very little to no help. Also became very disappointed in my church community because I wanted and needed help, and wasn't understood. Well enough about me. A couple of things I do have control over is to allow myself to take personal private time to reduce stress level by laying down a couple times aday when possible. I found the more I push myself the worse the pain ---so be it - it is what it is -- I also use an infrared sauna (bought used)a few times a week. Also a very wise person told me that less pain medication is used if you listen to your favorite music I love listen to anything uplifting like Klov or Kdove or audio novels. Mysteries because it makes me have to think about the supense while I drive or doing office work. It really does give your mind a break thinking from pain. Well I should go ,,, I like to be helpfully and not write about stuff that is being interpeted as babble:). Take Care.
I would like some advice on shoes/footwear to help releive the pressure points reacting in my DDD neck, spine, lumbar, and hips. Shoes seem to be very expensive and I've put it off way to long. About the only excersize I can/could now can't is casual walking. My poor dog is missing the walks too!
I have MBTs and Sketchers shape ups they have a nice padded memory foam heel and soft to land on. Well they work for me anyways. I also use a cane to take the pressure off my bad leg and have used a walker when the pain was really bad. I hope you can get out for your walks soon and know your puppy will be glad also
Hey start your own post and you'll get more responses to it. Okay? Take care. Charry
_____________
Any answers I have is not medical advice only a Doctor can help you with that. Just sharing my personal experience as a fellow Spine Health member only. Mild DDD of complete lumbar area with recent healing of L5-S1 HD and annular tear.Leg &foot weakness nerve compression L4-L5.Mod. disc changes C5-C7 nerve impingement sore elbow and numb hand. Sept. 2011 MRI L4-L5 disc bulge and L5 facet joint and narrowing. Meds-Oxycontin 80mg,Cymbalta,Lyrica, Flexeril,Naproxen,Serax. Platinum Infrared heating pad. ER and Oncology trained and Cardiology RN on Disability. Keep the faith.
My lumbar crisis is taking up so much attention, my neck has kind of dropped into 2d place. My new MRI is showing DDD & arthritis (moderate).
I have yet to hear from my doctor as to whether he plans to do anything with that or if the pain meds for my low back are supposed to help my neck as well.
I do start every morning with an ice pack on my neck.
I suffered from DDD for about 14 years, I had a spinal fusion in sep of 07, So, I am now9 months post-op, I am so glad I did it!!! I feel like a different person.
Very cute pic of you and you (i'm assuming) SO
I have ddd in my upper and lower back,but i haavnt had surgury...
be impeccable with your word..
Thanks to you all for posting back:) I am not really leaning towards the surgical side;)
:)
Polly, I have had some experience with DDD over the years. In conversations with the variousdoctors and Chirpractors, pain management etc. I have heard various advice and opinions. If I understand correctlyfrom what doctors and others say, DDD is a natural occurance we all experience from one degree to another as we age. People may go their whole lives and experience little or no pain. Others like people on here are not so lucky. Being young and staying in shape , keeping muscles stretched and strong is a big help. But even prfessional atheletes get injuries. Hard falls, wrecks, and even demands at the work place all have affects on the discs which in essence are our body's shock absorbers. If you can find relief with stretching and moderate weght training,supervised professionally of course, conservative treatment would be great. Unfortunately, many of us have knowingly or unknowingly abused our bodies over the years and once the damage is done to a certain extent, their is really no going back. I have tried with my lumbar and cervical spine to treat conservatively. Once your discs or spurs start contacting or putting pressure on nerves or in cases just narrowing the spinal canal, my experience is the conservative treatment is over. You will have to keep tabs with your Doc on pain levels and what you can withstand. One thing, dont try to tough it out too long, if it gets to where it is severe, Find a good reputable experienced spine specialist and get it taken care of. Remember, the nerves that run through your spine control every muscle , organ etc in your body. So dont think just because you have some back pain or neck pain, it's no big deal, some day you may wake up with no bladder or bowel control or numb hands or the side of your face numb. Stay on top of it.
To E.J.
You wrote this (Others like people on here are not so lucky. Being young and staying in shape , keeping muscles stretched and strong is a big help. But even prfessional atheletes get injuries. Hard falls, wrecks, and even demands at the work place all have affects on the discs which in essence are our body's shock absorbers. If you can find relief with stretching and moderate weght training,supervised professionally of course, conservative treatment would be great. Unfortunately, many of us have knowingly or unknowingly abused our bodies over the years and once the damage is done to a certain extent, their is really no going back. I have tried with my lumbar and cervical spine to treat conservatively. Once your discs or spurs start contacting or putting pressure on nerves or in cases just narrowing the spinal canal, my experience is the conservative treatment is over. You will have to keep tabs with your Doc on pain levels and what you can withstand. One thing, dont try to tough it out too long, if it gets to where it is severe, Find a good reputable experienced spine specialist and get it taken care of. Remember, the nerves that run through your spine control every muscle , organ etc in your body. So dont think just because you have some back pain or neck pain, it's no big deal, some day you may wake up with no bladder or bowel control or numb hands or the side of your face numb. Stay on top of it.)
I just wanted to ask your opinion. I just had an epidural and I wrote the results of my MRI on the topic "can someone help me" towards the middle to bottom of the post. I am having some early warning signs and am very worried about it, however I think my doctors are going through the steps before I have surgery. I am a nervous wreck and am not sure what to do. You seem to know quite a lot. If I have doubts about my doctors treatment, do you know if I can take my MRI results and make an appointment with a surgeon or do I have to wait until I go through all these steps to appease my insurance compamy. I would so greatly appreciate any advice at all.
Thank you very much!!!
Laurie~
As long as possible. It does not always end in positive results. Try every option possible before resorting to surgery. What type of surgical procedure are you thinking of having?
I am in no way associated with the medical field. Anything that I post comes from personal experience only.
DDD, Facet Arthropathy, DJD,Collapsed Disc, Sleep Apnea
PT, Epidurals, Facet Blocks,Medial Branch Block, Rhizotomy,Discogram,Annular Tare L3/L4 Endoscopic MicroD and PLDD,
Methadone, Percocet, Baclofen, Welbutrin
I too had severe DDD and severe spinal stenosis. DDD usually comes with age but it can also be genetic, especially if it is evident in one disc only while the others look good, as was my case. I had a laminectomy and fusion 18 months ago and now live a back pain free life.
If you have exhausted all conservative pain options to no avail and you have got at least 2 informed opinions from spine specialists (either neuro or ortho surgeon is OK, so long as they specialise in spinal conditions) both saying surgery is your only option, then surgery it is. In that case I would suggest having surgery sooner rather than later, if surgery is inevitable. Reason being by delaying surgery you run the risk of causing further, and possibly permanent damage to nerves. Permanent nerve may not be repairable, meaning even after surgery you may still have some pain if there was permanent nerve damage. Not trying to scare anyone, but I do want to point out the realities.
All the best... Bruce.
View my story
View my mountain climbing experience
Useful Resources
View Pain Management Procedures
Important: My comments here and comments from other members reflect personal opinions only. You should not act on any advice or opinion posted in these forums without seeking proper medical advice from a qualified doctor. Please, ALWAYS check with your personal physician before taking any action regarding your health!
Bruce,
I recently had fusion (L3-S1) with Lamenectomy (4-30-08) and this may be premature to ask or concern myself with, but since you mention it I would like to know more about removal of the instrumentation.
So far, God Bless, everything seems to be going well. No leg pain and progress each day. Still stiff and not able to lift and bend, but that hopefully, will come with time.
I see you had you instrumentation removed. Is this usual or something used as a last resort? Is it very practical to get done after the fusion is completed? How long was it before lyou really felt good and were able to do "normal" things?
I would appreciate it if you could answer some of these questions.
Thanks
No its not usual to remove hardware as it involves major surgery again. Doctors will only recommend hardware removal if they think that there is a good chance that the hardware is causing ongoing pain. Apparently, the figure is up to 15% of fusion patients may end up having their hardware removed, but it does not always help, as it is not always the 'culprit'.
In my case it could be seen from a plan x-ray that one of my pedicle screws had shifted, due to the vertebrae breaking around the screw, and this was what was causing my ongoing pain. As soon as the hardware was removed I started getting relief.
In the majority of cases, removal surgery involves cutting through the same muscles - so the scar is the same size and the recovery period, in terms of muscle recovery, is similar to that for fusion surgery. However, it is a little easier. I was back at my desk job after a week or so, and trekked up a 13,000 foot mountain after 3 months.
View my story
View my mountain climbing experience
Useful Resources
View Pain Management Procedures
Important: My comments here and comments from other members reflect personal opinions only. You should not act on any advice or opinion posted in these forums without seeking proper medical advice from a qualified doctor. Please, ALWAYS check with your personal physician before taking any action regarding your health!
I was diagnosed in my 20's with it and it is very herditary in my family, I have 2 great aunts in wheel chairs from just letting it go without treatment! I too like Bubblegum waited so long to get treatment that I was bone on bone and in horrific pain and unable to do much but lay down in my recliner. My NS told me I will never be totally healed or feel like a kid again but if I can get from my usual 10+ pain level to half that I will be happy!!!!! But I tried all options first before surgery so do your homework before a decision~
Polly,
I know it has to be hard with all the pain you are in. I know the feeling. I have DDD also but it happens to be in my neck which I also have a bulding disc. I was dignosed with this 1 mth before my birthday with a Thyroid problem. So yeah. I know what you feel. I will be getting PT for my DDD though. Good Luck. Feel free to talk to me through PM or Chat. I am always at chat. Rarely on Message Boards.
Love Ya & God Bless Ye,
Jessica
I've been seen by a NS and an ortho doctor who both told me that I'm not a candidate for surgery, despite having severe painful cervical DDD, spurs, herniated, cord compression, etc. I've had three cervical MRIs in the past 18 months. I don't understand. My left arm goes numb all the time. I get spasms in my upper back that are just horrible. About six months ago, my whole body started hurting, to the point that I can hardly walk. My doctor diagnosed Fibro.
I'm fortunate that my primary doctor prescribes pain meds.
Severe Fibromyalgia. Severe cervical spinal stenosis (and progressing). Disc protusion in neck. Severe neck spasms. Lordosis. Osteoarthritis, all over. DDD. Chronic pain. No surgery, yet.
Meds: Lyrica, Gabapentin, Oxycontin, Oxycodone, Klonipin.
I understand how you feel,i am not a canidate for surgury either,Have you thought about a third opinion?Or a discogram?My pain is controled by meds too,so i will have to live with it..Did they give you any other options?
I'm seeing a spine physiatrist on Aug 6th. I'm told that's as good as it gets, but I don't want to get my hopes up high. I'm tired of the meds, as they don't work as well as they used to. I could part the seas sooner than get my doctor to increase the dosage. This entire thing, the pain, the pills, doctors, all of it; I'm just so worn out by it all.
Severe Fibromyalgia. Severe cervical spinal stenosis (and progressing). Disc protusion in neck. Severe neck spasms. Lordosis. Osteoarthritis, all over. DDD. Chronic pain. No surgery, yet.
Meds: Lyrica, Gabapentin, Oxycontin, Oxycodone, Klonipin.
i hope you find sme answers with the spine physiatrist,you take care.
I know what you mean Jem
I have been going through the doctors, pain meds ( thank goodness) the pt, injections. It takes up so much time and energy it can be frustrating, but keep at it and you will find the right doctor that will take care of you. I see my second NS next week to get a second opinion, because I do not want to do fusion twice. My L5-S1 disc is gone and L4L5 is almost there. The bone on bone pain is tremendous, and getting worse. I would have had my surgery done by now but I'm still trying to get my work load covered at my place of employment. Keep up the fight and be honest at your appointment, they wont let you suffer! 
Bruce, I just saw your post and checked out the mountain climbing link. Wow, that is pretty amazing and inspirational. Way to go!
Advanced spondylosis at C4-5, C5-6, C6-7
Bilateral foraminal stenosis at same levels
Central stenosis with cord flattening at C4-5, C5-6
Disk herniation at L5/S1. Conservative treatment for more than 1.5 years, with multiple ESI's, PT, etc. Microdiscectomy on May 19, 2008.
Thanks! It's amazing what we can achieve when we set our minds to it.
View my story
View my mountain climbing experience
Useful Resources
View Pain Management Procedures
Important: My comments here and comments from other members reflect personal opinions only. You should not act on any advice or opinion posted in these forums without seeking proper medical advice from a qualified doctor. Please, ALWAYS check with your personal physician before taking any action regarding your health!
I have been taking glucosmine as a suppliment to slow down deterioration. I heard there are two other vitamins you need to go with it in order for it to work but I forgot to write it down and now I forget what they were. Anyway they seem more harmless than the ibuprophin the doc prescribed.
perhaps one of the other supplements is for memory, so you can remember to take it! lol!!
Terrie
I too used to use the Osteo Biflex and it did seem helpful with the pain in my knees. However, I had to stop with it as it is very high in sodium and I am very sensitive to sodium. Recently they released a study that says that it has been proven beyond a doubt that these two ingredients do not help regenerate cartlage. I think that it works by making you retain fluid thereby adding more fluid and lubrication to the joint area.
I am in no way associated with the medical field. Anything that I post comes from personal experience only.
DDD, Facet Arthropathy, DJD,Collapsed Disc, Sleep Apnea
PT, Epidurals, Facet Blocks,Medial Branch Block, Rhizotomy,Discogram,Annular Tare L3/L4 Endoscopic MicroD and PLDD,
Methadone, Percocet, Baclofen, Welbutrin
I was injured by a doctor in 2003. Long silly, wierd story. It caused my spine to go all out of alignment. I had horrific awful nerve pain. My MRI only showed bulges, and fusion was the only surgical answer. My EMG was abnormal.
I didn't want to go through the fusion, so I just "thought about it".
Believe it or not, within 6 months I got better.
By now, you have read many different posts about people who have DDD. And I hope that the message is clearer.
Degenrative Disc Disease is something that is very treatable.
With approved proper exercise and the use of NSAIDS, most DDD situations can be managed and controlled. Its only the rare and severe cases that surgery is considered to correct DDD.
DDD is something that many people can cope with (assuming they do follow the necessary treatments). As you have read by now, Bruce (one of our Mods) is living proof as to what you can accomplish even while dealing with DDD.
Maintaining a positive approach to this and to any spinal condition is one of the major ingredients that will help in overcoming spinal problems.
Ron DiLauro
Ron's Story
Suicide Hotline
Alcohol and Drug Abuse
Arthritis
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rdilauro@gmail.com
SH Administrators = dilauro or tamtam
SH Moderator Team =
haglandc , Numbskull , Liz, or Neck of Steel Cindy
"In his eyes we're all the same Someday we'll all have perfect wings, Don't laugh at me."
"That there's none so blind as those who will not see."
The information provided by members of Spine-Health should never be considered as formal medical advice. It is recommendations based on member's personal experiences only.
This can vary from person to person, so do not take comments as medical facts or rules
I am a 59 year old RN who tripped at work a few weeks ago and thought I pulled my back An x-ray showed severe DDD
with almost complete loss of L5-S1 disc Doc told me yes your back is screwed up but buck up and go back to work and gave me some pain pills Said the NSAIDS I had been on for years treating my knees masked my back symptoms How do you guys manage to work with this I am either in pain or a haze from drugs
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If you have any questions, feel free to contact (PM) any one of the Moderators here Priestess , Bruce , Paulgla, DiLauro
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Check the various tabs at the top of the Spine-Health page and you will find so much that is offered here.
Please feel free to contact me at rdilauro@gmail.com or send me a message

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To the best of my knowledge, X-rays only are not enough to determine the degree of DDD and disc situations. Either way if you are in pain, having the doctor tell you to just put it aside and continue to work is a bit archaic
The DDD can be very treatable, but complete loss of L5/S1, its hard to imagine how you are walking without support.
I would see a specialist, neurosurgeon , neurologist and since you mentioned you are a Registered Nurse, talk to some of your co workers to see what are the better places to go for back related problems.
Just popping NSAIDS and not knowing exactly what is going on and without details from a doctor is not the best route to take.
Ron DiLauro
Ron's Story
Suicide Hotline
Alcohol and Drug Abuse
Arthritis
_________________________________________
rdilauro@gmail.com
SH Administrators = dilauro or tamtam
SH Moderator Team =
haglandc , Numbskull , Liz, or Neck of Steel Cindy
"In his eyes we're all the same Someday we'll all have perfect wings, Don't laugh at me."
"That there's none so blind as those who will not see."
The information provided by members of Spine-Health should never be considered as formal medical advice. It is recommendations based on member's personal experiences only.
This can vary from person to person, so do not take comments as medical facts or rules
I'm thankful to find a group where there are others who acvtually really understand the severe chronic pain from DDD & how it effects the nerves & makes daily life a battle to function. NOOOOOOBODY ever 'gets it' unless they live with it. which is why I'm soooo greatful to find a group of others living with it, too. My biggest struggle is how the chronic pain keeps me from being the best Mom I can & have to be for my kids. Some days I cant even stand at the stove to cook dinner. I cant dance with my daughter or throw the football with my son. I feel cheated out of live, and far worse I HATE how it effects my kids. I try my hardest to not let them see exactly how horrible the pain is, but theyre not stupid. I HATE that nobody gives a crap enough to ever even offer to come over & help with tasks they take for granted that their bodies let them do every day. I do NOT want pity, but not to be ignored or treated like a mutant either. The gebneral public is sooo uneducated on DDD & it's associated problems & disorders.
Frustrated.
I do understand your frustration, I have chonic spine pain w/ddd. I am 50 years old and have had pain since my early 30's. Also raised a child as a single mom with very little to no help. Also became very disappointed in my church community because I wanted and needed help, and wasn't understood. Well enough about me. A couple of things I do have control over is to allow myself to take personal private time to reduce stress level by laying down a couple times aday when possible. I found the more I push myself the worse the pain ---so be it - it is what it is -- I also use an infrared sauna (bought used)a few times a week. Also a very wise person told me that less pain medication is used if you listen to your favorite music I love listen to anything uplifting like Klov or Kdove or audio novels. Mysteries because it makes me have to think about the supense while I drive or doing office work. It really does give your mind a break thinking from pain. Well I should go ,,, I like to be helpfully and not write about stuff that is being interpeted as babble:). Take Care.
I would like some advice on shoes/footwear to help releive the pressure points reacting in my DDD neck, spine, lumbar, and hips. Shoes seem to be very expensive and I've put it off way to long. About the only excersize I can/could now can't is casual walking. My poor dog is missing the walks too!
I have MBTs and Sketchers shape ups they have a nice padded memory foam heel and soft to land on. Well they work for me anyways. I also use a cane to take the pressure off my bad leg and have used a walker when the pain was really bad. I hope you can get out for your walks soon and know your puppy will be glad also
Hey start your own post and you'll get more responses to it. Okay? Take care. Charry
Any answers I have is not medical advice only a Doctor can help you with that. Just sharing my personal experience as a fellow Spine Health member only. Mild DDD of complete lumbar area with recent healing of L5-S1 HD and annular tear.Leg &foot weakness nerve compression L4-L5.Mod. disc changes C5-C7 nerve impingement sore elbow and numb hand. Sept. 2011 MRI L4-L5 disc bulge and L5 facet joint and narrowing. Meds-Oxycontin 80mg,Cymbalta,Lyrica, Flexeril,Naproxen,Serax. Platinum Infrared heating pad. ER and Oncology trained and Cardiology RN on Disability. Keep the faith.
My lumbar crisis is taking up so much attention, my neck has kind of dropped into 2d place. My new MRI is showing DDD & arthritis (moderate).
I have yet to hear from my doctor as to whether he plans to do anything with that or if the pain meds for my low back are supposed to help my neck as well.
I do start every morning with an ice pack on my neck.