anyone else have this problem, who has nerve damage?

Angie

Hi Angie,

I don't have this problem, found this link which gives a lot of info on the condition:

http://dietary-supplements.info.nih.gov/factsheets/vitaminb12.asp

Hope it helps.

J.J.grey told me about these a long time ago. They work good! Gives me much more energy. Order online Wonder Laboratories. Advanced B-12 sublingual including b-6, folic acid & biotin. Take 2 a day & put under tongue. (they'll try to sell you everything under the sun) But that's all I buy!
Good luck, Jim
P.S. no offence but too many smileys, Hard to read.

Hiya , Thankyou for your replies . The B12 that i need, has to be in injection form, and there are 6 1000micrograms injections and they have to be given by the doctor over a space of 2 weeks . I said to the doctor that i would buy some from the supermarket, but she , said no, because they are not strong enough , and my level is right down, and need this to get into my system quickly All this is all new to me .

Angie xx

I have B12 deficiency, and you definitely need to listen to your doctor. I took 1000mcg every day for a week, then every other day for a week, and now once a week for life. It is not something that you can take for a short period of time, and then suddenly not need it anymore. B12 is constantly being depleted. Another important point to know; once you take these injections, the normal B12 lab value will be skewed and always appear very high.
The appropriate lab to test is a methymalonic acid test. It is the ONLY test that is accurate when supplementing with B12 injections. Check out this imformation on the American Association for Family Physicians. They have spot-on guidelines for treating B12.

Good luck,

Lisa

Hiya Lisa , thankyou for your reply I have to have 3 more injections this week, then on friday im to have ablood test she said then im to have the injections every 3 months for life . I have read some information about the B12 deficeincy, and i did not realise how important it is to have this vitamin . I am from england , im not sure if they do things differently here . Its so nice to know there are others out there who have this problem

Angie

I'm sorry you need to get the injection from now on every 3 months. My cousin had vitamin B12 deficiency and had to get the same treatment. So I get mine checked every year with my physical. Off hand I don't have the medical reasons as there's so much available info online and can't remember too much of the causes right now not being active in Nursing due to my back injury and meds Something to do with intrinsic factor or something and not being able to absorb it naturally by food in your gut so you need the injections. I'm sure you're going to feel a whole lot better once you're levels are back to normal with the injections. Keep us posted and take care. Charry
PS My Great GrandMother passed away in England of pernicious anemia before my GrandMother came over to Canada with her siblings and her Father to settle here. She was only 44 yrs old. Thanks God they have a treatment available now.

I am so sorry that there was not treatment for your grandmother , is this a kind of new thing then? I had never heard about this before and what it can do without treatment , its scary, i also have to have an ultrasound scan on my stomach (my aunt has crohans and my daughter has IBS) . Just hard to deal with all this as well as all the back and neck and joint pain . Thankyou for replying .

Angie

Sorry if there are too many smileys, its like a signature mark for me, ive always done them .

My Grandma had the B12 injections for several yrs before she passed.
She always looked forward to her injections. Said she could get a lot more done around the house the first few days after wards lol

Hope these help you as they did her

I'm glad I read your reference pfd. I hadn't realised long term use of omeprazole could affect my ability to absorb B12. I'm on it to keep my gall bladder under control - I don't need that surgery while I'm stuck with my back problems. Definitely something to chat to my GP about.

Angie sorry to hear you need injections on top of your back. Hopefully your scan doesn't find anything as well. Good luck

I know you'll feel better with the injections afterwards. You'll have more energy afterwards just like Beth's Grandma did and also my cousin who got them too. Take care friend. Charry

Glad it helped!

P.

I hope that you see my reply above. I did not realise that this post had so many replies or I would have put it down here.

Hiya , when i first put this post out i didnt really know that much about it, and what this can do. Its amazing how many people have this deficiency .

THANKYOU TOO ALL WHO HAVE REPLYED SO FAR !

Angie

I had gastric bypass surgery two and a half years ago and it is very common for weight loss surgery patients to have a B12 deficiency (we have malabsorption problems with all sorts of vitamins). At any rate, I give myself a B12 injection once a month. No big deal, really. The needles are like the ones used for insulin and I generally just inject it into my little (?) fat pad above my waist band or reach around and stick it into the top of my tush. B12 deficiency can lead to all sort of neurological problems, so do keep on it.

Linda

Look into gluten intolerance and B12 deficiency. There is a significant link between the two. Treating B12 def. with injections is imperative for you health, but it is still just a bandaid for the potential underlying problem; which always, always needs to be diagnosed and treated.

Lisa

Hiya Thankyou linda and lisa for your replys, well i am still waiting results of the antibodies test , and i have an ultrasound on my stomach tomorrow , then i see the doctor again in 10 days, so i hope to know where its coming from . my daughter has tested positive for the B12 but shes pregnant, so we dont know how the doctor will treat her . Really dont need this with all the back pain too .

Angie xx

Normally I ignore posts by people who fill them with emoticons. You really don't need that many to make a simple point. Anyway...

I agree with sleeprgirl. You still need to find out what the real problem is. I had several blood tests. 1 showed low B12. So I got a shot of B12 and some Folic Acid tabs to stick under my tongue and absorb. The doc told me to just pick up some B12-1000mg and Folic Acid-400mg at the health food store. Take them daily along with my regular vitamins. See if I felt a difference. It barely helped how I felt but my blood test looked much better.

The problem had to do with nerve pain, depression, and reduced testosterone. My urologist found the reduced testosterone and we tried some androgel for a month as a test. My energy level increased within a week. I was borderline on that test. Your regular doc will probably never test for it. This is, of course for men. Point being there was a real problem that was addressable. Since then I have resolved much of the depression. Also just got done surgery. I feel tired because of the pain killers. Other than that. I no longer get any value taking extra B12 and my blood test says so too.

Oh and here is 1 smiley for you

Graham

I too have been doing b-12 injections for about 2 years now, and they taught me to give injections to myself, that way i was not having to depend on others to inject me. For me it is no big deal. Also in the last few months i have found out i was very low in vitamin D, so now i take that once a week, and Folic acid has been about a year or so. All just part of what i need.
I really feel no better from my shots. I know many do, wish i was one, but those are the cards i have been dealt. There could be worse things to have so i count my blessings really.

j

To pjd: thanks for the article on B12 - it was really informative; it also confirmed what JJ, Graham and others said. However, for the oral route to be as effective as intramuscular, they (article) suggest you start with 2000 micrograms B12 daily, then reduce it to 1000 micrograms daily, then 1000 micrograms weekly and finally, monthly. I couldn't work out why they suggest reducing the dose; surely, if you're deficient, you're deficient!

Vitamins B & C are water-soluble and as such, are excreted by the body every day, so have to be replenished on a daily basis. The other vitamins are retained.

Hi Angie,

I was diagnosed with a B12 dificency. My level was down to 100 and it should be around 500-600. My doctor put me on B12 pills 1200mg once per day. My test was redone 2 months later and my level was back up to 329. So now I am on B12 pills for the rest of my life my doctor told me. It can cause anemia if you do not have enough B12 in your system so you want to stay on top of it. I have noticed a bit of a difference since taking it regularly but I have issues with my bowels anyways so that is what started the problem. All these meds we take do not help the situation. As for your daughter I do not see why she can't at least take the pills while she is pregnant. Ask the doctor about that one. As I have read very rarely can someone be over on their B12 level so it does not hurt to take too much of B12. B12 is not like the other vitamins so my research has shown me. Your best bet is to ask your doctor all these questions. Good luck and I hope your level is up.

Candy

Yes, I agree with Candy, because neither vits B nor C are retained by the body, therefore any excess is excreted on a daily basis via the kidneys. This is because they are water-soluble whilst the others are fat-soluble, meaning they are retained and stored within the body.

Overdose of these can cause an unwanted build-up and depending on the amount taken, can produce unwanted and ofttimes dangerous side-effects. However, do check with your doctor about this.

Good luck!

Hiya Candy and Val, B12 defficiency is a complicated one or can be, i have to go and see a blood doctor and find out where this is coming from. We need b12 , this helps to produce the red cells, which then carry oxygen to our vital organs, so this is important for us to have enough B12 floating around, so i think thats why it does not hurt us if we are a little over. i have noticed not just the sleepiness, but they dryness of my skin, i do not have the next injection until febuary , but feel like i could do with it now. So how are all you B12 buddies feeling??? HAPPY NEW YEAR TO YOU ALL Xxxxxxxxxxxx

Angie xx

Yes, as I said before, vits B & C are water-soluble, therefore they are excreted by the body on a daily basis ie not retained. The reason they are excreted via the kidneys in the urine, is because of their ability to dissolve in water. In other words, it is safe to replenish B & C on a daily basis, as any unwanted vitamins are excreted. This means additional amounts (within reason!) will not be toxic to the body.

In cases of certain diseases eg those affecting the nervous system such as multiple sclerosis, injections of large amounts of B12 are given on a 3-monthly basis and side-effects tend to be beneficial, including the production of energy.

However, all the other vitamins are fat-soluble, meaning they cannot dissolve in water and are therefore retained by the body. Taking any additional vitamins in this category can lead to internal build-up, which in turn can lead to serious metabolic issues.

Therefore, whilst it is usually safe to take extra water-soluble vits (B & C), it can be dangerous to take additional fat-soluble vitamins (all the rest). These are stored and used as necessary to produce that which is required by the body. The RDA (recommended daily allowance) should never be exceeded in this category.

If in doubt, contact your doctor or phlebotomist (blood doctor) for advice.

To Angie: thanks - glad it helped!

Hiya, i have the injection every three months, but after a month it seems to wear off, i am ready to have my jab now, but i am not due to have it until febuary !

Angie xx

Hi Angie,

Try boosting your levels with vit B compound tablets and see whether that helps your energy levels (2,000 micrograms daily; see article above).

You have pernicious anemia. In this anemia, your body destroys the cells in your stomach that help you absorb vitamin B12.Vitamin B12 deficiency can be serious if untreated, because it can lead to decreased production of red blood cells in the blood.Most often a vitamin B12 deficiency occurs when the body is unable to absorb vitamin B12 from ingested foods.

This member has been formally warned twice, once for the URL solicitation and once for posting as a medical professional.

Ron DiLauro, Spine-Health Administrator 07/26/10

Lack of vitamin B12 is to reduce vitamin B12 inadequate dietary intake or absorption undermined. The vitamin B12 deficiency is the insufficient amount of vitamin B12 itself, you get the best health.Vitamin B12 can be serious if left untreated, it can lead to decreased production of red blood cells. Vitamin B12 is a vitamin found in foods of animal origin such as meat, eggs, milk and milk products.

Vitamin B12 deficiency is a reduction of vitamin B12 from inadequate dietary intake or vitamin B12 absorption.Vitamin deterioration is a reduction in inadequate intake of vitamin B12 or decreased absorption. B-12 is a nutrient that is soluble in water. However, unlike most water-soluble vitamins, and that is not excreted in the urine.

Thankyou to everyone for your input

Angie xx

Test out by the Certified nutritionists , who can say with certainty. B-12, folic acid and B-6 deficiency causes the blood contains a lot of homocysteine proteins that cause heart disease as a result of blood should be sticky and the inner walls of arteries is a sticky as well. Its much worse things to worry about cholesterol that doctors push these days is so wide of the mark, which is to create a heart problem.

this is the first time i have seen your post here!! i do hope you are feeling better and have not got another serious problem...take care angie! L, Jenny

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Ron DiLauro, Spine-Health System Administrator 06/01/11