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Chiari Malformation and Syringomyelia

AnonymousUserAAnonymousUser Posts: 49,900
edited 06/11/2012 - 8:21 AM in Chronic Pain
Just wondering if anybody else on the boards have it. I do but had the surgery to fix the chiari . was wondering if anybody has heard of Neuragen for pain. It was in the AARP magazine . thanks
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Comments

  • Hi Razzle,

    Welcome to Spine Health. I have a friend who suffers from Chiari and the docs here are telling her there's nothing that can be done for her. It is progressively getting worse and worse. What kind of surgery did you have? I read about a decompression type surgery for it, is this what you had?

    Sorry to hit you with questions instead of answering yours, but she is such agony.

    "C"
  • It says it works for 70% of users.
    It worked for me.
    I had pain in both feet.
    I put it on the bottom of one foot and it felt much better in 10-20 minutes.
    Rubbed between toes and able to move them much better.
    A while later, I had more feeling in my feet and could walk better.
    I posted because reading another thread was what got me to try it and I felt I should try and do the same for others.

    I purchased it at CVS for $29.95.
    I believe it's worth a try and hope it works for you.
    Gordon
  • Hi Razzle. I was recently diagnosed with Syringomyelia in my Thorasic area, but have yet to be tested for Chairi. I think that there is a possiblity for it, but my spine issues have all been related to a High School Football injury so probably not.

    I am in the process of getting the ball rolling on this stuff, but am still a bit worried because of how young I am (27), and the pain that I am in. Any suggestions for how to commuicate to my doctors what is going on, and what I feel is needed. Also, what about finding a specialist, should I search one out or have my Neurologist help with that too?
  • Hi haglandc, it depends what type of chiari your friend has and what the sypmtoms are. But something can be done, they do a type of surgery where they open the back of the head and set a the cerebelum in like a net looking material that holds the brain off away from the spine. Hope this helps a little. My cousin had the surgery and I might have it next year.
  • I bought this product and really liked it. I bought a small squirt bottle (3 oz) filled it with baby oil and added five drips to the bottle. It says you can do this for larger coverage. It really works well for me. This way the small expensive bottle ($30) last so much longer. You should try it, be sure to make using this a part of your daily ritual to ensure better pain relief. =D>
  • This is my first post :H
    I have chiari with a syrinx. I had surgery 7 years ago. I would be more than happy to answer any questions you might have regarding chiari and/or the treatment. Surgery is not a cure, however, it 'should' delay the progression of the malformation/herniation of the cerebral tonsils.



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