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Restored Sleep?? ah i still cant get an answer!!

AnonymousUserAAnonymousUser Posts: 49,899
edited 06/11/2012 - 8:22 AM in Chronic Pain
Over 18 months now, and i still cant get an answer for all my back pain and chronic fatigue. Its driving me nuts!!

Just back from seeing hte specialist for a 3rd opinion and hes sent away for some tests again. Which will probably come back normal knowing my luck

I really think I have myofascial pain syndrom or fibromalgia (however you spell that!!) as all the symptons are there.

Anyways he didnt mention any of this whilst I was there. I guess hes ruling other things out first.

Anywys, he mentioned that the reason that im probably feeling tired and no energy all the time is that im not getting enough restored sleep at night. Even though im getting sleep, im not getting restored Deep sleep which we need at least 3 hours of every night.

Has anyone ever been told anything like this before? The theory makes sense but I want to see if anyone else has been told this?
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Comments

  • I was told this by a pain management doc several years ago. He focused almost as much on making sure I could get the right type of sleep as he did on fighting my pain. He said that the body gets more sensitized to pain if it can't rest and restore itself.

    "C"
  • :) hi! oh yes! when you get only 3 or 4 hours of sleep a night you are never able to go through all the sleep cycles. i am sure this causes stress which causes more pain. you need it for rest and repair. like alot of us you will learn to nap and make that your "sleep."don't know of any sure thing to help you sleep through the night. i like the natural combination of melatonin and magnesium. it is so different for each of us! good luck catching some winks! I) Jenny :)
  • that saying; 'sleep can make all the difference is so true'
    when you go night after night getting little sleep,after time can flare things up
    for 2 years i worked 3rd shift
    for 7 years stay at home mommy
    for 3 years 1st shift
    for 1 year 3rd shift
    for 3 years 1st shift
    for 9 years 3rd shift
    for 2 years 1st shift
    for last two years not able to work
    when i was younger i could get away with this,and didnt think much about it, but i wonder if going back and forth with my sleeping habits have any thing to do with sleeping problems today?
  • The difference is that I sleep mostly through the night fine. But hes saying I mustnt be going into deep sleeps which is causing this. Is leep ALL THE TIME!!

    Ah I dont know
  • Fibromyalgia docs have used tricyclic antidepressants amitryptiline and nortryptiline for this for a long time, they also help with chronic nerve pain, the trade-off is anti-cholinergic side effects (dry eyes, mouth, constipation) and weight gain.

    I am fortunate that my PCP lets me take temazepam, a benzodiazepine, when I need it, that gives me a deep sleep.
  • Hey optimist it's great to see you! was wondering where you were. everything ok?

    "C"
  • yeh i was on some of them before, didnt do anything for me. I take a dizapaem before bed but im still always feeling tired and drained
  • My doc put me on Ambien and it worked the first few days. I slept pretty deep, but then I didn't move all night and getting out of bed in the morning was excruciating. Since then I have been waking up again several times a night. My boyfriend has even noticed my wincing, whining and groaning in pain but not waking up several times as well. I quit taking it cause it just made it too difficult to get up.

    I have a new appointment and we will be discussing lunesta which someone said worked better in their opinion. I am willing to give that a try. I am also on Kadian (long acting time released form of morphine) that makes me feel really sick to my stomach, and very clumsy sometimes. It helps take the edge off for the most part (a low dose starting out)and the side effects are worth the relief right now. The assure me that the side effects will wear off as I get a little more used to having this drug in my system.

    If anyone has tried Lunesta I sure would love some feedback on if it works or doesn't work. What the side effects are and generally what you think.

    Thanks much for the support.
  • I have tried the Lunesta before, but it didn't work for me. I don't know that I noticed any side effects from it. I take Ambien CR and Rozerem each night for sleep and it works WONDERS for me. One without the other- nada! I get nothing! It doesn't make me feel sleepy, that I can tell, but it seems like I'll realize that I could go to sleep if I would just close my eyes... and I do. I have made the mistake of putting a TV in my bedroom (you know they tell you to never watch TV in bed), but I have spent so much time in bed, during the daytime and night, that I needed something to occupy my time!

    Another thing I thought I would throw in, an extra nugget of information, I went to the Kadian website and signed up to get a card that pays my copay up to $50 for one year! I think my copay is $45 so that worked out great for me! You might check it out. To be able to save any money is surely a plus!
  • I actually had a sleep study done. You might want to ask your doctor about having one. Its kind of a pain, you go to the hospital and stay the night. You have your own room, bathroom, and tv (at least thats how it was for me) They hook all these wires up to your head, and all over your body.

    The next day, they go over the results and can tell you exactly how much REM sleep you are getting. Thats how I found out I have restless leg syndrome. As soon as I enter REM, my leg twitches, and wakes me up slightly. Then I start the sleep cycle over from the beginning. This happens all night long, so I am literally getting almost no REM sleep at all, so even if I sleep 8-10 hours, my body hasn't recovered, and I wake up feeling like crap and I am fatigued all day long.
  • Wingnut, Have you been tested for sleep apnea? I was diagnosed about 8 years ago and it has made all the difference in the world. Plus when you stop breathing so many times a night it puts a strain on your heart. Just a thought.
  • =)) I have to laugh at the odea of sleeping. I haven't had any in over 7 years. I sleep between 30 minutes and 2 hours at a time. And I have to sleep sitting up! The reason for my sleep deprivation is because the pain wakes me up constantly. I also can't sit still for over a few minutes at a time and I can't change positions without waking up to do it. When I do try to sleep in my bed, I have to wake up, and then put myself into whatever position that is comfortable at that time. But what usually ends up happening is instead I realize how bad I'm hurting so I have to give up the idea and get out of the bed. If I tried to stay there, I would never fall back to sleep because the pain is overwhelming and will continue to get worse. I have tried several prescription sleeping med's but nothing has worked. Including Lunesta and Ambien. Best of luck!
  • have you had all tests for your back? cat,mri,discography,nerve conduction,etc? all of these tests are pretty definitive and one should show something. if dr's are not getting anything, then something else is probably goiing on. do you have leg pain that goes from butt to knee, or is there any numbness in leg or foot. or have they tried to have you stand on one leg? all of these help dr with pain. imo, one of these tese, if you have had them, should show somethinng. if you have not had any of these you need to have all of them to rule out stuff that is if your insurance lets you. rarely is there back pain without something showing up on at least one of these tests. and if not get them asap to help dr and you.like i said before if nothing shows up on at least one of these tests then something else is happening. have you seen other dr's and gotten second opinions? in all of my tests, my herniated disk stood out and there was not questiton at all. try a diskography. it is painful but pretty definitive
    jon
    I have 4 fusions from L5-3, the latest last May '12 where they fixed my disc that broke.They went through my side this time. I take 40 mg of oxycontin 4x a day and 4 fenatyl lollipops 300 micro gms 4x a day.
  • have you had all tests for your back? cat,mri,discography,nerve conduction,etc? all of these tests are pretty definitive and one should show something. if dr's are not getting anything, then something else is probably goiing on. do you have leg pain that goes from butt to knee, or is there any numbness in leg or foot. or have they tried to have you stand on one leg? all of these help dr with pain. imo, one of these tese, if you have had them, should show somethinng. if you have not had any of these you need to have all of them to rule out stuff that is if your insurance lets you. rarely is there back pain without something showing up on at least one of these tests. and if not get them asap to help dr and you.like i said before if nothing shows up on at least one of these tests then something else is happening. have you seen other dr's and gotten second opinions? in all of my tests, my herniated disk stood out and there was not questiton at all. try a diskography. it is painful but pretty definitive
    jon
    I have 4 fusions from L5-3, the latest last May '12 where they fixed my disc that broke.They went through my side this time. I take 40 mg of oxycontin 4x a day and 4 fenatyl lollipops 300 micro gms 4x a day.
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