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I'm 17 and dealing with spinal stenosis

AnonymousUserAAnonymousUser Posts: 49,900
edited 01/24/2016 - 8:15 PM in Spinal Stenosis
I've tried to look up cases in adolecents but I have come up dry. I see that it's mostly in older people, so i don't understand why I have it. The Sciatica sypmtoms have been getting worse over this month.
I'm just wondering if this is normal, or should I get my doctor to look into it more.

Your comments will be appreciated :)
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Comments

  • I was diagnosed with spinal stenosis at 18, and tried to research it as well. I'm almost 21 and even after a laminectomy in June 2007, I'm still dealing with the stenosis and side effects like sciatica. Not to mention a plethora of other back related issues.

    It's not that normal to have stenosis at a young age, according to what I've researched and information I was given by the doctor. In fact, even now when a nurse or doctor, or anyone for that manner hears I have spinal stenosis their reply is "At your age? No way!"

    The conclusion that my orthopedic surgeon and I came to, for me at least, was that the condition was congenital (Basically, I was born with it).

    Have you had any injuries to your back?
    Do back problems run in your family?

    I would defintely talk about it with your doctor more, but if you want to talk to someone closer to your age, PM me and we'll talk.

    :D

    Amanda
  • is what my doctor said I have. I've always wondered why my back hurt after being on my feet a while. I've always gotten back aches from Christmas shopping (for some reason I remember this the most). Now I know why. I first noticed it probably in my 20's and I am 52 now. It was never much of a problem until I developed DDD and bulging disks so they compound each other.

    Short answer is, some people are just born that way.

    Teri
  • There is a condition some are born with called "Bertolotti" syndrome.
    The first sacral vertebrae normally does not have a transverse process as the lumbar vertebrae normally do.These are lateral wings of bone attached to the vertebrae.Not seen in a normal sacral vertebrae except in this condition.
    This anomaly is also called a "transitional" vertebrae.
    People born with this condition have a much higher incidence of back pain probably related to spinal stenosis.Can be seen even during the teenage years.
    I have done a lot of research on it as I myself have the abnormality and am having surgery in 12 days.
    A lot of health care professionals are unfamiliar with this problem.
    Luckily my spine surgeon was well versed in its presentation.
  • I also have congenital stenosis.My surgeon told me that my spinal canal is smaller than a normal person.I've had back issue for most of my life.Trouble with my legs like pain and weak muscles before i was a teenager but then i didn't realize what it was and the doctors didn't know either.I wasn't diagnosed with stenosis until a year ago now i'm 42.Looking back i had a lot of the same symptoms when i was very young just not to the degree that i had them now. At least you know what you have and can deal with it. :)))
  • Hi, i am 17 also and dealig with stenosis, scoliosis, spondylosis and 3 herniated discs in the lumbar spine ( L3-L4 L4-L5, L5-S1 ). You are not alone...hang in there.
  • I'm 30 and have had back problems since I was 16. I had surgery then and still have problems. I was just diagnosed with Central Canal stenosis but its from everything else getting worse. Hang in there and know that you are not alone. There are others there for you to lean on for support.

  • I am 37, but, my stenosis is congenital and getting worse sadly.The more I recall various back issues during high school the more I probably missed them.I was a power lifter at the time and still suffer left knee issues from an overtly heavy squat session during my junior year that ended that dream.

    My birth dad's side is full of back issues they call it the "our last name" curse.

    This is a great forum with a great support system welcome!!!
  • Hi everyone. First post here. I've been a lurker for months.

    My history: Started developing spinal problems at 15, did PT and chiro until age 21 when I could no longer take it. MRI showed bulging discs at L5-S1 and L3-L4, with a herniated disc at L4-L5. The herniation bulged into the left foramina first (sometime back when I was 15) and has been making its way to the right steadily over the past year. I also suffer from stenosis.

    Now, about our problems. I've been doing some research, and I think there might be a way to fix our spines (at least the bulging discs, and likely the herniated discs too). There has been a lot of research in the past few years involving the injection of mesenchymal stem cells into the intervertebral discs. The animal models seem promising, stopping degeneration in most cases, and regenerating discs in other cases. The timeline on getting this research into treatment is sketchy. Studies need to be performed on vertebrates with spines that are relatively similar to human spines. Then human trials would need to occur. Then, provided testing panned out well, disseminating the technique to spinal surgeons.

    But the point is: it looks like there may be hope. Real hope. Normal life hope. I hate having this problem. It frustrates me constantly, limits what I can do, how I can perform the remaining actions available to me, and destroys my ability to participate in anything close to a normal life. I want this research done. And I want it now.

    If any of you want information about the MSC technique, send me an email.
  • I am so happy I found this thread I could cry! :''(

    I actually just posted over in the DDD forum looking for young people with Stenosis and DDD.

    I too have looked EVERYWHERE on the net for trials, studies, journals etc for young people with these problems and have found nothing.

    Im 22 right now and as of my last MRI (3.5 years ago) I had Lumbar Central Canal Stenosis with impingement of the thecal sac, DDD, and a disc bulge.

    Ive had back pain since I was a child, but doctors always told me to do more situps, lose weight (I was a size 0, go figure) and that I was too young for it to be serious. At 15 or 16 they finally did an MRI.

    I saw a spine surgeon when I was around 17 or 18 (why they didnt send me to a pediatric spine specialist I dont know) who told me I could live with it, or have surgery: fusion, or disc replacement. I decided not to have surgery because I didn't feel like they were taking my age seriously.

    I find it incredibly concerning that there is no literature or studies out there about people our age. We have legitimate (sp?) problems that are being ignored because we are "too young". I mean...they offer me a procedure that is commonly done on lets say...40 year olds. Not to be morbid but they dont generally have to worry about that persons spine in another 50+ years. We do.

    I was so excited about the new X-Stop procedure...until I discovered it was only for people 55+.

    Im pretty much at my wits end with this. Im too old to go to a pediatric doctor now, but I feel like Im too young to see just any old spine doctor you know?

    I understand that older people shouldn't have to suffer with pain either, but it seems unfair that there are so many studies etc for them, when some degeneration and pain is actually expected as people age. Not in young people.

    I was just referred over to an orthopedic clinic to get a new MRI since my symptoms are MUCH worse now. Regular back spasms etc. Changing my sheets does me in for the day. :W

    I know Ive rambled, I am just so glad to finally find other young people with the same issues I have been having.

    I am thinking about writing to a bunch of spine surgeons and medical centers after I get my new MRI. Someone needs to do something about the lack of care for young people....feel free to message me if you want to get in on it.

    Thanks guys
    :)
  • Tpeterson said:
    I've tried to look up cases in adolecents but I have come up dry. I see that it's mostly in older people, so i don't understand why I have it. The Sciatica sypmtoms have been getting worse over this month.
    I'm just wondering if this is normal, or should I get my doctor to look into it more.

    Your comments will be appreciated :)
    I do understand. I was diagnosed with this right below the back of my scull at my 1st Vert when I was 19 years old. I was told I was born with it, and it atributed to my overall aches and pains I've had all my life. I was told it is not common but not that rare either and that it can run in families. I am now 54 and I live with it. As I've grown older the pain is harder to deal with. I've never taken pain pills and my Dr many years ago tried to get me to take them and I refused. If I had started them that young, I knew I could die of liver toxic problems by the time I was the age I am now. The only thing that has helped is the gymnastics stretches I learned in school and my old ballet stretches, and Yoga.
    Please try to avoid pain pills if you can. Stretches and meditation can help. The only fix for this is a risky surgery.
  • I understand, as I myself was born with Rickets, which is a bone-developing disease. I've always had problems with my back, but it got real bad about 5 years ago. Went thru laminectomy for c3-c7, but combined with arthritis, still having pain daily. BTW, I'm 42...but getting by. Hang in there.
  • dilaurodilauro ConnecticutPosts: 9,714
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    For a Spine-Health Site introduction, Click on :

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    If you have any questions, feel free to contact (PM) any one of the Moderators here Priestess , Bruce , Paulgla, DiLauro

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    Check the various tabs at the top of the Spine-Health page and you will find so much that is offered here.

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    Please feel free to contact me at rdilauro@gmail.com or send me a message
    ________________________________________________________________________________
    One thing I have discovered after dealing with chronic back pain for over 30 years and my first back problems at around 11, is that chronic pain does not discriminate in terms of anything, age, race, color, religion, etc... Doesnt matter. I've tried to do research over the years to figure out why some people have spinal problems while others dont, even if they take the exact same paths through life.
    I do know that my football days when I was younger impacted my spine and created more problems , maybe some that I would have never had.
    Spinal problems?
    Are they Genetic?
    Are they familiar
    Are they self induced?
    I dont think the answer is out for all of this. So, what we have to do is once we know we have a problem is do whatever is in our power to keep it from becoming a major part of our lives. I know it is so cruel to hear about spinal problems in young people, its hard to deal with, especially when others you age are doing so much more.
    But try to look at the positive side, you do have youth on your side, your energy and strength may be what it takes to beat the problem.
    As hard as it may be, you need to stay positive and never give in. Never let this chronic pain 'beast' beat you. You always need the upper hand.
    Seek medical attention to ensure that you are doing all the right things to avoid additional problems.
    My final words, do not have surgery unless surgery is the ONLY answer
    Good luck and we are here for you when we can be of value.
    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • I'm in my thirties and I don't have stenosis, but have other problems listed below. In my teens I came down with widespread arthritis and had it in back too so I was no stranger to this pain. I'm sorry you have to deal with this problem at this age when you have so much to look forward to. I hope you have an excellent spine specialist to handle your case. There are treatments available to you beside surgery. I really hope you won't need back surgery in the future and right now you have to take good care of your back. It's good to have you here at SH and we look forward to seeing you around. Take care
  • Anthony please post more info on this links ect...
  • Yea I ws just recently diagnosed with Central Canal Stenosis. I was hurt at work and I had a MRI done. The Mri showed that I had a herniated disc at L3 L4 and I also have central canal stenosis. I'm 31 year old Firefighter, which worries me that this will ruin my career. I have only been a firefighter for 2 years and I'm not about to quit. Is it possible to continue working a career like this?? Any imput would be appreciated..

    Thanks
  • My 11 yr old son was just diagnosed ( MRI ) with stenosis, DDD, bulging discs ( L4-L5 and L5-S1), and intraosseous hemangioma on the S3

    he has severe back pain, numbness just above his left hip, and urinary incontinence. Going to see the Neuro again next week for further diagnosis and treatment ( hopefully).

    I have had 2 back surgeries and still suffer from back and sciatica pain daily. will have my 2nd epidural shot tomorrow. My father, aunt and grandfather also had the same problems. It does run in families.

    I regress...

    This is really about my son. He has been having back pain for almost 2 years now ( meaning his problems began when he was 9 years old ). It has been extremely difficult to get his PCP to believe it could be anything other than a muscle pain. He told us that these kind of things just don't happen to children. I think the worst part of all of this is the lack of treatment for pain regarding children. Motrin and Tylenol do not help and as of today, not one doctor has been willing to address his pain. Perhaps they do not believe his pain level could be high... but he has told me that when you press his lower back, pain jumps to a 8-9 on a 1-10 scale and with activity his pain level is around a 6 or higher.

    I am writing this to let others know that it CAN happen to kids. You are not alone.

    I do have one question, does anyone have a Hemangioma and if so, how did the doctor confirm it was benign and not something else. On my son's MRI report it was stated that the lesion "appeared" benign. How do you know for sure?
  • Renilou said:
    Tpeterson said:
    I've tried to look up cases in adolecents but I have come up dry. I see that it's mostly in older people, so i don't understand why I have it. The Sciatica sypmtoms have been getting worse over this month.
    I'm just wondering if this is normal, or should I get my doctor to look into it more.

    Your comments will be appreciated :)

    I do understand. I was diagnosed with this right below the back of my scull at my 1st Vert when I was 19 years old. I was told I was born with it, and it atributed to my overall aches and pains I've had all my life. I was told it is not common but not that rare either and that it can run in families. I am now 54 and I live with it. surgery.
    Wow!! how did you make it to 54 im 29 and feel im at the end of the road.
  • I've been having back pain for 15 yrs it's been either my lower back or upper back for all that time. I was in a car accident a few months ago and for that reason had an xray done, which then led to an MRI and was finally diagnosed with Cervical Stenosis. I've tried PT, Chiro, Cortisone shot, and none have worked well. I think the best pain reliever was the Chiropractic but I was going 3 times a week for years. It is only a temp. pain reliever and can be very costly and time consuming. My doc has now recommended surgery. I've been researching this topic since she had originally told me that surgery would be a last resort and sometimes is unsuccessful and can even cause more pain! So I found this website with some new Min. Invasive procedures. Has anyone here had this done yet?? Watch some of the videos to see the diff Min. Invasive techniques and how this one differs. I live in Dallas and plan to see them for a second opinion. I hope it helps some of you too. The website is www.zerospinepain.com

    What do you think?

    Oh and did I mention I'm currently going to the Texas Back Institute. I'll update as I learn more about the doc recommendations and the 2nd opinions.
  • I am only 32 and I was just diagnosed with Lumbar Spinal Stenosis. I have been dealing with the pain for 4 years now and just found a doctor who would listen to me.

    I have many other health problems so I am not surprised to be diagnosed with this- but I have had little luck finding information on people with S.S. who are under 60.

    I am currently being tested for Cushing's Syndrome. I have also been diagnosed with Fibromyalgia, PCOS, Trigeminal Neuralgia, Poly Cystic Breast Disease, Urinary Issues, and who knows what else - I cannot even think right now due to the pain and meds.

    I do not have insurance at this time but am supposed to get Blue Cross Blue Shield next month at my job.

    I am sorry that you all have this disorder but I am glad to meet some people who are young and have the same problem as me.

    I look forward top hearing from any of you who would like to talk.:)
  • Hiya.
    I was diagnosed with spainal stenosis at the age of 14 (im now 36!)I remember the pain like it was yesterday!!I have since slipped 7 discs and am currently going through number 8 in my neck.
    I know right now it seems like the pain will never go away but it will ease in time and you will eventually learn to cope with it.I had all kinds of tests and treatments most extremely painful and I eventually said enough was enough and let nature take its course.It sounds silly but the key to helping you is to stay possitive and tell yourself that it wont beat you.Try and do as much as you can without injuring yourself further,learn your limitations and always find a different way of lifting and bending that is comfortable for you.I always say that spinal stenosis lives with me not that i live with it!!
  • Seems like young people should all be healthy, but I'm old and know that isn't the case. So many things contribute to health or lack of it in babies, in toddlers, children, young adults, and adults -- so complicated.

    But a small piece of good news is that we can choose to do lots of things for ourselves -- self-care -- that will contribute to better health, or at least being more comfortable in our skins. I'm not preaching, just sayin...

    My own experience: mom was a Great Depression child (not much food), then WW2 came (food rationing), and probably she shouldn't have had kids until she got her own health stabilized, but I was born toward the end of the war, still not much food around, and there wasn't much info about nutrition.

    I wasn't a very good eater, ate peanut-butter sandwiches on dead white bread, bananas, and milk all day every day and didn't like healthful things like eggs, oatmeal, and the healthful basics. That was a bad start, because tiny bodies need the best nutrition at every meal since the bodies are growing like weeds and are burning up nutrients like crazy. Later I got on the diet bandwagon and further abused my metabolism through my 20s and 30s. Had an ischemic stroke 32 (careless diet plus birth control pills), recovered, but have had a series of unrecognized/untreated problems all my life, only some of which are 'genetic'. Most of them are from bad habits, mine and my family's. The major ones are fixed now due to my own studies of what was wrong, and how to fix it. I've never been a proponent of throwing drugs at symptoms, though there are times when that is necessary.

    Now I know more about nutrition and as a result of trying to do better for myself, I am in better health. Even though I have back/neck problems and many other health issues, because I am addressing the issues one by one through better diet and judiciously adding supplements, I really do feel well for the first time in my life, far better than I ever have.

    Feeling great is subjective; the state of wellness isn't only about diagnosis, but a state of mind, and after long tribulation I seem to have achieved that, but that is only because I've been reading about nutrition for more than 30 years and taking care of myself far better now than I ever did when I was young. I must never become complacent.

    Do not lose hope that you can achieve health, though you may continue to have problems with stenosis at the same time. We can all be as well as it's possible for us to be; treat yourself like a princess now and like a queen after you're 21, and I am talking about self-caretaking at the highest level through knowledge of nutrition and how the body uses nutrients.

    Never forget that a healthy body needs specific high-quality nutrients at every meal every day, while a body undergoing the stress of illness needs far better and far more nutrition than a well one. So that might be a key to better health for you.

    One of my most important resources for self-caretaking and information information about disorders is PRESCRIPTION FOR NUTRIONAL HEALING (WITH VITAMINS AND MINERALS) by Dr. Balch. There is a new edition out, or coming out soon, the 5th, but even an older copy will get you started and can be had on the internet at amazon, probably for pennies plus shipping.

    Also, check out this website: http://www.ctds.info/index.html
    where you will find excellent information about the effects of mineral deficiency, information that should be used in conjunction with the book mentioned above. Our bodies are made of water, minerals, and certain other chemical elements. Without the right minerals at the right levels, bodies cannot function. That is a simple but ignored truth.

    Self-caretaking is a key to a healthier life, because if you aren't going to take really good care of yourself, who will?

    The more you learn now while you're young, the better you'll feel far better as you age than if you don't learn, and believe me, the years whiz by, so don't delay beginning to be very proactive about your health, especially since you have received an early warning signal, your stenosis. The fact that you are blogging here indicates that you may be open to learning. Fortunately for you, there is a world of infomation, far more than even 10 or 20 years ago, and more coming every day, so there's no better time than now to begin studying how to keep yourself as well as you can be. It IS possible!

    I will be thinking about you.
  • I am 40 now and I believe I was about 17 when I was diagnosed with spinal stenosis during a partial disk removal surgery L 4 -5 in my back. My symtoms, experiencing weaking legs and burning hips and buttocks, lower back, numbness and tingling in my legs and in feet. I now have numbness and tingling down my left arm into my hand and fingers. Cause to that is spinal cord impingement. It isn't a very nice condition to have however I still pray for relief.

    Staying positive is what has gotten me through it. I am curious, what is working for people for pain management??...I am not for pill popping and will not take anything that is addictive. I don't like the high feeling some meds give and don't function right on them. I want to stay alert and on top of my game for myself and my family and most importantly the ones who count on me the most, my kids. I am also at the point where I need to reduce my pain levels, I am finding as I age the less tolerant I am becoming to the pain . Even with a positive attitude my body still reacts to the levels of pain I live with daily.

    I have always remained active and loved to walk. I love to challenge my mind and keep it active also. I think looking after yourself is the best way to tackle this challenge. It is wonderful to find this page and to hear other people's stories are similar to your own. I often say to myself each day what I am grateful for and today I am grateful I found you.

    It is nice to know that you aren't alone.





  • I am 40 now and I believe I was about 17 when I was diagnosed with spinal stenosis during a partial disk removal surgery L 4 -5 in my back. My symtoms, experiencing weaking legs and burning hips and buttocks, lower back, numbness and tingling in my legs and in feet. I now have numbness and tingling down my left arm into my hand and fingers. Cause to that is spinal cord impingement. It isn't a very nice condition to have however I still pray for relief.

    Staying positive is what has gotten me through it. I am curious, what is working for people for pain management??...I am not for pill popping and will not take anything that is addictive. I don't like the high feeling some meds give and don't function right on them. I want to stay alert and on top of my game for myself and my family and most importantly the ones who count on me the most, my kids. I am also at the point where I need to reduce my pain levels, I am finding as I age the less tolerant I am becoming to the pain . Even with a positive attitude my body still reacts to the levels of pain I live with daily.

    I have always remained active and loved to walk. I love to challenge my mind and keep it active also. I think looking after yourself is the best way to tackle this challenge. It is wonderful to find this page and to hear other people's stories are similar to your own. I often say to myself each day what I am grateful for and today I am grateful I found you.

    It is nice to know that you aren't alone.





  • I'm 36 years old, and around mid-January of this year, I woke up with severe low-back pain. I've had back pain in the past, but it would pass fairly quickly. After a week of the pain not lessening, and in fact, increasing, I went to an orthopedist. After an unremarkable x-ray, the ortho prescribed PT for 4 weeks, feeling the problem was muscular in nature.

    Within the next 2 weeks I developed radiculopathy (predominately in my right leg, some left), which showed itself by tingling and mild numbness in my big toe, full feeling in my my calves and weakness in my foot (lost the ability to walk on my toes and heel).

    I started to have pain over the top of my buttocks, deep within my right buttock, and the outside of my right calf (sometimes shooting over the top of my right foot to my big toe). The pain was so bad that I couldn't stand for more than a minute b/c of the pressure and pain. Upon sitting the pain would lessen considerably.

    After showing little improvement with PT, my ortho sent me for an MRI w/and w/out contrast of my lumbar spine. The MRI showed mild bulging disks at L4-L5, moderate lateral canal stenosis & congenitally short pedicles. My ortho suggested I continue with therapy, and suggested I may want to see a pain management doctor.

    I continued with PT for 3 more months, during which I could swear made my pain worse at times. During this time I regained my ability to heal and toe walk, and am able to stand a little longer with moderate pain (pain increasing the longer I stood).

    I decided to see a neurologist on my own, as I was getting frustrated with my situation. I felt the neurologist was excellent, and he really explained why he thought I was experiencing the pain I was in. The neurologist felt that the stenosis I have is the culprit, and has not allowed the inflammation of the nerve to abate. He recommended I modify my PT to accommodate my stenosis (otherwise it could make my pain worse). Should that not work he would refer me to a doctor of rehab medicine (pain manangement?). Should that not work, he said we could discuss surgical options.

    I have just switched my PT to a different center that uses not only classic PT methods, but dry-needling & manipulation as well. The therapist has found huge muscle imbalances probably due to me compensating for my pain over the last 7 months. I've been worried about the manipulation (fearing it could make things worse), but my therapist teaches at Georgetown University Hospital, so that makes me feel a bit more comfortable with it. I just started this new therapy this week.

    This brings me up to date (a lot of details left out of course for sake of post length), and I'm writing b/c I'm very down about the whole thing. I can't stand or walk for very long (10 minutes, 20 minutes sometimes more, sometimes less), without having to sit down because of the pain. I've gained a lot of weight b/c I'm not able to do much, which is probably horrible for my back (amongst other things). I feel depressed when I see people standing around or taking walks, things I totally took for granted just months ago.

    I've recently forced myself to be more active by using an elliptical (which I can go longer than walking actually), and try to keep a positive attitude (with the exception of today :) ).

    Some days are better than others, but I haven't been without significant pain since it all started. I haven't taken any narcotics (as I don't want to go down that path), and have really cut down on NSAIDs since it all began.

    I'm not sure why I've posted a synopsis of what I've gone through, but today has been tough mentally, and I stumbled across this forum. I know that there are people that are having a tougher time than I am, but I'm so down about this whole thing. I'm down about the pain in my lower back and legs, the random episodes of tingling in my feet & cramping and feeling of fullness in my calves. I worry that in 10 years I won't be able to move.

    It's really crazy that I went to bed one night months ago, and within weeks my entire life changed. Does anyone else get down about this? If so, what do you do to cope with it?

    Thanks for listening, and best to all.
  • I AM WRITING FOR MY FIANCE, HE IS 26. HE HAD BACK SURGERY AT 25 TO HAVE HIS HERNIATED L5 & S1 WORKED ON. HE ALSO HAD HIS L4 HERNIATED. HE WAS DIAGNOSED WITH SPINAL STENOSIS AT THAT POINT. WELL IT HAS BEEN JUST OVER A YEAR SINCE HE HAD IT. THE DOCTOR TODAY IN FACT LOOKED AT HIS CHART AND HAD THIS LOOK OF " OH MY GOD ", HE DIDN'T WANT TO EVEN TELL US!! HE JUST SAID, IT'S NOT GOOD!! MY FIANCE ASKED, JUST WHAT EXACTLY DOES THE RESULTS SAY. WELL NOW HE FOUND OUT THAT HE HAS SEVERE SPINAL STENOSIS AND HAS TO SEE THE SURGEON AGAIN. IT IS VERY HARD FOR HE IS 26 AND I AM 27. HE IS NOT ABLE TO FIND ANY WORK BECAUSE NO ONE WANTS TO HIRE HIM SINCE HE HAD BACK SURGERY FOR HE WOULD BE A LIABILITY RISK!!! WHAT A BUNCH OF BULL CRAP. I WAS LOOKING TO DAY ON INFO OF YOUNG PEOPLE WITH SPINAL STENOSIS AND IF IT WAS GENETIC OF ANY SORT? DO YOU KNOW WHAT I FOUND THIS!!!! THIS IS IT!!!! NOTHING ELSE WOULD GIVE ME ANY INFO, EVEN SADDER, NOT EVEN " WEBMD.COM " HAD INFO ON IT. JUST ABOUT IF YOU WERE OLDER. NO OFFENSE TO THE PEOPLE THAT ARE OLDER DEALING WITH IT NOW, I ACTUALLY FEEL SORRY FOR YOU. YOU DIDN'T HAVE AS MUCH TECHNOLOGY TO SEARCH UP ON IT WHEN IT FIRST STARTED. JUST WHAT THE DOCTORS TOLD YOU, WHICH PROBABLY WASN'T MUCH. I FEEL VERY UPSET ABOUT THE HOLE THING. I WENT THROUGH ALL OF THESE COMMENTS THAT EVERYONE HAD LEFT AND I FEEL FOR ALL OF YOU!!! I MEAN THAT!!! MY FIANCE BEFORE WE REALIZED WHAT WAS REALLY WRONG, HAD WENT THROUGH PAIN FROM HIS " RIGHT HIP DOWN TO HIS RIGHT ANKLE " EVERY DAY. I HAD MASSAGED HIM DOWN EVERY DAY MORE THAN ONCE A DAY, FOR OVER 2 1/2 YEARS!!! HE COULDN'T WALK AROUND WAL-MART, OR ANYWHERE. IT TOOK THE DOCTORS ABOUT A YEAR OF GIVING HIM DIFFERENT TYPES OF MEDICATION, THEY HAD HIM ON JUST ABOUT EVERYTHING YOU COULD THINK OF. FINALLY THE MEDICAL COVERED FOR HIM TO HAVE THE 1ST MRI. THAT IS WHEN THE DOCTOR FINALLY REALIZED AND SAID, " I GUESS YOU WEREN'T FAKING IT "!!! GO FIGURE THE MAN CAME IN AND SAID, THE PILLS YOU GAVE AREN'T WORKING WHAT ELSE CAN I GET. HE THOUGHT HE WAS SERIOUSLY LYING ABOUT HIS PAIN. I GUESS I DON'T BLAME THE DOC, BUT HOLY CRAP, IF SOMEONE COMES AND CAN'T EVEN WALK INTO THE OFFICE I WOULD FOR SURE BELIEVE THE MAN/ WOMAN!!! BUT FOR THE REST OF YOU, SURGERY DID HELP HIM, FOR OVER A YEAR HE DIDN'T FEEL ANY PAIN AND WAS ABLE TO PLAY HIS DRUMS. BUT NOW THAT WE KNOW THE PAIN IS THERE, HE TOTALLY FEELS IT. WOULD THAT BE CONSIDERED A MENTAL THING, LIKE JUST KNOWING IT IS THERE MAKES IT HURT WORSE??? BUT SURGERY DID WORK FOR HIM, AND SOMETIMES MEDICATION WORKS TOO. I HOPE THAT EVERYONE IN PAIN CAN AT LEAST FIND SOME RELIEF FROM SOMETHING. WE WISH THE BEST TO EVERYONE. THANKS FOR LISTENING I KNOW I RAMBLE ON!!! IF ANYONE WANTS TO REPLY TO THIS JUST SEND ME AN EMAIL AT " KIZZYMOTO143@YAHOO.COM " THANKS


  • I AM WRITING FOR MY FIANCE, HE IS 26. HE HAD BACK SURGERY AT 25 TO HAVE HIS HERNIATED L5 & S1 WORKED ON. HE ALSO HAD HIS L4 HERNIATED. HE WAS DIAGNOSED WITH SPINAL STENOSIS AT THAT POINT. WELL IT HAS BEEN JUST OVER A YEAR SINCE HE HAD IT. THE DOCTOR TODAY IN FACT LOOKED AT HIS CHART AND HAD THIS LOOK OF " OH MY GOD ", HE DIDN'T WANT TO EVEN TELL US!! HE JUST SAID, IT'S NOT GOOD!! MY FIANCE ASKED, JUST WHAT EXACTLY DOES THE RESULTS SAY. WELL NOW HE FOUND OUT THAT HE HAS SEVERE SPINAL STENOSIS AND HAS TO SEE THE SURGEON AGAIN. IT IS VERY HARD FOR HE IS 26 AND I AM 27. HE IS NOT ABLE TO FIND ANY WORK BECAUSE NO ONE WANTS TO HIRE HIM SINCE HE HAD BACK SURGERY FOR HE WOULD BE A LIABILITY RISK!!! WHAT A BUNCH OF BULL CRAP. I WAS LOOKING TO DAY ON INFO OF YOUNG PEOPLE WITH SPINAL STENOSIS AND IF IT WAS GENETIC OF ANY SORT? DO YOU KNOW WHAT I FOUND THIS!!!! THIS IS IT!!!! NOTHING ELSE WOULD GIVE ME ANY INFO, EVEN SADDER, NOT EVEN " WEBMD.COM " HAD INFO ON IT. JUST ABOUT IF YOU WERE OLDER. NO OFFENSE TO THE PEOPLE THAT ARE OLDER DEALING WITH IT NOW, I ACTUALLY FEEL SORRY FOR YOU. YOU DIDN'T HAVE AS MUCH TECHNOLOGY TO SEARCH UP ON IT WHEN IT FIRST STARTED. JUST WHAT THE DOCTORS TOLD YOU, WHICH PROBABLY WASN'T MUCH. I FEEL VERY UPSET ABOUT THE HOLE THING. I WENT THROUGH ALL OF THESE COMMENTS THAT EVERYONE HAD LEFT AND I FEEL FOR ALL OF YOU!!! I MEAN THAT!!! MY FIANCE BEFORE WE REALIZED WHAT WAS REALLY WRONG, HAD WENT THROUGH PAIN FROM HIS " RIGHT HIP DOWN TO HIS RIGHT ANKLE " EVERY DAY. I HAD MASSAGED HIM DOWN EVERY DAY MORE THAN ONCE A DAY, FOR OVER 2 1/2 YEARS!!! HE COULDN'T WALK AROUND WAL-MART, OR ANYWHERE. IT TOOK THE DOCTORS ABOUT A YEAR OF GIVING HIM DIFFERENT TYPES OF MEDICATION, THEY HAD HIM ON JUST ABOUT EVERYTHING YOU COULD THINK OF. FINALLY THE MEDICAL COVERED FOR HIM TO HAVE THE 1ST MRI. THAT IS WHEN THE DOCTOR FINALLY REALIZED AND SAID, " I GUESS YOU WEREN'T FAKING IT "!!! GO FIGURE THE MAN CAME IN AND SAID, THE PILLS YOU GAVE AREN'T WORKING WHAT ELSE CAN I GET. HE THOUGHT HE WAS SERIOUSLY LYING ABOUT HIS PAIN. I GUESS I DON'T BLAME THE DOC, BUT HOLY CRAP, IF SOMEONE COMES AND CAN'T EVEN WALK INTO THE OFFICE I WOULD FOR SURE BELIEVE THE MAN/ WOMAN!!! BUT FOR THE REST OF YOU, SURGERY DID HELP HIM, FOR OVER A YEAR HE DIDN'T FEEL ANY PAIN AND WAS ABLE TO PLAY HIS DRUMS. BUT NOW THAT WE KNOW THE PAIN IS THERE, HE TOTALLY FEELS IT. WOULD THAT BE CONSIDERED A MENTAL THING, LIKE JUST KNOWING IT IS THERE MAKES IT HURT WORSE??? BUT SURGERY DID WORK FOR HIM, AND SOMETIMES MEDICATION WORKS TOO. I HOPE THAT EVERYONE IN PAIN CAN AT LEAST FIND SOME RELIEF FROM SOMETHING. WE WISH THE BEST TO EVERYONE. THANKS FOR LISTENING I KNOW I RAMBLE ON!!! IF ANYONE WANTS TO REPLY TO THIS JUST SEND ME AN EMAIL AT " KIZZYMOTO143@YAHOO.COM " THANKS
  • ah, 4 yrs later it caught me my friend :) I beat you by 4 years, stenosis at 21.
  • Hey, everyone. I'm 25 years old and have been suffering from back pain since age 14, and radiculopathy since age 22. My first MRI in 2009 showed a large central disc herniation at L5/S1, moderate lumbar facet hypertrophy. My doctor never called me with the results, and as my pain progressed I took my records and saw a spine surgeon. He said I needed a disc replacement, but I was about to start medical school, and as he gave me the impression it wouldn't get worse, I put off surgery. Two years later, while on my clinical rotations (on my feet 16 hours per day), my pain progressed, and I became weak in both legs. I fell down the stairs at the hospital...got a new MRI. It showed moderate lumbar spinal stenosis and new bulging discs at L3/L4 and L4/L5. I saw a new surgeon who agreed to be conservative so I wouldn't have to take significant time out of school and graduate late. So he did a discectomy, partial laminectomy. I am now almost 4 months postop and still experiencing significant symptoms. I can barely finish my workdays. Time for a full laminectomy, and fusion I guess.

    If anyone has any advice or just wants to share the experiences message me. It's hard for people I work with to understand how much pain I'm in and it'd be nice to be in touch with people my age who know what I'm going through while trying to finish medical school and make career decisions based on my fear of further pain.
  • Hi chcs :wave: & welcome to SH :)

    I am sure you will find new friends here at SH and tons of support :D

    One thing I do suggest is that you open yourself a new thread with this post, as this thread is 2 yrs old. Plus your not 17 ;) I think you will find more support in your own thread.
    L1 - S2 "gone" useless in 1 way or another. DDD. RA. Bone Spurs. Tons of nerve damage/issues. Stenosis. Both knees replaced. 50 yrs old. I had a great fall (hence my user name) at age 41 and it has been a domino effect every since.
  • apasillas2182aapasillas2182 Posts: 1
    edited 05/16/2013 - 11:28 AM
    Wow...hello all!
    I was 18/19 years old when I first started noticing the horrible lower back pains.
    I wish I would have seen this page when I was going through my back problems, but unfortunately I didn't know what was wrong with me, and as soon as I found out I had to get this problem fixed. I was bed ridden for 8 months back in 2011, couldn't get out of a car without help, lost partial control of my bladder, was being prescribed non-stop pain killers, was being sent to physical therapy for something that hadn't yet been diagnosed!!!!! LONG STORY SHORT, I finally got an MRI, and waaahlahhh, I have spinal stenosis....I decided to get the corticosteriod shot, people would tell me that the shot doesn't work, that they wear off and that it isn't recommended; but I have also been super careful with my back and listened to all of the physical therapy tips they gave me and I am able to function normally and go on with my life...

    I feel for everyone on this site, I am deeply sorry that you had to/are going through these problems....like other people have said, you aren't alone....that's seriously how I felt when I was going through this. Get better everyone! look into the shot! you never know...Good Luck!
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