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This is so unfair.....

AnonymousUserAAnonymousUser Posts: 49,731
edited 06/11/2012 - 8:22 AM in Matters of the Heart
Hi All,

Sorry haven't been around for awhile. Lots going on with me. Thought that things were finally taking a turn for the better but then bang here comes the crap again. :(

I had an appointment with the Pain Consultant following the PRF a couple of weeks ago. Unfortunately, it didn't help and my only options now are either a third surgery or to insert a spinal cord stimulator - which he said is not curative so, the op is the only option. I'm being sent to yet another spinal specialist to see what he would do and to see if he's happy to proceed with the procedure. I just feel so sick that this journey that I have been on for the past 12 months is not ending. This couldn't have come at a worse time. I'm off on a girlie hol on Tuesday and I so don't want this to ruin it not for me but for my 3 friends.

I'm having a battle with the trust to investigate this and of course being in the know has helped as I know what buttons to press. For the first time since all this began I am finally seeing me as a patient and not a medical professional and YES you guys were so right all along telling me I need to take this further and not let them get away with ruining my life and career. I've had enough of my silence and am about ready to start shouting.

I just don't know what to do next. I don't know which option is best. I feel numb and can't really think about all this. It sucks. :''(

Cx


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Comments

  • I am so sorry for this latest news. If there is anything that I can do for you then please just let me know....you will be in my thoughts and prayers and please keep us posted as to what is going on and how you are doing....Miki
  • Try to put all of this out of your mind for now, and go away and enjoy your holiday. Then, when you are refreshed you can come back and look at it all again with fresh eyes. I know that none of us wants to hear that more surgery is needed, but it if helps you to get your life back, surely it will be worth it? I've just decided to have a corrective surgery myself, and yes, I'm scared to death! But if it helps to relieve my symptoms then I am willing to give it a go. I hope you can turn this around and think of it the same way.

    So what surgery is that they want to do next? It's great that the surgeon wants someone else to look at things for you too. Let us know what's happening, and if I don't catch you before - have a fantastic holiday!

    Big hugs, Spicey
  • Have just been online researching the spinal cord stimulator and I feel that the risks are so great that the thoughts of having one scares the crap out of me. Although I don't want a third operation it's looking like the best option.

    I am so confused now and just don't know what to do or what to think. Thank you all for your kind words and support. I'll have to wait til I see the other surgeon and see what he feels is best. Or if a miracle were to happen and my pain would disappear then I wouldn't need either option.

    Cx
  • Hi C

    I wondered where you had been and how you were doing. Sorry to hear your news but as someone else has said, at least they haven't given up on you.

    Get yourself away with the girlies and have a great time. Drink too many cocktails, wake up feeling like crap every day and then do it all over again .......... oh and another thing - embarass yourself and your mates at least twice!! =))

    See you when you get back

    xx
  • in there C and good to have you back. Just know you have got our support here. Keep doing what you have to do and really hope you find some relief.
  • Hey C,

    What is it about the spinal cord stimulator that scares the crap out of you? Maybe I can help get you answers in regards to that which will make it seem more of an option and less of a threat.

    The other "C"
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