Welcome, Friend!

It looks like you're new here. If you want to get involved, click one of these buttons!

Veritas-Health LLC has recently released patient forums to our Arthritis-Health web site.

Please visit http://www.arthritis-health.com/forum

There are several patient story videos on Spine-Health that talk about Arthritis. Search on Patient stories
Protect anonymity
We strongly suggest that members do not include their email addresses. Once that is published , your email address is available to anyone on the internet , including hackers.

Notice
All discussions and comments that contain an external URL will be automatically moved to the spam queue. No external URL pointing to a medical web site is permitted. Forum rules also indicate that you need prior moderator approval. If you are going to post an external URL, contact one of the moderators to get their approval.
Attention New Members
Your initial discussion or comment automatically is sent to a moderator's approval queue before it can be published.
There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.
This includes any analysis, interpretation, or advice based on any diagnostic test

Old scoliosis

AnonymousUserAAnonymousUser Posts: 49,731
edited 06/11/2012 - 8:22 AM in Scoliosis
old scoliosis+ DDD + bulging disc + facet joint + narrowing + nerve compression

This is what my MRI said and I am still waiting to go to the doctor. I had scoliosis surgery in 1982 and am not sure what the numbers are but its from top to bottom and part of my hip is fused to the 3 harrington rods. I would like to know if anyone has had surgery for any of these things on top of having all the old metal in your back and whats the outcome. I really want surgery because I'm in so much pain right now. Any thoughts? Thanks Melissa


advertisement

Comments

  • please look down this column and you will see a post saying going to doc today. please read it and see if you think that she may be able to help you. Although, she had her rods removed. I am trying to help you.
  • :/ I just don't know who to go to in order to find relief from my pain. I would like for someone to be able to tell me first of all what the pain is coming from. Is it due to diseased discs in my spine or what. I am not real keen on them going in with a real long needle and burning nerves to relieve my pain.

    I had a spinal fusion in 1976 at Shriner's Hospital and everything was great throughout the years. Then about 10 years ago I got depressed and couldn't even manage to get off my couch which was a stupid Futon. Ever since then I have suffered from severe hip, and lower back pain.

    I would highly suggest that anyone who has had such surgeries as back surgery to not EVER buy a futon couch or sleep on a futon couch. I would rather sleep on the floor. I blame the futon for setting off the pain that I continue to have to this day.

    Does anyone know what type of specialist I should seek out besides a pain specialist? Is there such a specialist that would specialize in patients who have had this surgery so long ago, and now having pain, and other problems that may be stemming from it?

    Any suggestions would be greatly appreciated. >:D<
  • Sorry to hear about your pain shrinerschild. What was your fusion for? Have you been to any kind of doctor? I am going to see a NS because of my previous scoliosis surgery and now I'm having problems degeneraive disc, facet joint, narrowing and 2 bulging disc. My family doc sent me to him. He is the supposed to be the best around here, I know he is a complex spine surgen and heads a team of about 8 doctors. I have an appt on the 28th. Maybe if you wanted to say what state you were in people could recommend doctors. I don't think anyone will stalk you here, everyones in too much pain! Keep us posted if you find a doctor! Good Luck...Melissa O:)
  • Hi there. I wore a milwaukee brace for years when I was young into my teens to correct my scoliosis. I am now 44 & just had spinal surgery on June 10th as my curve got much worse in my older age. I know my surgeon has done corrective surgeries on old harrington rod surgeries & he's fabulous. I researched & researched & he's one of the best in the world. His name is **EDITED**. I go see him on Monday for my 3 month check-up. He's in Texas & I'm in MO, but he's got patients from all over the world. All his info. is on the web under his name. Please take care. Kelly

    Doctors name and contact details removed by forum Moderator (paulgla). We do not permit publishing specific doctor's or institution names and contact details
  • I had a 9 level fusion in Jan. would be curious to communicate with you if you had more than 6. Can't find many folks at my age 51,, who have had large fusions. It has been life altering!
  • I am 53 years old and had what I consider a large fusion. On June 17 of this year I was fused anteriorly from L1 to L4 and posteriorly from T11 to L-4. I had bone scraped from both hips in addition to cadaver bone. I spent a week in the hospital including 3 days in intensive care. I have hardware front and back. I am wearing a turtle shell brace and will continue to do so for at least 7 to 8 more weeks.
    I can get around the house without a walker and can do simple househould chores that do not require bending. Other than that I am fairly miserable. I try not to let little things bother me, but it isn't easy. The cleaning lady does okay, but she is not me. My husband has had to make a huge adjustment so I try not to bother him to fix things that bother me. My pain is there all the time, especially in my hips, but is usually bearable. I started on 40 mg of oxycontin and am down to 15 mg a day. My orthopedic surgeon wants me off all narcotics by the middle of September and I'm thinking that may be difficult. I was warned by my surgeon that I would be like a "little old lady" for quite a while and the surgeon who gave us a second opinion said that recovery from this surgery would basically take a year out of my life. I try to be patient and realize I have a long time to go before I get my life back, but I find this whole thing very depressing
  • I am 51 and had 9 levels fused 1/27/08. It was hell for a long time. i wore the turtle shell for 6 months. At 7 months, I am a world better, but still on norco. I wouldn't be ok without. I just took my first trip, to Vegas, 2 days, tricky! I go to PT 3 x a week. I am totally fused now, but feel slightly handicapped, which I guess is better than where i was headed, crippled. Take it slow, and listen to your body and all your docs advice. Very important. i get better in monthly increments. Let me know if you have any questions. I had my surgery, front, back, and side, 2, 15 inch rods and 20 sumpin screws,!!!! @ St. Johns, Santa Monica..WB
  • Finally, after all these years, it's great to hear someone else had to wear that aweful contraption. Mine was for 5 years, and now after 30 more I'm having fusion surgery on Sept 22nd. What surgery did you have? What was your recovery like?
  • Hello ladies, are all of your surgeries from scoliosis? If it is did any of you have arthritis is your backs before the surgeries? I am 38 and when I was 12 (1982 I had surgery for scoliosis from T-6 to L-5. I have 3 harrington rods and some of my hip fused to my spine. There is just a little bit of my lumbar that has not been fused. Now I am being told that because of all the years my lumbar has taked the brunt of all the work for my back I have arthritis of a 70 year old person. I have many other issues with my back but the NS said I get one chance at an operation and he wants to wait until I am in my 50's before doing it because if he does it before then we will have hip issues to deal with and there wont be any more room to work with in there. So for now we are doing injections. I have just had one so I am not sure if they are working yet. How did the doctors tell you to deal with arthritis and the back problems? Thanks for listening ladies. Peace be with you, Melissa O:)
  • I'd love to hear some responses from people who have had the scoliosis surgery when they were young, and developed back pain later on. What was causing it, and what is the solution? I had Harrington Rods in 1984 from somewhere on top, down to L3. In the past 4 months, I have gone from completely pain free, to completely incapacitated. I think some sports may have brought it on, but nothing seems to be taking it away. The pain seems to be in 2 different spots: lower back joints, and then in my lower right buttock/hip area. I've done all the tests and nothing definitive shows up. I've had 2 epidurals and a nerve block, so they are ruling out pinched spinal nerve root. I'm thinking it may be facet joints. I'm getting sent from one doctor to the next. I'm 40 with 2 kids to take care of, and no life. It's unbelievably frustrating. The ortho surgeon doesn't know what to do with me, because he doesn't feel I'm a surgical candidate (which is fine; just tell me where to go next!). Anyone have or having this experience, and please tell me there is hope. I am so despondent that this will be like this forever. I can't leave the house unless I drag myself to a doctor's appointment. Thanks.
  • Been through all the treatments, nothing worked. Harrington rods for 19 years, horrific pain for about the last 4 years. Just got new MRI's yesterday, go to the Doc Oct. 6th. but I am pretty much hopeless at this point. Only 29 years old, toooooooo young for this &%#@!
  • I had my surgery in 1983 and have been painfree until Jan. Now I have the same pain you are talking about. They are saying my main pain is arthritis. I see a NS. I have also had cortisone shots into the facet joints. I went today to see the NS and he is now talking surgery but first wants to try some water physical therapy and some Neurontin. My pain is in the lumbar left side and goes down into my butt and back of my leg. When I am going to sleep and lay on the left side it feels like a pinch or something is stuck and I cant roll over.Doc also told me today I am disabled...at 38!
    Let me know if you want to talk more.
    Melissa
  • hi,
    i had a spinal fusion in 1983 and 1984. The rod broke the first time around. i wore the boston jacket and milwaukki brace before the surgery in 1983. i am 41 and really haven't had much extreme pain until about a year ago. i'm currently in pain everyday. the pain is mostly from my left hip, down the front of my leg, to my knee. xrays & mri's show ddd and spinal stenosis below my fusion, which goes from T6-L4.
    i have considered an epidural. did it help you?
    i'm so sorry to hear about your situation...i hope you get some relief!!!
  • Hi...Im glad to find people with the same issues as myself. I had spinal surgery as well when I was 13 with the heringtons. Everything was good till my 20's... then age, excessive exercise and childbirth took its toll I assume. I had a revision in 2004, where they took out the old rods and fused me a couple more both directions. Now 4 years later...still numbness down my leg, and bad back pain. It seems worse than the first couple of years...maybe the narcotics shielded the pain for the past couple years. Ive tried everything as well...gets frustrating going to new doctors and never getting any where. My question: I am now trying decompressing therapy---Is this harmful or could it do some good???
  • Im so glad to find people with the same issues that I have when I was 11 I had Severe scoliosis. I had a double curve it was bad!! I had the surgery with the 3 harrington rods the spinal fusion where they took the bone from my hip and all that other stuff!!!

    And now that Im older I have beeng haveing so much pain and problems!!!

    Ive got the buldging disks in my neck, narrowing, atrophy of my back muscles. Im in constant pain from morning to night I had to stop work. and all my Dr wants to give me is Physical Therapy :( !!! Im sooo upset!!

    But when i saw there were others like me,, I was glad to know that I wasnt alone!!!

    Alescia
  • Im so glad to find people with the same issues that I have when I was 11 I had Severe scoliosis. I had a double curve it was bad!! I had the surgery with the 3 harrington rods the spinal fusion where they took the bone from my hip and all that other stuff!!!

    And now that Im older I have beeng haveing so much pain and problems!!!

    Ive got the buldging disks in my neck, narrowing, atrophy of my back muscles. Im in constant pain from morning to night I had to stop work. and all my Dr wants to give me is Physical Therapy :( !!! Im sooo upset!!

    But when i saw there were others like me,, I was glad to know that I wasnt alone!!!

    Alescia
  • It's nice to know you arent alone huh. I had PhysicalTherapy too. Both water and land, neither worked for me. I have a great NS who wanted to try EVERYTHING before talking about surgery. I have also done cortosone shots and a steriod epidural. Now I have an appointment for surgery on May 29, 2009. I am so happy. Strange to say you are happy about surgery, but I cannot take all the pain so I am sure you will all know what I mean and be happy for me. They doctor is worried becauce I am so young (38) that arthritis will come back pretty bad in 10-15 years. I will deal with it then. For now I am happy. I had a CT Mylogram and he said my nerves are in a ball, they are supposed to hang loose like spaghetti. Maybe that is what is wrong with some of you? Hope you all feel better.
    Melissa
  • I am 49 yr.s old, have untreated scoliosis (it wasn't believed by my parents to be that big of an issue back in 1973), and now have 5 herniated discs from S-1 & up... My pain suddenly became unbearable @ 2 yr.s ago... The 1st neurosurgean I saw laughed when he saw my X-rays & MRI, saying I had the spine of a 75 yr. old & wouldn't touch me! That was extremely depressing as I love my job, which is running a GED & adult edu. center...
    I then went to a specialist in scoliosis & he said he could do the surgery, but he doubted I'd be satisfied w/ it due to the fragility of my spine (I'm glad he was honest).
    For me, Pilates has helped much more than any P.T... I have lost 35 lb.s & am now a size 4 (at 5'8")...
    What bothers me is the fact that injections didn't work, I paid 3K for spinal decompression (insurance deemed it experimental) and it didn't even work (I've since heard that it rarely does on scoliosis patients), and that I have to rely on morphine 60mg. twice a day to even be able to function. It makes me soooo tired, doesn't even take much pain away when the weather is bad or it's that time of the month... My pain specialist gave me a trial of Provigil to help counteract the drowsiness, but I've been fighting w. Anthem to cover it since Jan. 2009!
    I am currently debating whether to break down & have my discs fused or keep hanging in there while trying to hope science wil come up with some cure...
    Thanks for allowing me to vent!
    Lisa E.

  • Tue, 07/28/2009 - 10:55
    BETTY SCOTT
    User is online Online
    Joined: 07/28/2009
    Posts: 1
    Points: 2
    SCOLIOSIS

    Wave Wave Wave
    WELL I'V READ ALL THE POSTS ON SCOLIOSIS. i HAD HARRINGTON ROD SURGERY AT AGE 20,(1978) WORE THE MILWAUKEE BRACE FOR TWO YEARS WHEN I WAS 16 TO 18. REALLY STARTED HAVING PAIN IN THE LAST 7 YEARS. OH, HAD THE ROD REMOVED IN 1979 BECAUSE IT WAS PAINFUL WHEN I RAISED MY LEFT ARM. IT MUST HAVE BEEN RUBBING OVER SOMETHING. I ALSO HAVE FIBROMYALGIA AND OSTEOPENIA. I HAVE A BACKWARD "S" SHAPED CURVE. MY CURVES HAVE GOTTEN MUCH WORSE. I WENT FROM 45 THORACIC AND 34 LUMBAR. THEY ONLY OPERATED ON THE TOP CURVE AND GOT IT DOWN TO 28 DEGREES. NOW I'M 51 AND IN MUCH PAIN WITH 59 AND 51 DEGREE CURVES. IN THE MIDDLE OF MY FUSION WHICH IS 7 VERTEBRAE, THERE HAS BEEN A CLEAN BREAK IN TWO PIECES AND THE THE TOP OF THAT FUSION HAS SLIPPED OFF ABOUT ONE QUARTER OF THE BOTTOM. IT LEAVES A LEDGE EFFECT RIGHT WHEN THE BOTTOM CURVE IS TURNING INTO THE TOP CURVE. i WOULD LIKE TO FIND A DOCTOR THAT COULD REPAIR THIS. I WAS INTERESTED IN THE DOCTOR IN TEXAS THAT DID SURGERY ON ONE OF THE BLOGGERS THAT ENDS WITH 1317. MY EMAIL ADDRESS IS HONEYBABY232@AOL.COM IF U CARE TO SEND THE NAME.
    BELIEVE ME I KNOW HOW THE REST OF U FEEL. IT IS A VERY DEBILITATING DISEASE.
    BETTY
advertisement
This discussion has been closed.
Sign In or Register to comment.