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can you have fibro if your pain doesnt spread past our back?

AnonymousUserAAnonymousUser Posts: 49,731
edited 06/11/2012 - 8:22 AM in Fibromyalgia
Hey

Ive had many of tests done and been through mri's and loads of x rays, bloods etc and theres still no answer to my back pain. I have all the symptons of fibromyalgia except that the pain doesnt go past my back. My massage therapist says my trigger points are always very active and going nuts as she says.

My doctor mentioned fibromyalgia to me, but i just want to know if you can have it if it doesnt go past the back? I think its myofascial pain syndrome that I really have but they are that similiar im not too sure.

Just wandering what peoples opinions are. Ive read alot up on all these conditions but I just want to know if anyone has been diagonsed with fibro but with the pain just in their back? I have chronic fatigue which affects my whole body but no pain other than my back.

thanks in advance
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Comments

  • am not sure but it is definitely worth looking into. I hope that you don't have fibro but if you do then you need to know so that you can start a treatment plan for it. Please keep us posted as to how you are doing and what you find out.....take care.....Miki
  • Did the dr actually touch the possible tender points. I have all 18 but some I didn't realize till someone touched them in my arm,etc. I'd recommend seeing a rheumatologist, I finally did and got the most thorough exam ever.
  • yeh ive seen a specialist and im going to see a private one again on friday. Im going to mention that to him on Tuesday. See how it goes!
  • Yes! You can have Fibro ONLY in your back! I have it only in my lower back. I have been threw the ringer (like you) wondering what in the hell is wrong with me and Dr's telling me that I was either faking it or crazy! So I do know what you are going through! :) They have pain meds out there for you from Narcotic pain meds to a new one called Lyrica its made for Fibro! Finally my Neurologist diagnosed me about 8 months ago after serval yrs of pain and feeling like I was Crazy! So Take Care! Keep me posted! I hope this helps you, if you have any other questions feel free to ask me! >:D<
    *jesink*

  • Let us know what they find and make sure they check for spots beyond the ones you know of!
  • I go to see another specialist on tuesday evening so ill see what he says and then ill mention to him about fibro and see what he says. I just want some answers after all this time
  • hey, just to update you as im back from my appointment


    Basically the guy checked me throughly and actually spent time checking me.

    He has no answers, he was honest. I asked him about fibro but he said i have some of those symptons but he cant pin-point it to one thing. Its more towards myofascial pain syndrome.

    Although he didnt know exactly what it is and ive had all tests, mri, xray etc that have all come back clear, he advised me on changing my lifestyle and thats what i need to change.

    its sooooo hard to get motivated to try and exercise etc, it sjust so difficult.

    I ended up crying as I normally do when I come out of these consultations as I just want an answer. He said that theres no spinal damage etc which is good and its something I can change by trying to have different attitute and doing exercises etc.

  • but I find even with the fibro dx, and my history of a broken vertebrae and all my degeneration in my spine that posture still helps. My pt told me to suck in my stomach as often as I can remember and I'm looking at pilates or yoga but I'm starting slow like a few minutes of walking or an elliptical. I really think there is something about getting the blood flowing but I also think its a very fine balance of not increasing pain but if you're not going to hurt yourself its better to move the body. I know I have a hard time doing it. I hate when people push me to exercise. I've been doing a lot of stretching. Did they even suggest pt on how to get moving. You may want to ask for that?
  • hey, thanks for the comment

    well i had physio exercises ages ago to do so im going to try and do these all again and im going to try and do some gentle yoga exercises and see how this goes. its just really hard to find the strength to do these, when your so tired
  • Whether I have Fibro, Lupus, or another autoimmune disorder the sympton that bothers me the most is the "flare ups" that I have. That's what I've been calling it when I am so exhausted that I don't have the energy to get off of the sofa to feed the cat, get a drink of water, answer the phone, nothing! This can last for up to 5 days at a time. I've dealt with my back pain for 8 years total but the flare ups have only been for less than 2. How can anyone excercise under those conditions? And then because I'm sure I must be anemic I have no energy even when I'm not having a flare up. It's just an impossible situation.

    Has anyone noticed that when a doctor can't diagnose you right away they immediatly say that it's in your head? I have known many people this has happened to, including me. I also love to watch "Mystery Diagnosis" on the Discovery Health Channel, and the same thing happens to the people on there too. They want to send everyone to a Psychiatrist instead of just being honest and saying "I don't know what is wrong with you". At least Wingnuts doctor was honest but that seems to be the exception.
  • Where did you get your yoga from or is it a certain style. I'm trying to find a class or dvd to do some. I've been stretching my right side since I have scoliosis and stuff that is just so tight on that side.

    Jewels, what kind of anemia do you have? There are different types that I know about nutritionally. Did anyone ever tell you to increase iron or a vitamin. Of course it won't eliminate everything else but anemia doesn't help. I know what you mean about flare ups, just when you think you can function, whammo, your knocked back. I don't try to exercise in a flare, but when things are better.

    Yea its hard for dr's to admit they don't know. But even though I don't think its just depression, when my pain is bad and its hard to function I really get depressed. Just today since my pain is down somewhat since an injection in my neck, someone commented that I seemed more upbeat. And they are right. For me, I think the pain comes before the depression, not the other way around as many dr's seem to conclude. I saw on the National fibro association that they are just starting Continuing education credits for family physicians in fibro. No wonder they think we're nuts, they obviously are not very educated in it. Sorry to rant.
  • i just got a yoga dvd of amazon, yoga for dummies,lol

    i also got a wee book in a local book store which is handy too. It means once you learn the moves you can then do a few at a time or whenever.

    I only do a couple at a time
  • =)) OK, i have a really dumb question. Is the DVD really called Yoga for Dummies? Please don't laugh at me too hard everyone! LOL! I too want to learn yoga! I also want to learn to meditate. =))
  • Yes, the pain comes first and then the depression. Chronic pain actually causes depression in most people and then depression actually makes the pain worse. It's a vicious cycle, that's why they always put us on antidepressants, or at least supposed to.

    Don't you just hate the flare ups? It's like I'm out of the movie "Night of the Living Dead" except they are more lively than me. LOL! Actually I'm not sure what type of anemia I have, how bad is that? I just know that it's from never eating. I have been told to take iron and I just started it recently.

    Do you also have really bad charlie horses? I have them on a daily basis and I don't know if it's from fibro/lupus or from my potassium deficency.

    To anyone who gets deep tissue massages! Does your health insurance help to pay for them and where do you have them done? At a PT center or private practice? This might be very beneficial for me. Any input would be greatly appreciated!

    Peace All,
    Jewels
  • :))( Everytime I see your username it makes me remember this male customer I had over 20 years ago. He got mad at me over something and complained to my manager, he called me a "wingnut". It makes me laugh!
  • hahaha, thats funny! yeh it teaches you the yoga moves. Look up on amazon and look for reviews on different dvds to give you a better idea
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