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PLEASE HELP ME WITH SOME DIFFERENT EXPERIENCES

AnonymousUserAAnonymousUser Posts: 49,899
edited 06/11/2012 - 8:22 AM in New Member Introductions
:''(

Hello everyone. I have never talked to anyone other than doctors and mostly just my pain doctor. Let me start off by telling my situation and then my pain, signs and symptoms.

August 2001 Hit in my mail truck, I WORKED FOR THE USPS, and messed my back up. I have herniations, facet join pain, DDD and then my pains have been various. I got discitis after a radio frequency treatment and was hospitalized 10 days then had to have home IV treatment for 8 months.

My pain is from my lower back. I have pain that radiates chronicly from my right LB and hip down to the front and into my groin area. I get major numbness in my legs. When i make certain shift in weight to my right leg and foot I get these "shocks" in my pain areas that feel like I am being shocked or someone hitting me with a baseball bat. I can brush oh so lightly against a door frame, door knob or wall with my back and it will shock the fire outta me. I am only 35! This started about November of 2007 when I got the back infection and had let up but returned but not to the extent when i got hospitalized. After coming home from the hospital in 2007, I had to walk with a walker. Well, one time I just had my IV pole and was walking from my den to the living room and fell down and could not move or pick myself up. I was totally paralyzed for about 35 minutes. It took that long to move 10 feet using just my elbows, there was no one home.

But anyways, I deal with Federal workers comp and they mess me over on the timeliness of my procedures requested by my physician. I now am about to have a MEDTRONIC nerve stimulator implant in my back and if it does not work then I will be consulted out to have a two level back fusion.
After getting that infection in my spine from just the RF treatments, I am nervous, freaked out and overall confused about having a back fusion.

I am so tired of living in the pain I am in and deserver to live pain free but I just need to read or hear if anyone has had anything similar. My time frame of everything is really abnormal. I was injured in 2001 but kept working delivering mail, walking 12.5 miles a day from August 2001 until July 2002 when it just became too unbearable so I know I aggravated the injury because i did not seek medical attention immediatel. So I have been on pain medications, epidurals, radio frequencies, facet joint injections, discograms, MRIs and everything made in terms of braces, SI Loc straps, TENS units with pads and the back version in the form of the brace but now I will have this implant an it is really my final step before having a back fusion.

Also, let me talk about other pains and relief attempts.
Well, I have to lay on my back and I have to lift my right leg up into a figure four position across my left thigh while laying on my back. When I do get to sleep, I wake up hurting, I am told I cry in my sleep and moan. I am afraid to go to sleep at night, which sounds silly, but it hurts to lay there, it hurts to wake up in the mornings and so I spend many hours awake and then after a few days I am so tired I will sleep for long periods of time and then repeat the cycles. If I lay on my stomach across the bed, I have to roll over carefully to my back and then try to maneuver myself up into the sitting position and then place my hands on my thighs and lift myself up with my upper body.

I have severe depression, but not like suicidal depression. I just hate the burden on my family, I miss and am missing out on so much with my children and wife and know it is all not fair to them but it obviously cannot be helped and I try not to say anything at all but when I am told I cry and moan in my sleep, I am still burdening someone indirectly.

My medications over the years:
Fentynl patches
Lyrica
Ambien
Flexeril
Lorcet
Ultracet
Ultram
Zanaflex
Neurontin
Phenergan
Kadian
Xanax
Lunesta
Lidoderm Patches
Stool Softeners
I think that is all, but right now my current medicinal regimen:
100mg Kadian 2x daily
Phenergan 3x daily
Flexeril 3x daily
Xanax 2mg at bedtime
Lunesta at bedtime
Stool softener every other or third day.

I know this is alot of information but I am trying to think of everything.
OH I feel like my lower half of my body is disconnected from the rest of my body. I sometimes feel like there is something pulling my sciatic nerve in my right hip. It feels as if my groin is being pulled on and sometimes when I move a certain way laying down or sitting down, I can feel a squish like feeling in my right buttock and it is painful. I cannot walk well without holding the walls at times and sometimes feel like I am going to fall because my leg gives out or I have no feeling in my lower extremities.

I hope some of this rings a bell in someones ear so I can find out what helps or does not help and what all you do and have had done or would suggest, but at the same time, I would hate for someone to have this pain!

Again, right now I am 35 and this started when I was 28. That is a LOOOOONG time!

Eric
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Comments

  • You sound like you definitely should consider surgery. What do your doctors tell you? You have tried all the conservative alternatives. I am 6 weeks postop from an anterior L4/L5 fusion at age 43. I have DDD, bulges and had a bad tear in my L4/L5. After the discogram and myelogram, there was enough facts to go with my symptoms and pain to decide to have the surgery. I hated taking all the medications and doing more shots or something else that was only temporary.

    I'm not telling you to do anything. You just sound like you need some reassurement that surgery would help. Surgery can help relieve pressure on nerves or the spinal cord. There can still be some permanent damage left depending on the severity, but there can also be healing over time.

    I understand that you are scared from your previous infection ordeal.

    So far, I can say that my fusion has helped the nerve pain that I was having in my right leg and back whenever I bent over. I'm still working on some left leg muscle weakness caused from my surgery with physical therapy due to the anterior approach and some ligaments they stretched too much.

    Good luck with your decision. Your doctor/surgeon should be able to outline your expected benefits of surgery for you. Just as you said in your post, continued nerve weakness symptoms can only get worse if there is pressure on them.

  • dilaurodilauro ConnecticutPosts: 9,721
    Multiple copies exist on the Forums
    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
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