Welcome, Friend!

It looks like you're new here. If you want to get involved, click one of these buttons!

Veritas-Health LLC has recently released patient forums to our Arthritis-Health web site.

Please visit http://www.arthritis-health.com/forum

There are several patient story videos on Spine-Health that talk about Arthritis. Search on Patient stories
Protect anonymity
We strongly suggest that members do not include their email addresses. Once that is published , your email address is available to anyone on the internet , including hackers.

All discussions and comments that contain an external URL will be automatically moved to the spam queue. No external URL pointing to a medical web site is permitted. Forum rules also indicate that you need prior moderator approval. If you are going to post an external URL, contact one of the moderators to get their approval.
Attention New Members
Your initial discussion or comment automatically is sent to a moderator's approval queue before it can be published.
There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.
This includes any analysis, interpretation, or advice based on any diagnostic test

Long term use of narcotics?

manaleriemmanalerie Posts: 547
edited 06/11/2012 - 8:23 AM in Pain Medications
Ok, so today was a total wreck. I couldn't even walk. Probably the worst pain in my spine to date. I posted the whole story already, under pain medications titled y'all were right. I have a question that I think would be better asked in its own thread.

After calling my PCP today, the office called me back, and said the doctor would like to know what exactly I would like him to do for me. I told her "I don't even know what he can do for me, but I can't get a hold of my neuro, and I am in severe pain" She asked if I have tried taking tylenol. I told her that yes I have, and I have been taking max doses of tylenol, Ibu, and/or naproxen for the last year. She says, ok, so don't take anymore of that. Let me talk to the doctor again, and call you back. She calls back and says:

"Dr. says that narcotics are not for long term use. There is nothing he can do for you" Then she scheduled an appointment for next week.

I am going to PT
Getting epidural next week
I cannot have surgery

I've been to my PCP, a PM, a Neuro, a NS... are there any other doctors that I should be consulting?

Is that really all there is for me? Is there no other non-narcotic pain reliever? We've tried everything, so now you just have to deal with it? I'm certain there are meds specifically designed for long term use, am I wrong?


  • I have been on vicadin es for over 6 years,and i am not a surgical canidate,i dont think what the doctor is telling you is true,you could find another doctor.

  • I would find another doctor, my friends wife has been on opiates for 10 yrs and just talked to her today for the first time about what she's been through.OMG, the dosages and mix of meds scares me to death.Now she has a great PM and has been slowly built to this stage, is in full capacity mentally and can function physically at very low level due to injuries.

    Now just meds and no further tactics would be bad IMHO, I feel my best when doing what I can physically with the meds as an adjunct.I have read what your going through and it seems your doctors are not doing their best to help and so it may fall in your hands to remedy that sadly.Its terrible to be medicated for life, but a new medical find/procedure may come around and free you too.
  • I agree wholeheartedly with frustrated!
    You gotta do what you gotta do in order to have as
    as close to a normal life as possible. I have been able to function quite well on opiates and when I asked my doc about the long term effects on the organs he said that the body hardly knows that they are there and are much safer than ibu, tylenol, etc which can do lots of damage to your organs. opiates are the only way to go long term. You might want to find a new PM because as the title says that is their job, to manage your pain. Good luck and please keep us posted.
  • I really can only blame myself in this situation. My PCP has ignored me for years. Any of you here that have read my posts know that I have done nothing but complain about him, and I keep saying I'm finding a new one.

    You just get used to someone you know? You want to have faith in this person that you have spent so many years trusting your life with. I keep on telling myself I'm gonna give him another shot.

    I have only seen my PM once, and I will be seeing him for the second time next Tuesday for my injection. I did not discuss pain medication with him, since I was getting Ultram from my Neurologist. I did however explain the side affects I was having, but we didn't go into detail. Should I express my concerns with him? He did state that other than the epidural, there is no need to continue seeing him.

    I have an appointment with PM on Tues, PT on Wed, and PCP on Thursday. I think I am going to cancel the appointment with him on thursday, and find another PCP. How does one even go about getting a new PCP? When I moved here, I went to him on recommendation from my in-laws. I don't know a whole lot of people here, to ask for opinions. I guess I should just ask for a list from BCBS, and take my pick?
  • with painintheback. Find a new PM. This type of situation is what they are trained for and there for. I don't know what happened with other PM, have not read that post apparently. But we just have to keep trying and working our way through these uneducated, fearful, and sometimes just pure asshole docs. Not gonna change their narrow-minded perspective. Keep searching and good luck.
  • Possibly is there confusion?

    Here's why I ask. The purpose of a PCP is supposed to be so that one doc is "all knowing" about what is going on with a person. Sort of a hub and the other docs are specialists that only treat what you are referred to them for. So your PM doc won't take over from your Neurologist, unless it is the Neurologist that consulted on your treatment and then, depending on your treatment requested, it may be an in and out and then back to the Neurologist for continual care.

    For instance;

    The doc who is controlling my meds and care is the Neurologist. I do have 2 neurosurgeons and 2 PM docs. The neurologist referred me to the NS for a consult on one part of my condition. The NS refered me to PM for treatment via intervention. But the neurologist is the one controlling the meds and monitoring the overall condition.

    The PM doc here consulted with my NS and PM docs in the US and got my SCS implant, however since that is only a pain control measure, the neurologist is still the primary doc in charge.

    So maybe you feel like you are getting the run around when you really aren't. Possibly sitting down with the doc and asking "who's responsible for what?" might help square this away.

    I hope I didn't confuse you.

  • Hello Amanda.I was thinking that if you got the Ultram from your Neurologist,and the injections from your PM...the PM may be thinking that the Neurologist is treating you with all of the medications that you need.

    I signed a contract with my PM and I cannot get scripts (for pain)from another Dr. I can get other meds,for instance my PCP does treat my thyroid with synthroid medication,and if I would get a cold I could get meds for that.I cannot take OTC cold medication so I do get prescriptions when I have a cold & cough meds have codiene in them and I get scripts for that as well from my PCP.

    You may not have signed a contract (I read some of your posts,but not all I'm sure),and some Drs are not as open about sharing information with their patients as others.Maybe I missed it somewhere,but it seems as if your PM and your PCP are not on the same page with your care.

    I've been taking lortab since Nov.07.We are talking long term because I was on meds in the past.Mine has 500mg tylenol and I take it 4 times a day.I am beginning to get concerned because of the effects on the liver,and I do get a liver func.test every 6 months.
    There are pain meds with no tylenol in them and plenty of people are treated long term with narcotics.

    To change PCP's~Do you know of anyone that has a good reputation?If so you simply call their office,ask if they take your ins.,and are accepting new patients,tell them that you wish to switch PCP's,and schedule an appt.
    They should take it from there,and get your records.Most Drs don't take it personal when you switch,but if you think yours might,you could call there first and tell them that you plan to change Drs so that they aren't so surprised when they get the call/fax for your records.
    When I changed PCP's it was because I moved out of state,but if I were going to change this is what I would do..I think I would explain my reasons to my Dr before I left,but that's just me.

    Good Luck,I hope that you get the treatment that you deserve.
  • "C"

    I was being treated by my primary for my back. After about 6 months of "muscle spasm" diagnoses, and PT I asked him for an MRI. He sent me in for an X-Ray. After the X-Ray, I asked him to please call me ASAP with results as I was concerned that there was something seriously wrong. At my 3rd ER trip (for the same issue) an ER Dr. mentioned the very minor possibility of a tumor, which of course frightened me. After my x-ray showed "muscle spasms" I called my primary, and insisted on an MRI.

    After the MRI, my primary said I would need surgery. He told me to see a neurologist, and a neurosurgeon.

    I went to the neurologist, who said I didn't need surgery, and put me on Kadian (extended release morphine)

    I went back to my primary to get a script for nicotine gum. He asked me about what meds I was on and surgery. I told him that the kadian was making me very sick. I told him that I hadn't seen the neurosurgeon yet, as I needed a referral. I also said that I wasn't ready to go that route, and that the neurologist said I didn't need surgery. He became angry and said that the only way I would get better is if I have the surgery. He asked "what, do you want to be on pain meds for the rest of your life?" He said that he would no longer be treating me for my back. I would have to go to a PM.

    I made an appointment with the PM, and Neurosurgeon. I told my neurologist that the morphine was making me way to ill. (nausea vomiting, I couldn't function) I also told him what my primary said about not treating me for my back. He switched me to Ultram and Skelaxin.

    I went to the PM, and he said I would need more PT, and that he could give me an epidural. Other than that there is no need to see him any further.

    I went to the neurosurgeon, and he said there is no way he would do surgery on me at this time. I am too young, and the injury is not severe enough to do the surgery at my age. He would not cause me another 50 years of pain. I then asked the NS what I should do from there. Who should be responsible for treating my pain. He said my primary doctor should handle that. My husband explained to him what my primary said, and the NS said that he would send a letter to my primary telling him that surgery is not an option for me at this time. He asked me what pain medications I was taking, and I told him Ultram and Skelaxin. He asked if I was sleeping, and my husband told him no. So he wrote me a script for Valium.

    From there I went to my Neuro. (same building) and told him the issues I was having with the med. We both thought it was the skelaxin, so he changed it to norflex. I also told him that the NS had given me Valium to help me sleep.

    I was still having troubles with a racing heart, not sleeping etc. I stopped the Norflex, and still had issues. Last Thursday I called and left a message about the racing heart, and not being able to sleep, even with valium. A few hours later I fainted. I went to my Neuro right away. He said that I had been taking this med for 2 months, why trouble now? I explained that I had only been taking it for a month, reminded him that at first we thought it was the skelaxin etc. He says you started this July 31, August September, that's two months. (Not really but I don't wish to argue) He says that while he doesn't know what caused me to faint, he thinks my racing heart is anxiety. He asked what I take for panic attacks. I told him I usually take klonapin, but since the NS had given me valium, I didn't want to take them together. He said I should start taking the klonapin everyday, and If I happen to faint again, we will do a work up.

    I ended up fainting again, in the middle of the store later that night. The next day, I called my primary and he sent me to the ER. My concern was that I know the trouble is the ultram, and I am not comfortable taking my klonapin for other than it is prescribed which is to take only a few times a month. This is why I called my primary, for his opinion.

    I still had troubles over the weekend, and ended up in urgent care. The doctor there said that yes, ultram can cause all of these symptoms. Since I typically have low blood pressure, the changes in my heart rate will make it more likely for me to feel faint. I had already started weaning off of ultram, and stopped it that day (Sunday)

    My neuro is not in the office on Monday, so I called him today to tell him what had happened over the weekend. I was in severe pain, and could not move. I had left a message with the nurse, and he didn't return my call. I also called my Primary, to get some sort of opinion, or idea or SOMETHING.

    My PCP sent me to these doctors. My neurologist is managing my medication. I feel that he is not giving me safe advice. All of them know what meds I have been prescribed and by who. I called my PCP looking for help. I wanted pain relief, advice, something. I feel like something is wrong with the neuro's advice.

    All I got was "Narcotic pain meds are not for long term use" is there not something else they can do for me? Is there any other non-narcotic meds? Maybe something topical I could try? I try to address my concerns with my PCP, and he wont give me the time of day. He wants nothing to do with my back. period. I have to say, I am hurt by how he can just kick me to the curb so to speak, as soon as my MRI shows there is a real problem. I mean, he had no trouble treating me before the MRI

  • Robin,

    I have only seen my PM once. Next tuesday will be the second time. And yes, I had no need for him to give me medication, because I was being treated by my neuro for that. Maybe, if this medication thing is not straightened out by next Tuesday, I will discuss it with him. Ask him if he can take over? Would that be appropriate?

    I think I am going to write a letter to my current PCP, explaining that I feel he has not been attentive to my concerns, and I think it is time to find a new PCP. The problem out here is, that a lot of the doctors run under the same "clinic" which is also a type of insurance out here.

    So I have XX insurance, I go to a XX doctor at XX clinic. Most of the doctors here belong to XX, and changing doctors withing the XX group has issues of its own.

    My PCP, PM, PT, eye doctor, OB and even the ER are all a part of XX. My neurologist is not. (For some reason that bothers my XX doctors) Maybe because they are all linked into one computer system, and can't see what exactly is going on with the neuro?

    My insurance changed a long time ago, but I still go to this clinic. I would like to find a doctor around here who is not a part of that clinic at all.

    My husbands grandmother has the same doctor as I do. She tried to switch over to a new doctor, from the same group, and he wouldn't take her. She felt he didn't want to take a patient from a colleague.
  • Amanda that's pretty wild. So your first real road block was the neurosurgeon refusing to take care of you due to your age. Then your neurologist seems to be confused about your meds (that's the one that scares me the most) and your PCP is mad and won't help you any longer because he feels you need surgery end of story.

    That is definitely a pickle. There are so many more pain treatment options available and these docs of yours need to wake up and smell the roses and send you to someone that can help you.

    If nothing else, I would think that a second opinion from a new Neurosurgeon might be worth looking into.

    If I were in your shoes, knowing what I know about treatment and surgery, I would not stop looking for a doc who will help if by nothing else but researching alternatives for you. In the meantime make sure you have a doc who is willing to treat your pain with meds until you can get some sort of resolution.

    If nothing else, possibly a spinal cord stimulator or pain pump until you are "old enough" to have surgery. Sorry didn't mean to put it that way, but if that's what your current doc is saying...

    hang in there,

  • Yes, speak to the PM doc about controlling your meds. You've got nothing to lose at this point and everything to gain!

  • Drs. XX from XX should not care that your neuro is not linked to them.The important thing is that you kept them informed that you seen him and 'in the loop' so to speak.

    You could ask your PM if he would take over managing your pain...that is generally what PM does.My PM Dr told me when I asked about a test once that I would have to ask my PCP to do that,he said "I only manage your pain." This was in the beginning before I was sure of all of the rules and exactly how things were done.I guess I thought that he (PM) could get other things done too,but his sole purpose is to manage my pain.

    Now this is only my opinion so please don't get upset with me ok..but any Dr that wants to give you an ESI(your PM),or operate,as you mentioned that your PCP brought up surgery,why would they then not think that you would not need treatment for long term pain.This is a rhetorical question..but epidural injections are serious and given for serious pain-and they don't always work.I've had several on my neck and hip.And of course we all know how serious surgery is,so I'm just wondering why your PM,and PCP would mention these type of treatments but seem to be reluctant about other,more conservative treatments.

    The only thing that my PCP really does for me is bloodwork,tests, and referals,so if your PM would take over your pain management...then maybe you won't need to switch.
  • Robin,

    That is exactly my frustration. I think that the only reason the PM isn't managing my pain, is because well, the neurologist has been doing that. Now that I am concerned about my neurologists recommendation to continue ultram, and increase my klonapin, I have no one else to turn to. Maybe I should call the PM tomorrow, ask for his opinion.

    And my primary knows that I am in serious pain, and that I am not a candidate for surgery. What I was told is that at my age, the injury is not severe enough to operate. It could make things worse, where right now (I assume) things can be controlled by medication and PT. If I were unable to walk everyday, having loss of bladder/bowel function, or loss of feeling in my legs, then he would operate.

    Of all four doctors, only my primary thinks I need the surgery. Actually, the PM pleaded with me not to have it.
  • I won't have surgery until/unless I have to..I mean as a very last resort.My body has been through a lot already and unless I need it to walk/live I simply refuse to put myself through it again.

    It's just a personal opinion,but I believe that conservative treatment should be exhausted before resorting to surgery.Operating has been great for some people,but we all know that there can be complications,if not now-down the road.I don't like to say that here on SH because we all have problems and we all want help/hope..and I want that too.I'm just being honest and realistic.

    I don't know your age,but it wouldn't matter because I'm not a Dr anyway.. :$ .I'm thinking that we are probably all here because we are suffering with pain and problems that we want answers for and we should get the best answers from our Drs-If your are frustrated I can see why.Personally..and this is just me,I would find out if the PM would manage your pain...and go from there.With your pain under control you will be more likely to make better decisions about your care.It can be hard to make decisions when you aren't in the right frame of mind,and you need these Drs on your side-to know that they care about you.
  • dilaurodilauro ConnecticutPosts: 9,721
    Amanda, you know I've been following your situation and we have chatted many times about it. Right now, I see a number of problem areas that do need to get addressed:

    1 Why your PCP believes you need surgery and the other doctors do not. They have to have some sound medical rationale behind this. Not because of your age. If surgery is required, age should not be a deciding factor.

    2 Statements that narcotics are not for long term usage. There are many members here who have been on some kind of narcotic for years. I was on Oxycontin for 2 years and am still on Oxycodone IR for almost 3 years now. There are situations in which people may be on some narcotic the rest of their lives.

    3 Lack of Total Control. There does not seem to be one doctor that you are seeing that is willing to step up and take total control of your situation. You would hope that would be your Pain Management doctors responsibility.

    4 An action plan. Some doctor needs to step in here and identify what corrective action plans should be put in place for you. They need to go through each conservative treatment (Land and Aqua Therapy, Massage Therapy, Heat/Ice Therapy, Passive Traction, Ultrasound, Acupuncture, Spinal Injections,and more). And only when all of these are exhausted and there is no relief, to look to the next step, which may be surgery.

    5 Relief from Pain. I do not believe there is one medication by itself that is going to totally manage pain.
    Its more of a 'blend' of Pain Medications, Nerve Medications, Muscle relaxers, Sleep aids and more that can be the total picture that helps you control your pain levels.

    6 Have all your records and diagnostic tests in hand. When you go to your next doctor, bring everything with you, put it out on the table for them to review. Let them evaluate your situation based on test results and clinical reviews and come up with a diagnosis. Then IF that differs from what the other doctors have stated, question WHY to the point that you get answers that are understandable.

    At 28 , If I did not have my first spinal surgery, I wouldnt be walking today. On the other side, if I didnt have that first surgery, WOULD I have had the next 6? Looking back, I know I made the right decision. Yes, that has resulted in dealing with chronic pain and having to adjust my life style, but I always push to have that quality of life that is so important tome.. Amanda, you need to work with someone who will also allow you to regain a quality of life now and while your son continues to grow.

    Take care,
    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • be. I went through something similar in the beginning of mt pain trek. I was hurting went to pcp. Pcp sends me for pt and chiropractor. It doesnt work so he tells me to get mri./ He calls me to tell me that I have a ruptured disc and to call and surgeon because I need surgery. So I did. Surgeon is right on board and schedules my surgery on our first visit. I'll fast forward through the butchering of my back, the need for a 2nd emergency surgery and my decision to see a new surgeon.

    In the meantime I am still in a lot of pain. I find that I can not just go see 'any' new surgeon...actually I can not see a single surgeon as no surgeon in this area will see anyone that has already had prior back surgery. So after a lot of searching, a friend called in a personal favor to this one surgeon and he agreed to see me. Before I went in my pcp had ordered an MRI since i was still in so much pain. The mri showed new findings. L5S1 was torn and L4L5 is protruding now on both left and right side. So my PCP says, you need surgery. Good luck to you.

    I go to see surgeon and he says basically - its not severe enough to operate, call me when you piss or sh*t your pants!!!!
    I about fell to the floor. Not severe enough?!?!
    I called my PCP and he said he was surprised by the decision as well. He thought for sure they would operate.

    The new surgeon sends me to 'his' PM guy and the guy is a total wack job. Uses our appts to vent to me about his xwife and things that she does with their son that he wants to do blah blah blah...it was a nightmare. In the meantime he makes it VERY clear to me that I am too young to take narcotics and he will NOT prescribe me any.

    In the meantime, I am still in severe pain, I am barely able to get off the couch with two small kids to look after...it was horrible. Not to mention it was winter and my pain sky rockets during this time.
    My pcp is being very understanding and is prescribing me my pain relievers as the PM is using me as a guinea pig and getting all of his kickbacks by putting me on all the new and miraculous medicines.

    Month after month I kept coming back, shelling out my $40 co-pay and getting NO RELIEF. Finally I was at the end of my ropes and told the PM doctor he needed to strat taking my pain seriously and put me on something to stop the pain, and in the meantime, if he wanted to put me on trials, I am all for it...but first and foremost I want my pain controlled. Well - he wasnt hearing that!! He lashed right back at me telling me that I am making my p[ain up and all I want is pills pills pills and he will have no part in my narcotic abuse! (at this point I was only on 2 norcos per day, as needed)
    So I stormed out of there, went to pcp. He said to me - "what do you want me to do?" (sound familiar??)

    I said -
    -I want to go on a extended release medication.
    -I do not want to be chasing the clock anymore and taking a pill every few hours.
    -I want to be done with the pill popping all day long.
    -I want to be taken seriously when I say I am in pain.
    -I want to be referred to the best pain clinic in town.

    He said ok. And we went over the ER forms and I went for the fentynal at that point.
    He gave me 4 patches and told me to call him and let him know how it was going. In the meantime, he sent out the referral and I made my appt with the high profile pain clinic in town.

    Sorry this got so long, but I just thought it was a little too familiar and maybe he really is asking you what you want. Mine did and I told him what I wanted and I got it.

    I am now at one of the best pain clinics around and I am treated with dignity and I am treated by diagnosis not by age.
    This is one of the most prominent and conservative clinics and I feel truly cared after.

    I think you should look for a really serious pain clinic and try to move all your stuff over there and have just one place treating you. It might get confusing for your PCP to know who is prescribing what and who should be doing it. He may assume the PM is taking care of that. I also could be completely wrong.

    Please dont give up. You need help and it IS out there...its just a bit harder to find for some.

    Since switching to the new clinic, I did have to sign a contract - but it was no matter to me. I was happy to. I am still in the "trial' phase and I think we are close to fine tuning my meds.

    Keep us updated and take care.

  • My PCP was very uneducated about the use of narcotics. He told me that fentynal, oxycontin etc were only for bed ridden patients, for cancer patients and with people sever illnesses. I find that a lot of PCPs feel that way. I even spoke on this topic with my PM and she agreed and said that they are just trained to have the knowledge of use - not exactly how or when to use it. If that makes any sense.
    She also told me, thats why she is a PM and he is a PCP. So he may just not be aware of the uses of these stronger narcotics.

    Thought I'd throw that in there.

  • Excellent post. Very well organized and summed up.

  • Ron,

    You are so on point. I appreciate your detailed response. You actually have hit the nail on the head.

    1. PCP has been the only doctor to say I need surgery. Its as if since he told me I need surgery, He feels that is my only option. Period. What the NS said is that at my age, my injury is not severe enough to warrant surgery. I can still function. If I start having trouble with bowel/bladder function, or the pain becomes unmanageable, loss of feeling in limbs etc. then we will talk surgery.

    2. I know damn well that there are narcotics used for long term. If not for long term use, then what is? Which is why my PCP's statement upset me. Especially since I was not asking him anything about narcotics. Of course, I am not on any medication at the moment, and I am in terrible pain. I couldn't get relief in any position. Laying perfectly still pain was a 5, and heaven forbid I try to move, even just change positions... instant tears, so yes, medication right now would be helpful. I am trying to keep him informed (as I have been all weekend) about what is going on with my treatment, and I would like his medical opinion (2nd opinion?) about what my Neurologist is advising me to do (Keep taking ultram that makes my heart race, and take klonapin for more than it has been prescribed)

    3. There is one doctor who is at least trying to take control, and that is my neurologist. Both he and I were under the impression that the PM would take over, but the PM said other than epidurals, there is no reason for me to see him again. So, back to neurologist.

    4. An action plan. This is also what I was assuming the PM would be doing. Come see me every month, we're gonna do this, try this etc. Again, told I should only come back for epidural.

    5. Relief from pain. At this point I would settle for someone to just tell me they understand that I do have pain! I will not believe that this is all there is for me.

    6. Having all my records in hand. As I said before, aside from my neurologist, the rest of my doctors are all linked. My entire medical record is in the computer, any doctor can pull it up, and see every conversation, phone call, diagnoses, recommendation All right there in front of them.

    Can I request a copy of my entire medical record? I am curious to see exactly what is there. And when I made my appointment for the epidural, I asked about this diagnoses on my RX that says DDD. The doctor never mentioned DDD to me at all. I asked if she could send me something with my complete diagnoses, and she told me to ask the doctor about it when I see him next week.

    Lastly, I think that most of my situation is my own fault. Well not my fault, just lack of a better word. I have major panic attacks when I go to doctors. By the time I get in to see them, I can hardly breath. I am afraid to question authority. If the doctor tells me this is how it is, I just clam up, I don't speak up. Then I leave the office worse off then I started. And I beat myself up for it. I should have asked this, I should have said that. Why didn't I get this information I ask myself. So I have started writing everything down. All my questions and concerns, so I don't forget. I try to bring my husband with me, so he can ask questions too. I tell everyone, you have to speak up for yourself, you have to be your own advocate. Well I need to listen to my own advice.

    Thank you PapaRon for taking the time to leave such a detailed response.

    And thank all of you here. If I didn't have your support, who knows where I'd be at this point. You all are great to know!
  • Alina,

    I feel like I am reading my own post here!! At least I know that I am not alone. I just have to keep fighting for myself. I have to demand better care. Most of all, I have to get off my butt and put things into action!

    Thank you
  • I will call around... to insurance, chiropractor, any one who can give me an idea of what to do.

    Thanks guys
  • Feel free to contact me at any time. I actually read your long post after I typed up mine and said the exact same thing. Especially in reference to the "call me when you lose control of bowels etc". I think that is such BS.
    After the surgeon had said that to me I lost my marbles. I stormed into my PCP office crying hysterically. He thought it was insane - heck, even my gyno thought it was a crazy statement to make to a patient. My gyno said - well then tell him you lost control!!!! However, there is a test to be able to tell for sure so its not like you can fake it. And I dont really want surgery from someone that doesnt feel confident to do it.
    In the surgeons letter to my PCP he said that he is not going to operate because of the damage sustained in my back from the prior surgeries. Well heck - that sounds a whole lot better than call me when you poop your pants. KWIM?!?!
    So thats that. I feel for you. I have a 2 year old too and its been heart wrenching to see how my life has unfolded over the past two years. I miss me.
    I have a 4yo as well and I havent held her since this happened. Yesterday September 9th, was the date 2 years ago that I injured myself. Two years ago that my life was significantly altered and 2 years ago that I was able to pick up my first born. If I were you I would have a talk with the PM and say you have been doing some research online and you wanted to know exactly what a PM does etc. And that you would like for him/her to take care of your pain starting with finding something other than ultram and kadian. Be aggressive about your pain and your quality of life.
    And yes! Get a copy of your records. It will blow you away as to what you will find in there. I have a copy of all of my stuff and its insane reading through it all. You will be amazed as to what they note about.

    Take care.


  • Good luck and you know reading your posts made me realize that I should do more of my own advice.

    i need to get better pain management for me surgery has too many cons-diabetes type 2 + bipolar 2 don't make for a good recovery time.

    again keep your chin up and hope the pain subsides for you soon.
  • take 2 aspirin in the morning and call me. your dr is not being honest with you , yes lying to you because he does not want to deal with narcotics for whatever reason. like all of the above have said, yes you can be on them for years, myself, oxy for 10 years. i work drive function with family. i do not drool or lose control of myself or look crosseyed or grunt. you get the point. long term usage is not harmful if done with dr care. GET A NEW DR ASAP HOPEFULLY AND UNDERSTANDING, CARING, AND COMPETENT ONE.
    good luck

    I have 4 fusions from L5-3, the latest last May '12 where they fixed my disc that broke.They went through my side this time. I take 40 mg of oxycontin 4x a day and 4 fenatyl lollipops 300 micro gms 4x a day.
  • Riddle me this..... If I injured my back at the age of 21 (which I did) and was pretty much in the same boat as alot of people here.... who is to say that you are "too young" for this???? You (we) didn't ask to be in the position we are in lord knows!!! I will never understand doctors/professionals/the "peanut gallery who make this statement and stand by it. Had I not had my 1st surgery at the age of 22 I think i would have layed down in the middle of 5 o'clock traffic!! I had alot of people who FELT for me for having to deal with such a life at such a young age but they understood that this is real!!

    I haven't been here at Spine Health for awhile but have been more recently. I had forgotten about some of the very real frustrations and hoops that have to be jumped thru by so many, only trying to get good, compassionate care. It infuriates me to no end that they lay additional obstacles in front of us on an already painful and difficult journey.

    I can tell by your posts that you are a fighter!!! We ALL are!! But one thing is for sure... I was like you when I was younger. Affraid to ask my doctor this or that. I would sit there, listen to him, not speak up and kick myself afterwards for not getting what I needed. We have to be our own advocates first and foremost. Finally, I kept a small notebook in my purse and would literally write down issue #1, #2, etc. It seemed like I had his attention more at this point.... like I was obviously taking the time to maximize the short time I had with him at an appointment and it made me feel more in control. It is so easy to get the dear-in-the-headlights thing going on once they open your exam room door and come in, especially if maybe they aren't having a great day or something. But it seemed like once I whipped out my little notebook he knew I was there for business!!

    I will keep reading about how you are doing and praying that you will find good, competent and compassionate care. There are PLENTY of narcotics out there that are used long term. Hell, I have been on them for going on 14 years and I haven't sprouted a new arm or head because of it!! The technology is there for a reason and so are the medications. Your doctor sounds like a real baffoon if you don't mind me saying so!! Maybe sometime he'll hurt HIS back and understand he was full of crap.

    God bless you and keep fighting!!!!


  • And hopefully he can give me some advice... I know he will. I also have a doctor in mind, that was referred by the nurse at my neuro. I will be calling them shortly to see if he will take over as my PCP.

    From what I can tell, he seems to be a pretty young doctor, which I hope will work to my benefit. I have noticed when taking my son to doctors, and even with dentists, younger doctors are more open to modern medicine.

    (Example) I saw one dentist, very nice guy, but refused to do any filling other than silver. I wanted tooth colored. He didn't believe in using that kind. I went to a new dentist, (fresh out of dental school I believe) and he said that sometimes the seasoned veterans of the medical feild are not up to date with modern medicine, and can become stuck in there ways... such as not believing in using tooth colored fillings...
  • =)) called the new doctor... "good morning Ray's funeral home" =)) Yes, I'm looking for a new PCP... oops!! wrong number!

  • while the funeral home is taking new clients, apparently said doctor is not =(

    Time for the phonebook??/
  • .... that's just funny!!! LOL There is the ONE place we don't want to become a member!!

    Good luck in finding a good doc. I know he is out there!! Let us know how it goes.

    Thanks for the giggle,


    Amy >:D<
  • I must have called over 10 doctors on this BCBS list. They all have either moved to another state, or are doing emergency medicine, not family practice like it states!! just my luck.

Sign In or Register to comment.