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failed back surgery, please help

saliquessalique Posts: 18
edited 06/11/2012 - 8:23 AM in New Member Introductions
hi, I wanted to introduce myself and tell you about my situation. I was hoping to get some advice or just connect with someone who might understand what I am going through. That is my issue, I am 30 years old and I am in SO much pain and no one understands. So this is what is going on with me..... about six years ago I first started having back pain, it eventually got to the point of where I was in so much pain, it was in my lower back and going down my right leg and I couldn't walk. I tried everything before surgery, I tried accupunture, accupressure, massage therapy, physical therapy in and out of the water, steriod shots, nerve blockings, medicine patches, chinese herbs, and a million different doctors. I went to pain management doctors, physical therapists, neurosurgeons, orthopedists, neurologists, spine specialists, u name it and I have went. I finally made the decision to have a microdisectomy on my L5/s1 disc. and to top that off the surgeon said I had an unusual spine that the discs did not lay correctly so my l5/s1 disc might be someone else's l/4 disc. But anyway I trusted the doctor I finally had the surgery with. I had it and within 6 months I was back to work part time but still in pain just not as much as before and then slowly it got worse and worse the pain, it was unbearable, couldn't walk again and couldn't feel my right foot. doctor said if I wanted to experience walking again and minimal pain there was no choice that I had to do anothery surgery. This time it was a spinal fusion on TWO discs... my L5/S1 and L2/3. Well two years will be in this coming October and thank goodness I am counting my lucky stars to be walking, I am thankful for that but If I knew what I knew now with all the side effects of medicines and conciquences I don't know what I would go back and do. I have been on every drug there is and I am in still in tremendous amounts of pain on a daily basis. Writing this I am crying cause sitting here even hurts. I have been through physical therapy again off and on, accupunture , shots, oral medicines and nothing just pain, misery and sadness. Please help if anyone can whether its just a word of advise, a friendly hello or anything. I will give whomever reads my own advice to them, don't have surgery if you can avoid it cause once the doctors cut you and you are out of the hospital they really don't seem to care. At least I have not met one yet who does. Once you have surgery barely any doctor will take on your case and thats where the hard part comes in, cause its no ones fault and u just want help, and no one will help me now. Good luck to those who need and thank you for anyone reading this because I try and stay positive!!
- Salique
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Comments

  • Hiya, :H
    I got half way through when reading your post and realised you were taking about you [( . It was just like you was taking about me. A lot of what you said i can relate to. you are not alone , we are here for you. Salique when i found this site i couldnt believe it, knowing there was others out there just like me. The more you come on to this site the better you feel, just knowing there is someone out there who understands your emotions and pain. Welcome to spine health >:D< , hope to chat to you soon.

    Angie x
  • Welcome to Spine Health. Sorry to hear that you are still in so much pain after trying everything you have tried. Are you still being treated by a Pain Management doc at all? What is your current although not adequate pain control method?

    When you post, it doesn't have to be long, so even a quick "hi" to let us know you are ok, is enough until your pain can be brought under better control.

    "C"
  • :) hi and welcome to the forum! we are here to offer you support and answer what questions we can. i am sorry you are suffering so much. perhaps all you can do is gather comfort and strength from others suffering as you are. this is a good place to make such friends!!! i can only offer you those words and hope that one day soon you will find a treatment to help you feel better. good luck and keep us posted! Jenny :)
  • salique- welcome to the site and you'll find people who understand as well as information.. :H take care..jade
  • I wanted to thank you for your support and it is good to have a place that people know how it feels and might understand you. Today was such a bad day for me so I am venting...... I hope you had a good day:)


    Salique :H
  • I wanted to thank you for your support and wanted to know how you are feeling today. WOW you have been through so much as well, so being new to this site the question I ask, is how do u deal....? hope u had a good day!!!!

    B) Salique
  • thank you for your good wishes and support. I wanted to say hello and It is great to be able to chat with someone who understands. My current method of pain control is oral medications, physical therapy and accupunture. I hope you are having a good day


    :))) Salique
  • Thank you for welcoming me to the site it is good to have people that understand you. I hope u are doing well, take care


    :H Salique
  • You and I are so much ulike that it is uncanny! I have had a failed microD also but never even got a few months of relief like you did. I also have a wierd spine in that I am sacralized at L5 so it is nonfunctioning. I had my microD at L3/L4. Now, just like you I could try a fusion but my doc is not even recommending that because of the failure rate. He says that the best thing that I can do is wait until a new advancement comes along with better odds. He also said that he would not even consider an ADR right now because they still have so far to go in perfecting it. Have you tried any of the long acting opiates? I am on methadone and it works pretty well for me. I also take percocet for breakthrough pain and use several different muscle relaxers when a really bad bout is coming on. I also wear a sacral lumbar back brace if I am going to be cleaning house, shopping or anything that requires much movement it works very well for me. I was very resistant on the meds at first but now I have come to accept the fact that they will be necessary if I am to have any quality of life. I wish you all the best and please keep us posted.
  • wow we do have similar situations. I def would wait for newer technology, I would not have the surgery I had if u can avoid it, just too many complications and more pain than is not bearable. I was like u first about medicine and now I realize it is necessary although it does suck to have to be on it constantly. I have tried what u are taking but it wasn't enough. The muscle relaxers seem to take the edge off a bit but thats it. Please let me know what u decide to do and good luck.



    :))) salique
  • to make. I will not have any more surgery unless I am not able to walk! I will never take a chance on a fusion unless I was totally immobile. Have you tried the patches?
  • a pain pump? There are just so many things out there worth trying.
  • I have tried pain patches before, The pump I have not, can u tell me what that is if u know, if it has to do with opening my back and inserting inside I really don't want to, just not with all the complications, two risky. Can you tell me anything about the medicine Soma, does it help , any side effects? If there is anything else u can suggest I would greatly appreciate any thoughts or advice.

    thank u!!!!
  • give you any info that I have. I really am not sure if they actually have to open you up to install the pain pump or not. There are several members here that have one and could give you more info. I know that the ones that I have talked to that have one say it really helps. Also we have some members on the Fentanyl patch that say it works extremely well for them to control their pain. Soma is a muscle relaxer as is flexaril. I like soma because it does not make me groggy the next morning. There are lots of different ones to try. How long and what dose of Methadone did you try? It takes 5-7 days to build up in your system but once it is there it lasts a loooooong time for pain control. I only need to take once in morning and once at night. The nice thing about these meds is that they do not effect your organs like NSAIDS and Tylenol and some other pain meds do. Please feel free to PM me if you like.
  • Hiya salique,
    Just wondered how you are doing now! whats your pain like? Are you taking any medication? Hugz >:D<




    Angie x
  • Pain pumps and Spinal Cord Stimulators are both implants, which means they are implanted into the body surgically. The pumps and the generators are not that deep, just inside a "pocket". A pump is hooked into your thecal sac and the SCS leads are typically inside your spine on top of your thecal sac.

    "C"
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