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Hi everyone! Newbie here!

AnonymousUserAAnonymousUser Posts: 49,731
edited 06/11/2012 - 8:23 AM in Fibromyalgia
Hi!

I just wanted to say hello as I just "surfed in" to this site while looking for information on Fibromyalgia.

I have not yet been formally diagnosed, but I have an appointment this week and I have no doubt in my mind that he will tell me I have it. For the past 5-6 years, I've had inexplainable symptoms that no doctor has been able to detect. I've been to endocrinologists to orthopedic specialists, and they all give me a clean bill of health and send me on my way.

Recently, on a hunch, I looked up Fibro and realized I had every single major symptom, and have for many years. Although it's not "formal" yet, I know that I have it. I will be so looking forward to having a true diagnosis here soon so that I will finally know for certain that I'm NOT crazy... that all of these symptoms ARE related (other docs tried to tell me that they were all seperate) and they are not made up.

My main problem (in addition to the fatigue) is the horrible memory/concentration problems that have plagued me for several years. This is the main cause of my depression, as I feel like I'm losing my mind. Glad to see there's a reason for it.

For anyone with severe "Fibro Fog", is there a way to lessen the symptoms or alleviate them?

Thanks so much for reading this. It's good to know I'm not alone. :)))

Ceeah
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Comments

  • :) hi! i see this is your first post and i want to welcome you to the forum! :H we are here to offer you support and answer what questions we can. i don't have your problem but we do have pain in common. ~X( good luck with your pain program. i know someone will be along to give you more support! Jenny :)
  • Just to say hi and welcome to Spine Health. We are here to offer support and advice and to show you that your not alone . >:D<




    Angie x
  • Shutter~
    I want to welcome you to SH! :) This is a pretty good bunch of people, that all share one common denominator-PAIN! We can offer you our advice, knowledge, experience, love and support. There are tons of articles and other great tips of adivce all throughout SH, not just here on the message boards-tho there's tons of information here too! Feel free to post your questions, comments or concerns, or even just to vent-and we'll be here for you. :)

    We care..
  • Welcome to Spine Health. I'm not a fibro person, so I can't speak in regards to that. It's a shame that it has taken you this long and that many doctors to get to where you are right now.

    Please please please, don't put all your eggs in one basket when you head to your appointment this week. I would really hate to see you crushed by another doc not diagnosing you with fibro. Please be receptive and open to the doc wanting to do more diagnostic testing, and maybe some of it may even be looking for something other than fibro.

    I debated about not posting, but decided to go ahead and risk it. The thing about Spine Health, is that we care about each other. I would just hate to see you hurt by not having your expectations met at this upcoming appointment.

    One thing that docs really hate, are patients who come in and have already self-diagnosed. So please approach this appointment as if you haven't come to any conclusion. Let the doctor be the doctor and the outcome will wind up being the best it can.

    Kindest Regards,

    "C"
  • ">image Hello and welcome to SH forum~
    Sorry to hear that you've had such a bad go of it. Sounds like you need a break-through. I hope you are able to get the answers you are looking for at your upcoming appointment.
    I totally agree with the advice from "C"... Try to go in with an open mind and have a lot of questions. It has been by experience that if I pose my ideas in the form of a question, they don't get offended. There are many symptoms listed on this site that you can look at for a reference and then if you have some of the symptoms you might ask, "why do you suppose that I am feeling like this?" It might be helpful... Of course this is just a suggestion. You have dealt with many doctors over the years and probably have an idea in mind of what you want to ask him.
    Let us know how your appointment goes. We're here for you!">image

    BTW~ I am new to the fibro game myself! I'm just now starting with the "diagnosing" stage of the game!
  • Shutter, your situation sounds so much like mine! I started out with pain in all of my joints and my PCP ran some blood tests and said my lupus test was positive and referred me to a rheumatologist. Turns out you can have a positive lupus test (I think it was called an ANA test??) without actually having lupus - which was a relief but turns out after detailed history many of my symptoms sounded like lupus. Then started all of the neurological problems (mempry, speech, dropping things) so got tested for MS. Has anyone had that test where they stick you with pins and send a shock into your muscles? WOW! was that some kind of medieval torture or what? Anyways, all tests came back negative depite all the symptoms. Have gone through a few rheumy docs and found one who I like but won't formally dx me with fibro even tho his PA told me she thinks that is what it is.
    I'm just trying to manage my life with this pain, fatigue and fog. I work full time and have a seven year old son so its hard to deal sometimes but I'm hanging in there. Any help with the fibro fog would be great. I tried taking Ginko Biloba to see if it would help with the memory/concentration but get this - I keep forgetting to take it! Sorry for the long post....
  • hiya
    Welcome to spine health i hope you get a lot of satisfaction and reasurrance as i do . Just out of a personal indirect way what were your symtoms of lupus? >:D<





    Angie x
  • My ortho dr routinely checked me for different tests. One was an ANA. It was positive and he sent me to another specialist. It turned out to be a low titer and just a false positive. I was told that there are normal people who have a positive ANA. :/ I was scared though. :SS ..jade
  • Hi Angie,
    Thanks for the warm welcome. The main symptoms I had were stiff painful joints, extreme fatigue, headaches, and I also had the malar rash on my face. Others symptoms I had were mouth ulcers, sensitivity to the sun, and low grade fevers. But none of the diagnostics pointed to lupus. From what I'm learning over time is that it could take a number of years to get a diagnosis since these types of things sometimes take a while to build up enough evidence in the body for a conclusive DX. And there are a lot of overlapping symptoms between the auto-immune diseases which can also make it tough.
    I've been lurking around the forum for a week or so and have read a number of posts about finally getting a DX and being able to "name the beast". It is so frustrating to continuosly go through testing and not have an answer. When this first started I was reluctant to take anything that would make the symptoms go away until I had a DX. I figured if my symptoms were suppressed then it would be harder to get a DX. Well, after several months I realized that it was better for me to feel better; and the things the doctors suspected I had did not have a cure - that all I would be doing AFTER the DX was treating the symptoms anyway. So I gave in and started looking for ways to feel better and move on. I'll have to find another thread about pain relief for my joints since I'm having trouble finding the right meds.
    Teri
  • Tsebastian,
    I have many of the same symptons that you described. I have come up positive for Lupus in a blood test but so far I've had only one blood test done. I had asked my doctor to re-test me, because I'm worried about it and he sent me to the lab. I later found out that all I was tested for was RA, which I have always come up negative for. I don't know why he did that. He, my NS, has diagnosed me with fibro but did it without bothering to give me an exam. He just plucked it out of the air I guess. The funny thing is I only have about half or less of the symptons of fibro and every single sympton for Lupus except for the rash. Although I do have this weird red rash on the front of both of my legs, in the same exact place, just above the ankle bones. Then among the many different symptons that I have, I also have a problem with dropping things. I drop everything! My hands just "let go". It's weird, but then so is everything else I have going on. I've been looking for a thread for Lupus, this is the closest one that I've found. Actually I didn't find it, Dilauro told me where to find it. I'm trying to find people who do have this issue so I can compare my symptons to theirs. And get all of the input that I can.

    ShutterGirl,
    Good luck at the doctor's office and I hope you find out whats wrong very soon. I also hope that you feel better and get the help that you need. Sending you my best!
    Jewels

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