Welcome, Friend!

It looks like you're new here. If you want to get involved, click one of these buttons!

Veritas-Health LLC has recently released patient forums to our Arthritis-Health web site.

Please visit http://www.arthritis-health.com/forum

There are several patient story videos on Spine-Health that talk about Arthritis. Search on Patient stories
Protect anonymity
We strongly suggest that members do not include their email addresses. Once that is published , your email address is available to anyone on the internet , including hackers.

All discussions and comments that contain an external URL will be automatically moved to the spam queue. No external URL pointing to a medical web site is permitted. Forum rules also indicate that you need prior moderator approval. If you are going to post an external URL, contact one of the moderators to get their approval.
Attention New Members
Your initial discussion or comment automatically is sent to a moderator's approval queue before it can be published.
There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.
This includes any analysis, interpretation, or advice based on any diagnostic test

SEVERE leg pain in both legs??? All the time

AnonymousUserAAnonymousUser Posts: 49,671
edited 06/11/2012 - 8:23 AM in Chronic Pain
Hi everyone,
Iv been a member since last year. As you can see by my signature at the bottom I have been through alot.

Not sure if this is the correct spot, so please mods move it if you feel it should be.

I have posted this before under osteoarthritis, and back before. But now that there is a bunch of new members mabye someone has the same things as myself or knows some one who does.

Here it goes.
I can only walk from my kitchen and back. The I start to get severe pain in my ankles that spreads throughout the whole leg to the hips. So its not just the 3 areas. hips/knees/ankles. I only have 20 percent loss of cartilage in my knees. I have burcitis/osteoarthritis in my hips and knees.
I also was just diagnosed in Feb with arortic calcification from my belly down.
I had to use a walker at our local fair with a heavy dose of pain meds.
Today was my first day out to walk after my spinal surgery revision last Wed. I got to our mailbox and it started. I barely made it to my neighbors driveway. I had to stop. Cry, then take another step. I could not put any pressure on the bottom of my feet. My hips and knees did not want to bend. I had to put my feet outward and drag them each step. One step at a time is all I could do. This whole process took 15 minutes. I prayed to God to get back the house. By the time I made it back in I screamed so loud. It took about 20 min for the pain to subside. It was like a knife in my my legs. Not shooting pain, or dull just allover. No calf pain at all. As I know this is a major symptom for some people with PVD etc...
I do have to make a appt with a cardiologist to get a doppler ran on my legs. That will be first. Then go for a MRI of my legs and head. To make sure there are no signs of MS as it runs in my family highly.
This is very scary at the age of 41. I have had to give up everything. Vol EMT, Vol Firefighter. CNA and nursing school. Plus dancing which I love to do when we go out.
I do not even feel like a Mom or wife anymore. even though I am. And I have a wonderful family. So that is a huge PLUS.
Its just trying to figure out the problem. Thank goodness for the best insurance in the world as I can request any test I want. Its just the waiting game.
Plus I do not want these tests to soon except mabye the doppler as I am only 7 days post op. And the bone graft pain WEll unless you have had it , IT HURTS LIKE THE DICKENS. I will say the revision surgery was much easier then the first spinal surgery . Yes Im sore and in pain but nothing like last year.
Sorry for such a long post. I am just so frustrated. This started back in 06 when I fell down my stairs 2xs. But it was just my ankles and it just gets worse as days goes by.

Thanks for listening to my story. I would love any input of anything at all. Family members that you know, yourself, friends etc. That have suffered something like this.
I read that the calcifaction can cause this. Im praying and keeping my fingers crossed its not that...
Of course I am also trying to find a pain managment dr , as mine only treats backs and nothing else. Its almost why did they go to shcool for it.. Big rant on that one. They are few and far between where I live.

When I was on the pain pump for recovery last week. Of course I could walk up and down the halls with no issues. Strange huh??? My ankles acted up but that was it. (Flat feet to, no arches at all)

Everyone take care. Here is to pain free days =D>


  • Hi Terri, I found you over here in a different forum :) I am sorry you are having such horrendous leg pain. Is it worse than pre-op or the same? Perhaps it is just tooo early to know if it is from your non-union and it will resolve with healing. You are so fresh out of surgery still, please keep up hope that the surgery will help these symptoms. All that inflammation and angry nerves need to settle down before you'll have any clue if it has helped. You know how slow these recoveries can be, that is for sure. I hope you are feeling better soon and I hope someone with some new ideas will come along and post for you. Take care, I am thinking about you, >:D< Sue
  • >:D< sorry that you are experiencing so much pain. I do relate to what you are saying though. In the mornings i wake and my back is in complete spasm it hurts so much to move. I have to grab my pj leg to move my legs , the use completey goes, and its so frustrating, its like im in contant battle with my head and body. My head says "yes i can do this"but my body says "oh no you cant " .Terri hang on in there , keep smiling. >:D<

    Angie x
  • Terri,
    I am so sorry to hear about the problems you are having with your lets. Its just not fair after all you have been through not to be able to enjoy some relief from pain. I am going to hope and pray that whatever you have going on right now will be short and/or there is an easy fix. Hang in there my surgery buddy,
  • Thanks you guys.
    I surely know I am not the only one suffering. Wish the world would understand that sometimes.
    I'm pretty much heading towards the fact its not from the non fusion since it started a year before the orginal surgery. And like I said progressivly is getting worse.
    Your right oh these dang nerves after surgery!!! Never had sharp pin pain in 2 toes before :jawdrop: Your like what the heck man :O
    Im heading more towards the calcification. Drs exact words in the ER in Febuary were your going to have a stroke or loose a leg.
    The I get another line from a dr well once your thoracic start really getting in the way and it affects your legs your in trouble. UMMM OKKKKKK so someone please pick one you guys went to medical school and all do is surf the web :D

    Today I am going to stick to the yard with the walker. thats it!!! As I have said there is no muscle tone left i look like a bowl of jello with bad wiggles 8}

    Thanks all for being here for me. I still would like to continue to here stories as you all know to well it keeps you going for the day!!!

    Love you all
    Terri ;)
  • Have you ever been tested for diabetes? I have type 2, very well controlled, mild, and yet have a case of screaming diabetic neuropathy. Affecting the legs and feet. Feels like walking on broken glass sometimes. I have back and spine issues, but am assured the peripheral neuropathy is from diabetes, not the bulging discs at C4-5 T 8, or L4-5. Just a thought. Hope you find out the cause soon. Take it easy, and heal well.
  • 4 back surgeries, fusion l5-4 8 years ago laminectomy 2007 for l3 then fusion 2008 for l3 again. had surgerry in april and am back to work, i had to chaperone a high school football game and i sat for most of the game. when i stood, i had major pain in both legs down to knee and pain in both buttocks. i have had pain in rt only but never both legs. sat down on couch sat morning and the pain in left leg was very bad and i had to sit up. just went to orhto 2 days ago before this happened but i told him i felt that i went back to work too early. anyone know why i would have pain in both legs and buttocks. usually for sciatica pain it is one sided. what the heckydarn is goin on? i don't want to go back but i think i might need another mri. last one i had was right before my fusion in april, any suggestions or thoughts to whats happin'

    I have 4 fusions from L5-3, the latest last May '12 where they fixed my disc that broke.They went through my side this time. I take 40 mg of oxycontin 4x a day and 4 fenatyl lollipops 300 micro gms 4x a day.
  • Hiya jon,
    It takes an awful long time to heel after surgery, as you heel from the outside in wards. You could have internal swelling which is pressing on the nerves. Do you take anti inflamertry ?I so feel for you.My input is just my personal experience.

    Angie x :)
  • thanks angie, that is what my ortho said and yes i do. but the problem now is both legs and butt sides hurt, not the right one like before. i have had pain more or less in rt leg and butt for 8 years but this is the first time it happened in left side. i am thinking of getting another mri if my ortho says ok and i am sure he will
    thanks again for your input and hope you feel better also

    jon =D> =D>
    I have 4 fusions from L5-3, the latest last May '12 where they fixed my disc that broke.They went through my side this time. I take 40 mg of oxycontin 4x a day and 4 fenatyl lollipops 300 micro gms 4x a day.
  • Sorry to hear about your suffering. I have a similar situation after my TLIF/laminectomy 15 weeks ago, and developed sciatica in my opposite leg. I was also told it had to do with the same thing, swelling and what not, and was told I probably needed stronger meds. :O I just wanted to see if I needed an MRI; I already have meds. I want to make sure this is not a new problem.
    Anyway, take care and let us know how it goes :)
  • So sorry I write so many post that I forgot about this one gheesh SO SORRY.

    Im in pain that is for sure. Still can only walk in the house and up the stairs. By the time I get up the stairs they want to give out the ACHE.

    Now of course that new pain down my left leg and the numbness/tingling OUCHIEEEE :''( :''(
    AT 6:30 i took 5mg perc then again at 9 then again at 11 just now. Plus a soma and a valium Im very uncomfortable and the bone graft is acting up again to.

    Diabetic neuropothy hmmmmmm My mom, uncle, grandfather and grandmother all have/had diabetes. But when they did my blood work all was good except my protein was a bit high. Not by much. Don't know what that indicates.
    In a way I guess sometimes it does feel like glass when it first starts out.
    Then its like ROPE being squeezed tighter and tighter to where seriously your legs are frozen in time.

    CALLING TOMORROW. I put it off thinking ok lets just rest since Iv only been home since the 19th. Of course I was awesome walking in the hospy I had the pain pump. My ankle started to hurt but nothing else.

    I just don't know. How much can one person take :jawdrop: :''( :''( :''( :''( Yes Im a bit wheepy tonight. Im just frustrated drs that make 3 figures cannot figure this out.
    I do not want it to end up being something dangrous and do more damage by pushing myself to walk. And thats what I was going to do in the morning. Shower get dressed try to do a normal day and go out with the walker whether it hurt or not.
    But again I just don't know.
    Hopefully a dr will call me back tomorrow or a PA since mine does not come back till Fri. Even if they say go to the ER at least mabye they will do a cat scan from the hips down. I have the insurance to cover it fully so Im grateful for that.
    Any more ideas??? Im usually the one giving the advice not asking for it #o ~X( :''(
  • Hi Terri,
    Having sat down with my PT and talked long and hard it was established that pain was a sign of doing too much and having irritation so take it back a step, rest. Are you resting?
    It is major early days yet....
  • resting is all i do. i have done nothing but be in bed.
    i just talked to my gf who is a member on here. she said its possible it is muscular from being so inactive for so long. i mean iv been in this house since 06 when i started a major fibromyalgia flare. the only activity iv had is in the house or mabye a trip to the store here and there. nothing else. so its very very possible that my muscles are so messed up that they just do not want to work.

    also i just read something interesting on my drs website. no walking up stairs after being home for recovery?? hmm why do they not mention this in the hospital.
    they have you walk up steps in PT before you go home. so i found that strange. going to ask them if i should go back to sleeping dowstairs instead of going up and down all day.

    she also mentioned to me that a steriod pack helped her mom with severe leg pain. so something else to think about.

    waiting for them to call back. they are on lunch now. and i also need to keep up on my med schedule. very important. also starting vitamns as i am not a veggie eater. mom always said years ago "eat your veggies or your body will pay later" i really think that statement is very TRUE.

    well we shall figure out whats going on. i do want to sleep ARGHH so frustrating, not seeing my kids get off to school cause mom cannot fall asleep till 3 or so then ends up sleeping till 10 or 11 im so tired.

    i personally think its my thoracic compression but hey im only the patient. the orthos exact words in 06 were "once the thoracic disks get bad, it effects your legs and you do not want that" "you need surgery now" then the neruo that i got sent to says "its not bad enough yet" HUH WHAT WHO??? someone get their story straight.

    ok enough ranting/rambling.
    thanks everyone for all their advice its appreciated. i really think im going to need some extensive testing done to find the issue.

    everyone try to have a pain free day or just try to anyway.
    let the healing continue
    O:) >:D< :* >:D< :* >:D<
  • Hiya my pain was always on the right, and more recently its on the left to but the pain is sharp, and taking my breath, it hurts soooooooo badly

    Angie x
  • hey Girly
    I was playing and surfing all around on the forum and found this post!!

    Oh honey I am so sorry! Your right someone needs to get the whole picture and not just a bunch of bits and pieces. They have markers they look for and should be able to diagnose from that point out! I think it makes it double difficult when there are several things going on and the possibilty of some things being related to others and crossovers of symptoms.

    In my personal opinion you need a "team" of docs to stay right on top of everything and sort it all out so that whatever is going on can be...looking for the right words....stopped so that more damage does not occur, and of course you should be made as comfortable as they possibly can make you.

    I am so sorry that your sleeping patter is all wacky and you feel like your missing out on things! I don't have kids but surely know the feelings of "missing out" on what you'd like to be doing!

    Also I did not know you wanted to be a nurse! You know that is what I really in my heart want to do and now with all this injuries and pain I just don't know!
    I already have a 14 percent disability rating on my left arm and now the neck stuff! I had some occasional right sided neck pain before surgery but now it actually feels worse, but so far i have managed

    Sweetie I totally understand the part about the things that were possible dreams and thoughts of the things we did at one time that we can o longer do at the moment!

    Back to the walking stuff....you think they would want to get to the bottom of what the heck is going on since walking is a huge portion of the circulation and healing after any spinal surgery.
    Please hon e-mail or PM me any time!!!!
    >:D< >:D< >:D<
  • Constant. Makes no difference if I sit, walk, lay down, stand. In two weeks, one pain free day. Sometimes the legs tingle, sometimes burn, but always have pain.
This discussion has been closed.
Sign In or Register to comment.