This is my first post here, although ive been browsing and listening to all of the great advice since february, I Really hope that you dont mind me having a rant, but if i dont I think my head may explode! or I will drown in a tear river whichever comes first. My Name is Sarah, im 33 and I am now 5 weeks post adr&fusion,(L3-4 Adr, L4-5 Anterior susion with Bmp) and have been at home resting, doing small exercises building up walking, all the right things. Ive been on oxycontin 30mg twice a day and oxynorm 5-10mg 2 hourly. Tried to cut out one of my two hour doses this week but ended up in agony so am just about keeping my pain under control, but if I increase my activity im in absoloute agony, which is hard for me as Ive always been so determined and after other surgeries ive never felt this defeated so easily. This week has got worse, Ive got much more nerve pain in my legs and the pain going from outside to into my hip areas front and back is just awful both sides-I thought my pain was increasing maybe as I was doing more slowly (&I mean slow-ive only been out of the house to walk to the local shops every day so far). Yday, my gp-whos been a real problem in the past with pain relief, decided to phone my partner at 4.35 to say that he was no longer happy to be giving me my meds at the same dose (even though hes been doing in for 4 weeks) we were so worried, I cant get to sleep until about 1am when exhausted, still waking up at 3.30am and taking meds, and again at 5.30,when im up and start the cycle again not for fun!
I was really scared, I know that if the pain meds were reduced I wouldnt be able to cope with the pain, which i usually can but not this time. I wouldnt mind but im on low doses of my meds, I know there are many people on much higher doses,
but maybe my gp doesnt have that much experience of patients on them. Would understand if he thought to ask me, or come out and see me if he had concerns, but he just makes random decisions based on what he thinks is enough for me, Im sure he thinks im home high as a kite pain free-chance would be a fine thing, new drugs mean clear headedness cos of how they work (or how I work!!!!)
By a small miracle, I phoned the acute pain team at st Thomas' where my op was and spoke to a wonderful lady Pat who sorted out my pain relief for discharge, what a stroke of luck that she was there at almost 5pm, but she phoned my gp to say leave the meds alone, she was so lovely and chatted about my pain and what it was like, so shes going to speak to my surgeon today, and let him know in case they want me to have my check up earlier that next week, as she was a concerned about my pain level and description. Im so glad she was there to help and shes so proactive.
Im just feeling rubbish now, im usually so positive and rarely moan but im in a lot of pain, and I just want to be able to keep my pain under control. I still feel that its early days, but my gp and others think that I shouldnt have the pain I have now, I thought that it takes time to heal from such an operation, and ive been doing everything right at home, I just feel so fed up and keep crying, then that makes me feel bad as there are many people that are worse off, I just want to know if this is all normal,and ok.
sorry for rambling.
gentle hugs to all xx
Sorry guys that was really long x