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Another Newbie

AnonymousUserAAnonymousUser Posts: 49,731
edited 06/11/2012 - 8:23 AM in New Member Introductions
Hi All
I have been down a long tough road with back pain. I have opted to avoid surgical approaches as I dont really feel I have anything that would improve by having surgery.
I am currently seeing a pain management specialist. It is my 2nd of try with pain management, having previously seen one that ONLY uses injections and rhzotomies. I did have some relief in my cervical spine with the first doc but as his approach was rather limiting and his attitude less than desirable.
Yesterday I had my 7th set of injections at L5-S1 and in my sacro-iliac joints. Today I am not feeling so good. I think 7 sets may be a bit excessive and most of them were 3 weeks apart but that was to keep me functional while they fought with my insurance company for approval.
on 10/10 I will be having RF at L5-S1 for facet joint arthritis. The plan for my sacroiliac joints will be alcohol injections to have pretty much the same effect as the RF. In the twenty years I have been in pain, nobody even acknowledged my SI joint problems, it was all what they could see on an MRI and CT scans. I do have some bulging discs but pretty much have DJD and DDD. Athritis meds are not an option for my stomach anymore, having used them for years. Now my stomach just doesn't tolerate them. Although I am not physically alone, I feel alone most of the time and very sad, to have to live in this relentless pain. I do take a narcotic pain med, that helps a bit. I have exercises from PT that I try to do religiously and go to the gym a few times a week to exercise in the pool and ride the stationery bike.
Iam from New England, we had a terrible winter and a terrible summner. It is beginning to get dark, gloomy, and cold. That is pretty much the way I feel right now.
Iwork full time in a management position so I am fortunate that I can flex my time. Ijust do not understand why I feel so bad so much of the time. I know people that have worse things than me, they seem to carry on much better than me. I feel as if I go to a doctor's appt why too often. All I want to do right now is go home and go to bed.
OZ
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Comments

  • and welcome to the forum. You are not alone and you will find so much support and understanding from our amazing members here. I am so sorry that you have been dealing with pain for such a very long time and I truly hope that you will be able to get some better pain relief quickly. Have you ever thought about trying an anit-depressant? There is no shame in it at all , most of us here have been on them at one time or another....we all need a little extra help to get through sometimes. If there is ever anything that I can do to help you then please just let me know. Please do keep us updated on how you are doing....take care....Miki
  • Thanks for the warm welcome.
    I am currently on two antidepressants, cymbalta, a small dose and wellbutrin. I do feel they help me function better. I see a psychiatrist and a psychologist. One manages meds, the other is talk therapy. So that adds to my arsenal of medical appointments along with a nutritionist as I have gained 20 pounds this summer, even with quite a big of activity.
    My hubby is a diabetic of 40+ years, he is in pretty bad shape, he will be having an aortogram on thursday and some stents. So caring for a chronically ill person doesn't actually help my spirits.
    I have also tried a bunch of other things such as DMSO, devil's claw, arnica gel, I bet if anything said it would help, I would have tried it. I do have a TENS unit now. I unsed to use a fentanyl patch that was more effective, but it didn't stay on very well, due to menopause, and swinning.I do really like my PM doc and have confidence that he is really trying.
    OZ
  • :) hi and welcome to the forum! we are here to offer you support and answer what questions we can. i have some of the problems you do and know of the pain you speak of. feeling bad yourself must make it especially difficult to take care of your husband. you must be a very strong person. please let this be a refuge for you and i hope you find comfort here. good luck and i hope to see you around! Jenny :)
  • oz- hello and welcome to the forum. There is alot of info and support here. Chronic pain can be a lonely experience and it helps sometimes just to vent here. Most people I have tried to explain it to don't really understand the 24 hr a day aspect of it.....And I wish you well on the upcoming procedure..take care....jade
  • Welcome to the forum. I am new here as well.

    Everyone here walks the same path and there is always someone here who understands and can empathize. We are not alone in our struggles altho it feels that way at times.

    I live in the Pacific Northwest (opposite end from you) and I can feel the chill of winter in my bones..I sure do miss the warmth of Texas (lived there for 25 years til we moved here due to hubby's job) ah well whaddya do eh.

    Let us know how your RF's go on 10/10. I may be having some soon too.
  • It sounds like you have won half the battle. A good PM doc is very hard to come by and you are very lucky to have one that actually is trying to help you. I am wodering if you might also suffer from SAD? Seasonal affective disorder. When the days get short in the winter I suffer from this. With the weather that you are experiencing it sounds like it may be possible. Artificial sunlight therapy usually works well for this. I also have a disabled husband that I care for and can very much relate to the challenges you face daily. You have come to a great place to find friends that will listen and really do understand. I look forward to seeing you around the forum.
  • painintheback. A good PM doc is hard to come by, so you are already on a good road for relief. If the fentanyl patches worked, there are other ways to get them to stick but you might have tried them all. Welcome again and hope you find some relief.
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