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tentative spondy diagnosis

AnonymousUserAAnonymousUser Posts: 49,900
edited 06/11/2012 - 8:24 AM in New Member Introductions
Hi, I am so happy to find this site. I have been around the block with doctors. I had two serious bouts of thyroiditis and history of autoimmune disase so when joint stiffness and pain became a regular occurence my endo sent me to rheumatologist. Mind you I have been to every form of orthopedic. I have been told I have everything from ehlers danlos syndrom, ddd, bursitus, you name it. All of this began at 39 when I suddenly went into early menopause. I have osteopenia, vitamin d deficiency, some lumbar ddd with nerve involvement, inflammation of SI and pelvis, pain and inflammation in feet. I also have bilateral trochanteric bursitus. The list seems endless. Blood work shows a little of this and that, but not enough of anything. So the temporary diagnosis is spondyloarthritus. I know nothing about this. I am on Celebrex which has helped feet and other joints, but back and hip pain is still bad. I am concerned about all the results of the nuclear tests my doc wants to do. I have had one bone scan, MRE, countless x-rays, cortizone injections in hips. I look forward to hearing your stories and hope it will :) clear some of the fog that I am feeling. It is hard to be proactive when you don't know what you are dealing with.
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Comments

  • :) hi and welcome to the forum! :H we are here to offer you support and answer what questions we can. you certainly have alot to deal with. check out the "Chronic Pain" forum. we also have a "Arthritis" site. we are more than happy to share stories and chat anytime. good luck with your treatment plan! Jenny :)
  • I am so sorry that you have not been able to find much relief for your pain. Hopefully you will soon find a doc that can diagnose and treat your pain. Most of us do go through a hard time just getting a diagnosis let alone propper treatment. Good luck and please keep us posted.
  • i wish u find a solution for your pain. i remember about 15 yrs ago i was in terrible pain and the country doc would prescribe prescrips for me like 2 a week. he was just guessing and after 3 weeks he finaly decided to send me to a specialist. at this time i didnt care what i might have but just wanted some pain relief. i remember he asked me if i had a prefference as one doc was female and the other was male. i told him which ever one can see me the quickest which was the woman doc. sorry for going on and i know u will find alot of good info here and caring prople.
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