:?? Hello All, my name is Lori Stead and I am new to this group. I dont know exactly how I found this group, browsing I guess however, I am surely glad I did. Finally to have people who totally understand what I am feeling mentally as well as physically!!! I have been ill since I was 15, first diagnosed with scoliosis, had harrington rod implanted 1977. Had to follow up back then it was required from my doctor for 5 years. I got married and had two health children with alot of back pain during labor. Thats when my problems re-started. Had contacted Hep B from blood exposure from birth of my second child, was hospitalized for one week. Had tonsils removed, then gallbladder after a long period of painful attacks. Finally around 1995 started feeling pretty good. 1999 my spine started to hurt again, like most of you, i waited and waited until I couldnt stand the pain any longer, off to a surgeon. 2002 he did a discectomy and fusion L4-5 S1 had root nerve damage, lost my reflexes in my heel totally and never seemed to get rid of that nagging pain but the disc pain was gone. So I moved on--living on Relafen and Pain patches....had stomach problems had to take care of that in 2004 and then in 2006 I had so much anxiety and depression from all the pain, I had a mini-stroke, yes at 43yrs old!!! Had to quit my job and take care of me for a change. Had rotator cuff surgery to repair a torn off ligament etc and then double plantar fasiitis surgery which due to my AK, took much longer to heal. Needless to say, I also have sleep insomnia, apnea and asthma, restless leg and high blood pressure, vitamin D defiency and folic acid low also. I feel like such a pill popper its terrible. I hate to take all these meds and use a cpap at night - wear a TENS unit most everyday and now I am only 46. I am on my third appeal of SSD and a third attorney. If all this doesnt depress a person, geez...plus still trying to have a normal sex life and run a household which is near impossible now. Thank god I have a very understanding husband.
How do you all handle your situations? I have been told my mind is still intact (most days haha) and there must be some sort of job I can do??? they SSD dont care!!! I have tried exercise, it unfortunately increases my pain levels even with extended therapy, I feel like I have tried it all. My rheumatologist just recently told me, he is running out of options for me since I had reactions to all TNF's. Methotrexate helps some but not in my spine, so we are just trying to up the dosage again but I have to watch my liver functions which are already elevated. Does anyone know if there are support groups around for AK, RA???
Thanks for reading, and for this group, I sure hope it helps.