Welcome, Friend!

It looks like you're new here. If you want to get involved, click one of these buttons!

Veritas-Health LLC has recently released patient forums to our Arthritis-Health web site.

Please visit http://www.arthritis-health.com/forum

There are several patient story videos on Spine-Health that talk about Arthritis. Search on Patient stories
Protect anonymity
We strongly suggest that members do not include their email addresses. Once that is published , your email address is available to anyone on the internet , including hackers.

Notice
All discussions and comments that contain an external URL will be automatically moved to the spam queue. No external URL pointing to a medical web site is permitted. Forum rules also indicate that you need prior moderator approval. If you are going to post an external URL, contact one of the moderators to get their approval.
Attention New Members
Your initial discussion or comment automatically is sent to a moderator's approval queue before it can be published.
There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.
This includes any analysis, interpretation, or advice based on any diagnostic test

L5/S1 Chronic Pain

AnonymousUserAAnonymousUser Posts: 49,731
edited 06/11/2012 - 8:24 AM in Chronic Pain
Hello I suffered a fall in September 2001 and I have Chronic Low Back Pain, Depression, Right Shoulder Pain.

For the last 6 years I have been getting injections under xray every 3 months, which I have now stopped.

I was hospitalized for depression in August 2008 for 6 weeks, most of my medications were ceased - zyprexa, avanza, zoloft. I am now on Epilim, Serequel, Diazapam, Cymbalta and Temazapam.
I also saw a new pain specialist at the hospital for my chronic back pain. He had a look at my mri and ct scans and examined me he prescribed Lyrica Norspan Buprenorphine and oxycontin.

I have been seeing him for a few months now and the pain meds have been changed he ceased Celebrex, Lyrica due to swelling of feet,legs and face, ceased norspan buprenorphine increased the oxicontin to 2x40mg in the morning and 2.5x40mg at night and he started me on Durogesic Fentanyl Patch low initial dose. I am still suffering alot of pain I wake up several times a night and have to walk around so the leg pain and numbness eases.

I also have an underactive thyroid which just adds to my problems I am taking 200mg of oroxine per day.

advertisement

Comments

  • Hi and welcome to Spine Health. I am certainly glad that you have found us. I think you will find the community of members a great benefit. Sounds great that you have a new pain specialist who is aggressively treating your pain, trying to get things under better management. I hope that it works out soon.

    Welcome aboard!

    "C"
  • :) hi and welcome to the forum! :H we are here to offer you support and answer what questions we can. i am sorry you are suffering such complicated medical problems. :T i had good results with the Lyrica and experienced weight gain but no swelling of my face or feet. i hope the patch works out for you. give it time to get into your system and get working. good luck with your pain treatments! Jenny :)
  • Hi Sisko95,
    I fully empathise with the things you have gone through and your chronic pain issues. I am relitavely early one with my chronic pain issues. But I am realising that it is a long road to get things sorted out. My chronic pain is L5/S1 generated sciatica along with foraminal stenosis and degenerative disc diseaese.

    I cannot believe how much this takes over ones life and how it makes you feel so impotent and depressed and there seems to be so little effective pain relief that does not wipe you out or make you feel permanently stoned.

    The effect it has on your life in general. It is hard to stay positive. But it is something we have to and my heart goes out to you I hope things improve for you soon.

    Best wishes
    Dawniee >:D<
  • I take lyrica and also lasix to keep my feet swelling down. It works for me. Did they offer surgery to you? I hope this Dr. will help manage your pain. Take care. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • You are not alone in your pain. I am sorry you have had to suffer so much. After 3 surgeries, 2 of which were fusions (I am fused L1-L5) I now have chronic pain at L5/S1. The joint is stable, the pain is probably caused by joint arthritis. I have had cortisone injections and now am having (another) rhyzotomy next week. I had 2 in 2001 and they were not successful (at L4/5 and L5/S1). I am hopeful it will work this time as the procedure was fairly new when I first had it. I take darvocet on bad days and try to get by with a very strong anti-inflammatory and ativan (also known as lorazapam)the rest of the time. Moving seems to be the best thing for me as sitting causes the greatest pain. I also find relief swimming. It is wonderful to be weightless.

    Jani

    14 surgeries, including L4/5 laminectomy, L4/5 fusion, L1-5 fusion, 2 rhyzotomys and numerous cortisone injections.
    L4/L5 laminectomy, L4/L5 360 fusion with instrumentation, L1 to L5 fusion, L5/S1 fusion w/ disc replacement, left and right SI joints fused.
  • I'm sorry you have to deal with this pain, and on top of it depression. And if you had it before you got hurt, you'll probably get hit harder with it after having to deal with chronic pain. I hope you have a better day today.
    I am trying to recover from a 2 level fusion (L4-S1) and they had to decompress the L5-S1 nerve. That disc is severely degenerated, and the level above it was operated last year, and was recurrent, and also had slippage (retrolisthesis). I was left with a benign mass on L3; they wanted to leave it be, so not to make things worse.
    I go thru days that I feel depressed and hopeless, and also feel like I burden my family. I have been thru rough times in my life, and I think it's given me the strength to deal with what life throws at me- like this constant, unforgiving back and nerve pain. I have to stay strong for my family, but we all have the right to cry if we want. This is not easy, and like someone wrote here once, that we grieve the loss of our former selves. And it's okay. I take comfort that I have my friends here at SH, and there is always someone for you at any time. You don't have to suffer alone anymore. We understand because we are going thru similar circumstances ourselves. Sometimes it's hard to talk to people who can't relate to you, and I'm sure it gets old talking about pain. It never gets old here :)

    Hang in there, and just take one day at a time.
  • Sept. 2011
    Hello, seeking some information and comments from your experiences. I have had back problems for years, degenerative disk disease/herniated disk, spinal stenosis. Had lumbar laminectomy L4-L5 24 years ago, a lot of relief. But through the years back problems/pain returned. 2007 bad incident just could not walk, pain severe. Chiropractor, therapy, medications, etc. May 2010 had a 4 level lumbar laminectomy L3-S1, some relief but minimal and physical therapy afterward. Still painful, difficult to walk, and to stand up straight. Nov. 2010 again lumbar lameectomy the same levels as previous, L3-S1 AND a spinal fusion at L4-L5. Occasionally I would have erection problems, achieve erection, problem sustaining it. After Nov. 2010 surgery, it was more dificult to achieve erection and as time goes on more and more difficult to achieve erection at all. Very frustrating and definitely affects the mood and self-esteem.
    Any past experiences or comments to help with this situation. Thank you.
  • Sept. 2011
    Hello, seeking some information and comments from your experiences. I have had back problems for years, degenerative disk disease/herniated disk, spinal stenosis. Had lumbar laminectomy L4-L5 24 years ago, a lot of relief. But through the years back problems/pain returned. 2007 bad incident just could not walk, pain severe. Chiropractor, therapy, medications, etc. May 2010 had a 4 level lumbar laminectomy L3-S1, some relief but minimal and physical therapy afterward. Still painful, difficult to walk, and to stand up straight. Nov. 2010 again lumbar laminectomy the same levels as previous, L3-S1 AND a spinal fusion at L4-L5. Occasionally I would have erection problems, achieve erection, problem sustaining it. After Nov. 2010 surgery, it was more dificult to achieve erection and as time goes on more and more difficult to achieve erection at all. Very frustrating and definitely affects the mood and self-esteem.
    Any past experiences or comments to help with this situation. Thank you.
advertisement
This discussion has been closed.
Sign In or Register to comment.