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Hurts so bad - any help is good

AnonymousUserAAnonymousUser Posts: 49,731
:( :''(

Hi,

I am at my wits end. And please bear with me, I thought I had posted about this about 6 hours ago but it is not showing on this computer.

I have had successful treatment to my facet joints. The first selective nerve root block showed mild results and pain was getting really bad again so had a second a week ago yesterday.

Well!...........That one has put me into awful pain. On a scale of 1- 10 I am at about a 14. Down my leg to my feet - awful stabs and deep ache and shooting. All together.

Does this sound familiar to anyone? I have talked my doc into doing another MRI which could take till after Christmas to happen. By then I will have hopefully recovered from this horrible pain. I just want the MRI to show more than moderate, so that they will act on it. It has been 2 years and occasionally my sanity hangs by a thread.

TY,
Rae
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Comments

  • What kind of pain meds are you on? Have you tried heat or ice yet. I hope you're not overdoing it. Take care and see you around. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • Hi Charry,

    I have tried heat, it is the only thing that gives some relief while it is applied. Ice seems to exacerbate the pain after application.

    I am on 90 mg MsContin twice a day. The doctor just prescribed 10 mg morphine that is non slow release as needed.

    My Ipod and Ativan keep me calmer because I tense up from the pain and then it gets worse.

    Hope you are well.

    Rae
  • U are not alone. I cant even walk- surgery scheduled for spinal fusion and spinal cyst removal on Nov.20. Its been 24/7. Let me know how I can help you. I find the Rx's dont even touch nerve pain.Have any ideas??? If you need an MRI NOW, go to the hospital. They'll do it. I'm waiting 6 weeks to get my surgical date. The waiting is the worst.
    Thinking of you,
    Vicki
  • Get some valium to keep urself calm. it really keeps me from totally losing it.
    Vicki
  • WOW I FELT LIKE I WAS BEING ELECTICUTED LITERALLY AFTER MY SECOND SHOT, I WAS IN SO MUCH PAIN I WAS ON THE FLOOR CRYING AND COULDNT MOVE, TRY SOME HEAT AND REST I WAS OK IN A FEW DAYS THANK GOD... HAND IN THERE I KNOW EXACTLY WHAT YOU MEAN BELIEVE ME. I NEVER GOT ANOTHER ONE AFTER THAT EPISODE I WILL NEVER FORGET THAT TYPE OF PAIN. I CALLED MY DOCTOR AND THEY COULDNT UNDERSTAND IT. FEEL BETTER HON.

    SINCERELY, DAWN
  • ((((Vicki))))

    Valium is a great idea. I will ask the doc for some.

    Saw him yesterday and he decided I need to go on anti-inflammatory drugs and prescribed Naprosyn, which is Aleve for you. (I am in Canada). I asked him how Naprosyn could cure nerve pain and he said it would take out the inflammation. I guess the herniations are inflamed to the point they push on the nerve bad enough to cause pain to me foot - I don't think so.

    Vicky here in Canada we have no voice and are at the mercy of the health care system. The only way I can get a quicker MRI is to pay myself which is tough when on disability.

    He has sent an urgent referral to an orthopedic surgeon (or is sending) and hopes I can see the guy before Christmas.

    I am also pondering whether to buy a chair that will lift me out as I have a terrible time getting up out of chairs.

    Oh Vicki - it sure seems all of us back pain people have to suffer in silence. It is a wicked thing that I would not wish on anyone.

    Take care of you,
    Rae
  • Oh Dawn - the doctor said I was a fantastic patient as I did not scream and cry and swear. I told him I would if it would help me out. And........I don't plan on doing this again. It's 2 weeks today and I still have the awful electrical pain.

    My Mom figures that I will do well as a friend of hers has a brother in law in Europe who is in pain like this for 6 weeks after a shot and then is pain free for 2 years. I would love a day or so pain free as it has been close to 2 years with.

    The hot pads work the best. I pack my leg with them to get some rest at night and also make sure to have something to lift the blankets off it. Other than that all I can do is wait for things to get better.

    Thanks for the info. I am not crying full time like when I posted the initial time here. It is part time and I am praying for some relief by Christmas. (We are hogtied by our health care system in Canada)

    Take care of you,
    Rae
  • HI. WELCOME TO S-H. AS I RECALL FROM THE DAYS THAT I WAS GETTING THESE INJECTIONS, THE PAIN WAS SOMETIMES WORSE BEFORE IT GOT BETTER. HANG ON TO THAT THOUGHT. THE REALLY BAD PAIN IS ONLY TEMPORARY AND, HOPEFULLY, ONCE IT PASSES YOU'LL BE FEELING THE RELIEF YOU FELT THE LAST TIME. JUST KEEP TELLING YOURSELF "THIS TOO SHALL PASS". YOU KNOW IT WILL. IF IT DOESN'T, FEEL FREE TO TURN ON YOUR COMPUTER AND TELL ME I'M A SO-AND-SO. SUSAN.
  • it hurts worse before it gets better. With epidural injections, it takes days before you feel the effects of the steroid. However, the last ESI I had made the pain horrible and stayed that way. I am not anxious to have another.
    I was put on oral steroids to get over that.
  • Try Lyrica for the nerve pain along with vicodin or percs. When I was released from the Hospital this is what they gave me. It didn;t work at the time but I am now 1 month post op and it is working. I was also put on a steroid block wich did nothing but try the LYRICA. Good luck
  • TY for the welcome Susan. I am holding on to the hopes of the pain being temporary and getting relief afterwards. Kind of wonder though, if suddenly I get the dramatic relief would it affect what my specialist tells me in regard to treatment.

    Sigh, good news being the specialist and I do hope after over 2 weeks the pain is going to go away or get a little less.

    I have been living with an 8 or 9 out of 10.

    Rae
  • I am over 2 weeks of pain and counting. Oral Steroids- hmmmmm. I have some at home for asthma problems.

    Seriously will probably bite the bullet (and narcotics) until I see the specialist on December 10)

    Take care,
    Rae
  • I had a bad reaction to Lyrica and tried Cymbalta for 4 months. Have not had any relief but am scared to quit, if that makes sense?

    Rae
  • I have had facet injections and milar blocks done. they both hurt like hell I think i left finger impressions on his operating table, and guess what they made it worse, but they are good for diangnostics so that should tell you to ask your doctor for a discography and see if you are a candidate for alternate treatment or even a razodomy. ps- I am not, so I am waiting for 9 more months for my Date-next surgery.(18 month wait list)they are installing
    Dynesys (dynamic stailization system}
    web site info www.zimmer.com

    hope this helps
    your not alone, but epson salt and sea salt bath salts help before bed.



    {medication is oxycotin }
  • I am sorry that you are in so much pain! I am writing this and feeling down right horrible all the way from both of my feet up. I do know how pain feels, it hurts. The worse part is not being able to sit very long anymore at the computer :''( :''( :''( .

    I hope that the injections didn't make you worse. Did you call your treating doctor?
  • I have had the same thing! They may have hit the nerve root while they were doing the block??? GO TO THE ER
  • I know exactly how you feel!


    I had a microdiscectomy (sp?) last year on my lower back as well as a neck fusion with the steel plate and screws. JUST this past week I have been in the MOST horrible pain I have ever had. The pain is in my right butt cheek, down the back of the leg, the calf and into the foot. I can even feel it in the knee. It is soooooooo bad that 1500 mg of VICODIN doesn't even touch it. I can barely even stand on the leg. I have laid on the heating pad, legs propped up, used biofreeze, vicodin, percocet and icy-hot patches. I am guessing this is another disc problem? I HAVE NEVER HAD PAIN LIKE THIS !!!!!!!!!! Going to the doctor tomorrow. I don't want another back surgery. Any suggestions? It is so bad that I am ready to amputate my leg.
  • Rae:
    You have a nasty menagerie in there, and the beasties are getting bigger and meaner!

    I may be able to guide you to some help. I am a retired MD pain specialist.

    Since you already had two selective nerve root blocks and are now worse, don't go for more! I assume because you had these you are already seeing an interventional pain specialist. Ask him about a spinal cord stimulator. I've had good experience with them relieving pain like yours.

    Question: Do you have pain with light touch in your back? If you do, you probably have neuropathic back pain. that responds very well to a stimulator.

    I am also concerned by two other problems: The spine fracture and the hemangioma.

    The hemangioma(s) can grow and cause additional spine fractures. If the bones do crack the treatment is simple and highly effective. You need to have either a vertebroplasty or kyphoplasty. Those very similar procedures involve putting a heavy needle into the bone and injecting bone cement (glue) to lock the fracture fragments in place.

    I've done a bunch of those, and had marvelous results. Usually the patients come out of the procedure smiling and commenting that the pain in the fractured bone is gone!

    With the old fracture, you may have osteoporosis, and weakening of the bones. This can come from advanced age, diet poor in magnesium and boron, (shortage of dark green leafies) and lack of sunlight exposure. It can also be a result of corticosteroid use for problems like lung disease.

    That requires careful watching. If you get an additional fracture you will have instant onset of extreme back pain worse with any motion. You need to get as quickly as possible to someone who can do the vertebroplasty to fix the fracture.

    Live well!

    Ken
  • I am having the worst pain there is I had the surgery on january 7th 2009 I had a discetomy. The doc said that i had a disc that was flat and clasified and on both right and left nerve.

    When I was release from the hospital the doc prescribed for me norco 5/325 and boraxin That does not even touch the pain.

    I told the Nurse and Doc. The Doc told the nurse to tell me that he is a ortho doc and not a pain management doc. And that I need to go to a pain manage doc.

    What can I do please help me I am in so much pain.
  • Rae,
    You use great and appropriate words to describe your pain which is a measure of the control you have of the situation and linked to the Mc Gill Pain Questionnaire as stabbing ect, that increased continuance is never easy and trying to do anything takes effort. Try to use that positive outlook to develop positive thought and make a plan of things that make you and your situation better and move towards them when possible, that intensity will subside and it sounds like a flare up and never east to define as a general period of increased pain.

    The good thing would be that additional evidence would mean it may go away and never come back and once the pain radiate down you leg that central back pain origin is increased and you are well to wait and not do anything that may increase the opportunity of your condition becoming permanent.

    My thoughts are always to increase support at this time and restrict the development of more dire thoughts if possible, Pm is effect for some so why not do this when it would help rather than at the end of the process when the development of pain behaviours and better option are available now rather than later. Early intervention must always help from the full gambit of the chronic pain syndrome from becoming entrenched and keeping depression the gateway to despair away at all costs.

    Pace well and perhaps at the moment a reason for this increased pain is not easy to define and it will net diminish even if you knew what had caused it, you are here now and how to deal with what you have and we all learn from that.

    My last 10 episode was some time ago now and never to be forgotten, never east, you will get through and be stronger for it, ready for the next time unfortunately, this downtime it to learn about yourself and mandates that process. In the end you want validation for what you have not for it being worse where intervention would be needed, we are not doctors and do not have those answers, we can only offer our support and guidance form where we are and how we came through.

    Take care you are doing fine, and stay positive that flare-up will improve hopefully.

    John
  • You're only around 3 weeks out of the discectomy, and the ortho doc should investigate the cause of the increased pain. He may want to send you to have a post op MRI. I had this same problem after my first surgery (see below) and was sent for an MRI. It was months later that I found out the extent of the problems I developed, and I was upset that it was withheld from me. I went on to have a 2 level fusion after all that.
    Keep in mind that it's still very early in the recovery for you, but I do think the Ortho doc should follow up on you. It is common for them to send you to pain mgt for post surgical pain care, and the pain specialist are equipped to handle this. Perhaps the ortho doc isn't comfortable prescribing anything higher than Norco 5/325. I think a muscle relaxer and a nerve pain medicine like Neurontin, Lyrica, or Cymbalta will be very helpful to tackle your pain. The combination of these meds are more effective for this than just one type of medication. Maybe you should consider your ortho doctor's recommendation to see a pain specialist, and I hope you get some relief soon. Take care
  • Anyone on here tried VAX-D? (Vertebral Axial Decompression) I've heard it's supposed to be great. Non-invasive, surgical alternative. I read about it here: www.americanbackcenter.org
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