this is my fifth try at getting a pain specialist to treat me after my old one that i had for 6 years tossed me to the wolves.
i made the appt. and told the doctor's assistant aforehand I was on medications, i told them i wanted treatment and wanted to get off the medications. i just don't know who to turn to anymore and each time i get turned away by a doctor, my pain lvls spike due to the emotional trauma.
this 5th doctor turned me away even after I told him that I wanted off the medications. In fact, he told me not to stop the medications because
“you won’t be able to walk”. i asked him what i should do, that i have no life, that i need help, that i need diagnostic tests, as every doctor seems to tell me that i have a different problem. that i move so much due to lack of money isn't helping.
He shrugged and said ‘sweetie, I don’t know what to do or tell you.’. I was actually begging him to order some tests, find out what’s wrong with me.
He shrugged again. I pleaded with him and asked if he knew what kind of doctor I should turn to in order to get fixed. Who should I see? I begged. A neurosurgeon. He shrugged, perhaps. He didn’t suggest anyone. He looked over the mri report I had brought, told me that he doesn’t look at films and he only takes as diagnosis what the radiologist says. ( great, once a radiologist of an mri I took wrote that my cervix looked fine. The thing was, as my gyn pointed out, I did NOT have a cervix at the time. it had been removed a year prior).
What is it with pain mgt. doctors? Didn’t they go to med school? Are they too lazy to make a diagnosis? That’s sad. I wasted 7 years with a doctor who told me that nothing could be done, and I believed him and swallowed the meds. i had mris and tried a few specialists, but they just brushed me off after a 5 minute appt. I’m done with meds. i'm sick of feeling like a criminal. i'm sick of the stigma. but i need a doctor to treat the pain so i can get off the meds, and i need a doctor to taper me down. i can't relate to addicts, as i hate the effects of medications. i used to throw them down the toilet after surgeries the moment i could bear the pain.
Anyway, this 5th pain mgt. doctor looked at my MRI and mumbled the date it was taken. I had already told him three times it was 3 years old. since he had called me sweetie several times, I didn’t get the feeling that he took me seriously. He told me that we should get another one. Well, I asked him if we could add an mri rx for the left hip area, since the pain radiates from the left sacral area to the hip and when i do my daily exercises, i have severe pain in the joint.
He denied my request for not only a hip mri, but a sacral mri. instead, he wrote an rx for a lumbar mri, even though I told him i have no pain in my lumbar area and any mris i've had in the past 5 years never showed any sign of disc degeneration. he wrote on the mri to specifically look for disc degeneration. then, he explained nerves, saying he was looking for a specific one in the lumber.
I had told him several times that my pain is very localized. I told him that I had marcaine, an 18 hour anesthetic injected in right where the pain was localized and that I was able to instruct the radiologist to the exact nerve that was causing the pain. he kept shaking his head as if what I was saying didn’t make sense with his limited knowledge of back pain.
I told him that if a radiologist could anesthesize the nerve and make me PAIN FREE FOR 18 HOURS then SOMETHING should be able to help me for longer. i told him i had read about procedures like radiofrequency ABLATION or epidurals.
He shook his head and said, then you should go back to the radiologist who injected the anesthetic. I told him that the radiologist was in California and I can’t get there. i'm in nevada. He shrugged. again.
i again asked him to prescribe an rx for a sacral mri and told him that the one in santa Barbara that he was allegedly redoing because it was old was a mri of the sacral/cocyyx where my pain is located.
I told him that i had been diagnosied with sacriliitis and i had already been to the mri lab and that the radiologist sent me home as the lumbar mri did not corrospond with the diagnosis or where the pain was. i mentioned again that I had NO PAIN IN MY LUMBAR.
He said that if nothing shows on mri, he would perform an injection to diagnose sacriliitis. he chided me and told me that he knew best and I shouldn’t question him. He showed me the little nerve and called me sweetie again when I tried to tell him again that the nerve that hurt was not anywhere near the lumbar.
obviously, he doesn’t want me for a patient. Probably figures that I will find another pain doctor if he drags things out. The receptionist didn’t even bother making another appointment with me.
I’m ready to give up. How much more of this rejection, this total lack of care, can I take???????
everyone knows that pain increases with stress. i've been treated worse than garbage from 6 pain doctors so far.
i don't know what to do. i don't know where to turn. my gp has sent out at least 10 referrals and those doctors say i need an mri stating what's wrong before i go.
does anyone know what kind of doctor i should go to? i know i have very localized nerve pain in the left sacral area that radiates down to my left hip and have pain in left hip when i do certain exercises that cause no pain in right hip.
i feel as if my entire skeleton is out of whack and am constantly stretching and twisting my left leg in order to release pressure. i can feel a slight relief, so i know a nerve is being pinched.
do i go to an orthopedist? a neurologist? if i check myself into a hospital for pain, will they do tests? i'm at a point where regardless of the fact that my pain medications were working in march to the point of getting my pain down to lvl 4 - 5, i want to be off meds. i don't like feeling like a criminal anymore. but i hardly bear the pain in the sacral/hip area even with the meds now that my nerves are shattered and i'm in a chronic anxiety due to not having a doctor and being treated like trash.
i just don't know where to turn. i need dr. house. i am beginning to think that i will end up dead. i can't tolerate this pain anymore.
any suggestions... i'm on medicare and medicaid and i don't think doctors like that either. and i am now in too much pain to drive anymore. i'm so afraid that i'm going to end it as i cannot live in this torture chamber that is my body anymore.
i can't help it if technology can't find out what's wrong with me. a chiropractor told me that i have a severely twisted pelvis. i just want some tests done so i can get a diagnosis and start treatments so i can be somewhat functional again.
the pain is so bad now that i cannot even concentrate enough to read.