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So relieved to find somewhere where I can relate to people who are going through the same problems!

AnonymousUserAAnonymousUser Posts: 49,731
edited 06/11/2012 - 8:25 AM in New Member Introductions
Hello, my name is Diana, I'm 39 and I'm so grateful to have come across this forum. Thank you, thank you!!! I've currently got severe lower back pain which seems minimal in comparison to the pain I am feeling in the sciatic nerve in my right leg, I have been in serious agony now for over 3 weeks. I've finally been diagnosed as potentially having a prolapsed disc but only an MRI scan can confirm that, then depending on the results I may need surgery, which absolutely terrifies me. I am writhing in pain 24/7, I dread going to bed each night as I cannot lie on my stomach, back or my right side and I haven't slept in over 3 weeks. Am on major pain killers that are not even touching the sides of this horrendous pain. Can anyone relate to this and offer any comforting advice?
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Comments

  • Welcome to Spine Health. I believe everyone here can relate to what you are going through. So you have found a place where you can kick back and make friends and find out information and people can help you with your thousands of unanswered questions.

    First thing I can offer up, is that I found I had to relax as much as possible and just have faith in the doc that he would find the problem and be able to fix it.

    Second, is that I had to keep from freaking out over all the information I read on the Internet. Something very simple can feel very horrendous. It's like people who self diagnose cancer when all they have is a little indigestion.

    I'm glad you're here and look forward to getting to know you.

    "C"
  • I'm new here too. I've been incredibly impressed with the relevant information that is at our fingertips in such a short amount of time.

    I sympathize with your pain. Mine's a little different: localized in the C7 and radiates occasionally down my arms with numbness, etc. But, the pain really comes for me at night. I don't understand how I can feel so good with a broken neck during the day with no pain meds, and feel so bad at night, even after taking meds.

    Luckily, I've only been at this a week... I read "C"'s history and it sounds like she's had a rough go for a long time.

    I wish you well.
  • Just somewhat of a bumpy road. Fell and hit my head a few times, but always seem to land on my feet. Well okay landed on my butt a few times too. :-)
  • Our bodies are resilient, aren't they! Your history indicates to me more than just a bumpy road...it indicates to me that you're one tough cookie! Way to hang in there.

    Diana, let us know how the MRI goes (some don't like going through that, but from what I've read from "C", and my own experience, you can stick some in there for 45 minutes and they'd be just fine...snoozing away.)

    Take care,
  • You're a hoot! =)) "C" is for "crazy" more than anything else. I had many brothers and coworkers and friends to compete with over the years and I never went at anything at less than full throttle. If it was a Ski jump and you did a 15 foot launch, then I had to do a 20 foot launch. If it was a jet ski in 6 foot swells, then I had to open up the throttle twice as much as you. That sort of thing.

    "C"
  • Completely understand and appreciate the effort... I'm the oldest, so I've always been able to set the bar in skiing and sports...and then watch as my younger sis and bro would wipe out. It's been fun in this position...much better than feeling you have to drop in from 30 when you know 25 is the safe limit...

    I'll post how I broke my neck in this forum as a new thread...you might appreciate the story.
  • C is correct in saying that you can really make yourself crazy trying to self diagnose over the internet. That is best left to the pros. Have you tried ice 20 minutes on and 20 minutes off on your lower back. Or if ice does not help have you tried heat? Wet heat is the best. Ice really helps me with muscle spasms and inflammation. You may be surprise and a regimen of using either one before bed just may help you get comfortable enough to sleep until you can get a diagnosis. Good luck to you and please keep us posted.
  • I was your age when my problems started just 3 years ago and I know exactly how you feel and what you are going through. First, do you have a recliner you can try to sleep in? This will keep you stable in the sense that you can't roll over or roll around while asleep. I spent 2 years in my recliner, almost every night. I would start out in bed many times, but end up in the recliner. The pain just burning and burning drives me nearly insane and being in the recliner and able to turn the tv on or something if I need to makes it better.

    When you have to do any walking, do you find your leg weak or do you lose your leg out from under you? I was told that the farther down your leg the pain goes, the more serious. Mine first started just in my buttock. After a while, it went down to my thigh, then my calf and then my feet. As it migrated, that told the doctors I was getting worse.

    I had also hurt my back, had a herniated disc, but tried to delay any surgery. Sadly in my case, the nerve pain I had in the very beginning stayed the same through 3 surgeries and now I have permanent S1 nerve damage. My back is now stable, though, so that is the good news.

    I wouldn't mess around with the nerve pain. It can be tricky as far as recovery, but most people do.

    Do stay current with your meds and don't try to skip any right now, or you will play the very un-fun game of "Pain catchup". Also, try to keep your bending, lifting and twisting to a complete minimum giving your body a chance to heal and get that disc back where it belongs and off your nerve. Pull a chair up to your sink to brush your teeth, things like that.

    Hang in there and keep us posted!! I'm sorry you are suffering this horrendous nerve pain and I hope it gets better sooner than later.

    Cheri

    Cheri
  • Hi Cheri

    Thank you so much for your email. It really helps to talk to someone who has had similar experience. I don't know at this point which disc is prolapsed and I'm very frightened that there might be long term damage done. I'm terrified of the prospect of surgery as I've heard horror stories of a lifetime of backpain after surgery. I'm also very concerned about what you mentioned about permanent nerve damage. How did that happen? At the moment I have no reflexes in my right knee or ankle when they test for them. I can still walk, but my back really aches if I walk for long, so I keep it really limited. I have no numbness, just severe pain. My leg hasn't gone from under me at this point. I've had this pain since 17th October, is it about how much time passes with the nerves being impinged that causes permanent nerve damage? Also I'm now on morphine and my mum is totally freaking out saying I should not take morphine, it does long term damage. Do you know anything about that? My anxiety levels are starting to shoot through the roof about all of this. I'm dreading the MRI because of what they might find and also the fact that I cannot lie down on my back AT ALL without excruciating pain. Not for 5 seconds even. The point you made about the recliner is about right because about the only position I can tolerate for a long period of time is laying propped up on my sofa with hot water bottles. Then things feel calmer and less painful. I really hope you can write back and help me as I'm getting more and more worried about this as each day passes.

    With warmest regards to you

    Diana
  • Diana,

    Sorry to hear you are in so much agony. I can relate. 3.5yrs ago I had a bad back that lasted two or three weeks. Then I had unrelated surgery (hysterectomy) and I wondered if they had hit my sciatic nerve as since that op 2 yrs ago I have been in really severe pain, high doses of morphine, that didnt work so went onto Fentanyl patches and then I am now on Oxycodone, with a bunch of other meds.

    I am looking at a Discectomy, possible fusion (depending on what they find when they get in there) at L4,5-S1. I am dreading this op, but then with positive thinking it will hopefully sort out my back issues once I have recovered from the op etc.

    Advice: Try and be as positive as you can be. Set yourself small goals to achieve every other day if you can't do something on a daily basis. ie cleaning a room in your house, writing a letter to a friend, going for a walk/swim etc, going clothes shopping with a friend, going out for coffee etc. Doing any of these things helps maintain your mental health state of being 'normal' even though you have a health issue. I really hope that makes sense.

    Go to your doctor/hospital appointments with a notebook ie for your questions you want to ask your doctor/specialist and for the answers you get. When you are on strong meds you can get what we all call her 'sieve brain' when you just cant remember things no matter how hard you try lol.

    You have found a wonderful site, and people are really friendly on here, and as its a global site you will get answers to your posts at any time.

    Try heat/cold therapy, positive thinking as well as relaxation exercises. It will help. If things get to much, post on here and we will try support you through your issue. We have a great chat room, which is good for getting support for your spinal issues, or we go to 'the lounge' for a general chill out, talling jokes, funny life stories etc. Again, just a group of friends hanging out together.

    Sorry this is a long post but I just really identified with it. So welcome, and I hope you make lots of friends here and get the support you need.

    Love and hugs
    Danni
  • You have probably already tried this but I found that with severe sciatic nerve pain painkillers did not work nearly as well as muscle relaxers.

    I so empathize with the pain you are in - I spent days on the floor on my right side and could not sleep at all except on my right side for a month before my surgery. By then I was more than ready for the back surgery - it has been a long recovery but it is wonderful to not have the pain!

    Good luck - I hope you get relief soon.
  • Thanks for your post. Thing is I've been told to have almost complete bed rest and there is no way I could go for a walk or a swim, 1, I can't stand up straight, 2, I'm in agony, 3, I'm frightened of doing further damage. If I walk more than 20 metres or so my back hurts horribly and I feel utterly exhausted. So I'm afraid all of that is out for me. At the moment I'm homebound so I've got family and friends visiting regularly and I'm trying to stay positive.

    Diana

    PS Does anyone know if they can knock you out or numb the lower half of your body for an MRI scan if you can't lie on your back for longer than 5 seconds?
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