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MY STORY

AnonymousUserAAnonymousUser Posts: 49,731
edited 06/11/2012 - 8:25 AM in Chronic Pain
This story begins with 2 visits with a chiropractor and 2.5 years of hell. The chiropractor manipulated my spine 2 times and he ruptured my L5s1 and a tear in my L5L4.I would gladly have my old back. I had to spend a week in the hospital because it felt like someone was pouring liquid fire into my back.My best friend made the appointment for me saying "this guy will straighten out your back" We don't talk anymore,we were friend for 15 yrs.I am taking 40mg x2 oxcycodene a day,didn't need anything before my two visits with" DR.keveorkian".I was a Auxilliary Firefighter but had to resign due to SEVERE pain.Suicide,thought about it ! but my mom who is my angel it would have ruined this amazing women and I love life but this is a nightmare.I had a Mri they said this is what is going on and then I had a bi-lateral disketomy L5S1.I still have horrific pain,my Gp says I will have to live with it,this is not a good option.I live in Canada and are medical system and back surgery is not as good as the states,I have the money and I believe there is something that can be done but I just don't know which Doctor or hospital to go too in the USA.I really could you this forums great advice and I hope for better days. I am not looking for a wonder cure but I would like a second opinion with a really good Doctor.
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Comments

  • I am sorry to hear about your visit to the Chiro. That is horrible. Unfortunatly here in the states, we all have problems finding the right Dr to figure out how to take care of the pain. Some will try and help and others will just push you off like a drugy. But, I am sure with everyone heres advise and knowledge of there times and tribulations with it, that I hope we all can help you with your situation too.

    Good luck and stay strong.
    Kelli
  • I just can't tell you them because I have not had spine surgery yet.

    Now if you want something else operated on I can help with the vocal chords on down to the feet,minus the spine(lol).

    Welcome to Spine Health Dewy :H .There are quite a few members here that can probably help you out~I just wanted to say WELCOME :)
  • I am glad to be able to open up and talk about this,I guess when you are in great dispair kind words heal.I was feeling overwhelmed and posting today has given me hope that maybe someone can point me in a new direction.
  • I am new to this as well. I found this site yesterday and have been hooked to my computer reading about and questioning as well. I do notice one thing on this forum is that everyone here is really close and are willing to help and give information of themselves to help who ever is asking and needs.. I really do wish you the best of luck in finding the right Dr for you. I know it can be frustrating to go from Dr to Dr. But when it comes to your health it is a really good thing to have multipule opinions...
  • The other day I had an appt. with my regular PCP,and I told her that I was not impressed with him(the OS).This was the second time that I had seen him and he took no time with me,did not read my MRI,did not explain anything to me,nothing.I told him my symptoms and he said 'ok then',and that was that.

    I wasn't asking anything of him,but was referred there with symptoms(my 2nd visit),and I'm not one to complain that often,but this visit was a total waste of my time.He is a VERY nice person,but I would rather have a GOOD Dr with an gruff personality than a nice Dr who is not good with my issues.

    Dewy~I'm pretty sure I can say with conviction that there is no miracle cure out there,but you do not have to live in horrific pain either.It's terrible that your Dr said that to you.I can understand a Dr not wanting to give false hope...but I don't think getting relieve and possible treatment for "horrific pain" is out of reach for you.There is certainly hope for your pain.
  • Is your Dr. referring you to a Neurologist? Or Orthopedic Surgeon or at least a Pain management Dr? Your Dr. can also order an EMG while awaiting a specialist because if there's problems with the EMG the Neurologist will see you.
    I live in Canada and it depends if you're in a big city to get the Doctors you need. I also think it depends on your GP and his/her connections. Take care and hope you get the help you need. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • Is your Dr. referring you to a Neurologist? Or Orthopedic Surgeon or at least a Pain management Dr? Your Dr. can also order an EMG while awaiting a specialist because if there's problems with the EMG the Neurologist will see you.
    I live in Canada and it depends if you're in a big city to get the Doctors you need. I also think it depends on your GP and his/her connections. Take care and hope you get the help you need. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • Just a quick word..homework and such, but I hope you find relief from your pain, but more importantly, some peace of mind. I applaud you not giving up and that your spirit knows how to fight. keep that chin up k?
  • I'm sorry you are suffering so much. I truly understand, and am going through similar pain. In my case, I don't believe my beloved chiropractor caused my problem, but certainly didn't suggest I go to the doctor while I had regular (up to 3 times a week) adjustments with the chiro. Every time I went, I would feel much better for about 24 hours. One time I was so bad, my husband begged me to go to the ER. But I wanted to go to the chiro.

    Sure enough, she "fixed" me for about 24 hours. After 4 months, I finally realized I needed official medical evaluation and that began my journey. Now I suffer from permanent S1 nerve damage - the same nerve damage and pain I felt in the beginning. I'll never know if I had gone to the doctor sooner if I would have prevented this horrible permanent pain.

    Some people can delay treatment for years and their nerves will heal and regenerate. I had 4 months, little did I know.

    From my personal experience, I would recommend a neurosurgeon rather than an orthopedic doctor, but then again, my horrific pain is nerve-based. But then there are wonderful orthopedic doc opinions as well. Just the 2 I used did not help. (The first one was the team doctor for many of the professional teams in the area and came highly recommend - Ah well.)

    My best advice - go with your gut. Follow your intuition. If you don't feel "good" around a doctor, don't use them, no matter who desperate you may feel at the time. I know that the appointments can be overwhelming and/or wear us out, but it is vitally important that we trust our surgeon.

    I hope you find relief soon. I also hope you do not have irreversible nerve damage. I don't wish that on anyone. I will be getting a spinal cord stimulator trial coming up in 2 weeks, and if that doesn't work, my only other option will be an implanted intrathecal pain pump. When you have permanent nerve damage, not much they can except medical management. I am intolerant of most meds (Neurontin/Gabapentin, Lyrica, Cymbalta) that many patients find to be really helpful with nerve pain.

    For now, try not to bend, lift or twist AT ALL. Don't even bend down to brush your teeth. Pull up a chair and do your best. This is the best thing you can do for yourself right now while you are in a holding pattern.

    Hang in there and welcome to Spine Health!

    Cheri
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