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Spinal Stenosis strange sympton

AnonymousUserAAnonymousUser Posts: 49,900
edited 06/11/2012 - 8:25 AM in Spinal Stenosis
My mom has arthritis in her lower back and has spinal stenosis. I am so tired of seeing her suffering and am looking for anyone else who might have the same sympton she does.

She has these "attacks" where she sweats profusly. She sweats so bad that she has to carry a towel with her at all times and has to change her clothes because they are so wet. Does anyone here have that or know of someone who does? She thinks she crazy because all of the stuff that we have found NEVER mentions this sweating. The dr told her it is called HYPERHYDROSIS. Well if you look that up it doenst mention anything about stenosis. All it talks about is sweating of the hands, feet and underarms. When she has these attacks she sweats from head to toe.

She has been to several dr.s but the only thing they want to do is cut her open. they have told her if she goes through with the surgery their not sure they will fix it. Any help or info will be greatly appreciated!
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Comments


  • Greetings, I suffer from stenosis amongst many other problems and have never had that happen.Is she taking any meds that maybe having this as a side effect?

    Did she ever have episodes before the diagnosis?

    The only times I sweat that bad is low blood sugar, panic attacks and extreme pain.I have no medical knowledge just what I have going on myself, but those would be my first places to look.That is truly odd, of course I am a male, but pardon my saying this could it be hormonal?I did not mean to offend, just offering suggestions.
  • I GET THE SAME THING!!!!!!!!!!!!!! I get waves of the sweats. My hair actually is dripping wet in the back. It happens alot at night but I do get it during the day. Im really sweating now after my epi injection 2 weeks ago. Im thinking its maybe from the meds. I take Oxycontin, oxycodone , zanaflex. What meds does your Mom take?
  • It could be a hormone related issue or possibly a side effect from her meds.

    The menapause causes excessive sweating, I also think it can be a symptoor thyriod issues and similar.

    I am not a doctor though - if it is problematic, she should get medical opinion.

    The stenosis and back pian may cause sweating but this is a physical reaction to severe pain at the time and I guess she would be too busy complaining about her pain than worry about her perspiration...you know, similar way to heart beateing faster when you get scared.

    I hope that helps, it is only my opinion.
  • Thank you for all your responses!

    She has sought medical attention for this problem. It is not hormonal or a side effect from the meds. The dr.s say that its caused from the stenosis. From what I understand and what she has been explained is the stenosis is "choking" nerves in her spinal column and the nerve that controls the sweating is the one that is being pinched. We both have done research on the internet and NO ONE has ever had this sympton. I'm sorry I dont know what kind of meds she is on and no she did not have this probelm before. We know this is a very strange sympton but I am just trying to find anyone that has anything similar. She did find one dr that kind of knew what she was talking about and gave her a pill to take but it didnt work. She is so frustrated and wont leave the house because she is constantly "wet". I can't even begin to describe how much she sweats during these attacks. She said that it starts at the top of her head and it kind of tingles and feels like every pore in her body is opening and then she is just drenched. Any info would be greatly appreciated. I understand none of you are drs and can only give me your own experiences but im just hoping that i can find someone that is or has experienced what she is. I can't stand to see her suffer anymore.

  • I to0 had the same symptoms: nausea, sweats almost flu like. Turns out it was my meds(narcotic). Almost like withdrawal symptoms.
  • Hi, I have spinal stenosis, arthritis, I'm female, 58, and I get those full body sweats.

    They come on very suddenly, and then slowly 'wave and ripple' through my entire body. The complete whole of me is drenched. It is bearable only because the overheating and sweating is short lived. I have to though, peel off layers of clothes.

    I don't take any medication other than panadol, and it hits a cord with me when you mentioned that at least one doctor explained to your mum that it is likely the nerve that controls sweating is being pinched when this happens.

    My only other explanation is that when we are in denial of pain, then that denial takes a lot of energy to maintain. When pain increases, and we want to remain in denial of it still (not feel it as pain), then, I think, that that extra effort the body is making to 'not feel' the pain, is what causes the full body sweating. Under those circumstances, the body is working really hard to keep 'pain' away from the conscious mind.

    Doctors don't know it all. They know very little. I say this simply because every time they learn something new, something that once was considered vital by the medical profession, is pulled, taken off the vital for health list.

    We no longer have a disinfecting swab before having a needle. That used to always happen. Now it doesn't. So I say, look inside yourself for what feels instinctively right - for you - and go with it.

  • Hi,

    I've been browsing around, because I want to understand these sweats for myself, and I think I have an answer, that at least fits me and my symptoms.

    Spinal stenosis, at C5/C6, can impinge on (press on) the nerve that affects body temperature regulation. When the body is overheating and not sweating, the symptoms are: loss of concentration, headache, nasal congestion, and tiredness.

    I get all of these symptoms from time to time, and I have impingement at C5/C6. When the impingement eases, the body THEN AND ONLY THEN gets the signal that it is hot, and immediately brings down the core tempertaure VERY QUICKLY With that full body sweat.

    The intense sweating then, is the body doing what it is meant to do. It is full on, BUT only because of the undetected overheating IN THE FIRST PLACE,caused by the impingement at C5/C6.
  • Hi,

    I have spinal stenosis (lumbar and cervical) and have had surgery to fuse C4-C5-C6 and L4-L5-L6. Prior to my neck surgery, I had severe compression of many nerves and also my spinal cord (especially at C4-C5), and I continue to have lingering neck problems though the surgery gave me a lot of improvement. I, too, sweat very profusely and actually seem to have a problem regulating my body temperature.

    I live in a humid climate that's very hot in summer and mild in the winter. I cannot tolerate the heat and sweat much more than other people around me. I also feel very cold when the weather gets just a little bit colder, such as 70 degrees. One day I was testing a thermometer to see if it worked and I discovered that my body temperature actually rises when it's hot -- my body temp was 99 degrees, similar to the heat outside, but I wasn't sick or running a fever. At other times, my temp has been 97 degrees -- it's never the "norm" of 98.6.
  • Meryl Sweep said:
    Hi,

    I've been browsing around, because I want to understand these sweats for myself, and I think I have an answer, that at least fits me and my symptoms.

    Spinal stenosis, at C5/C6, can impinge on (press on) the nerve that affects body temperature regulation. When the body is overheating and not sweating, the symptoms are: loss of concentration, headache, nasal congestion, and tiredness.

    I get all of these symptoms from time to time, and I have impingement at C5/C6. When the impingement eases, the body THEN AND ONLY THEN gets the signal that it is hot, and immediately brings down the core tempertaure VERY QUICKLY With that full body sweat.

    The intense sweating then, is the body doing what it is meant to do. It is full on, BUT only because of the undetected overheating IN THE FIRST PLACE,caused by the impingement at C5/C6.
    Wow- this is great information. I have suffered from the sweating problem since last winter (now I can't seem to stay warm) and the stuffed nose (going back even further). My primary had me on antibiotics for a long time because of the sinus pressure and fluid. I finally gave up on the antibiotics and was coming to the conclusion that I had an allergy to wheat.

    I hope after the ACDF these things go away.
  • Ok prior to my cervical surgery i had swelling all over my body.Arms,legs, stomach.I just retained water like crazy.I also had very bad allergies.I was becoming allergic to everything.Lots of foods that i would eat i was getting reactions too.My doctor won't believe me but once i had the surgery done the swelling went away and the allergy problem as well. I barely had to take any allery pills at all this year,but before i was taking them every day and still suffering from congestion and sneezing.My doctor said that it was a coincidence that my allergies calmed down after the surgery but i don't believe that at all.I think i had those problems because my spinal cord was so compressed that it totally messed up my body and system.
  • Today I got in for a massage from the PT gal (she did my neck). At any rate my nosed stuffed immediatley and has been draining all day since.

    Very interesting indeed.

    Julie
  • Hi, like you i am new with this and am also getting strange symptoms, i have no advise for you really but can empathize with you and say to you, no matter how long it takes and how strange you think the symptoms are, keep at it and don't give up. If i listened i would be still thinking it was all in my head (its taken me about 6 years to get my diagnosis, but now i have it, it is starting to make sense. Keep at it and have faith. I found that going into the Spinal Stenosis forum has helped me alot, the people there are very friendly and can give you info on their own personal experiences with this. Hope you start to feel better. Regards sharon
  • I have spinal stenosis in my neck and low back with it being pinch on both sides, I have a feeling of burning internally but I sweat very little, I have been going down on my medication and I'm almost off them, I don't know if this is withdraw but I am curious to see if it will go away after I am all off them, Has anyone felt like this?
    Jean Flynn
  • I have almost the same condition!
    But mine is located in groin and buttocks. This drives me crazy and sure would like a resolution.
    I am seeing a neurosurgeon for spinal stenosis and pray for help.
  • Pepper28PPepper28 Posts: 10
    edited 06/19/2015 - 5:27 PM
    I sweat heavily and blame it on over over doing and pushing on through my pain.
    I have ruptured my disk at L4/L5 several years ago and have lumbar stenosis and scoliosis.
    I walk my dog daily and always come home drenched, no matter what the outside temperature is. I also do it when at a mall shopping. I feel like I MUST sit down, when i am sweating like this. I carry a small battery operated fan in my purse and cool down quickly when I stop and sit down and use my fan.
    I hope this helps your mom. She is lucky to have someone who cares so much for her, like you.
  • This caught my attention because I have suffered from this strange symptom for YEARS! I have had 10 back surgeries, but in the last few years started suffering from thoracic pain. I'm 47 and have always blamed it on side effects from early menopause (full hysterectomy 10 years ago) to pain meds. I recently had 2 thoracic Epi. Injections. First one, no response. The 2nd, I've had about a 40% improvement. One of the things that has been helped significantly, the profuse sweating. Another side effect has been an extreme burning in my stomach around my right rib area. Again after 2nd block dramatic improvement. I'm hoping with my 3rd tomorrow I will have even more success. Not only do I have severe back pain from herniated disc, surg. X 10, I have had 5 right rotator cuff surgeries, all have failed, and now am dealing with the pain of my left shoulder torn. I take norco 7.5/325, lyrica 50mg., and to help me sleep 5mg of ambien. The pain meds are little to no help. I think I've built a tolerance, but have not wanted to increase due to my age and the fear of having nothing to increase to as I get older. I'm at the point that I feel that I have no choice due to the amount of pain I deal with and my current quality of life. I try to maintain normalcy In my life. I work part time, go to the gym 3 days a week and am not obese. Im very depressed at this point and at my wits end. Any suggestions would be appreciated.
    AnnMarie Howell
  • itsautonomicitsautonomic LouisianaPosts: 1,724
    edited 06/26/2015 - 3:35 AM
    Anonymous said:
    Hi,

    I've been browsing around, because I want to understand these sweats for myself, and I think I have an answer, that at least fits me and my symptoms.

    Spinal stenosis, at C5/C6, can impinge on (press on) the nerve that affects body temperature regulation.



    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
  • itsautonomicitsautonomic LouisianaPosts: 1,724
    Any damage to nerves, or spinal cord can affect the CNS which breaks down into sympathetic and parasympathic nervous system, along with autonomic system which controls everything your body normally does on its own ( automatically ). These can be linked to improper body temp regulation, sweating episodes, sweating in wierd places, colder or hotter than normal and a world of other symptoms. While it can be so many things that may be causing it, I would look into these things yourself online and if it fits a neurologist or neuromuscular specialist will be the ones you want to see about it. Uncontrolled pain can also trigger malfunctioning of the CNS.
    Do your due dilegence, trust you know your body and question everything if it does not fit. Advocate for yourself and you will be suprised what will be revealed trusting your body and instinct.
  • devfanddevfan Posts: 1
    edited 12/17/2015 - 4:58 AM
    Thank you all for your comments. I have been suffering the night sweats for years - initially blaming it on menopause. I am 56 years old with the latest MRI report impression reading: "all of the visualized lumbar discs appear abnormal with multiple annular tears as well as multilevel spinal stenosis." This is on my L1 through L5, including S1 discs. No one has been able to address my night sweats, all dismissing the problem as menopausal. Problem is, I went through menopause three years ago. I don't believe this to be a continuation symptom. I have had several spinal ablations to kill the nerves that cause my pain and wonder if the ablation procedure has anything to do with the sweats, also.
    Devfan
  • SavageSavage United StatesPosts: 5,130
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  • I have severe stenosis and myelopathy and I also suffer from the symptom. It is one of the strange symptoms that when you tell others they look at you like it doesn't make sense to them. But it is the only thing that makes sense to me. I have damage to the cord and a C5 6-7 Fusion and temperature regulation is definitely affected no doubt about it I am more likely to have the hot spells but it also affects me sometimes where I will be overcome with chills and shivering to the point as if I was in ice water and my whole body tenses up. Either way it is obvious to me that my body temperature regulation is not since the injury. It is one of those strange side effects the same as how it affects digestion and just the inner workings of your body regulation comma with things just feel discombobulated.
  • Eric Hutsell said:
    Meds!  

    meds could affect sweating but I am not on any meds and notice severe temperature regulation issues without a doubt
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