Warning - may be really hard to read - skip if you've had a bad day BUT a HAPPY ending.
First, I have the ANS Eon Mini (trial) for reference.
Have you ever sat in a massage chair at a salon for a pedicure, or have one of those massaging seat thingys? Well, instead of sitting on one, I AM the massage chair! Cool and freaky all at the same time.
I won't go into the torturous details from yesterday - that's why I didn't post yesterday. Just some key words - scar tissue, jabbing through it, nerve roots. OMG OMG OMG OMG OMG The pain I was being subjected to was SO bad that my programmer (who does this every week for years) fainted!!! I only wish she could have fallen on me and knocked me out! lol
They entered through my very low back with the needles (just like an epidural) and threaded the leads (or tried to) through the epidural space to the bra strap as a marker. I had 2 leads in my back, one for each leg.
After it was over (2+ hours instead of 30 minutes), I had vibrating legs alright, but the FRONT of my legs. I don't have pain there. The leads were too high, but after what we had all been through, I'm guessing the doc just didn't want to move them. (For medical types, I kept hearing the words "It's in the ditch", meaning my leads. When they would turn the stimulation on, I would seize up from ribs to hip.
Not the plan. lol) The programmer then spent 2.5 hours trying to pull tricks out of her hat with the controller to try anything to get my back legs to buzz. No luck. (So my 1 hour appointment took 5 hours total.)
Anyhoo......So I come home last night with post traumatic stress disorder or something and was so depressed. I was buzzing but in the wrong places. At 10 pm, my programmer calls me and tells me that at 10am today, the doc is going to pull my leads down one vertebral body. I almost hyperventilate. (I don't plan to go near that man ever again! lol) She promises me he won't hurt me, he won't "stick" me again (I had 6, not 2, 6-inch needle sticks - anyone had an epidural with their kids? Try 6 in 2 hours. With only lidocaine, and not enough of it.)
I show up today, they get me laid out on the table, and take an xray with the C-Arm. And guess what??????????????? My leads had moved down 1 inch!!!!! <:P Normally, that is very very bad thing, but for me - God came and did that for me. No one knows how or why, BUT the doc didn't have to touch me (other than lecture me a tidbit about taking it easy so the leads don't move anymore). The programmer was able to tweak the unit and in 5 minutes, my left back leg to my toes was buzzing!!!!! Yahoo!!!!!! Tears again, but this time tears of happiness. God himself moved those leads, I'm positive. No other explanation. And to the PERFECT spot.
So after the morning appointment, I had my hair done at 2, went to dinner early, went to Dillards and cruised the store, went to Gordman's and cruised the store, went to a furniture store and cruised. Oh, and in the van, I sat straight up like a normal person!! I wasn't fully reclined with a pillow behind my head like the last year!! OMgoodness. So shocking. No pain. (Except my incision sites which are terribly sore, which is expected. I have spent the last 2 years reclined 23 hours a day, as sitting, standing, walking triggers my S1 nerves into major tailspins. Without a tailspin, I burn 24/7 from my buttocks to my feet, mostly on the left leg.)
No Pain!!!!! Hubby is getting a kick out of watching my face, all my descriptions, I can't get over it. I can't believe people can't "hear" it, or feel it.
My little dog, Sweety (a Pekingese) won't come near me (and she is a lapdog). When hubby went to bring her to me, she turned and clawed him for her life, like "get me the heck out of here". I think she thinks I am one heck of a bark collar, or invisible fence or something. I KNOW she can sense this electrical current or maybe can hear it although it is imperceptible to humans. The larger dog isn't bothered, although she won't quit sniffing my "buzzing" leg. (Oh, today in the appointment, they disconnected the lead in my right leg as it still wasn't working, "in the ditch" still). I have a large cable coming out of my back attached to a remote control that I keep in a fanny pack. It is really cute, let me tell you. lol
But my leg isn't really buzzing. There is just a tiny electrical current going in my back an inch below my bra strap (lol) and the buzzing is what my brain perceives. I just think my leg is buzzing.
I will have this until Tuesday when Dr. "Pain" will pull the leads out, which should just be like taking an IV out for a regular person, only I'm gonna probably feel the same pain I felt as he jabbed it up and through the scar tissue. But it should go fast and I'll be ready this time.
If I get procedure amnesia and go forward with the permanent placement (LMBO), a neurosurgeon would do that surgery. And my programmer told me that she called the NS last night, who was in New York on a trip, told him what had happened to me (and he was NOT happy) and got his advice on what to do. That's where the "move the lead down plan" came from. The doc who did my procedure is an anesthesiologist. (Standard
practice). I'm sure they will be "chatting". lol
I am still taking my long acting med but I have not had a single breakthrough med NOR Soma all day!!!
So, thank you thank you thank you everyone for praying for me and sending me your well wishes. You have no idea and wish you could have gone shopping with me today. We are just tickled to death (hubby and I ).
Happy, happy Cheri
P.S. I ignored people who have not had this procedure but were very against it. I followed my doctor's lead on whether I was an ideal candidate or not (including 3.5 hour psych evaluation, etc.) Only I know what it feels like for my body to burn 24/7. I would make the decision for the trial based on YOUR situation and YOUR doctor's advice.
To avoid my painful experience: Make sure they evaluate how much scar tissue you have, because it may change their "plan", anything from the type of trial (percutaneous or paddle) to what angle they put the needles in, etc. That was my problem and they had the records, just didn't look at them. (We recently moved here and I had to switch doctors. LONG story, but I'm trying to "turn that page" so to speak! lol)