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HELP! I don't know what I have. I feel extreme pain when getting up from a lying down position

AnonymousUserAAnonymousUser Posts: 49,900
edited 05/13/2014 - 10:26 AM in Lower Back Pain

I need help. I'm 30 years old with extreme low back pain. In a scale of 1-10, I am a 7. Experiencing pain all the time. But it's okay and I can handle the normal back pain.

The extreme back pain comes over the charts a 10+ when I lie down. Just trying to get up from a lying down position (whether it's on my stomach, my side or my back). I become stuck/stiff and every move is very very painful I am unable to get back up/straighten back up without feeling extreme pain. This has been happening everyday for 4 months now.

Right now I am on my stomach in bed with manageable back pain. But once I try to get back up, I can't. Every move is very very painful. I have to slowly take my time while experiencing this excruciating pain. Than I finally get up out of bed. I can't straighten back up to a normal upright position. I have to walk hunched several steps while holding onto the bed (still in pain) until I am finally able to walk straight again. I have to make sure no body weight puts pressure on my back or else it hurts so bad.

Once I'm up its great. I have the normal chronic back pain that I can manage. It's just when I get up from a lying down position/reclined position. Sometimes I sneeze while walking and I feel that sharp awful pain too. It comes as fast as the sneeze, then it disappears. It is so weird. I know many people who suffer back problems but I can not find anyone else or online with this type of problem. Has anyone heard of this? If so what could it be? My Dr. and Neurologist have no clue.

MRI shows mild spondylosis. Epidural bulge. L5-S1 moderately severe disc degeneration. Uptake in bone marrow.
The neurologist said these results shouldn't cause this type of pain and he has never heard of such a thing. He says normally people lie down and feel a little better. In my case, it's the opposite. Does anyone else have similar symptoms or know information on what this could possibly be? This is bad. I know something is not normal, it happens all the time. My worst fear is one day I'm not going to be able to get up.

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13

Comments

  • is wrong with your back! It is your facet joints. I have arthritis in my facet joints and that is exactly what I go through every day. When I get up from sitting or laying it takes me sometimes 20 minutes to be able to straighten up from a bent position. When I get out of bed in the morning, I have to carefully do the log roll and walk myself up with my hands until I can get my feet on the floor. I am still bent over trying to get straight. Have you ever had your back "lock up" on you while walking? I am sorry to hear that you suffer like this because it is no fun at all.
  • I was just about to say the same thing. I had facet joint injections last Saturday and feel some relief. Those injections were just lidocaine, I guess he'll do the steriods next if the first shots helped.Do you feel your back grinding? Also if you lean back from the waist and have pain that's a good sign. Anyways, I'm not a Doctor and can't really give any Diagnosis but I'm just sharing my experience. Your Pain management Dr. would help. Have you been referred by your family Dr. yet? take care. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • unknownissue said:
    I need help. I'm 30yrs old with extreme low back pain. In a scale of 1-10 I am a 7. Experiencing pain all the time. But that's ok & I have learned to deal with the normal back pain.**The extreme back pain comes over the charts a 10+ when I lie down. Just trying to get up from a lying down position (whether I lay on my stomach, my side or my back). I become stuck. My lower back tightens and just moving is very very painful. It is hard to get back up/straighten back to normal withought feeling extreme pain. This new pain has been happening everyday for 4months now. Right now I am on my stomach in bed with manageable back pain. But once I try to get back up, I know I can't. Every move is very very painful. I hafto slowly take my time while I experience this excrutiating back pain. Is this muscle spasms? Once I am finally able to roll on my side and get up out of bed. I have a hard time straightening back up to a normal upright position. I hafto walk hunched still in pain for several steps while I hold onto the bed until I am finally able to walk straight again. When I do this I put all body weight on my hands so no pressure get's put on my back. Once I'm no longer hunched and walking I feel okay again. I have the normal back pain that I can manage. It's just when I get up from a lying down position or reclined position when I feel this unbearable pain. Also if I sneze while walking or in an odd position that sharp pain comes. It happens real fast and just goes away. It is so wierd. I looked on line website after website and I can't find any one with these types of symptoms. I know many people who suffer real back pain, but I can not find anyone else who have experienced this. nHas anyone heard of this? If so what is it? My Dr. couldn't even give me any answers. My Dr. and Neurologist have no clue. *MRI shows mild Spondylosis. Epidural Bulge. L5-S1 moderately Severe Disc Degeneration. Uptake in Bone Marrow.
    The Neurologist said these Results shouldn't cause this type of Pain and he has never heard of such a thing. He says normally people lie down and feel a little better. In my case it's the opposite. He dosn't know and I felt like it was a waste of time to see him. Does anyone else have similar symptoms or know information on what this could possibly be. This is Bad. I know something is not normal, it happens all the time. My worst fear is one day I'm not going to be able to get up.
  • What has helped me the most is the rhizotomy (nerve burn) I usually get relief for about a year before needing to repeat.
  • Hi Unknown,
    I am sorry to hear you are in so much pain. Just to let you know you are not alone I go thru it every day also.. There are times when my 17yo daughter has to help me stand then trying to straighten out is horrendous!!.. I know laying on my stomach makes it feel better but actully makes the pain worse when I get up .. I was told by a Dr this was because I was putting strain on my back by laying on my stomach and to never do it .. so since then I havent .. still cant get up without straining but its better then when I did lay that way. I know my MRI didnt show the same damage as any of my myelograms. You should ask your Dr to do more extensive tests. You need to get some relief. I hope you do .. My thoughts are with ya and all those in pain from their back
  • 6yrs ago. I was getting ready for work and while I was walking to my closet BAM I couldn't move. I felt stuck and in extreme pain. I felt as if I was paralyzed. I screamed for my sister and she came running in the room. I told her don't you dare move me. But we manaaged to get me back into bed. The Pain was so bad I wanted to call the Ambulence. I was scared that if I did call them, They would move me so I chose not too. I just cried and laid still for 3 days in bed. Literally I was in bed for 3days. Good thing I was constipated and I didn't hafto do a bowel movement. My husband literally had to hold a bucket for me so I could go pee. LOL. Awful and Embarrasing but this really happened. After 3days I was able to get back up like norml. So I got an MRI weeks later and results were fine. Showed a Minimal Disc Bulge. I never experienced something like that again until now. Not as severe but close this time it's every time I lay in bed. Thanks for your information, I will research more about facet joints...
  • I am scheduled for steroid injections. My Neurologist wanted to refer me to a Surgeon, but I told him I don't want surgery. I'm 31 yrs old. Plus it's hard for me to understand why he would refer me to a surgeon when he couldn't even figure out from my MRI or explained symptoms what's wrong with me. I felt frustrated and irritated. Wouldn't the MRI have shown that?
    Let me describe the normal pain I deal with sometimes, not all the time: It feels like heavy weight on my lower back, crushed bones sometimes, and like it's on fire sometimes. But that's manageable not too bad.
    Only when I get up from a lying down position,,, Awful Awful Pain.
    Muscle Relaxers are helping a Bit. Vicodin, Ibuprofen, hasn't helped,
  • WOW. Yes that's how I feel. I'm glad I am not alone, I will research more info on that. And I will ask my Dr. how they can check me for that?
  • on xrays but sometimes not clear enough to say that is what is causing your pain for sure. Diagnostic injections (to make sure that was what was causing pain) were done in my case before receiving rhizotomy. This was all done through my PM.
  • Wouldn't my XRI have shown facet joint problems. XRAY was normal. What test are done to check for Facet Joint Problems
  • have shown some facet issues but, lots of people can have the exact same findings on an xray and it will not cause all of them pain. So, it is sometimes needed to do more diagnostic testing such as the facet blocks and injections. If that stops the pain that it is diagnosed that is where your pain is coming from. I had to go for 3 years before I was actually diagnosed. I am not a doc but your symptoms are exactly like mine.
  • know how to do the log roll? I learned it in physical therapy and it is the only way that I can get out of bed in the morning. It is important to get up that way to prevent more damage and pain.
  • A Pain Management Dr. usually gives injections and he may find the right pain meds for you. He's an anesthetist that deals with the spine.
    My MRI says bilateral facet arthropathy(arthritis) Now we just shared what has been our experience and does not necessarily mean that's what you have. I experience alot of pain from my herniated disc and tear and have alot of pain getting up walking, sitting. I use a cane also because it takes the weight off my sciatica leg and also my leg gives way at times so I don't want to fall and I get a seat on the subway guaranteed. Anyways, I hope you get some pain meds that help and hope you get relief from the epidurals. Take care. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • My Neurologist wanted to refer me to a Surgeon, but I told him I don't want surgery. I'm 31 yrs old. Plus it's hard for me to understand why he would refer me to a surgeon when he couldn't even figure out from my MRI or explained symptoms what's wrong with me. I felt frustrated and irritated. Wouldn't the MRI have shown that?
    A referral to a neurosurgeon is so that your images (MRI and X-Ray) will be viewed from a different perspective than the Neurologist most likely does/did. It's like having a computer programmer trying to figure out a set of plans for building a new supercomputer ... he will only understand so much.

    "C"
  • I agree with painintheback, =D> it is definatly your facets, :? they are going into a spasm :''( . They are extremly painful :''( . I have the same problem as you ~X( . When you go and see your doctor again you should mention to him about the facet joints :? . I hope this helps, :? keep us posted. >:D<


    Angie :H
  • I had similar problems and it was due to my discs, not facet joints. I would keep trying at the docs until you find a solution.

    One Love,

    Stephanie
  • Thanks for everyones great input. I will keep trying until I find an answer. I forgot to also mention. The pain is so much worse once I lie down n Bed/Recliner. It is hard for me to roll over/toss & turn in bed. It is painful to move. I just deal with the on & off wakeups and try hard not to move. But the pain is still so much worse once I try to get up from the lying down position. AAh that's wear I can't handle it. I am glad I am not the only one. I just couldn't find these types of symptoms when I searched on line for it. I never heard of the log roll. Can you please Post it. I am willing to try any suggestions. Thanks
  • Is using your leg to push yourself over. For example if you want to roll to the left you keep your body straight and raise the right leg a bit and push with your foot to turn.

    I can sympathize with you on the getting up from laying down and trying to roll over. I am recovering from surgery now and still have to log roll and pull myself with my arms but it is nowhere as painful as pre procedure pain was.

    Hang in there and talk to your doctors, they them know everything.

    One Love,

    Stephanie
  • No I never heard of the Log Roll. I try all different ways of getting up and they all hurt. My back feels heavy and it hurts with every move. Left turning hurts a tad bit more. It feels like it's burning inside. My husband masages my back and it feels like the spasms/or whatever happens gets worse, it feels more stuck. It's Wierd. I always felt like I am one to tolerate pain. But this I can't tolerate.
    My sister who has neck problems (injury work related to improper support while on phone) She deals with pain too she can't lay down on a certain side, it throbs alot and she has like a little ball sticking out of her neck. She tells me my pain tolerance may be real low. I feel mine is worse, but Who's Really to Say? Anyways please post the Log Roll experience.
    When I do those exercises;pull my knees to my chest. Ouch it hurts, like it's stretching my back and pulling on the injury.
  • is keeping your body very stiff and rolling to your side (your body would look like a log being rolled)then using the arm and hand that you are not laying on (opposite side than you are laying on) you slowly walk yourself up to a sitting position and then stand up. You want to avoid throwing your legs to the side of the bed and getting up how most people do it.
  • You may want to check with a rheumatologist. I've known people with ankylosing spondylitis who have this as their first symptom. By the way, A.S. is genetic.
  • This is going on my personal experience and what my doctor told me :D heavy burning pain in your back is nerve pain :| and if the pain get worse when you lay on your stomach or back :? , its like you seize up :O , this is a facet joint problem, :? they are going into spasm :''( . I hope this helps you :)

    Angie :H
  • I'd like to first and foremost thank the thread starter and also thank those who've replied; this thread has been pretty enlightening as far as my daily lower back pain is concerned...

    5 yrs ago, I sprained my back and had on and off sciatica nerve episodes, but since then, barely. The kind of pain I'm experiencing these days literally feels as if my lower back has been "deteriorating" for lack of a better word. I'm 35 yrs old and this raises big red flags for me...

    Facet joint pain or the beginning of ostheoathritis makes alot of sense to me. During the day, going to work, sitting, getting up, walking and doing daily activites, tolerable, but mornings after sleeping feel very very uncomfortable and limiting. The morning will often set the tone for the rest of my day. Sometimes bearable, sometimes horrible. Can't bend over and wash my face (use the sink as a grip), once i take a hot shower, it suddenly feels better but temporarily... at work keep changing positions on my seat... overnight, if I put pillows under my knees to lift my legs and straighten my back doesn't work anymore or not like it used to... And most mornings, I've noticed that my lower left side (right above my bum) hurts more.. then at the end of the day, my right side hurts more.. weird!

    However, over the weekend, when I occupy myself with other activities other than sitting at a desk, I hardly get any back pain... It saddens me to think that if I don't take care of this now, I might not be able to go to work one day :(

    Since expert opinion on these matters is always best that coming up with your own assumptions, I think I should consult.

    But this is the way I see it:
    - my lower back is on its way towards getting worse if I don't do anything about it now;
    - sitting at my desk at work is playing a major role in my daily back pain;
    - maybe one of my legs is taller than the other (?). Would that explain why my lower left side is hurting more than my right side?
    - depending on what I eat or consume in a day (too much sugar, sodium, grease, coffee, sodas) it'll affect my lower back "health";
    - my back isn't getting enough oxygen because I'm not exercising as much as I should (muscle toning and cardiovascular exercise);
    - i've been taking tylenol arthitis pain (3 x 650mng acetaminophen before going to bed) and I've been experiencing some relief as of late..


    I'll consult a doctor next week and hope to get more answers..

    I'd like to wish everyone lots of luck and healthy life :)
  • Thank You for your input. I have been researching this condition and pain I'm feeling for months with no good results. Some have said it's possible that it's my facet joints and now AS. All of your input given have been such a great help. I have found more help here in this Forum than with my Dr. and Neurologist. I explained my symptoms and they just looked puzzled and said I don't know I never heard of anyone with your symptoms. In This Forum I list my condition and many have responded back with so much help. Both conditions seem similar. My next step is to get checked for either facet joint syndrome and AS. Thank You Thank You for this information. My Dr. is now referring me to a Spine specialist. I am hoping they can Test me just like a Rheumotologist would check. Thanks so much. Your information was very helpful!
  • That's good you'll go to your Dr. next week. I had to ask my Dr. for an MRI after months of backpain but that's just my experience. I have facet joint syndrome due to my herniated disc and received some injections and it's helped alot, though I still have pain. I'm getting reassessed by my pain management Dr. on Saturday Jan.3. I hope you introduce yourself in the other thread so you'll have more replies. Good luck with your upcoming Dr. appt. and when you sit put a small footstool under your desk to support your legs. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • I appreciate the warm welcome, Charry. I'm sure all of us here pretty much feel the same way: our lives have been changed, never to be the same again, except for those who've overcome their injuries and pain for good, which I find is amazing and gives me hope as well :)

  • dilaurodilauro ConnecticutPosts: 9,706
    described, you need to be in the Emergency Room and have proper treatment there. Any Pain level 8+ belongs in the ER.
    When the tests that have been taken to date do not show anything that could cause the level of pain you have having, you might need to regroup.
    Discuss this with your doctor to see what other tests are available for you. Sometimes, it wont be in the hands of a Spine-Specialist, but a Ortho doctor and someone that specializes in muscle problems
    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • I can SO totally relate to the OP's problem with extreme pain when trying to get up from a lying position. I have spondylolisthesis (grade 2) and severe DDD at L5-S1. The acts of sitting down and/or sleeping generally don't cause much pain for me...but it's the getting up from a seated or lying down position that can be excruciating! I can't really explain what happens...but it almost seems like my entire lower back region just tightens and stiffens up...even if I've only been seated or lying down for as little as 15 minutes. Waking up from an overnight sleep is, by far, the worst!!! It literally takes me a good 20 minutes of stretching in bed, in order for me to be able to stand upright. Waking up in the middle of the night to go to the bathroom, has literally become a "debate" that I put myself through. I will actually lay in bed, trying to decide if I have "to go" bad enough to warrant the extreme pain that I'll surely feel getting out of bed so quickly. Most of the time, I do end up getting out of bed and going to the bathroom...but it's never a good experience. I'm usually hunched over or bracing my lower back with my hands as I try and make it down 6 stairsteps...not to mention the actually "lowering onto the toilet part"! I'm usually so exhausted from the whole process, that I literally just sit there for a few minutes just to prepare myself for the trip back up the stairs to my bedroom.

    I've had 2 lumbar MRI's done (one closed & one open), and neither one indicated any facet joint issues...but it makes me wonder now. I've been dealing with this for quite a few years now, and up until recently, I thought I could tolerate the daily pain. But I have to admit...it's really starting to wear me down...physically and mentally.

    Linda
  • Thanks for sharing your story,, That's how I feel. My MRI showed L5S1 moderately severe degeneration but no Facet Joint Issues. After reading more about Low Back Problems, I feel it is my Facet Joints but it is very hard to determine.. I am finally going to see a Spine Specialist after my Primary Dr., a Neurologist, and a Rheumatologist, Now finally they get me to a Spine Specialist. I am hoping he sheds more light on my condition. I'm only 31yrs & in severe pain. Lidocaine jelly has helped me alot, Now I will try Lidocaine Patches. I hear they help quite a bit. We'll see,
    Now I'm getting more Pain. Same Pain when I get up from lying down, I get up & I'm stuck hunched over in PAIN until I can finally take my time and return back to a normal standing position. I hold the bed as a crutch to hold my weight up Otherwise it hurts more bcs of the weight on it.
    Now I wake up in the middle of the night in major pain. feels like heavy weights, crushed, burning cramps. It's terrible.
  • Wow. I am so sorry you feel like this. I feel the same way. Relafin (anti-inflammatory)has helped me more than any other meds so far. I seen 3 Drs. my Primary, a Neurologist, a Rheumatologist, They had no answers for me. Your symptoms are much worse. Just stay strong & try to cope. You must cope with this. Sometimes we never get the help we really need & we hafto live like this even with the Best Drs. Vitamins are always good. Fish Oil. Flaxseed Oil. Vitamin B6, Vit D and Calcium Magnesium w Zinc. These are all good for arthritis or inflammation.
    I'm taking a Multi Vit, Fish oil, Flaxseed Oil, B6, Vit D and Relafin and Lidocaine topically .
    My MRI showed Arthritis/Degenerative Discs, XRay Normal. They never told me possible Facet Joints, Never Ankosing Spondylitis. I heard of these things on this Site. Now I'm trying to diagnose myself.
    I appreciate everyones experience. I never heard when it burns it's the Nerve. I am scheduled for an EMG. So we'll see if there's nerve damage. I would feel better if I was diagnosed with something by a proffesional. No one has said it could be this or that. Nothing, I learned more at this site than any of my Drs. so Far.
    Main problem still, (Now a little Better with Relafin)is I can't move when I get up from lying down.
    I get stuck hunched over in pain unable to straighten up.
    Now my Back hurts me more each night when I'm sleeping. I wake up 3am 4am Low Back is Burning. But wierd When this burning pain starts I can get out of bed like normal. No Spasms at all.
    I wish you and everyone Well on their Condition.
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