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Medtronic Neurostimulator PRIMEADVANCED

John BluntJJohn Blunt Posts: 116
edited 06/11/2012 - 8:26 AM in New Member Introductions
i'm about to have a surgical trial for theMedtronic Neurostimulator PRIMEADVANCED This is a relatively new invention which is my last stop before Laminectomy surgery L5/S1. I have been told that htis device has an 80% success rate for people with chronic Spinal Stenosis. I have chronic pain down both legs and across my buttocks constantly with very little relief. I have tried Cortizone shots for three years vis the Epidural method and latterly via Caudal Epidural methods.All of these shots used fluoroscopy and Iohexol contrast for pinpoint accuracy using the technique of an oblique approach with C-Arm Guidance.

Sadly the frequency of these has increased dramatically and I have almost overdosed on this deleterious drug. I cannot use it any more and I am trying this latest pain cure before finally going to the last resort which is a Laminectomy for spinal decompression. The MEDTRONIC PRIME-ADVANCED Neurostimulator is quite new but it sounds like they have had some excellent results with it, like an 80% success rate. It has a lead and an implanted neurostimulator which send electrical impulses that block the pain messages to the brain.

HAS ANYONE EXPERIENCED THIS DEVICE YET. PLEASE LET ME KNOW AS I AM DUE FOR THE SURGERY TRIAL IN THE NEXT FEW DAYS.

IF YOU WANT TO READ ABOUT THIS DEVICE THEN GO TO THE FOLLOWING WEBSITE AND PLAY THE NEUROSTIMULATION VIDEO.

http://www.medtronic.com/neuro/ttp/treatment.html

JOHN BLUNT
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Comments

  • John,
    Welcome to S-H and you will soon find there is a large group of folks who have had the Spinal Cord Stimulator. Some may have different brands, some with wire leads others with paddles, some for cervical and some for lumbar issues. In the search bar, type ‘scs’ and read up on some of the multiple posts, which I find to be very informative with specific results. I have the exact Medtronic device you mentioned installed as of August 6th, this year. I could not be happier with the performance of the unit. I have noticed in the last 30+ days that there is more consistency with connectivity/sensitivity regarding which position I am in. Sometimes when bending or leaning a certain way the contacts can separate slightly from your spine making the sensation less. The only complaint I have is that my Neurosurgeon did not take a good look at my waistline as is compares to how I wear my pants. This caused him to place the device about an inch or so too high which conflicts with my belt line. In some positions the top of the implant pokes away and causes pain, other times it is pressed to tight along the waist. Long story short, this is going to be fixed next Monday with a “corrective” or “repositioning” surgery. It will be up to me exactly where I want it moved. It is also going to be placed a little deeper. The Dr. said since my model is not rechargeable, he will be able to install deeper. I have lumbar fractures and previous bulging and ruptured disks. This device has done wonders for the pain from my lower back all the way down my legs. I would say a good 70-80 percent helpful but still require pain meds. With this combination I have never had this level of freedom and consistency. The unit has a lot of choices, programming and end-user interface. There are a few videos out there and schematics but the one I like mostly was referred by another user found at http://www.or-live.com/bethisrael/1867/#. This extended interview gives a great idea what to expect, my favorite part is where they show the cuts in the back for the leads, stimulator implant “pocket” and how they tunnel between the two to run the wires. Some if it to me seamed to be a sales pitch but the surgical video shown is the best I have seen. The last few good people I chatted with and also have recent implants (that I know of) where ‘cherish22’ and ‘haglandc’. There are many more out there with lots of great advice and testimonies. I wish you the best of luck; I found it to have the most positive results for my situation.

    Sincerely,
    Bobby


  • Bobby, Thank you for your informative comment. I actually spoke to my doctor today and he has informed me that if the trial is successful he will be implanting the RESTOREADVANCED rechargeable unit and not the Medtronic Primeadvanced unit as I mentioned previously. I had a Laminectomy surgery at L4/L5 scheduled for mid last year and due to the fact that I had developed added pain in the front of my legs above the knees, the surgeon stopped the surgery so that I could have some test cortizone shots at L3/L4 to try to isolate the added problem. The first shot was at L3/L4 right hand side. Strangely that one shot took away all of my pain including the L5/S1 pain. The surgeon said that I should continue with a cortizone regimen for the time being as he was not inclined to operate if there was no pain. Sadly though the pain returned and this alternative was suggested by my pain management specialist as a last ditch try before the laminectomy. I hope that I have the success that you have had as 80% pain reduction would be BIG NEWS for me too.

    Thanks for the advice in the placement, that is golden advice at this stage. I would like to ask you if you had much after pain following the placement and the tunnelling stuff. It sounds gruesome to me but I suppose it beats the full monty of the laminectomy.

    I look forward to your reply and further comments and the pictures that you promised to e-mail to me. My e-mail address was sent on the message section of the private message page.

    Finally thanks for all your help and of course your good wishes they are really appreciated more than you could possibly know at this time.

    Best Regards

    John
  • Welcome to Spine Health. I am a firm believer in the ability of the Spinal Cord Stimulators. I have the Medtronic RestoreULTRA and love it. My SCS is in my c-spine with my extension wires tunneled all the way from T1 down the right side of my spine to my generator which sits right above my right butt cheek. I was fortunate that the doc took care in making sure the generator was placed well and it is. It is just below my belt line and very comfortable (as far as having a piece of hardware in your backside) for a generator placement. It is also very easy to recharge there. I simply wear a pair of gym shorts and the recharge unit and it takes between 3.5 and 4.5 hours on average and that will last me 7 to 9 days each charge.

    Feel free to pick our brains for information. You can also email me at the address in my profile.

    Regards,

    "C"
  • Thanks "C"

    I sent you my e-mail address with an e-mail from the private messages page. I hope that you will reply to that.t
    Meantime, the recharge time is interesting as Medtronic told me in a telephone call that a full charge took only about two hours.
    Your charge time is nowhere near that. Is your model very different from the one thay are proposing for me.

    That was a long way to tunnel in your back too, you are a brave sole. Did you have post operative pain from that procedure and if so what was it like and how long did it last?

    Bobby from Spicewood mentioned in a previous post that he noticed in the last 30+ days that there is more consistency with connectivity/sensitivity regarding which position he is in. Sometimes when bending or leaning a certain way the contacts can separate slightly from your spine making the sensation less. Do you have similar comments.?

    It seems that the placement is really important and I feel for Bobby having to have it done again if he wants it in a better place. I would have thought that the doc's would discuss that with the patient before placing it. Is it really a big lump sticking out, or can you just feel it because it is there?

    Overall, I am so pleased to get such positive replies. Without this kind of communication people feel so isolated, depressed and somewhat uninformed. Thank you, Thank you.
    I look forward to your reply to my questions

    Regards
    John

  • I did get your email and sent you a reply. The recharge time is going to vary, depending on whether good signal integrity is achieved and also depending on whether the unit is left running and at what intensity while charging. I leave mine on while charging and that increases the time by 1.5 hours easily. The recharge time that the rep is quoting, is more than likely what it takes if the unit is switched off and with perfect signal integrity. In a perfect world you may only need 2 hours. Also I have interruptions from time to time, like needing to use the restroom. For a guy it's not a big deal, but for a gal ... I have to stop the charge and remove the unit. I am not going to risk accidental damage.

    The doc who did mine did an awesome job placing the generator. There's no visible lump and all you see is the scar. If you touch the area you can feel the generator and move it around a bit in the pocket.

    The post op was not bad for me. I was able to manage with Tylenol and Celebrex. 4 days post op I was riding the subway, riding in a car, took a cruise on the Potomac ...

    The tunneling down my back was easy to irritate for several months, but now it is just fine. The irritation was nothing more than that ... irritation. A little Celebrex and the inflammation was dealt with.

    It does stink that Bobby is needing his moved. I agree it is very important that the doc and patient discuss this prior to implanting the unit.

    Gotta run. Have a great evening.

    "C"
  • Well what the word. ive had the mac offline for a few weeks because my kids think im goiing a great job putting all thr toys together and buying the right batteries, I say, being the only dud in the house then the wife and three girs in enough for me to go clima a tree if I could. Some of the neighborhhog girls came over and took over my living room tv to play there new Wii games. Ijust pack a cold cooler of beer and sat on the front porch watching the deer eat my plants. HOW IT ALL Going?//

    Im crashing in pain these last days and ready to bury my head like a scared animal.

    today suck! ~X(
  • I am schdeuled to have the stimulator test here in the next couple weeks. I have to say that it bothers me so much not to beable to find out what the statistics are on cons of it, they give ya all this stuff in a book send me home and say we'll be seein ya. Well thats not good enough for me, Im scared as hell to have this done has anyone been able to find out anything on how often or not the problems they list in the book happen? I want to be free of my pain that I have in my back and down my legs but I cant help but wonder if this system is worth the risk. I hear good and bad about it but still no numbers on it.. Does anyone know? Thanks for your time..
  • Welcome to Spine Health. I was never really able to find any resource for reliable statistics in regards to SCS success and or problems. By the time I was offered an SCS trial, I had exhausted all other avenues. So I was faced with something that may be a fantastic pain management tool for me, or another continuation of my tumultuous journey. I had nothing to lose and everything to gain. So I said to heck with the stats chase and focused on reality. The trial went fantastic and the perm implant followed 3 days later. I am a very happy individual and it is all related to having gone ahead with getting an SCS.

    You will always hear good and bad, and when researching on line through forums such as this, your chances of finding horror stories is tremendously increased. People who are having a hard time, tend to search out on line groups for support. Hence they've already experienced some sort of problem. So please keep that in mind while reading about different experiences. Mine has been a very positive experience.

    Feel free to PM me.

    "C"
  • I, like hagland, was at the end of the road for other choices. I lived in a recliner 23 hours a day. Couldn't walk/sit or stand longer than 20 to 30 minutes. And staying reclined kept me at a 5 out of a 10 on the pain scale UNLESS I had to get up and do anything, and then a pain flare would escalate easily to a 7 or higher. Daily. On major meds.

    I read the statistics, read others stories and experiences, and for me, I just had such a peace. I wasn't upset or worried, more anxious to get this done sooner. I just knew it was my answer. My trial had gone amazingly well (except for the trial procedure itself) and I couldn't imagine my new life without constant burning nerve pain.

    I got my permanent SCS Monday and I sit here now buzzing away, feeling very little if any nerve pain. And when I really stop and think about it, my eyes tear up. It is such an answer to prayer.

    Yes, the procedure was not fun. Yes, the back pain from the incision, manhandling (in my not fun procedure experience) and the tunneling - it all hurt. Strangely, I haven't felt even a twinge from my hip pocket incision for the pulse generator at all. My pulse generator is slightly larger than a silver dollar, so really really tiny. I have the ANS Eon Mini.

    I recommend you move forward when you have a peace about it. I was also an ideal candidate - primarily radiating nerve pain. Not back pain. And I had no other options, couldn't work, nothing. It was the SCS or implanted pain pump and I wanted to try this first. Having the remote control and choices - I have POWER over my pain now, truly. After 3 long years of being a hostage to it. Now I control it. It's not gone, but I can zap it away, for lack of a better way to describe it.

    Good luck with what you decide,

    Cheri
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