This is the first time I've used and online support group for my chronic pain. I'm 34 and have had chronic back and pelvic pain for over 7 years. It all started with a muscle spasm in my back while I was doing nothing and I've never been the same. I've been to many doctors and have had many tests but the only thing they can find is some slight disc degeneration and scoliosis. The pelvic pain was diagnosed at endometriosis and eventually adenomyosis.....I recently had a hysterectomy and had hoped it would help my back pain too....no such luck. It's actually worse than it's ever been and part of me feels no hope for a cure or even adequate pain control right now. I am very limited in my activities right now and as a result a little depressed. I'm doing all the right things....physical therapy, counseling, seeing a pain specialist, lots of "alternative" therapies that help like massage and cranial sacral therapy.
My husband is a great support and a few of my family members, but many cannot understand. It's challenging to look ok but have so much pain....everyone thinks I look great when inside I am so far from great. Usually Christmas is such a happy time of year for me, but this year I'm not excited at all.
I've been through so much recently...I mentioned the hysterectomy, but first I had a laparoscopic surgery just for the endometriosis, and then after both surgeries I ended up with blood clots in my leg and both lungs....I was in the hospital for almost two weeks. And, although I never planned to have any children, it is still hard to have given up my uterus and with it the choice to have children.
Thank you for reading my story. I know there are many of you out there with pain and I want to hear from you.