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please help! Everything's gone down hill since My first L5-S1 M/D in June

AnonymousUserAAnonymousUser Posts: 49,731
edited 06/11/2012 - 8:26 AM in Chronic Pain
Please help me. I had my first M/D in June for an L5-S1herniation. I was also experiencing sever right leg pain and numbness. After the surgery the legpain was gone although my entire leg ,with the exception of my calf, was numb. Four weeks post op I was physically asaulted(sp) that resulted in me twisting and within one hour i started feeling that familiar down the back of my leg.
After the asault my NS did an MRI but said there was so much swelling still that he really could not see anything. He did however offer me another surgery right away to "go in and see if there is a re-injury" but I said I no. He told me it was probably just inflamation and told me to rest. He didn't even want me take the pain meds my pain doctor was giving me.
Anyways, since this incident the pain in leg has worsened (extending from my groin joint to my toes), my leg is completely numb from my buttock to my foot(the only part I can feel is my calf) and my back hurts all the time.
I had another MRI last month that showed a re-herniation and scar tissue development around 50% of the circumfrence of the right S1 nerve root. I feel strongly that the physical asault caused the re-herniation but I am also thinking that the scar tissue formation was promoted by my (former) NS not giving my ANY PT or stretches durring my recovery. I did start aquatic therapy in October but only after I insisted.
My pain managment doctor has also recently diagnosed me with myofascial pain syndrome (previously misdiagnosed as RA). I take lortab 10/500mg and 150mg of lyrica 2x/day. I am always in some degree of pain despite meds and PT. My pain doctor told me this week that my next step is probably a fusion ( which I am teriffied of because fusion patients have told me they regret having it). I told my pain doc that I didn't want another surgery so he told me about an option where they could surgically implant an device I to my back that would send small electrical currents to me nerves and would block the pain. Anyone ever heard of this? I guess this sounds like it would help my leg pain and increase functionality but what about the re-herniation?
Sorry for the long post but I am indesperate need of help. I am only 25 years old and am always in pain. I guess it would help to hear back from anyone who has had a similar experience or who can offer insight. My short term disability just ended and I was supposed to be able to go back to work but I can't and don't know what to do.
Thanks in advance for any help,
Mariah
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Comments

  • I wish I could magic the words to cure help or even offer empathy however I can say how sad I am that you have been assaulted.
    I wish you progress and hope your meds and daily life therapy improves.

    I have found even just walking to relieve me from that awful nasty pain and yet the numbness does not make it easy.

    I resorted to a stick and can now walk and drive however the pain somedays makes me want to stay in bed or even give up living.

    I then come to chat room and find others similiar.

    Sorry can't help Anne
  • I can't even imagine how vulnerable you must have felt knowing your assaulter could really mess up your back. If I were to blame anyone for your current situation, that would be who I would blame. Regarding the scar tissue, there is not much consensus on how it effects us. Each and every one of us who has surgery gets a certain amount of scar tissue. My understanding is that permanent nerve damage takes awhile to occur so you need to get to a really good spine specialist ASAP, Please believe that someone can help you and go find that person. Best, Susan
  • you poor thing..i do feel for you and the fact that you are so young.the pain that you are describing is similar to my own pain .its unbearable..as for not taking pain killers! what is your surgeon on//???i can't go more than 4 hours without meds.i have just been told that there is no more treatment available to me now because of the amount of damage to my back and all the scar tissue..so i am feeling a little sad at the moment.i do hope that you get better soon you have age on your side ..please make sure that you get the finest surgeon if you need more surgery.
    good luck
    STRAKER
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