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Need Help/Advice...PLEASE!!

AnonymousUserAAnonymousUser Posts: 49,671
edited 06/11/2012 - 8:26 AM in New Member Introductions
I have been coming here and just reading through many of the posts since 2007. Here is my story and I need advice and help on what to do next, please!!
I had a roller blading accident on March 6, 2006. Went on to work the next morning and just sat around swapping from hip to hip all day. The night after I went to work I woke up in horrible burning in my hips off and on all night...I mean it was bad!! The next morning I went to a doc in the box figuring all I had done was broke my tailbone. Which is what they said after xrays. Was sent home with pain meds and muscle relaxers to heal for six wks. Along about the fourth or fifth week I started calling spine doctors/specialists and was told to give it six full weeks then seek out a specialist. Which is what I did. Oct. of 2006 I started seeing a spine specialist mri's, xrays etc. were ordered and the doc said my disc at L4-L5 was bulging. Tried physical therapy, steriod injections, nothing helped so he ordered a discogram which showed L4-L5 so then he removed the disc and put hardware in. June of 2007 he removed the hardware because it caused me so much pain. I still hurt so they put me on Lyrica which helped for about two weeks, I even came off my pain meds and muscle relaxers! But then after two weeks the pain gradually started back. Around the holidays this year I started to not feel well. Achy in back, legs etc. I started having to sit down in front of the bathroom mirror to do my hair and makeup. (which I normally would not do!) On Dec. 30 this year I had another mri w/ contrast, which supposedly shows nothing at all wrong with me??!! The 31st I called the dr's office to ask about the mri and was told that the mri had been reviewed and there was no reason for me to come in any sooner than my next scheduled appt. (Jan. 29!!!) So I told her that I didn't care if the mri reads there is nothing wrong because I know there is and I needed to get an appt with the dr as soon as possible and I needed a refill on my pain meds and muscle relaxers. Well my husband was going to pick up my meds and I called just to be sure they were ready and they informed me my insurance would not cover them because it was too soon! Well, I couldn't figure out why in the world it would be considered "too soon" because I keep a close watch on my meds (the amount I have). Well come to find out the med. asst. at the dr's office had knocked my pain meds and muscle relaxers down to ONE per day! I didn't read on the bottle when I picked them up so I took them like I normally do sometimes 1 per day, but on a bad day I will take them one every four to six hrs!! (They were just Hydrocodone 5 and Robaxin 500) Well, I had the absolute worse few days after that!! I can't remember how many days I sat and cried because I couldn't stop the pain, I don't know if it was two or three. I asked my husband to get my walker out of the closet and I haven't used that since I came home from the hospital in Dec. 2006!! I called the answering service to tell them the problem with the meds and they informed me that my dr was not on call and they couldn't call him and the dr who was on call would not call me anything in for pain on the weekends she said it was "office policy". Well, I ended up not running out of meds because I got in to see my dr this evening. I started telling him how much pain I have been in and he told me he was puzzled because my mri looks good!! I asked (again) about nerve damage and he said it couldn't be nerve damage because nerve damage wouldn't just show up after over two years! I said that if he would look at my records he would see that I have not been off pain meds since I started seeing him, so it is not necessarily "just showing up after over two years" if that is what it is. So now he has ordered some bloodwork to check for infection in the spine, a nerve test, and a bone scan and I will see him back on the 20th to discuss results.
Any ideas about other tests? What might be wrong with me? ETC. ETC.
Oh, legs so weak they feel like they won't hold me up but achy, too. Lower back and butt hurt like heck. Weak as a kitten. No fever but when it was at it's worst I chilled alot.
I feel like everyone is going to start thinking (if some don't already) that I am lying.
Anyway, I hope someone reads this and at the least tells me that I am not going crazy!


  • :) hi and welcome to the forum! :H we are here to offer you support and answer what questions we can. good luck as you seek pain relief. Jenny :)
  • And it sure doesn't help when the doctors are so cold about your pain. I went through the same thing with my arm pain and spasms. I had to go to the ER to finally get someone to see me right away and give me some pain meds, but of course they are only willing to give you so much until you can see someone. I made appts with my GP for 2 weeks down the road but was in such pain I called a chiropractor to see if they could help me until then. This helped me- because she cared! She gave me some elec. stim massage and adjusted my shoulder and elbow which were killing me (but I didn't let her adjust my neck which is of course where the hernation was for me). Is there a pain center in your area? Maybe it's time you start seeing them ,too.

    I've had an opertion on Dec 4th and this was the second time for me, in the same place, so things can go bad again. I know a myeogram can be the worse test a person must endure, but when my neuolgist and PT's and GP's were telling me my MRI's didn't look so bad for all the pain I was having-that is the test I insisted I get. It showed where the nerves were being pinched. I got the headache from hell after that but not all people do if a blood patch is given so the dye does not get into the brain, or if the person giving the test does it correctly. The first stab into my spine made my legs go numb and the tech was like OMG, opps! So be sure to fight for your body's health and tell them when you have an intuition that something is not right or adding up.

    Get educated on your condition, find doctors willing to work with you, and don't give up hope.
    Good luck!
  • You are not crazy! So many of us have been through exactly what you are experiencing and I am so sorry that you are going through this. I am not a doc and can't give medical advice but I can tell you what I would do in your situation. The first thing that I would do is to get a doc that takes your pain seriously and is willing to get to the cause of your pain or at a minimum treat your pain. I know that this can be very difficult to do when you are in so much pain but you must be persistent. Get a second and even third opinion if needed. I have heard of so many people that have been told that there is nothing wrong by one doc and taken the same MRI to another doc and actually diagnosed completely different from the first doc! My brother in law was one of them. Suffered for 1 year in terrible pain. Had 2 docs tell him that they saw nothing. The third doc admitted him on a holiday for emergency surgery as soon as he saw the same MRI that both the other docs saw. Do you have a Pain Management doc? Issues of the spine can be very hard to diagnose because some things that cause some people no pain at all can cause others excruciating pain. My PM doc has been a life saver. My niece had a roller blade accident and broke her tailbone years ago. Now she has SI joint dysfunction. May be totally different for you but the key is to find a doc that "believes" your pain and is willing to treat it. Good luck and please keep us posted.
  • For 3 years and 3 surgeries, doctors kept telling me "give the nerves time to heal" yada yada, but the pain just got worse, if anything. My legs were weak, I could fall easily and I have lateral (outside) numbness of the buttocks, thighs, calves and feet. This causes balance issues if I am not careful.

    In November, 2007, I finally got an EMG and nerve conduction studies. My diagnosis changed forever that day - acute and chronic S1 nerve damage. From that point on, docs KNEW why I was in so much pain and KNEW there was little they could do for me.

    I went through their rules and regs/conservative treatment but just got my SCS - spinal cord stimulator - and now I have buzzing instead of constant burning pain. It has been a Godsend for me. I was devastated to learn "permanent nerve damage" but also validated/vindicated.

    Hang in there - I hope your new testing will show what is wrong!

  • Hi, I am new here and somewhat embarrassed that I don't know as much about my surgery on 12/19/08 as you seem to know about yours. I do know that my surgery lasted 5 1/2 hours and that four vertabrae were fused together. I also had severe stenosis and a vertabrae that was "out of place." My doctor said that he had never seen someone of my age with so many spinal problems. Oh, he also said something about progressive degenerative disc disease. So anyway, he thinks that my recovery is going well. I am able to walk well unassisted. I have been fairly active, but still have muscle pain. I take 4-6 percocets per day so that I can remain active. Can anyone give me an opinion whether or not they thing this is still okay? My doctor apparently thinks that it is because he renewed the prescription. When should I be able to wean off of the pain meds? I want to go back to work on 1/19/08. Any opinions?

    This seems to be such a wonderful supportive forum!

    Just call me the

  • You're Dr. should refer you to a Neurologist because of the numbness in your legs. I hope you're feeling better. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • Thank you so much for your replies. Even when I was coming here just to read all of your posts, you guys were a big help!
    Cherish-Does the spinal cord stimulator hurt? does it help? are you glad you have it?
    Painintheback-Thanks, I too, am worried about my mri. When my doc refers me to a pain management doc will the pain management doc get all of my records?
    Paulgla-Thank you so much, I may do that!
    My nerve test and bone scan should be sometime next week and then I have the followup with my spine doc on the 20th to go over everything, so I will let you all know what the results are.
    I talked to my doc a while back about nerve damage and the scs, but at the time I didn't want to try it because I really didn't want a "foreign" object in my body, but after this last episode...I really don't care as long as I don't hurt like this anymore, they can do anything if it will help. All I can remember of those first 3-4 days (when I couldn't get the pain to ease up) are bits and pieces.
    But anyway, I want you to know how much I appreciate your replies and help.
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