Hi all! I'm back to the boards, I've posted in the past during my back surgeries and and chronic pain and depression eras...
Anyway, I am 9 weeks post-op having my hardware removed from L4-L5. I still have massive leg nerve pain, doc has increased my neorontin to 2700 mg. They say, though, that there is nothing on the nerve, and I should heal.
Ever since my first back surgery, I've experienced wide-spread pain. I've even gone to the ER with my first migraine and severe tension headache that they gave me valium for and did a CT scan of my brain that comes back fine. I've had every area MRI you can think of, and everything comes back normal, with mild tendonitis or birsitis (except for my back, of course). I now wake up in the middle of the night with a wierd aching in my knee that I can't explain. It keeps me up all night so I don't sleep, no matter how many drugs I take.
I have numbness in both hands and feet, pain in my shoulders, front and blades, and if you touch my back near the area of my SI joint, but a little more inside and higher, I will scream bloody murder. My face gets red all the time like a rash, but Lupus tests came back negative (mom has Lupus). That part keeps getting worse, and happening more. My family thinks I'm tanning and getting sunburned. But it comes and goes whenever it wants.
I can't find a good rhemy to save my life, and my neorologist just keeps giving me more drugs. My orthopedic surgeon gives me trigger point shots that last for about two weeks, and keeps sending me to PT. My spine surgeon thinks I'm nuts.
Then, for the first time, my PMR doctor suggested I might have Fibro. He called it a "garbage can diagnosis," but that i might experience pain differently than most. We are trying to switch to Lyrica from Neorontin, but my insurance company is giving me trouble.
Sorry so long, I thank anybody who read this whole thing. I am at a total loss of what to do next. I am supposed to go back to work in four weeks to a VERY demanding job that I don't think I can do. I am looking for some support, sympathy and answers. Do I have the classic symptoms? Seems like it. My mom is being horrible about this. She says "Oh, you are just always in pain." My husband is tired of me being sick and tierd and really doesn't care about the diagnosis.