Good day all. First off I'd like to thank all of you who have sent me PM's wondering about how the appointment with my new doctor went. It makes me feel good to know that so many of you care so much. So here goes the news.....
Great news first!! My new doctor.....well, he IS my new doctor!!! He and I hit it off like I could have never imagined. He is my age, we actually graduated high school the same year and know a couple of mutual friends... how crazy is that? He has recently taken over his father's practice as he retired. He spent almost 30 minutes with me getting the "short" version of what has brought me to where I am now. He said that I looked "great" especially with all that has transpired in the more than a decade of dealing with this pain monster that stalks us all. He looked me in the eyes and said "well I trust you".... I told him that I felt we had a good connection and that he could very well be the guy I have been searching for (hell, all of us are searching for for that matter) and that I would truly appreciate his taking over my care. He had no problems at all with that. He never asked me ONE TIME who my previous doctor was, he didn't care. He said that he likes to make his own assessment of patients and go from there.
He then started to write out all 7 of my medications. He noticed that I had listed that I take 450mg's of Effexor XR perday and looked at me with great concern. Apparently the maximun daily adult dose is 225mg per day..... I am taking twice the prescribed maximum dosage and have been for well over a year. We are slowly lowering my dosage of the Effexor... unfortunately it has the longest half life of any other antidepression/antianxiety meds and can be a trick to get the dosage lowered without the WICKED withdrawls that come along with this med. To me this is just another checkmark under the "positives" side of this new doctor... I know he is paying attention to what is going on with me.... the big picture.
He upped my Percocet 10's to 1-2 every 6 hours from only 1 every 6 hours as I am having new pain problems and symptoms (that is the other part of this post... the scary stuff.) I'm going to follow up with him in a month to check on the Effexor and see how I am doing with the decreasing dosage.
SO, as you can see, I couldn't be happier to have found this wonderful guy!!! I felt 100lb's lighter when I left his office. I feel like I have someone who is on MY side and wants my quality of life to be the best it can be, as I do.
OK, now for the scary stuff. Prior to my 1st appointment with this doc, I woke up one morning with pain, weakness, and complete numbness in my left great toe and 2nd toe.... this is my GOOD leg!! I stayed in bed for 2 days thinking it was just some crazy inflammatory process going on, but to no avail. The symptoms were not lessening in any way, so off we went into the ER late one night. The ER doctor was very concerned when he did all of the neurological stuff they do (push, pull, leg lifts, lack of reflexes, etc.) I was sobbing. Scared to death. My biggest fear in this life of mine is ending up in a wheelchair..... with new symptoms in my GOOD leg, well it just scares me to death. The Arachnoiditis is obviously progressing. That scares me half to death..... I don't think about having this condition as it can be really overwhelming to think about as there is no cure, it only progresses. The ER doctor gave me shots and got me as comfortable as he could at the time and recommended that I see my Ortho or Neuro asap.
I brought this up at my new patient appointment... by the time I had gotten home from seeing him his office was calling me with an appt time to see my Neurosurgeon..... they didn't have to do that as I have Medicare and don't need referrals, but it is another plus in my book. I see my Neuro on Feb. 13th at 945am. I'm scared. I am keeping things in perspective tho and just trying to keep a journal of my new symptoms that I can take when I see my surgeon next month. It has been 4 years since the last time I had to have the scarring scraped and removed from everything it had adhered to in my spine.... I'm affraid that this is what he is going to recommend be done, again. Its' part of having Adhesive Arachnoiditis, and is a vicious cycle. More surgery to remove scarring well, simply eventually creates more scarring.... yadda yadda yadda.
Sorry I got so windy but I am trying to get it all down in this one post. I'm sure there is something I have forgotten...... Oh well.
Thanks again to those of you who asked about how it went. I hope all is well for my spiney friends and family today.