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perception of others

nmacnnmac Posts: 112
edited 06/11/2012 - 8:27 AM in Chronic Pain
At work I heard a conversation about pain by my coworkers. We all are OT's and PT's. I was really surprised how they felt about pain meds. They seem to really be very neg. about the use of pain meds for the control of chronic pain. I have been using have been using pain meds for 2 years for my DDD of my whole spine and Osteo of my hip. It helps me get some much needed sleep. I do excercise but if I was unable to sleep I wouldn't be able to continue to work full time. I am closely monitored by my PCP. There is a new requirement that most medical professionals have to take pain classes to retain their medical licenses. At first I wasn't happy about this additional requirement but I guess it is really needed. There is a required online course that really is supportive of persons with chronic pain. I hope this info will help medical professionals understand what we go through and that most people just want to improve the quality of life.
Severe DDD. Klippel Feil Deformity. Cervical Foraminatomy that turned into Lamy. I have tried so many treatments, therapy's and medications.


  • I was surprised to hear that too. I still believe that no one will truly understand what how it feels to have this type of pain unless they go through it. No matter what meds you take, how much pt you do,or how many injections you have, there will always be underlying pain that never goes away. It is called chronic pain for a reason. Perhaps those therapists with the negative perception should undergo pain classes in the hopes that they gain a better understanding of how it's like to live this way. Do they know about your back problems? I hope you don't have too much of a hard time.

    I have a lot of admiration for you because you continue to work despite the pain you have, and you are out there helping people with their painful conditions :)
  • any one really appreciates chronic pain until you have been plaugued with it.
    And you can tell by the responses and attitudes of a person.

    Shame so many dismiss it. Makes our battle worse!
  • that this is why my NEW PM doc is SOOOOOOOO WONDERFUL!!! He too had chronic pain and had a low back surgery. He didn't go into details about his issue or what was done, BUT at least he has had back pain before! Well not that I wish that on ANYONE BUT I think that it has made him a much better PM doc. When it comes to Narcotic pain meds he ASKED ME what works for me and how many per day. He has also told me many times that if I feel I need or want a medication change or dosage increase to just let him know and he would be more than happy to do so. I asked him what he thought of meds like oxycotin, dilaudid etc. and he told me that he feels that if that is what makes the patient comfortable and there is no sign of abuse then they should take them. He also said that he will do whatever it takes to get my pain under control and he doesn't care how we have to do it, whether it be changing narcotic dosages or types, injections, or just whatever. He told me that narcotics have too much of a stigma attached to them and people that dont suffer extreme back pain have no business speaking badly of narcotics. WOW WOW WOW!!! This is the FIRST PM or ANY doc that I have come across that truely understands what I feel and how much meds do help! It is amazing! So I guess/think I am one of the lucky ones that has the privilage to have a PM doc that is so open minded and that has experienced back pain and realizes (in his own experience) how much the pain meds or narcotic pain meds helped him, so inturn they should help his patients. GOD I ABSOLUTELY LOVE LOVE LOVE THIS PAIN DOC!!!!
    And YES it is VERY TRUE that people dont understand how dibilitating back pain or chronic pain in general is until they have experienced it. My mom didn't understand my pain until she herniated a disc in her low back. Now she completely understands what I go through each and every day! I wish in a way that the people that give us a hard time could be granted our pain for a day. They couldn't handle it, not even for a day.
  • Melissa, what's his number? I'm just kidding ;) That is really something. You don't hear about a PM doctor having the same problems as us every day. How about like..never. At least he understand and relates to how you feel and knows all about this suffering. He's a keeper :D I must say that I'm happy with my pain specialist too and feel like we have a good relationship after all the time I've been there.
  • Diddo to all the previous comments. I have found for myself, that after some time people get sick of hearing of my battle. Over time, I have picked my audience better. Some people care, some have their judgements and other's would wish we would move on.

    Over the almost 2 years, I have had people call me to say they have thrown their back out or have a stiff neck - and comment, how the hell have you been doing this for so long?! And then I ask, are you taking any meds for then pain and they say - Well, yae, and I say, Yae!

    Unfortuately now I do understand how depression comes with the territory - I have cried more in the last 3 months then I have in the last 3 years. Cried out of frustration, pain and exhaustion. Don't think I am clinical yet, but can see how that can happen!

    I hope that our stregth (meaning all of us showing up everyday) gives strenth and hope to others - maybe their struggle is not chronic pain, but something else - and see that you can continue on with a good attitude and laughter inspite of what is happening!

  • I see too many people abuse pain meds and it makes me so mad. It's people like them that makes it difficult for people suffering with chronic pain like us to get adequate pain management. I have to jump through hoops each time I need a refill and I keep trying to tell my doc this isn't working anymore so he sent me to another doc. Come to find out, this doc doesn't even prescribe pain meds. That's a whole other issue I will be posting about shortly.

    I see so many articles on the news and newspaper about people breaking into pharmacy to get narcotic pain meds, people getting busted for selling narcotic pain meds and it's all of them that make it so hard for us who really are suffering.

    It is not like we choose to live this way and we would give up our pills in a heartbeat if we could find a cure or a fix.

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