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Back of neck heat

AnonymousUserAAnonymousUser Posts: 49,900
edited 06/11/2012 - 8:27 AM in Neck Pain: Cervical
Hi All

I am new to this forum and hope someone out there can identify with my problem.

To cut a long story (7years)short, I have fierce heat on the back of my neck which has caused me a lot of problems. I have no real pain but the heat is massive. this heat causes me to get dizzy, disorientated and basically i have to lie down before i collapse. I have blacked out recently and come close to collapse a few times since, and every time this happens after I get a surge of heat up the back of my neck.
It is snowing outside and I am out in a t-shirt! My arms and everything else is freezing but my shoulders, neck and head are roasting.
I would be very grateful if anyone can offer any thoughts as i am almost totally incapacitated and i believe this is the root of the issue.
YD
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Comments

  • And welcome to Spine-Health.

    That's very interesting - I've never heard of that before. There have been some posts here about tingling/goosebumps, etc. on the upper body which were symptomatic of cervical spine issues, but nothing like what you've described.

    Have you been to a doctor? Gotten an MRI? Had surgery or a surgical consult?

    Please give us some more information about you and what steps you've taken regarding this.

    Take care,
    Cath
  • Hi Cath

    This all began 7 years ago when i collapsed twice at work. i could not lift my head off the desk at all and basically after a week in hospital i was told to go home and that "some people get these things and you just have to learn to live with it". i had very bad dizziness and eventually could not work or drive. it was consistently getting worse to the point where i could not look at anything moving(e.g. moving traffic)but i would have to lie down.i could not go shopping as they walking and looking at items made me so dizzy. all this time my neck was burning up and i could not wear a coat even in winter.
    Eventually it was getting so bad i decided to try again with the doctors and ended up with a neurologist who put me on medication for the dizziness (ataxia). it took a long time to get this medication right but it worked to a point. i was able to return to work and at least go places alone again. i was doing quite well for a time until it was decided that i could come off the medication (Tegretol). The theory behind this was that the brain repairs itself and that i was on such a low dose i should be fine without the medication. I blacked out following that and have had a few other syncopal episodes since that, and then the constant dizziness and heat on my neck came back again.

    I have started taking the tegretol again but my neurologist has no idea what the heat on the back of the neck is and i believe that all my issues are steming from this. I did have an MRI and everything was "normal".I am currently seeing another doctor regarding the syncopal episodes and have had tilt test and heart monitors etc... the heart is basically ok. they have mentioned POTS as a possibility.

    When I look back at the different episodes(syncopal or dizzy/disorientated) i have had, the one common denominator is the overwhelming heat on the back of my neck and i was hoping that someone would have some idea as to what could possibly cause this. :SS

  • Is it "burning pain" or is it just "burning hot"? I would definitely recommend a second opinion! Has your neurologist given up at this point?

    "C"
  • Hi C

    Yes it is burning hot not burning pain. For anyone to touch my neck or head it feels like you could fry an egg on it! Neurologist has not given up as such but has no interest in the heat and is treating the dizziness. I feel that one is causing the other. When I am very dizzy and put a cold pack from the freezer on my neck it relieves the dizziness. My only problem is I cannot walk around for the rest of my life with frozen peas stuck to my neck!!!

    I could be wrong but though it was worth a try to see if anyone else has experienced this.

    YD
  • Did they do an MRI of the neck and checked the cervical disc? Do they think it's a disc problem? I have burning in my lower back and occassionally that hot neck. I have cervical issues and DDD which may cause symptoms. I'm starting early menopause and that can do the heat flush also. I hope they do some more studeis on c-spine MRI. Good luck and take care. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • Hi Charry

    They did an MRI of the head not the neck. They treat the dizziness and have said that they may never know what has caused the dizziness. It is really over the last few months I have had several syncopal episodes and the one common feature of them all is the roasting hot neck and head.

    Is the burning you have painful or burning hot?

    Is it best for me to look for an MRI of the neck or to see if a chiropracter can see anything wrong? I am not sure which is the best approach for me to take and everything takes so long!

    YD
  • Here's something you might be interested in reading about.

    Criteria for Diagnosing

    Complex Regional Pain Syndrome Type I (RSD)

    * The presence of an initiating noxious event, or a cause of immobilization
    * Continuing pain, allodynia, or hyperalgesia with which the pain is disproportionate to any inciting event
    * Evidence at some time of edema, changes in skin blood flow (skin color changes, skin temperature changes more than 1.1°C difference from the homologous body part), or abnormal sudomotor activity in the region of the pain
    * This diagnosis is excluded by the existence of conditions that would otherwise account for the degree of pain and dysfunction

    Complex Regional Pain Syndrome Type II (Causalgia)

    * The presence of continuing pain, allodynia, or hyperalgesia after a nerve injury, not necessarily limited to the distribution of the injured nerve
    * Evidence at some time of edema, changes in skin blood flow (skin color changes, skin temperature changes more than 1.1°C difference from the homologous body part), or abnormal sudomotor activity in the region of pain
    * This diagnosis is excluded by the existence of conditions that would otherwise account for the degree of pain and dysfunction.


    Taken from http://www.rsds.org/2/what_is_rsd_crps/index.html
  • sunny1966ssunny1966 VIRGINIAPosts: 1,385
    It is so frustrating waiting for a diagnosis. Just my opinion, but I would try for an MRI of your cervical spine before I tried the chiro. My neck also burns like its on fire almost continuously and I have cervical spine issues. Mine is painful also though. Do you have any neck pain or headaches?
  • edited 04/16/2013 - 11:31 PM
    I am also new to this forum.
    I have been having the same problems with my neck getting really hot and then I get really dizzy weak and start sweating really bad. It doesn't matter if I am sitting,standing, walking, laying down or I can be sound asleep when it happens. I have gotten to where I can tell when it is fixing to happen and know I need to sit down if I am not already because if I don't I will pass out or just collapse. It doesn't last long maybe 15-20 minutes but it seems an eternity to me when it is happening. I am a manager at a convienient store and I had some of my employees ask me why I am sweating so bad and I tell them and they have felt of my neck and it really freaks them out to feel how hot it is. It can be freezing weather and I am outside myself without a jacket or long sleeves on. My employees can be inside the cooler with jackets on stocking it and I can go in with short sleeves on and spend 2 hours or more in there and come out sweating. I really can not understand what is going on with me. I have had 4 neck surgeries and the last one when I came to I had a really bad stinging on the left side of my neck and between my shoulder blades was told it would get better but if anything everything has gotten worse. I have been to my family doctor he has given me meds to see if that would help with the sweating and hotness but nothing. I have been to my pain doctor still no answers and even back to my so called surgeron. All he can say is there is nothing else to really do, they tried to do an MRI on my neck but the spasms was so bad the pictures came out blurry which I did not even know I was having spasms that bad because I didn't think i was moving during the test but they kept saying I was but the surgeron said my neck getting hot and sweating has nothing to do with my spine but he would order a CT Scan and check that. I did not have this problem until he did my surgery and I know my body and know when there is something wrong with it. Why do they want to look at me like I am crazy or just wanting more meds. i do not want to spend the rest of my life on pain pills or pills that take over my life I want to know what I am doing, but i want to be able to have a life and with this kind of pain no one can have a normal life. Mine has gottne so bad i am having severe spasms 24/7. I am constently jerking like I am on some really bad drugs or something it is embrassing so I stay to myself at work and at home. I hurt so bad all i do is cry, I can't enjoy my grand daughters my boyfriend or even my little dogs. They look at me like what is wrong all we do is stay in the bed when I am not at work. The doctors think it is all in my head and I know its not. I just wish I knew what was wrong and what could be done about it. It has taken over my life. I have always been able to deal with my pain but this well its something totally different and something I am not able to deal with on my own. i can't live like this no one should have to, this is not living. Is there anyone out there that can help explain this and what can be done for it.
    Deb
    Deb
  • but i wonder if your surgery could have messed up your hormones somehow and is giving you menopause symptoms! After surgery your body goes through a lot. Just a thought!
  • alkhemyaalkhemy Posts: 1
    edited 05/30/2013 - 6:39 AM
    I have experienced the same issues and i believe from a lack of abdominal strength, as well as back injuries from a young age have caused these issues. I do know that taking long deep full breaths will prevent the blacking out(which has happened a few times) Strong deep breaths and if need be sit down on your butt as soon as you feel the head rush.

    Link removed, not permitted
    Post Edited by The Spine-Health Moderator Team

  • Anonymous said:
    Hi All

    I am new to this forum and hope someone out there can identify with my problem.

    To cut a long story (7years)short, I have fierce heat on the back of my neck which has caused me a lot of problems. I have no real pain but the heat is massive. this heat causes me to get dizzy, disorientated and basically i have to lie down before i collapse. I have blacked out recently and come close to collapse a few times since, and every time this happens after I get a surge of heat up the back of my neck.
    It is snowing outside and I am out in a t-shirt! My arms and everything else is freezing but my shoulders, neck and head are roasting.
    I would be very grateful if anyone can offer any thoughts as i am almost totally incapacitated and i believe this is the root of the issue.
    YD
  • i believe my heat on neck issue is friction from disks.
  • jBethjjBeth Posts: 1
    edited 07/17/2015 - 3:16 AM
    Hello...I think i might understand a little bit of the massive heat pain you are going through. Mine has just started within the last month when it started getting warmer here. When i go out in the semi heat or in the sun, this heat sensation starts in my neck and back that continues to get more fierce. It is like nothing i've ever felt before with my body, and i grew up in the hottest and most humid heat of Texas.
    It has boggled my mind. And now i think i might know what it is related to. I've had some Cervical spine nerve compression and Disc bulge, something else i cant think of right now with my C4-7. The symptoms of it seem to be getting worse. This awful heat sensation with my skin on my neck, back and arms too...use to cool down after a while...but now it just stays with me, and the only relief i get is from continuous air conditioning. i went to ER by ambulance the other morning because i started having problems with breathing from the heat i felt. the heat seems to move around when i put the cold packs on it...and the cold packs feel good...but the heat is still there afterwards. This heat feels like something that a Burn victim might feel, i think, although i have never been burned so i cant say for certain. I get my other symptoms associated with the nerve compression also...the tingling left hand, i also have Burning mouth syndrome from a nerve root damaged in my mouth. I think that all this is related to nerve damage maybe to the sensory glands, and when i told the ER doc, she thought so too...and told me to see a neurologist.
    I saw your posting back in 2009? was it?? have you been suffering all this time since? the ER doc told me she thought there was medication for it...well, it gives me hope...but you would think there would be something on the Internet about all this...wouldn't you? i am living without air conditioning and the hottest part of summer is beginning...i have to do something immediately, and i dont know what...i feel helpless, and my referral for neurologist will not come for some time i think.

    Welcome to Spine-Health
    Please click on link for helpful information!
    J Beth Olson
  • My mom had neuropathy in her feet due to diabetes----OR a calcium channel blocker. She also got erythromelalgia. I hope I have spelled it correctly. Her feet would look like lobster feet. Bright red and they were HOT to the touch. So painful. The reason I mention calcium channel blockers is because I tried taking Diltiazem---Cardizem for a few months until my feet turned bright pink and burned!! I called my doctor and dumped that drug ASAP. It went away. My mom was taking Norvasc after her heart surgery and her feet went on fire after that. No one understood the connection and she evidently got permanent damage by the drug. I hope you find your answers. I did see that nerves that are regenerating can burn, but from your description it seems a little worse than normal.
  • SuziQ55SSuziQ55 Posts: 1
    edited 09/20/2015 - 5:18 AM
    My sister has been to the ER four times this past year with a severe burning in back of her neck, freezing hands and the rest of her body, extreme lethargy, dizziness and constant low body temp of 96 but feeling "feverish" when she reaches normal 98.6. Last week after coming out of her stupor in the ER she asked the doctor to test her thyroid. Her TSH levels were high indicating a low thyroid which runs in our family. She was also experiencing other bizarre symptoms such as hallucinating worms in her stool, seeing giant black butterflies and birds and sudden onset of severe swelling in her abdomen. She told me she felt like she was dying and at one point told me she wanted to commit suicide. Then I started getTing serious about a proper diagnosis. After much research we believe she has been suffering with an extreme case of low thyroid called myxedema or myxedema coma which can be life threatening. She hadn't reached the coma state but was definitely in the throws of "myxedema crises or myxedema psychosis". There are cases of people in a crisis mode without the hallucinations. She was started on a low dose of Armour thyroid medication and is starting to feel much better and the hallucinations gone. A really good endocrinologist who goes by your symptoms and not just hormone level test results might be able to help you. Good luck to you all - I totally sympathize - she's been through total hell with no doctors listening to her for years and never piecing together all of her symptoms. I always thought she's was unhinged and possibly bipolar but myxedema makes you appear crazy and bipolar. I have another sister just like her too had gone untreated because she hates doctors. Other symptoms of low thyroid must be assessed as well. [edit]. Good luck to you all who are suffering with this pain..

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  • I am so grateful to have come across this to know I'm not the only one... About a year ago I was working an incredibly stressful job about 45 hours in the office, going to school the entire day on Thursday and spending my entire weekend doing homework and catching up on the work I couldn't get done at the office. I kept wondering "what is too much?". I really didn't know, but my body showed me. All of a sudden I started getting so dizzy all day. Sometimes it felt like I was caught in a tidal wave and sometimes it felt like I was falling off a building. It was terrifying. I went to a doctor who ran a bunch of blood tests. He said everything came out normal, I'm perfectly healthy but this was his theory...

    He felt it was vertigo caused by stress and he tried putting me on Paxil (an anti-anxiety med). I had a TERRIBLE reaction to it and had to stop immediately. What I did from there was come to the conclusion that if in fact this was something my body was doing to tell me I was doing too much, it was something I could cure by simplifying my life. I stopped going to school, brought my part-time assistant on full-time and started making sure I left the office after 8 or 9 hours rather than 11 or 12. The intense "vertigo" went on for about a month and a half and then subsided so I figured I was on the right track. But after several months it started coming back in a milder form.

    I told my bf that when I experience this the back of my neck gets really hot. He thought that seemed about right since that's where the biggest amount of blood flow happens between your brain and the rest of your body, until he actually felt the back of my neck one day. He was shocked and thought for sure it was some kind of circulation issue. So then I started thinking I have circulation issues and THAT was what was causing the vertigo.

    I bought some compression socks thinking that might help, but after wearing them half the night and for a couple hours in the morning, it spun me into another severe vertigo attack and I had to take them off. I cannot figure out what this is and it varies from being uncomfortable to being terrifying. I regularly see a chiropractor and my adjustments have never made a difference in this area. I don't know what to do!!

    If anyone has ideas, thoughts, ANY kind of advise I am all ears.
    sb
  • SavageSavage United StatesPosts: 5,125
    edited 10/15/2015 - 11:25 PM
    Welcome to Spine-Health
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    moderator, ~~savage

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