Although my dh and friends know I am in pain, I am not sure they really can understand how I feel. I have been for 3 MRIS, numerous xrays, blood tests, 2 chiropractors, 5 pain mgt drs, 3 rheumatologists, 2 neurosurgeon, 1 acupuncturist, 1 neurologist, one orthopedist, and 3 physical therapists!! I have had 6 sets of differnt types of injections in my back, physical therapy, including aqua therapy, decompression therapy table, and acupuncture. I have tried vicodin, tylenol w/codeine, gabapenti, lyrica, cymbalta, elavil and prednisone twice, none of which have worked!!!! The only thing that helps a little is percocet which I have been taking for 10 mos now.
I have recently started with a new rheumatologist at the Pain Ctr at NYU. He examined me and went over all my tests and procedures. He said there is no text book answer for what i have. I have lower back problems which havent responded to any treatments and severe pain in my buttox, hips, legs and feet which are fibromyalgis like symptoms, although I don't fall into all the fibro symptoms to be diagnosed with fibro.
He suggested trying lyrica again because he doesn't beleive I was on it long enough last year or at a high enough dose. I just started last week and felt just slightly better so he increased it. Now I am dealing with the side effects of lyrica, weight gain (always hungry), tired and a little dizzy. I am hoping that all goes away and it starts to help with my pain. I am also continuing with percocet unless the lyrica works. Dr said I could be on percocet indefinatley!
He also referred me to the psychologist who works in the center and is in charge of the biofeedback, hypnotherapy and other alternative treatments and meds. I am open to anything.
The biggest problem is that my hubby doesnt really understand. He sees my getting to work (I have a great boss and make my own hours, I have been going in very late), and getting housework done. Although I hate the supermarket and cannot deal wiht the pain of loading and unloading groceries, so I leave that for him to do and he HATES and resents me for it. He doesn't say so, but, I can tell! He just isn't compassionate about my situation even though he thinks he is.
Other family and some friends think I am just fine because I look good. I always take care of myself, my hair, makeup and how I look. Unless I am staying in the house becasue I feel to much pain to go out, I am dressed and look fine to other people. And when people find out i am taking PERCOCET, they freak out and give me all the warnings that I already know about. Of course I don't want to take it, but, I have no choice. IF i didn't I would be in bed all day crying in pain.
Sorry for the long complaint, but, this is just a worse day. The way I can explain it, is that Every Day Is A Bad Day pain wise. Some days are worse than others ( I don't know why) and some days are a little better (but, I am still in pain). How do I make people understand>? Or should I just keep my mouth shut and suffer in silence???!!!