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Pudendal Pain?

AnonymousUserAAnonymousUser Posts: 49,671
edited 06/11/2012 - 8:27 AM in Chronic Pain
Hello. I am confused and need some advice please. I've had chronic vaginal pain for about 3 years now and have seen dr. after dr. w/little help. Finally I went to a specialist and she suggested I may have pudenal neuralgia. So I went to the pudendal specialist and upon telling him my symptoms he was pretty sure I did have PN. But when he physically examined me he wasn't able to stimulate the nerve or reproduce the pain. So he sent me to a PT who is familiar w/PN and she, too, wasn't able to stimulate the nerve and concluded I did not have PN. Then a few months later I was riding in the car and all of a sudden had a shooting pain go through my thigh and from then on it hurt to sit down. So I went back to the PT who determined that now I did have PN, albeit a slight case. So she sent me to another PT (because this PT didn't accept insurance and told me I'd need therapy several times a week). The new PT was also not able to stimulate the pudendal nerve and wasn't convinced I have PN. But I am pretty sure I have some sciatica because I have pain radiating down the back of my leg into my foot. I have a friend who is a chiropractor and he had an x-ray and MRI done on my lumbar spine, both of which came back normal.

So I have pain down the back of my legs into my foot (sometimes), pain upon sitting and pain down my thigh (which feels like razor burn and sometimes itches). The PN specialist wants me to have a CT guided injection to diagnose whether or not the pudendal nerve is irriatated but I'm hesitant to do this. Has anyone had these injections and, if so, did it help? I've heard mixed reviews saying the injections can make things worse and others who say it's not possible to make the pain worse through a simple injection. I have two long trips coming up that will require extensive sitting and don't know whether or not to have the injections done prior to or wait until I get back, if I decide to have them at all. Should I try alternatives such as accuptuncture, etc. first? I just need some advice from someone who suffers from PN to not only tell me what they think about the injections, etc. but also what their pain feels like so I can compare it to mine. Sorry this is so long but this is actually the short version of the story! :) Thanks so much.



  • Hi Missy

    I am a male suffer of Pudendal Neuralgia and have been in pain for nine years. My pain is in my genital region, between my legs and my buttocks (all the embarrassing areas!).

    I have had five injections and none of them made any difference - I felt neither better nor worse. There were no side effects though, so they are worth having a try.

    You mentioned your leg pain and that wouldn't be a direct result of PN, although it could be a knock on effect of having to sit differently. I have had back and neck problems because I have to sit "slouched" in my chair in order to avoid putting too much weight on my area of pain.

    There are other possible treatments out there but it is really a question of whther you want to risk spending money on things that probably wont work. I've probably spent £2000 now on alternative treatments but I can't afford any more as I am now on Incapacity Benefit. To be honest, I'm hoping for a miracle, or even better, for it to just go away in the same way that it arrived - from nowhere! Anyway, if you have any other questions let me know.


  • Beings I just spent my Summer having a series of injections for PN, I can tell you that most of them did not hurt except for the deadening shot. The last set I had was very painful because they needed to be able to use my feedback. Also, the 2nd set I had on the first side had my entire leg completely numb. This is why you always have to have a driver. I had more relief from the numbing aspect though. Even after it wore off I had relief for probably a week. My pain is mostly the sit bones and internally, vaginally and rectally. Drives me nuts. Cannot sit or stand for very long at all. Thank goodness for my laptop.
  • The CT guided injection is painful, but it's a really helpful diagnostic tool. It can help confirm whether the pain is coming from the pudendal nerve, and also whether the damage is just on one side of the body, or on both.

    There are some doctors that recommend the injections (nerve blocks) for therapeutic purposes, but statistically they only help 5% of the time.

    You will probably have quite a high degree of pain for a few days afterwards.

    There are many other therapeutic treatments though, such as physical therapy, low level laser therapy, tens units, pelvic massage (and more.)

    I've actually authored a book that lists in detail all the treatments, and what you can expect from each of them. To check it out go to www.pudendal-neuralgia-book.com

    Keep your chin up!
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