Hello. I am confused and need some advice please. I've had chronic vaginal pain for about 3 years now and have seen dr. after dr. w/little help. Finally I went to a specialist and she suggested I may have pudenal neuralgia. So I went to the pudendal specialist and upon telling him my symptoms he was pretty sure I did have PN. But when he physically examined me he wasn't able to stimulate the nerve or reproduce the pain. So he sent me to a PT who is familiar w/PN and she, too, wasn't able to stimulate the nerve and concluded I did not have PN. Then a few months later I was riding in the car and all of a sudden had a shooting pain go through my thigh and from then on it hurt to sit down. So I went back to the PT who determined that now I did have PN, albeit a slight case. So she sent me to another PT (because this PT didn't accept insurance and told me I'd need therapy several times a week). The new PT was also not able to stimulate the pudendal nerve and wasn't convinced I have PN. But I am pretty sure I have some sciatica because I have pain radiating down the back of my leg into my foot. I have a friend who is a chiropractor and he had an x-ray and MRI done on my lumbar spine, both of which came back normal.
So I have pain down the back of my legs into my foot (sometimes), pain upon sitting and pain down my thigh (which feels like razor burn and sometimes itches). The PN specialist wants me to have a CT guided injection to diagnose whether or not the pudendal nerve is irriatated but I'm hesitant to do this. Has anyone had these injections and, if so, did it help? I've heard mixed reviews saying the injections can make things worse and others who say it's not possible to make the pain worse through a simple injection. I have two long trips coming up that will require extensive sitting and don't know whether or not to have the injections done prior to or wait until I get back, if I decide to have them at all. Should I try alternatives such as accuptuncture, etc. first? I just need some advice from someone who suffers from PN to not only tell me what they think about the injections, etc. but also what their pain feels like so I can compare it to mine. Sorry this is so long but this is actually the short version of the story!
Thanks so much.