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Many tests, nothing new, so?

dilaurodilauro ConnecticutPosts: 9,859
edited 06/11/2012 - 8:27 AM in Maintenance
Over the past 2 months, I have been getting all sorts of different tests. I started with a flareup shortly after Thanksgiving and we have been unable to figure out why.
- MRI: Nothing really different, natural progression of stenosis, etc
- X-Rays: These showed a bunch of arthritis and had it has grown rapidly, but still not a major news item
- EMG: No new nerve damage. Still shows some older nerve damage in my leg, but from the cervical point of view, everything is fine

Ok, so then I should be feeling ok.... And if I dont, then its probably something in my head

I am sure many others out there have had tests which come back showing no problems, but yet they still are in pain.
Does that say we all are just drumming things up inside our head?

Its very good that I know most of the doctors that look after me and the fact that they all know my wife from work in the hospital, they are very up front with me. Today, after the EMG, the doctor said, "Well, nothing damaging is showing, so your nerves are good from neck to waist", My reply was , "Thanks, I appreciate that, but"
I still have no clue as to why and what this flareup is about. The doctor pulled me aside and said: "Ron, if the tests showed you had multiple nerve problems, so be it, if your MRI showed more advanced herniation of your T-discs, so be it"
What he was telling me, is that it really doesnt matter. I have pain, I will have pain, it wont go away, and it really doesnt matter what tests show. 35+ years of problems with my spine do not just go away , nor do they always want to show themselves!
I really appreciated that, because, it did just confirm what I already knew.
Sp what if something new was found, I am really not a good candidate for surgery, so instead I would have to work on other ways to control things.

This is my life, I am totally ok with it and can deal with it. Sure, I wish I didnt always have to have pain, but things could be so much worse. So, my mission is to do the right things to help manage and deal with this all. Flareups will come and flareups will go, I will still be here.

I can not tell you how much this all means to mean. I've been positive before and now, more than ever I am super positive. I can not change what has happened to me, I can make things worse, but its in my power to do whatever is necessary to keep things under control. I plan on being around a long time and nothing is going to get in my way to disturb those plans.

I am a very lucky man, I have my family, I have love, I have friendships and I have everyone of you out there helping me in so many different ways

Ron DiLauro Spine-Health System Administrator
I am not a medical professional. I comment on personal experiences
You can email me at: rdilauro@veritashealth.com


  • I'm glad that you're here and that you share your strength and hope with me and others non stop and unconditionally. I wish that you and so many others didn't have to suffer so much. I do believe though that a person who is able to manage their own personal pain battles is a miracle in human form. People like you are walking testament to what this world is supposed to be about.

    It's okay too, to let down your guard and to "feel" things once in a while. It generally humbles a person and allows a "re-freshening" to occur and then they are right back in the game of life shining strong and helping others.

    Hang in there my friend and know there are others in this world who would take your pain away if it was possible. Be yourself, live life and don't take any grief from your body or others.

  • Very well said, "C".

    Papa Ron, maybe you're hurting because your heart is so big it's putting pressure on your spine and other organs.

    Seriously though, your positive attitude is an inspiration to anyone in pain. I believe that health and recovery are, to a degree, directly influenced by attitude. If everybody had your view of life, wouldn't it be wonderful? I think so.

    I'm very, very glad to know you, my friend, and may your days be filled with all the joy you deserve.

  • Ron, You are so lucky to have that wonderful positive attitude, I think you look at this whole thing very objectively and without any pity. My question now is, how can you or your docs make life easier for you? If you have to live with pain or discomfort, at least they should try to take away the edge.

    Good luck to you my friend, let us know how things are going.

    Best wishes to you and your family,

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