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What a long strange trip it's been,,,,,,

AnonymousUserAAnonymousUser Posts: 49,671
edited 06/11/2012 - 8:28 AM in Lower Back Pain
1978 - Left Knee gets tore up.

1979-1985 USMC
1985-2009 Construction management

1992 - Fall on construction site, tear up RT Shoulder, elbow and wrist. (This is start of pain meds, from this point to 2008 I took 90 5mg vicodin per month)

2003 - Start seeing Pain Mgmgt practice

August 2006, working on project where I am standing / walking 12+ hours a day. Legs are completely wore out when I get home, I lay across bed and thats it. This was life for 10 weeks.....Legs burnt and just throbbed.

November 2006, Go to rheumatolgist, start methotrexate for psoriatic arthritis. (Approximately 15% plaque coverage)Now on larger vicodin

September 2007, lower back starts really acting up, start taking enbrel injections, with Methotrexate, vicodin intake increases (as prescribed, I do not play games with drugs)

November 2007, MRI, diagnosed with lower back disease. To me this was a nebulous diagnosis..... Back getting worse, moved up to percocet.MRI Shoes L7 bulge, and arthritis on spine.

March 2008, Directed to different Pain mgmgt DR (PMDR), between now and 12-08 he does SI injections (Corticosteriods), then does nerve block (11 unanthethetized injections, yehaaa .....)

May 2008, More back injections, up to more 7.5mg Percocets, (also Lyrica, humira, methotrexate, amitriptyline)

June 2008, saw spine specialist, and a neuro. Neuro wanted me to go directly to 6 weeks Phy Therapy (at a location owned by his company) Spine specialist tells me to learn to "live with it".... I did not do the therapy based on reccomendations of my Rheum and the spine specialist.

August 2008 prednisone run due to excessive pain

September 2008 10mg Percocets(10 daily), si injections, condition getting worse, PMDR finally relizes that I am complaining about pain around and BELOW the belt line. HE claimed I never said that and he had been treating higher up my back. Bullchit. I told them where it hurts from beginning.

November 2008 Nerve block done again. Off lyrica, OFF Amitrypitilne, more prednisone.

December 2008, Put on Fetanyl patches. Rheum diagnosis that my left SI is frozen. Prednisone again. At my direction the DR starts taking me off of percocet. It worked, but took too much drug to have effect and wuite frankly, I was tired of playing the prescription game, Every month I had to drive 60 miles (one way) to the Dr just to get a new script. (Thanks drug theives and others who ruined health care for the rest of us)

January 2009 I was took off fentynal as everytime I put a new patch on, I had major reaction 24 hours after putting it on. Except for the 5-8 hour period 24 hours after putting the patch on, it did abate the pain.(They told me to discontinue immediately, that's a fun drug to stop immediately after being on it for 6 weeks...so, I stopped cold with nothing to abate the withdrawal...loads of fun...) Started seeing chiropracter, actually some improvement.

February 2009. starting seeing a new PCP to have a physical (48 yrs old, last phy was at age 40), he jumps my ass for the 2400mg of Vitamin D, the Rheum put me on, recommends me going to a "better" PMDR, tells me I have high blood pressure ( I have documented white coat syndrome), wants me to go on BP med, despite the fact that 2 of the meds I am on have a side effect of...yep high BP... I immediately called the Rheumy (They are prescribing the most dangerous drugs, metho and humira) my thought is most DR's do not know how these drugs work,,,,

so, here I am a 48 yr old Engineer, who builds roads, who can barely drive for 30 minutes. I am taking my 9yr old to Disney in 8 weeks, come hell or high water. Currently taking:

Opana 2x day
Humira 40mg weekly
Methotrexate .4mg weekly
folic acid daily
vitamin d (2400mg) daily
Amitryptiline (50mg at bed time)
Diclofenac (1x daily)
Wellbutrin (I am a needle phobe, and just the though of sticking myself makes me a little insane....)

At this point,
1. I can stand for 30 minutes (if I want to hurt all evening)
2. I can walk all I want (But will get no sleep from the pain)
3. I can drive 30 miles (and it feels like you kicked both ass cheeks, repeatedly, with steel toe boots)
4. Sex,,,,Yeh I heard of it....

I work, come home and fall on to the couch.

I have 14 acres that need maintaing.

I have a job that requires alot of driving (250 mil per day during paving season)

I have a daughter.

I have no life.

All suggesstions and recommendations are welcome.





  • It's stories like yours that make me feel like a wimp. I think we can all empathize though with the pain that you feel. We all deal with it on a daily basis in some form or other. Just don't kick a good man when he's down and I mean you. For all that you've been through and continue to go through don't be hard on yourself. You didn't create this situation and really are doing all that you can to keep it all together. Keep your promise for Disney. That WILL be the best medicine you could take.
  • I hope you have a great time with your daughter in Disney. That sounds awesome. I have arthritis in my lower spine also and I recieved facet joint injections and I'm able to move better and my back doesn't lock up anymore. I don't know if your PM Dr has given you those yet? It was my 2nd PM Dr. that offered them to me. I'm glad I went for another 2nd opinion PM Dr. I hope you have less pain especially for your trip. I'm 48 also. Take care. Charry
    DDD of lumbar spine with sciatica to left hip,leg and foot. L4-L5 posterior disc bulge with prominent facets, L5-S1 prominent facets with a posterior osteocartilaginous bar. Mild bilateral foraminal narrowing c-spine c4-c7 RN
  • IM SIMILAR CONDITION, AND IM ALSO TAKIN KIDS TO DISNEY WORLD IN APRIL, DONT CARE GOTTA DO IT, HOPE I CAN WALK. THANK YOU BY THE WAY FOR SERVING YOUR COUNTRY, USMC i see very good. hope you have good time there and you have more good days than bad. sometimes the lights all shinin on me other times i can barely see.....G.D.

  • I am new to this forum too. I have heard some good things about vax-d. I am in Chicago and my hairdresser went to a clinic on Michigan Ave and did treatment there. It really helped her. I am thinking about looking into it, but I have an annular tear and I don't know if it is an option. My chiropractor has been my saving grace - the only problem is that it doesn't last.

    Good luck - and keep us updated.
  • I'm so sorry you're going through such a bad time and really hope you get the help you need. Maybe one of your docs can give you a little something extra to get through Disney world?

    And thanks, for serving the U.S. I am truly grateful for your bravery and courage in defending and serving this nation.

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