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Who to see for diagnosis?

candle99ccandle99 Posts: 279
edited 06/11/2012 - 8:28 AM in Fibromyalgia
For those of you that have been diagnosed, did your GP diagnose you? I feel that I have had fibro and moved a year and a half ago. Before my move, my GP there would give me a flu test and CBC and sent me on my way when I went in with fatigue, muscle aches, and low grade fever. I went to him three times and just got tired of him not listening to me. His whole staff was more concerned about moving to new office and all their furniture and how they were going to decorate that to really work with patients.

Now that I've moved and don't have a GP, I have had two back surgeries, one ALIF on L4/L5 and 6 months later a PLIF on L3/L4/L5 with hardware. My neurosurgeon has done a CBC and sed rate, but said my symptoms are due to the chronic pain and two surgeries. Now that my lumbar is better, my shoulders, arms, and neck are killing me. I've had the fatigue and flu-like aches off and on and seem to be in a bad flare for this past week. I have mouth sores, have had vaginal ulcers in the past, low grade fever, soreness like I've chopped wood for days...basically I still feel like crap. I went to him again yesterday and he's put me on the 6 day prednisone pack, more pain pills, a new muscle relaxer and Motrin 800mg.

I'm ready to see a new doctor, but wasn't sure what kind to try to see, a GP, a rheumatologist, or an endocrine doctor? What kind is the best for fibro? My co-workers tell me that I sound like I have thyroid problems, my mom says it's the osteoarthritis, my aunt says it's fibro and CFS, I keep getting lots of pointers, but I need to see someone that's willing to find out what's going on with my muscles and body, and not say it's the flu or my two surgeries.



  • i have disabling FMS - and it sounds like you would be a good candidate for testing. your mom is right though...i wonder so many times if FMS is just spine related.

    a GP can diagnose it (mine did) and a rheumatologist specializes in it. both opinions would be useful for you.

    good luck !

  • I would make an appointment with a rheumatologist ASAP. It certainly sounds like you have some autoimmune condition going on. Take care
  • :H
    I agree, a rheumatologist appt is in order.
    I was dx'd by pain specialist/orthopedaic :)
    It took me 6 years and I can't remember how many dr's I went through. I was told that it could be my thyroid, blood tests were 'normal' for several years. I had an MRI of my neck and I had radiologists (I work in a hospital in the radiology dept) calling me left and right. I have a multi-nodular goiter that functions normally. I have to keep a watch on the function with blood tests every quarter and pictures (ultrasound) to make sure that it behaves. It was the chronic fatigue that took me back to the doc's. Then, I started having pain, bad pain, that didn't go away. I made an appt. with the pain mgmt/ortho that I been with for 3 years. I also see a dentist specializing in TMJ for 3 years, general orthopaedic for the ddd,djd,bone spurs, bulging disks in my neck and low back, a sleep doc for sleep apnea, an ent for sick sinus syndrome, etc.

    Anyway, Sorry for the long post...the point is that you need to have someone to watch over and cooridate everything.

    I feel the sleep medicine working.

    Goodnight and kepp us up to date,
    Kerri In AR
  • Second day on the methylprednisone pack and seems like the arm and shoulder pain is better. My neck still hurts. I was reading the prescription info on the steriod pack and it said it was given for all kinds of things including lupus, arthritis, MS, etc. I know it's really bad to take this stuff and you can't be on it forever, but it's interesting that it's helping so quickly.

    The rheumatologist in my new town only takes folks that are referred, so I have to find a GP and get them to refer me I guess. I love doctors. NOT! Makes me want to go back to school and be one. I know there are good ones out there, you just have to find one.

    Yesterday and today, my husband and I have been fighting. He told me that my health problems were all we ever talked about. It really hurt my feelings. He's being typical man and saying he can never do anything right and he'll just keep his mouth shut from now on. ARGH! Between the men and doctors, I'm going nuts.
  • about your doctor diagnosed you. Did you have blood tests, the ANA test? or did they just know from your symptoms? I know from reading they say fibromyalgia has no real test other than the 18 pain points, so far.

    Do you all still work? I've having trouble getting back to work full time so far. Luckily I can work from home a few days. I'm out of leave and have been approved for donated leave, but so far, haven't been donated to much. My company doesn't have short term disability. Then, again, I don't have a doctor supporting that I'm disabled. I was an idiot at my neurosurgeon and kept telling them how much I needed to work and how much I wanted to keep working...I go between trying to be superwoman and regretting trying to be.
    This stuff is so hard to deal with.
  • dilaurodilauro ConnecticutPosts: 9,856
    I have had so many PAs, Doctors, Specialists, technicians probe and prode me over the years trying to isolate some of the problems.
    The one that did the best job was my PCP. Now, he may have the personality of a corn flake, but he sure knows how to peel an onion apart to find the pearl.

    (This particular diagnosis work was for my thoracic problems)
    Ron DiLauro Spine-Health System Administrator
    I am not a medical professional. I comment on personal experiences
    You can email me at: rdilauro@veritashealth.com
  • Rheumatologists do the "final" diagnosis in Canada, as fibro is lumped in with the arthritis diseases. The ANA test is used to diagnose lupus, but it is often inaccurate; my ANA tests would be positive then negative, but they did want to rule out lupus anyways.

    The 18 points are the main tool for diagnosis, but your health history (i.e. sleep patterns, "flare-ups", etc.) also help; I kept a very detailed diary of all my issues when I was first diagnosed.

    FYI, I was formally "UNdiagnosed" last fall, and I knew that my fibro symptoms had completely subsided!!

    Take care, and good luck.


    P.S. There is a fantastic book on Fibromyalgia and Chronic Myofascial Pain Syndrome written by Devin Starlanyl...you may want to check it out.
  • I have had chronic pain for over 5 years. Been seeing my primary doc for over a year now. He says he cant diagnose me with fibro;so got me an appt on May 1 with my first rheumotologist. What am I to expect>? I went to my primary doc on April7 and he diagnosed me with pneumonia. He started me on amoxcillin 250mg.3x daily. Yes went thru the blood work on last fri and also two chest xrays. The weather here is so weird again. warm during the day and cool at night. I wake up in pain as the day goes on feel somewhat better;than night hits and pain is up to a 9 and can hardly walk. Sue
  • I'm surprised that your doctor found pneumonia but only prescribed 250mg Amoxcillin 3 times a day. Pneumonia is very dangerous and it takes a strong antiobiotic to get rid of it. I've take the 500mg Amoxicillin 3 times a day just for a sinus infection. If you don't feel better quickly, I'd call back and see what's going on. Pneumonia can be deadly if not treated properly. Best of luck that you recover and feel better.

    I finally got my bone and joint Doctor who treats my knees to do a Rheumatoid profile blood workup that tests for several things, lupus, and other autoimmune diseases to see if my all-over flu-like pain is caused by any of those. My new GP has also done a full blood workup looking at my B12, thyroid panel, and kidney processing.

    I will find out the results from the B&J in two weeks and the GP results in a month. I hope they show up something at least. No one has mentioned fibro though. If the bloodwork doesn't show anything, I'm going to ask about it. I also have a nerve study test coming up in two weeks to see if the pain could be coming from my neck issues.
  • Well I did go back to my doc after they called the following Monday April 13. They gave me a 750mg of levaquin shot in my hinny. and gave me 3 500mg samples of levaquin. anyways did feel better for a couple of weeks;but think it may be back(pneumonia). Did go to the rheumy on the 1st and guess what after driving 21 miles they canceled on me. I suppose to go back on the 22 of this month. Hopefully they dont cancel on me. Last night I had a weird symptom appear with no warning. I had pain under my fingernails,and my nails are curling under. Im so tired of never having no energy. so depressed all the time. dont have a life;etc............... Hugs Wanda
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