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Scary Pain Episodes

TeaspoonishTTeaspoonish Posts: 8
edited 06/11/2012 - 8:28 AM in Depression and Coping
Sorry if this is the wrong sub forum for this but I just wanted to post some experiences I've been having and see if anyone has felt anything or been through anything similar.

I am a 23 year old female who has had severe pain since I was 17 as well as one surgery and countless other treatments. For the past almost two years now I have had my regular severe constant pain but I will have what I have come to call "pain attacks" where my pain level gets so high I just can't take it anymore, from what I hear a lot of people tend to just pass out when they get that much pain.

The reason for my post is my response, during my pain attacks I will have periods of time, sometimes mins sometimes hours, where I am not responsive to those around me. I can't remember what happen during these episodes either. I have spasms all over my body, my eyes twitch and go side to side as well as roll back, I will sometimes grab areas where I am in pain and will unknowingly hurt myself- such as clenching my fists hard enough that my fingernails cut skin. When I do talk it is usually incoherent, or I will say one thing and repeat it over and over. I have on two occasions hallucinated and been very paranoid, including unusual suicidal thoughts. Sometimes I will also just stare into space. These don't all come at once, but when they do they are typically unpredictable, my symptoms have been observed by multiple family and friends as well as neurologists and psychologist.

I have had seizures in the past from medication, but I had an eeg to make sure these were not also seizures and as far as the docs can tell they are not. I also had a brain MRI that was clean. They are also not related to any particular meds I am taking as we have already tried cutting them out one by one. My current course of treatment is prozac and lorazepam to rule out stress. My doctor belives I have an inability to pass out so my brain goes into a "disassociation spell".

Sorry for the wall of text and thank you for anyone who reads, I just wanted to see if anyone had experienced similar scary issues due to their pain, and if so what did you do to help?


  • It goes to show how complex a mechanism the human mind and body is. I've heard of pain black outs, and experienced one myself, but not any of the other issues you present. I've read of how the body chemistry can change in response to pain stimuli and how experts still don't know or understand just how much.

    The good thing is that your doctors are aware of what happens and have tried to figure it out. Ruling out issues is at times more important than identifying issues.

    I hope you are able to find some answers. Sorry I can't be of any help. I didn't want you to think you are alone. You aren't, we are here for you.

  • HOLY CRAP!!!! You are the FIRST person to ever even come close to describing what I go through!!!!!!!!!!!!!!!!!! I can totally relate. I FEAR these episodes.. Its like I go "outside of my mind" because there is no where else to go. Everything you said makes sense!
    So here you are...a stranger on the internet describing my symptoms that I have had on and off all my life...that are getting worse and I have yet to have a doctor take me seriously. I gotta take some time to process this....thank You for posting..I'm sorry you have this....I really am.
  • to haglandc: Yes the mind is a fascinating place, and in a strange way I know my body is trying to protect me, if it wasn't for the fact that it impairs my ability to function independently so much I probably would appreciate it lol! Thank you for your support! :)

    telula68- Its kinda odd since I joined this forum I have had a lot of wow moments with the similarities in experience, although I'm very sorry to hear that we share this one. It's terrible your doctors haven't taken you seriously!

    I actually found that the best place to start ended up being the last doctor my pride wanted me to go to, a pain psychologist.Even after my regular neurologist and two of my spine specialist recommended her, I thought I could deal with it on my own. I'm glad I decided to get help though. My pain psychologist is also a neurologist and after describing my history, and my med list she seemed to immediately connect what she thought was going on. While they haven't stopped I am happy that we are working on getting them in control and understanding what makes them happen. Also try keeping an activity and pain episodes diary as this helped out my doctor immensely!

    Your not alone! Trust me I know the fear, the paranoia to go anywhere because of public episodes, the pain of feeling like your loosing your mind and fear that no one will believe you. Please take care, and consider a pain psychologist! I would love to hear any updates about you and feel free to write me a private message if you ever want to talk!

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