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Lower Back Pain Forever?

girlsmommyggirlsmommy Posts: 19
edited 06/11/2012 - 8:28 AM in Chronic Pain
So at 16 I was diagnosed with Spondylolesthisis of L5 on S1 along with Spina Bifida Occulta. At 37 it was at a Acute on chronic grade 2 Spondylolesthesis with cauda equina syndrome. So the Dr.'s did an emergency Decompression and L4-S1 USS instrumental fusion a 7 1/2 hour operation. I was in hospital for 3 weeks following surgery. I thought I was fixed. Well not quite that easy...First i did nothing except "watch the grass grow" as my Dr. said then after the year I thought I would be better. Well was I ever wrong! I now suffer from the chronic pain of nerve damage to my spinal cord. As well as Degenerative Arthritis in my upper back now. Everyday is filled with pain after trying to do the most medial tasks. My family life has suffered because I can not be there for them physically as well as with the morphine my mind is clouded. I really feel like I have lost everything. We got a laptop so at least I can go on the computer but right now it is broken so I have to sit here to type this and it is excrutiating. So that is it in a nutshell. It has been 5 years now and it doesn't look like things are going to get much better. I would love to hear any encouraging words or advice.



  • First i would like to welcome you to the forum. >:D< I am so sorry you are suffering so bad! I hope you find some answers and good advice here because there are so many great people here who may be able to tell you things to help. I will keep you in my prayers at all times so take care and God bless you and yours my dear!! :)

    Evelyn :H
    Had PLIF in 2008 and a Laminectomy. One level fusion, L4-L5.
  • have permanent nerve damage. Mine is the S1 nerve. Because I had primarily radiating nerve down my legs, I was an ideal candidate for a spinal cord stimulator (SCS). It has changed my life and each day, I do more and more and feel stronger. (I have had it since Jan. 5th.)

    Prior to the SCS, I would have lower back pain, but it was off and on. The nerve pain was burning every single day, all day and night. With the back pain, it was triggered from overdoing it, and if I took it really easy, it would go away in a few days.

    Since getting the SCS, I am up and about, no longer reclined 23 hours a day. And I'm getting more back pain as I get strong again and strengthen my core muscles. For me, the nerve pain and back pain are 2 different animals altogether. The nerve pain, I couldn't handle. The back pain, I can.

    SCS's are mostly for radiating nerve pain, although some people report it helps with their back pain. I have 2 leads and have the best possible set up for help with back pain, and I get no relief in my back. But my radiating nerve pain? I would say an average of 50 to 70% relief of pain!! The SCS blocks the pain signal from the nerves from reaching the brain and the user (me) experiences buzzing or tingling instead of pain. I still feel my pain, but it is as if it is far far away. Not blaring, not searing. And the more I do, if the nerve pain starts to flare, I just get my remote and turn it up.

    Do you have radiating pain with your nerve damage or is it all in your back?

    Permanent nerve damage is just the worst. I'm really sorry you have to deal with that. I hope you find some things to give you relief, even if just a little bit here and there. Getting a break from the pain is so appreciated, I know.

    Take care,

  • i too am in a similar position in pain 24/7 with nothing to look forward to except more pain and lack of sleep .welcome to the bad back club!STRAKER
  • I thank you all for making me feel so welcome. I was begining to feel very alone in my little world. Thank god I have finally found a forum of support.
  • The club no of us want to be in! Bitching and complaining are our past time. The club we'd all gladly give up.

    Sorry to hear you're having such a bad time.
  • Can you tell me what all is involved with a scs. I have chronic low back pain(actually tail bone low)& pain in lower left foot. I had a back fusion 9/25/08.

    Thanks, Norm
  • Hey Cheri thank you for that information. I have never heard of the SCS ( Spinal Cord Stimulator). But I am going to mention it to my Dr. on my next visit.

    To answer your question, yes my pain radiates...Down my legs, into my crotch (that is the worst)area, hips. Now with the degenerative Arthritis in my back it hurts all the way around my chest and upper back so I get headaches all the time now. Sex has become hit and miss, sometimes there is no feeling and sometimes there is. The area on my skin around the surgery sight is hyper sensitive to the touch.

    I have issuse with sitting standing and walking as well and reclining or laying down are really my only options.
  • it looks like it!
  • sorry for your situwation ask your to let you try opona er this may give you a better life
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