Welcome, Friend!

It looks like you're new here. If you want to get involved, click one of these buttons!

Veritas-Health LLC has recently released patient forums to our Arthritis-Health web site.

Please visit http://www.arthritis-health.com/forum

There are several patient story videos on Spine-Health that talk about Arthritis. Search on Patient stories
Protect anonymity
We strongly suggest that members do not include their email addresses. Once that is published , your email address is available to anyone on the internet , including hackers.

All discussions and comments that contain an external URL will be automatically moved to the spam queue. No external URL pointing to a medical web site is permitted. Forum rules also indicate that you need prior moderator approval. If you are going to post an external URL, contact one of the moderators to get their approval.
Attention New Members
Your initial discussion or comment automatically is sent to a moderator's approval queue before it can be published.
There are no medical professionals on this forum side of the site. Therefore, no one is capable or permitted to provide any type of medical advice.
This includes any analysis, interpretation, or advice based on any diagnostic test

Doctor / Patient Expectations

dilaurodilauro ConnecticutPosts: 9,855
edited 06/11/2012 - 8:28 AM in Depression and Coping
I was in my Doctor of Physical Medicine/Rehabilitation.
Many times, I refer to this doctor as my Pain Management doctor also. Even though her title is in the Dept of Physiatry, she has performed many of the duties that my other Pain Management doctors have.
Ok, back to my Subject. I had a discussion with my doctor and her staff today (it was outside any normal appointment) and we talked about expectations. They were showing me stacks and stacks of papers for diagnostic tests that patients didnt want to do, ignored, etc. Some of the reasons was that "My Aunt told me that it wouldnt do any good"
I was quite amazed. They also went on to talk about the number of people who do that but at the same time demand
pain medication. I have a hard time understanding that. When a doctor requests a patient to do something and the patient just out right refuses, but then demands something else. To me that is totally wrong. And from hearing other stories about this, its easy to understand why some doctor offices do not want these patients and how word spreads.

I have always believed its a two way street. You are going to a doctor because you have a problem and your expectations are they they will do something to help you.
Thats fair and reasonable.

Sometimes I think that people expect more than what should be expected. I realize that they are in pain and are looking for relief. Dealing with chronic pain is no picnic, and it also takes a lot of work on behalf of the patient to deal with it and there is some solid assumptions that our doctors will help us.

People that are generally willing to help themselves will find a much easier time getting help.
Ron DiLauro Spine-Health System Administrator
I am not a medical professional. I comment on personal experiences
You can email me at: rdilauro@veritashealth.com


  • Bravo for an amazing post. The more time goes on the more I realize how much I NEED my doctors and not so much the other way around.

    Too many people, as well, see pain management as a one liner- feel pain get pills feel no pain. What we often fail to realize is that chronic pain is almost impossible to erradicate, especially the kind of pain that comes with neck and back problems. There are so many things that can be done to ease the pain and general discomfort that comes from our problems and we need to utilize as many of them as are within our reach. Biting the "hand that feeds us" can in no way benefit our long term well-being.

  • I agree whole heartedly and this is a subject I could really get on a soap box over!

    Griff you put it very nicely by saying that "we need them and not the other way around". It makes me cringe every time I see someone say that it's all about the money and not about the patient.

    Doctors love to work with patients who don't fight them every step of the way.

    Anyway, nice topic Ron.

  • I can not recal turning down anything ever suggested that had not already been tried! I have jumped through every hoop anyone has asked me to. I hvae been poked prodded massaged, heated iced, pilled and soon to be WIRED! When the PM in Pittsburgh said SCS, I said, let me think it over. took me about a day to make up my mind it was worth a try. It took far longer to get it lined up.

    The only treatment I have ever refused was yet another steroid, cortisone shot in my shoulder joint. I have already gone through 3 in a little over a year with zero improvement on any of them. I also had AVN in that joint once, so I said NO.

    People who refuse to try a treatment at all would be better off to get some help. Often they are misinformed or afraid of doctors, needles, etc, They don't believe anything will work, so they want pills to cover it up. I would hope that most will see the light of day as with many ills the pain meds only dull the pain and lead to other problems.

    Some people do indeed have no option. For those people I am not aiming at you. You have my deepest sympathy as I know what unmanaged pain is...
  • Excellent post Ron,

    I am 100% honest with my docs even if I know it's something they are not going to like. I'm not doing either one of us any good by lying. The only procedure I refused was the spinal decompression therapy because my chiro was doing this 3x's per week for about 3-5 weeks and it kept making the pain worse. I would tell him I don't want to do that under any circumstances but every time I went back he would try to put me on the maching again. This is when I decided to go to my primary to find out what my other options were cuz I've always gone to a chiro up until I got to the point I felt my chiro and I were not on the same page and he wasn't listening to me anymore.

    I can't see why anyone would refuse a treatment yet request pain meds. Isn't the whole point to find some kind of treatment or procedure to fix your problem to get off the pain meds? That's my goal anyway or to atleast be at a state where I am comfortable and able to function somewhat normal. I have come to the realization I will never be pain free, however, I will not settle for this excrutiation pain I've been in since the surgery. Today keeps jumping from 8-10.
Sign In or Register to comment.