I haven't posted for a while. I have been in a state of shock and denial.
My story in brief -
Unstable spondylolisthesis L5 on S1. Fused 2 years ago S1 and dynesys S1-L4. 16 weeks of bliss.
Then increasing pain on increasing mobility. This carried on to 12 months post op, delayed fusion and instability remained. So operation 2, fusion L5/L4 with BMP and fixed rods used.
This was very painful really from the off..I assumed it was the BMP and whole revision thing. I awoke with a numb right leg which no body took seriously so nor did I. I couldn't walk straight either, but again no-one was worried.
Pain continues and so did the symptoms in my right leg, until CT scan 6 months post fusion showed the BMP filled cage had slipped nearly 1cm into my spinal canal.
Well, at least now I knew I wasn't going mad and the pain was there for a reason.
6 months ago I had the cages at L5 removed. Severe nerve inflammation was reported.
Pain in back was controlled on 3 sets of pain meds for about 8 weeks and then slowly but surely returned. Pain is still cranking up, day by day.
Leg still numb, some weakness and pain in top of thighs (new)and pain in soles of feet (new)
So I go back and say "somethings wrong" have another scan that shows L5 pedicle screw has breached vertebra wall and is on nerves and that there is bone growth around the BMP cage placement in the spine canal. Almost a perfect square! but seriously, 2 bone spurs at 7mm and 5mm poking into my spinal canal and L5 nerve root.
So what to do??
Plan is that I attend pain clinic
) and attend spinal injuries rehab.
) Problem is, the more I move the worse this pain gets.
Oh and maybe remove the hardware in the future, but not now.
Doc thinks most of my problems are coming from the L5 nerve irritation from the slipped cage.
I am have now doubled all my opiate medication. Madness.
I am still in pain. I use heat but it is just not HOT enough.
I am actually worried that this bone spur thingy is going to keep growing and increase my pain!
I am actually really worried. I want to throw scolding water over my back to relive the pain and it scares me.
I jsut want to cry!!
Any input or thoughts would be appreciated as well as hugs!!